Anyone on just Taxotere and Cytoxan?
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Cat1 - I never had dandruff but I too used calendula cream and aloe vera on my head religously along with anything else I can get my hands on.
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Cora, thanks, that is helpful--and encouraging. I'll be very careful on those stairs
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It's starting to look like two months after the last chemo is the magic number for getting muscles and taste buds and everything else. Well, maybe not too much hair yet. Seems like a long time but after all the time we've invested already, I guess that isn't too bad. Just get anxious for normalcy. Ya know?
I never had any dandruff but I use either my face cream or Eucerine Cream on my head. It has stayed just lovely.
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holtbolt and all with the crazy taxotere reactions,
I have been out of the loop for about 10 days from tax 3 ugh!!! I wanted to let you all know with reactions that my onc put benadryl in my IV and it went much smoother during infusion, but when the benadryl wore off I had the same reaction only delayed about 24 hours....so next time I will stay on benadryl for a few days plus in the iv and hopefully that will do the trick. I am with you...no switching drugs, I just want this over with! My face and neck swelled up with the red face, racing heartbeat and tightness in my chest...dizziness and high bp for almost a week.
Here's to seeing light at the end of the tunnel!!! hugs to all.
Sue from fl
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SFlmomof3 and Holtolt -
Sue - ugh, good luck with the taxotere. Do you have just one more to go? My switch to Abraxane/Cyotxan went swimmingly. Its the same drug, just in a different transfer agent - water soluble, not a solvent which apparently is what we are all allergic to. The other new benefit was my total infusion time was about 2 hrs, and that was going slow with the Abraxane, so next time it will b shorter. Also, no Decadron. But I hardly miss it - - my #2 was yesterday and besides my head feeling buzzy yesterday afternoon/evening, I feel almost eerily normal today.
I probably would have pitched a fit if they had wanted to switch me to Adrimyacin too, but wasn't the case.
Abraxane is apparently relatively new, expensive and usually more of the norm for patients with mets. There are no studies using it for adjuvant therapy such as myself...but you'd think with all the people having the allergic reactions, that it might be better for all patients. Just saying.
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Since the price tag of the taxoetere about gave me heart failure when the bill came, I can't imagine what the abraxane is if its supposed to be so much more expensive they don't use it unless they have to
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I probably will be shocked to speechlessness, but what is the price of the Taxotere compared to the Abraxane? I had pain during the infusion, pain for about 5 horrible days and now that the pain is gone I have a rash on my hands. This is only after one tx of just taxotere. Can't wait for my last infusion! I will be done April 30---Hope I can finish and don't have to switch.
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Hi
I finished my LAST tx March 17th and made it through the 10 day grace period.
I am so excited to get this over with. I start rads April 1st. 33 rounds! But heard that is a heck of a lot easier. For some Taxotere and Cytoxan is doable. For me it was ( thank the good lord above) I feel for all who are going through and will have to go through this crap. You all are on my prayer list and i wish you all easy treatments. 0 -
OK........ anyone else have "burned" places on their hands? Looks like a burn... feels like a burn... even itches llike a burn...
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Call your Onco MOB. Could be just allergic reaction, could be the start of "hand and foot." Better check.
Piece of advice I got from my Onco nurse: You're going to be allergic to Taxotere (HAHA!) Treat it like that. I.E. I'm on Benadryl, Zyrtec and for the Neulasta, Claritin. All three have different ingredients so they don't interact. I've had rashes, swelling, blotches, itchy & watery eyes, the works. The Benny and the Z help. A ton. It ain't pretty, but it does keep me from losing it.
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Thanks webwriter for responding. I actually called the onc on Friday. My eyes were swollen, itchy and watery. In addition, I had the "burns" on my hands. Their suggestion -- go to the Emergency Room! I mean come on now... didn't seem to be a great suggestion to me. I had started the Benadryl... your response will get me to go back on it!
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i had my first of cytoxin and taxotere on friday. I felt pretty lousy by 24 hrs later, at 48 hrs i am feeling a little fluish. My dr gave me kytril to take for the nausea it worked ok but not great. I have muscle pain and bone pain. I am flushed like a sunburn. The first night i was kind of itchy around my neck and face. THIS SURE AINT FUN!! I am stage IV with mets to bones and liver. what about you?
we can get through this, i just know it!!
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MOB, glad I could be of help. I think it's utterly ridiculous that you were advised to go the ER over it. Sheesh. Just what we want to do when we're feeling like dog crap--make it worse in the ER! Hope the Benny's help. They make me sleepy, but I don't care much. Keeps me from inflicting myself on my family, haha! I don't know why more teams to advise about the allergic reactions and what to do with them. The Cytoxan attacks my sinuses (Zyrtec) and the Taxotere brings out every other reaction I could imagine (Benadryl.) With those, the lung meds, the anti water pills and the potassium, I might just get through this. One more to go, Thank GOD!
Lusianagal, welcome! Nope. Not fun. In my currently crashed state, I won't even say "doable." Survivable? Yup. We'll make it--and it's a lot easier with the support to be found here. Glad you joined us, but sorry you had to under these circumstances.
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webwriter, thanks for the kind words. this isnt fun, but its survivable. I just got my hair back to lose it again. im really tired of this. im having the worst cramps in my butt!! its almost funny but not quite!!
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Lusianagal, welcome, but sorry to see you here. I just finished my TC treatments. Webwriter and I figure between us we had every SE, and both of us had most of them. Survivable is probably the word that I would use too.
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MOB, I had the "burns" on my hands too. I mentioned it to my onc when I got it the first time (first round) and he suggested it might just be "dry skin" and to use a good moisturizer/hand cream! I did, and it helped (or so I thought). Eventually it went away. I noticed it again after rounds 2 & 3, but again, it went away. It was worst after my 4th and last round, but now (+4 weeks after), it's gone again for good ('cause I'm done!) Still waiting for hair sproutage, tho... leg stubble doesn't count!!! Hang in there!0
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And another thing, MOB, I had the watery eye thing too... It too went away on its own... Very annoying while it lasted, but like everything else, for me it was temporary... The ER advice seems a bit extreme to me too, but ya gotta do what makes sense to you...
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lusianagal... Survivable is a good word to use for all of "this"...
webwriter and Snowbird... Thanks for the suggestions. It at least helps to know the burns on the palms of my hands isn't some unknown SE. Yeah, I thought going to the ER was very extreme. Obviously, I didn't. I'm using Aquaphor on them now at night and it seems to help.
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I agree that ER suggestion is a little extreme but again, you gotta do what's right for you...
Snowbird - just noticed sproutage on my legs!! Sort of osprey like hair but something to look forward to. I am still shaving those stragglers on my head until I see real growth. Just wish my brows and lashes would come back - I am hanging on to the few lashes I have left for dear life
The Arimidex is reeking havoc on my arthritis - I hope I am not getting depressed. Lipstick, earrings and a smile.... Have a good day all.
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bobcat... Do you shave the stragglers with a regular old rayzor?0
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lusianagal--your butt?!? OMG! Now that sux! And hey, you found a spot where neither kmmd, nor I have had it! Congratulations? I've got cramping and spasms in my eyes and legs, but my butt is holding it's own. **insert eye roll chemoticon wearing a survivor buff**
MOB--how are your hands & allergy SE's today? I'm using Eucerin and it does seem to help with all but the neuropathy.
Snowbird--it's encouraging to hear that you're coming back, along with Firini, nelia and others. I was really looking for some hope in here today. Thank you for giving it to me.
Bobcat! Sproutage! Cheers!
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I am on day five of my last TC treatment....it was a rough weekend. Not that I felt soo bad. Mostly the emotional dark side that stinks. I had to go out yesterday and felt like a clown getting ready.....I was not in the mood for the wig...my face felt plump and red....my clothes were hanging from losing a couple of pounds..my foobs...well....they're just silly!!! It put me in the dumps and had to hold back the tears all day. As soon as anyone talked to me I felt like I might bust out in tears.
The good news is that it has passed!!!! I can not believe I am done with chemo......
I still fell a little weak...but I can get through this!!!
Can I just shout one more time.....I AM DONE!!!!
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webwriter... Much better, thanks! I have the Eucerin ready as well if the Aquaphor doesn't work.
alo123... WOOOOO HOOOOOO!!!!!!!!!!!!!!!!!! Absolutely great, wonderful news!!! It puts a smile on my face!
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Alo! You just blew it out of the water for me! OMG! Congratulations!
DONE! DONE! DONE! DONE! DONE!
*webby attempts a chemocrashed, darkling induced happy dance**
Shout it from the rooftops, Baby! I'll echo you from halfway round the world!
ALO IS DONE!!!!
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CONGRATULATIONS ALO123!!!! It is a wonderful feeling! I wish all of you ladies a wonderful Monday without SE's.
6 weeks after last TC and my hair is starting to sprout but my eyelashes and eyebrows are going quickly. My eyelashes look like my hair did right before it fell out. Just sad looking. Yck!
I guess it could be worse. I could just stay this way!
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woohoo ALO!!!!!!! CONGRATS!!!!
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I'm humbled by the support....and cheering on my fellow sisters!!!!
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Swest - my lashes are doing the same thing! Lost the brows long ago but I'm an expert at drawing them on now - lol.
Alo - CONGRATULATIONS!!! But I know exactly how you were feeling this past weekend. That dark side hit me like a ton of bricks after my last chemo - couldn't get my "look" together, cried on a dime... I think it was just that final letdown after being so caught up with keeping it together throughout the treatments. But you are DONE and hope each day gets better...
Regarding the stragglers - yes a fresh, new razor to keep it all smooth and then some good lotion. Just be careful not to knick - I just go slowly. Everything is taking a little longer these days. Some days just worn out of putting on the face
. Can't wait for spring and summer to finally wear something pretty and maybe even a little sexy.0 -
Hi everyone,
I am lying in bed waiting for the doctor to call me to see if I need to come in for blood work due to a sore throat, fatigue and fever...i also think I might have a kidney infection...ugh!!! does anyone else feel like a hypochondriac????I hate calling the doctor but I have had to 3 times this cycle alone...just so frustrating. Put me on the list for every symptom in the book and a few extras!
When do your eyebrows/eyelashes fall out?Mine are thinning and I am hoping that they may stay????with a little glue stick maybe???
it is the only thing that makes me look like I am going to live through this!I am SO HAPPY for those of you that are finished. I pray that you will NEVER have to go through this EVER again, and that God brings you back to health quickly!!!!
Oh, pet peeve of the moment...people who comment on how quickly my treatments have flown by!!!! UGHHHHHH!!!
Love to all.
Sue from fl
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Sue - I am so with you on the pet peeve!! Makes me want to scream.
I hope you are feeling better soon and that there is no kidney infection. Its like the treatments and SE's aren't enough to handle. Take care.
Bobbi
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