Anyone on just Taxotere and Cytoxan?
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Lisa... Very sad about that young man. My son and I talked about it... the ONLY consoling thought is the hope that he died on the happiest day of his life. Extremely sad. I cannot imagine the pain both families must be suffering.
Can we vote more than once?
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Mom of Boys - you are right....he had just pitched an amazing game and was SO HAPPY! that is a consolation of sorts! I read that he was an only child....heartbreaking!
I'm not sure how many times we can vote.....but if you're up for it, I'd love if you could have your family and friends vote! I'm in 4th place now out of 60+ Dodger entries. I just entered the contest yesterday but have been hitting up everyone for votes LOL!
On the rules it says judging is by essay AND popular vote. I like my essay and I'm trying to do all I can to advocate for breast cancer patients....so hopefully that will stand for something!
thanks so much for your vote(s)
Lisa0 -
Mom of Boys - I had my DH check the rules (he's an attorney and likes to read fine print LOL!)
anyway, he thinks you can vote more than once! so, vote away if you have time! i'd love it!
thanks so much!
Lisa0 -
Lisa......I voted.
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rqd817 : I had expanders and kept filling during chemo. I just didn't fill the week after a dose when I was usually too sick to get in the car and get to the PS. My PS wanted at least 8 weeks after the last fill and after chemo ended before the exchange, so I just timed my fills to end as chemo ended.
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Lisa - I voted and will vote again and again for you! That's great, we want you to win!
RQD817 - good luck with your treatments. I'm got 2 out of 6 under my belt and I've done real well so far! Some SE but nothing major so far but I know it's coming. This site is the greatest, it's really helped me prepare and I believe helped me keep some SE to a minimum because of others experiences.
Hope everyone has a good day!
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Just voted for you lisalisa. Good luck!
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Renee, Cat and Ann,
THANK YOU for your votes!!!! The contest ends tomorrow (May 1st) so I'll know soon if I won. I'll be celebrating HERE if I did win! THANK YOU again!
Lisa
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rqd817- I also am having TCx4 while I have expanders. You are about 5 weeks from surgery -- I found that my pain from the TEs dropped dramatically around the 6th week - so for my first chemo, I was still a bit sore and sleeping on my back, but by the 2nd chemo (last Friday), all that pain was gone and I can sleep on my side. The neulasta shot didn't seem to bother me either (had it in the belly, and did take ibuprofen after). So the experience is probably very individual, but having the TEs shoudn't by themselves be a problem (and I was really amazed at how the pain from the surgery and expanders just kind of dropped away at one point -- before that I was popping ibuprofen round the clock). My surgeon did say that any additional fill (or removal!) would need to wait until at least 3 weeks after chemo.
Good luck -- as several have commented already, the anticipation is worse than the treatment for many of us.
Alice
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Lisa... I voted once here at work and once at home. I can't seem to get it to let me vote again on my work computer...0
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Thank you all for your helpful insights. I'm glad to hear that the TE will bring me any additional discomfort. I look forward to the day I can sleep on my side again. I will get a 50-100 cc fill tomorrow and then will wait after chemo to fill again. Unfortunately I will have to have hysterectomy after chemo so hopefully by Christmas time I'll have the exchange.
Hmm.. I can hear in my head what my fav christmas song will be... All I want for Christmas is my 2 front foobs.
Firni - I'm doing much better with my TE, I was surprised how one day there was just no more pain like Alice said. The discomfort is there but it's almost just as if you have on a very tight bra.
I'll let you guys know how my first round go.
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Happy thursday afternoon, everyone. Well, I am scheduled for two stat tests tomorrow regarding the port issue - my onc thinks I either have a clogged port (let's hope and pray for that one) or a blood clot - so I am getting a chest CT scan w/contrast first, and then the port test. I took an ativan to keep me calm so I don't let my thoughts race all over the place about a clot. If it is a clot, I'll be admitted to the hospital so they can treat it right away. Hopefullly it is just a clogged port and I can schedule it's removal soon.
My onc agreed with me 100% that stopping treatment is the right choice for me, given the way my body is reacting to everything with secondary side effects occuring every time, and getting more serious. He was such a sweetheart and even gave me a hug. His main concern is finding out as quickly as we can about the clog vs. clot and getting that resolve - he is on call this weekend, which is wonderful, especiallly if I end up in the hospital.
So, even though I will no longer be getting treatments, I am still dealing with side effects that are hopefully not serious. I'll keep you posted as soon as I am able to! Ladies, if you are having any kind of pain / swelling / tenderness near or around your port area, report it to your doctor immediately. Even though I did, and was seen by an IV nurse, she should have sent me for a test, (so says the onc, who was at their other office the day I stopped by) or consulted with one of the doctors at the office that day, and they would have done all of the diagnostic work already.
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chelev... WOW. We'll definitely hope and pray for the better of the two possibilities. Hang in there!0
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Good luck to you Chelev. I hope you get this resolved quickly!
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rqd817 I would go slower with the expansions. I was expanded 60 cc's each time and that was very comfortable. 100 cc's is a lot and many women have had a lot of pain with that much at one time. Altho, some do fine with that much. Also, I was able to lay at a 45 degree angle. You'll know if 50 or 60 cc's is enough if you aren't laying flat. I know woman who have laid flat and felt fine with a large fill until they sat up. Then they had pain. I'm glad the discomfort is more tolerable right now. Do you mean you'll get another fill after chemo is all done or after a treatment? My PS would do a fill 1-3 days before a treatment when my white count was at it's highest.
Chevlev, how far into treatments did you get? What will you do now? I sure hope it's your port that is the problem. Blood clots are too scary!! Good luck tomorrow.
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thanks, ladies!
Firni - I had just done treatment #2 on thursday and started getting the port issues by Friday night. I sure hope that is the case too - and then we can schedule to get it out as quickly as possible.
I am already on the schedule for radiation at my lumpectomy site and then will go on Arimidex or something for post-menopausal (I'm 46, but surgical menopause) women due to the Estrogen/Progesterone positive status. The chemo was to decrease my Oncotype score from 18% to 10% and was my initial choice, but seeings how things have started to sour out, I'm really happy with my decision.
Fingers and toes crossed - port problems, port problems port problems!!
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chevlev, I'm glad the chemo was more or less optional. A score of 18 is in that grey area. It certainly isn't worth the SEs you've had with chemo. Everything is crossed for port problems!
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Lisa - Voting for you right now. Hope you get your dream. I grew up listening to the Reds on Grandpa's radio, Dad loved the Mets and now my Mom lives for the Yankees!!
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Thanks, Bobcat! I'll let you all know if I win! appreciate the vote!
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I'm trying to vote more than once!!
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Bobcat, if you clear your browser and start over, you can vote again! or try another computer. i voted from all 3 computers in my house LOL!
thanks for the effort!
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Firni - Thanks for the tip on the fills, I will surely keep that in mind. The first fill I had was at week 5 after surgery and it was 100 ccs and I seemed to have tolerated that fine. But this week we'll see how it goes. My PS don't want to do fills in between chemo and my Onc agrees so I have to wait after chemo to see if I need more fills or do the exchange.
Have a great night everyone!
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lisalisa, I put in my vote for you and I'll try to get some more in tomorrow as well. Best of luck.
chevlev, hope all goes well and the port was the problem. Make this a problem of the past.
Had TX 5 yesterday so only one more left. Reading the book, Cancer is a Bitch by Gail Konop Baker. It's a quick read, done well. Just got it yesterday but it definitely hits the reading itch at this point in life. Just changed my avitar, spiced it up a bit. Trying to do a huge garage sale at my house this weekend, just need the weather to hold up. I'm on a kick trying to rid my home of excesses. My more is less philosophy is inspiring me. I don't feel the need to hold on to so much and love the sparse declutter look in my home. Happy and healthy May to all.
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suzmarks - thanks for the vote(s)!!!
congrats on getting thru TX5! I also has 6 treatments...and just finished 2 weeks ago. You're almost there!
can you send some de-cluttering energy my way? i need to do it so badly. maybe after this weekend....before i start rads and get tired all over again!
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lisalisa, voted for you. will go back and vote again and again!!
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lisalisa got ya again, today is the last day to vote, correct?
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Congrats to those finishing or almost done.
Chelev, hope the port issue clears up quickly for you. I think from the sounds of things you and your Onc made a good and brave decision.
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Today is the last day for votes....so vote away! and, THANK YOU!!!! truly....thanks so much!
Lisa
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Hi all - just wanted to report that the CT scan of my chest/lungs showed no clots, and the port-a-gram showed the port is fine. So, that's great news - although still weird about the pain and swelling. My onc says it's just another in the line of the "different" side effects I have, and that we definitely made the right choice to stop treatment. Have a call in to the breast surgeon to get an order written to get the port out within the month (sooner, if possible), so I don't have to have it flushed again or anything else. My onc called me personally to reassure me all is fine - my bloodwork is perfect and everything. My husband and I are convinced the port is trying to get out by itself!!
Still having the coughing from the Neulasta shot last Friday, this stuff really doesn't agree with me, although the Claritan for bone pain really worked well, the coughing doesn't let up. Anyone else deal with that particular side effect?
Good luck to everyone who had treatments this week - and I hope you all feel well - no wicked side effects! I am feeling pretty good, but the roof of my mouth still feels strange, different textured almost, and I still don't have great feeling in my fingertips. Energy level is getting better.
Now, how do we grow our hair back???
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Starting Monday on T/C. My onc has me scheduled at 1:00 pm for an infusion once every three weeks. Any body here on that regimen? I wonder if this the usual? It seems to me some of you are talking about daily. I hope he's not giving me a weak program or too strong a dose! He did tell me that this would be a short course for four months and that T/C is proving to be very effective and cardiac friendly for someone my age, 65. We had talked about CMF but he wanted me to get a better result in risk reduction. CMF takes longer, has less SE, but it reduces my risk by only 2 percent, where this will lower it by 4 percent. I wouldn't be taking chemo if it weren't for the fact that so much time wasted for me to get in, get surgery, get second surgery and it turned out to be a grade 3 aggressive invasive cancer. I had decided on not getting chemo and going straight with rads, but there was a nagging feeling that i could not rid myself of that i must do everything to ensure my chances as much as possible. So i chose to do the chemo....!!!
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