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More Tips (and a Shopping List) for Getting Through Chemo

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Comments

  • clj57109
    clj57109 Member Posts: 4
    edited June 2016

    Thanks so much for the information, I'm not on the computer as much as I would like right now because the fatigue with the chemotherapy is intense. I did get the indigestion under control, the MO ordered some medicine to help with it. I have had two infusions so far and other than the fatigue I have been managing the side effects quite well. I do drink water all day long so hydration has not really been an issue for me so far. I was also diagnosed with a gallstone when they did my scans, that has been an issue with what I've been able to eat, my MO also forbids fresh raw fruit and veggies right now due to bacteria. With that being said, my diet has been very limited. I'm definitely learning to eat healthy right now. I appreciate all the support that this thread brings and all the research and suggestions that people offer. It's so important to educate ourselves with others who have already experienced what we are going through. Doctors read about it and study it but it is a whole other education when you survive it.

  • clj57109
    clj57109 Member Posts: 4
    edited June 2016

    Thanks so much for the information, I'm not on the computer as much as I would like right now because the fatigue with the chemotherapy is intense. I did get the indigestion under control, the MO ordered some medicine to help with it. I have had two infusions so far and other than the fatigue I have been managing the side effects quite well. I do drink water all day long so hydration has not really been an issue for me so far. I was also diagnosed with a gallstone when they did my scans, that has been an issue with what I've been able to eat, my MO also forbids fresh raw fruit and veggies right now due to bacteria. With that being said, my diet has been very limited. I'm definitely learning to eat healthy right now. I appreciate all the support that this thread brings and all the research and suggestions that people offer. It's so important to educate ourselves with others who have already experienced what we are going through. Doctors read about it and study it but it is a whole other education when you survive it.

  • minustwo
    minustwo Member Posts: 13,398
    edited June 2016

    clj - I hope you'll join a current chemo thread. Probably called spring or summer chemo 2016. I found it very supportive to follow along & share day by day with other women going through the same "torture". And I learned a lot from reading the chemo treatment thread just before the current group. Hope things will get easier.

  • minustwo
    minustwo Member Posts: 13,398
    edited June 2016

    clj - below is a june thread. You can find May or Spring in the active thread list.

    https://community.breastcancer.org/forum/69/topics...

  • Eden_E
    Eden_E Member Posts: 1
    edited July 2016

    HI ALL, I'M NEW DX 5/2/16. I start chemo 7/11/16. I read before there is a chemo group by month. ANY help tia!Smile

  • moderators
    moderators Posts: 8,744
    edited July 2016

    Hi Eden, welcome to Breastcancer.org! There are 2 July chemo groups, see below, and feel free to join there too!

    Topic: Anyone starting chemotherapy in July?, in the Invasive Ductal Carcinoma forum

    Topic: Anyone starting Chemo July 2016?, in the Chemotherapy forum

    The Mods

  • minustwo
    minustwo Member Posts: 13,398
    edited July 2016

    Eden - the chemo groups that are going through the same thing you offered wonderful support. Also this site has great ideas in the long header even if you don't read all 58 pages. Good luck.

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited July 2016

    Best of luck to you, Eden E. You will find the header chock full of helpful suggestions for getting through chemo ~

  • Lindzanne
    Lindzanne Member Posts: 32
    edited July 2016

    I just want to say how amazingly helpful this list was in getting me through my first round of chemo. I used it well before my first infusion because it gave me something to do and a sense of control and preparation and it was SO HELPFUL to have all my supplies all lined up the day I got home. I've bounced back quite a bit but did not tolerate the AC as well as some those first 5 days and so many things on this list got me through it and I'm sure will continuse to. So, for anyone that needs help finding out what to get or something to do to get their mind occupied and gain some control, THIS IS the list and thread. Many many thanks to all who have contributed to it.

    Lindsay

  • minustwo
    minustwo Member Posts: 13,398
    edited July 2016

    Lindsay - Glad you're doing OK.

    I finished chemo in 2014. I too appreciate the sense of control that the ideas & lists on this thread gave me when everything else was crazy. I'm so glad that Nico keeps bumping for the new "members" who might use this advice.

  • lala1
    lala1 Member Posts: 974
    edited July 2016

    I have been following this thread since March when my best friend was diagnosed with BC. Hers comes 3 1/2 years after mine. We have the complete opposite...I'm ER/PR+ and HER- and she's ER/PR- and HER+. I didn't have to have chemo or rads and she may need both. She's already had chemo first. Just finished her last infustion about a week and a half ago. After much deliberation, she will be doing lumpectomy next. Once she's done that and seen if she's node + or -, she may elect to have rads then or move on to a mastectomy. She's not much interested in the medical side of all this whereas I'm a researcher/Googler through and through. Which brings me to why I'm here. She's asking what supplements she should be taking now that chemo is over. I've suggested turmeric, Vit D, multi, probiotic, calcium, magnesium, Biotin, possibly B vitamins....all of which she should run by her docs of course. She's got to do Herceptin for a year and rads may interrupt this plan but really I just wanted to see if anyone had some tips/tricks to boosting chemo recovery. She had her last dose delayed a week cause her WBC was so low and she's always been very thin so I really want to help her get healthier before the next phase. TIA!!

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2016

    Bump

  • WenchLori
    WenchLori Member Posts: 1,027
    edited August 2016

    Chemo infusion #1 done! Everything has gone very smooth. The pickle juice is the bomb!! I sipped as they flushed and no metallic taste. I'm homeward bound!

    The "Red Devil" is already going out the other end! Very pretty pink pee lol

    I left with the nulasta pod on the back of my arm. It makes me jump when it sticks me. No one mentioned this little jewel to me before today. One step closer to being done with chemo. It sounds better that way instead of 15 more treatments to go! 😊

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited August 2016

    bump ~

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited September 2016

    Bumping for the newbies ~

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited September 2016

    bumping !

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited October 2016

    Bumping for Stephanie ~

  • THDailey
    THDailey Member Posts: 5
    edited October 2016

    I started chemo Sept 2016 and go to my next one next week....this list is wonderful and very much needed for my next trip on chemo. I wish i had it my first time around but oh well. I am 14 days out and my hair is coming out like crazy so going to shave it tomorrow. Not sure if I am a wig person or a scarf person but will figure it out very soon! Good luck all you warriors!

  • minustwo
    minustwo Member Posts: 13,398
    edited November 2016

    Bumping

  • sensitivehrt
    sensitivehrt Member Posts: 310
    edited November 2016

    THDailey-I got a bunch of buffs off of Amazon.  You can wear them on your head a few different ways, plus they are cheap and have a variety of colors and patterns. Cover the head well.

  • KLNiss
    KLNiss Member Posts: 10
    edited November 2016

    Thank you for this! I can tell I will be revisiting this post many times. also, as a newbie, I can't figure out how to get my dx info at the bottom of my posts. Can anyone help me with that? Thanks you - Kathy

  • moderators
    moderators Posts: 8,744
    edited November 2016

    KLNiss, Welcome to our community. Hope this helps!

    How do I get my diagnostic and/or treatment information to show in my posts?

    If you'd like your diagnostic and treatment information to show in your post signature, you need to fill out your profile with all the diagnostic and treatment information that you know. Once you've filled it out, you can go to the Discussion Boards and click on Settings in the blue left-side navigation. Scroll down to the Treatments & Diagnoses Privacy Settings, where you'll see your information as you've entered it. Click "Change to Public" to make the information public in your post signature (it defaults to private). You can switch it back to private at any time.You can see how your information will appear in your post signature in Settings under "Signature Preview."
  • minustwo
    minustwo Member Posts: 13,398
    edited November 2016

    So OK - bumping again. It was so helpful to me.

  • Nico1012
    Nico1012 Member Posts: 1,152
    edited November 2016

    Bumping for the newbies . . .

  • [Deleted User]
    [Deleted User] Member Posts: 3
    edited November 2016

    Good morning.

    I am the youngest daughter of three and we are all trying to pull together to pay for my moms next round of chemo. Please visit the link below. Have a blessed day.

    https://www.gofundme.com/n6-my-moms-medical-fund

  • aterry
    aterry Member Posts: 142
    edited November 2016

    lala1, I wondering what vitamin protocol you ended up recommended to your friend? I think you're very dear to help her with research. I consulted with a couple of drs before starting treatment. One recommened: Vitamin D 2,000IU, B-Complex 100mg, Vitamin C 1000mg, VitaminE 400IU. During chemo my MO wants me only on the D. She said the others have not been tested to determine interactions with chemo drugs. When I finish chemo I'll check with her to see if I should go back to all 4.

  • Lita57
    Lita57 Member Posts: 2,338
    edited November 2016

    Aterry, very smart of your onc. I'm not supposed to be taking anything but D3 on my chemo cycles, too (I'm on Xeloda pill form...7 days on and 7 days off). During off weeks, I can take B6 and B complex.


  • minustwo
    minustwo Member Posts: 13,398
    edited November 2016

    I was told to stop any antioxidents during chemo (A, C, E) because they compete with the chemo. Those are trying to build up cells & chemo is trying to kill cells. For the surgeries I had to stop Omega 3 fish oil because it's a blood thinner. I increased my D-3 and kept up with my Centrum Silver & Citracal with D and B-6 and B-12 & Biotin.

  • Lita57
    Lita57 Member Posts: 2,338
    edited November 2016

    Minus two...that's exactly what my MO said too. No antioxidants whatsoever. We want to kill the cells, not help them grow :0).

    Lita


  • Nico1012
    Nico1012 Member Posts: 1,152
    edited December 2016

    bumping for Whitney . . .