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Exchange City

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Comments

  • Shoregirl
    Shoregirl Member Posts: 338
    edited April 2017

    Farmdream, that's great, only 6 weeks!! You will sail through that!! My PS was so busy I initially was scheduled out 10 weeks, I was so disappointed! I wanted to be recovered for my fiance's birthday, but surgery was just one week prior. So now my wait is 8 weeks. I will post my progress. Thanks for the kind words!! 😊

  • Imkopy2
    Imkopy2 Member Posts: 214
    edited April 2017

    Shoregirl that's WONDERFUL news...Im 3 weeks post op and Im doing really well. Everything up top is still pretty tight (my PS put in implants larger than he expanded me) but not nearly as bad as those turtle shells. The exchange is no where near as bad as the masectomy and the recovery is pretty easy. The key is listening to your surgeon for optimal results. The 25th will be here before you know it...Ill be thinking of you! hugs

  • Madison4568
    Madison4568 Member Posts: 44
    edited April 2017

    I am having nipples done on 4/10. I plan on going to work the next day ( I have a desk job, engineer). Can anyone tell me how long before I can exercise? I joined Orange Theory and have had great success losing weight and getting myself back in pre-cancer shape. I was originally told no restrictions except no bra the first week. Now the surgeons office is telling me no exercise for four weeks!! Can anyone please tell me what my limitations are going to be?

  • Molly50
    Molly50 Member Posts: 3,008
    edited April 2017

    Congratulations, Shoregirl!

  • Imkopy2
    Imkopy2 Member Posts: 214
    edited April 2017

    Madison- Believe me I hear you about th workouts helping you get your figure back. Ask your surgeon, you don't want to mess things up. I know it's frustrating not being able to shed pounds(I've lost half of my 36 lb chemo weight) but screwing up your final results (reconstruction is our daily reminder of this horrible disease) because we're in a rush to lose those extra lbs is foolish. Please keep us posted hugs

  • Leslienva
    Leslienva Member Posts: 343
    edited April 2017

    I was told to not take my aromasin a week before fat grafting. Has anyone been told this? The nurse says it can cause more bleeding, but I never stopped taking it before my exchange surgery,

  • Molly50
    Molly50 Member Posts: 3,008
    edited April 2017

    I stopped it before my mx but kept taking it before my exchange surgery.

  • trmtab
    trmtab Member Posts: 869
    edited April 2017

    I was originally scheduled for an exchange on Dec 28th and had to cancel at the last minute...but I was off Arimidex for 2 weeks in anticipation of the exchange.

  • robinblessed54
    robinblessed54 Member Posts: 485
    edited April 2017

    I was in between meds trying to get one that worked for me so I was off of hormonal therapy until after my exchange. I had not started any hormone therapy at the time of my bmx. I have heard of this on the boards before.

    Robin


  • Scottiemom11
    Scottiemom11 Member Posts: 1,072
    edited April 2017

    I had to stop Tamoxifen before more exchange and before my revision surgery two weeks ago. It may depend on the surgeon as to whether they tell you to stop.

    Scottie

  • Madison4568
    Madison4568 Member Posts: 44
    edited April 2017

    Thank you Imkopy2. I do always follow the rules because I want the best possible outcome! When I saw the surgeon he said no restrictions just no bra for a week. So I didn't plan on missing work (new job) then the surgeons office staff told me 4 weeks of no exercise and two weeks off work. That seems extreme for nipples. I've been down 6 weeks at a time for the last few surgeries. It's sofrustrating! Hugs to all of you going through this! <3

  • Molly50
    Molly50 Member Posts: 3,008
    edited April 2017

    I saw PS today. 4 more weeks of restrictions and wearing the sports bra. Then I see him and he will release me to my "normal" life and wants me to wear a underwire bra to create the "shelf" below my foob. Righty is already trying to drop but lefty (my radiated side) is holding tight. He hopes lefty will loosen up and drop with righty. I really hate the idea of not being symmetrical. I don't want to have to forever wear a bra to not look lopsided.

  • Imkopy2
    Imkopy2 Member Posts: 214
    edited April 2017

    Madison that seems easy enough...hell I didn't wear a bra for 11 months while i had expanders lol! I missed it but then again I didn't. Wishing you a successful nipple build. Looking forward in hearing about your experience that's my next phase in June.

    Molly that's so interesting about how things are working out for you. Im the total opposite, my right side is slowly starting to fall which is my radiated side and my left is kinda hanging out. However, my left side is much softer than the right. There really is no rhyme or reason is there. Keep me posted on your progress and I hope everyone has a great weekend.

  • robinblessed54
    robinblessed54 Member Posts: 485
    edited April 2017

    I wore a sports bra 24/7 for 6 weeks per PS instructions. But Zi wore a bra for st leadt a year and still feel better when wearing a light bralette. I don't wear one at night now. It has been 2 years.

    I got the 3D nipple tattoos abd they are amazing!

    Robin


  • Molly50
    Molly50 Member Posts: 3,008
    edited April 2017

    Robin, that is good to know.

  • Scottiemom11
    Scottiemom11 Member Posts: 1,072
    edited April 2017

    I'm planning on the 3D tattoos. Hopefully before end of the year if PS gives the OK. Thought about getting on Vinnie's list but need to do it under insurance.

    Scottie

  • Shoregirl
    Shoregirl Member Posts: 338
    edited April 2017

    Thank you Imkopy2, I am happy to hear you are doing well following your exchange!! I am getting excited!! The PS said I will have drains again though, ugggh!!

  • RoseBowl16
    RoseBowl16 Member Posts: 6
    edited April 2017

    oh mine is the 26th! I had a double Mastectomy January 11 with immediate reconstruction. I have not enjoyed the tissue expanders. The left side has shifted under my armpit and made me very uncomfortable. All of this has made me wonder if I should have explored other options like direct to implant. But, that is in the past and now I am very happy to be getting these thing out. Friends who have had this exchange tell me the implants are so much more comfortable. I had a reduction DMX so I have big scars under my boobs and up but they look pretty good. I want B small C size after being a DD! I have my. Pre-op PS appointment tomorrow. Nervous and excited to hear what's ahead. Good luck on the 25th! Next stop nipples! ;

  • RoseBowl16
    RoseBowl16 Member Posts: 6
    edited April 2017

    I have my exchange surgery in 2 weeks. How does the surgery compare? Please tell me that the implants feel better than these expanders?!

  • Scottiemom11
    Scottiemom11 Member Posts: 1,072
    edited April 2017

    Rosebowl16. . .implants are definitely better than TEs. That's why we call them squishies. Best wishes for a swift recovery after your EX.

    Scottie

  • Leslienva
    Leslienva Member Posts: 343
    edited April 2017

    Madison, I've had several friends say they only needed a day or so recovery for nip recon. How are you doing? I have mine on Wednesday, with some fat grafting, so I'm hoping I don't have to have too much down time.

  • agentlmiller007
    agentlmiller007 Member Posts: 2
    edited April 2017

    Can someone point me in the right direction, perhaps a link? I recall reading a post somewhere a bit ago about some of the ladies on this forum being a guru for implant sizing questions. I had a bi-lateral nipple-sparing mastectomy and have TE's currently. (Not sure what type) My PS said he'd like to fill them to about 220cc and is hoping to go with a 185cc implant. I'm 28, 5'2'', 100 lbs soaking wet, and very fit/athletic. He put it under the muscle and added alloderm... and had to stitch something directly to my chest wall in the center. Pre-surgery I wore a 32B and just barely filled out my cup. (If i measure my ribcage under my boobs I think i'm more like 28")

    I would prefer after surgery not to be much bigger, but my PS told me "they don't even make implants that small" ...I'm very concerned about not being too big after! I'm used to my previously almost-flat chest and liked having small boobs.

    I wish he could show me a picture of what to expect after, but he said he didn't have any for someone my size. He also said today he'd like to go with a round implant...which initially I thought we'd go with a teardrop shaped "gummy bear" implant. Can anyone let me know how this is sounding like it'll end up? I'd love to see photos of a similar situation of what to expect to end up with. So not even necessarily of someone who had implants/reconstructions, (although that'd be awesome!) but it could just be a regular boob picture of "you'll look something like this". I also have some photos I found of what I'd LIKE to look like after if that helps at all.

    Thanks in advance!

  • minustwo
    minustwo Member Posts: 13,356
    edited April 2017

    agent - here you to. Breast Implant Sizing 101. Whippetmom is our guru. You can copy your post from here, but be sure to read the complete header and add any other information that is requested.

    https://community.breastcancer.org/forum/44/topics/746448?page=473#idx_14185

  • Madison4568
    Madison4568 Member Posts: 44
    edited April 2017

    HI Leslienva,

    It was an easy surgery. I haven't even taken Tylenol. I have a little feeling on good side and still no pain. They do look HUGE. My surgeon said they will settle way down. I am a hypertrophic scar former so I highly doubt mine will flatten out but hopefully they will at least a little bit Good luck on Wednesday! Let me know how you're doing.

  • Imkopy2
    Imkopy2 Member Posts: 214
    edited April 2017

    Rosebowl- I had my exchange on 3/8, before that I had my beloved turtle shells for 11 months. I can honestly tell you that you will be much more comfortable immediately after surgery. Granted my chest was tight, my PS put in a larger imaplant than what I was expanded to but at almost 5 weeks post op its a totally different situation than the awful expanders. My left side is loosening up nicely and my right side is getting there. I had rads on that side and I feel like my right side is currently as soft as my left side was the day of my exchange surgery. Hopefully that makes sense. I will keep you in my prayers, Im sure you'll do awesome! Hugs!

  • Imkopy2
    Imkopy2 Member Posts: 214
    edited April 2017

    Madison thank you for sharing, that is my next phase in June. Leslienva, good luck to you, please share your experience...Ill say a prayer for you.

  • Leslienva
    Leslienva Member Posts: 343
    edited April 2017

    Madison, do you have the "nip shields"? If so, how long do you have to wear them? Do they poke out from your clothes?

    Imkopy2, thanks! I'll report back. I'm more worried about the fat grafting than the nip recon.

  • Madison4568
    Madison4568 Member Posts: 44
    edited April 2017

    No nipple shields. Just a compression bra for 3 weeks with the nipple area cut out of it, a very interesting look lol. They told me to put nothing on them. I am going back to work tomorrow so I am going to wear loose shirts with a scarf over my chest.

  • Leslienva
    Leslienva Member Posts: 343
    edited April 2017

    I can just imagine what these "shields" look like. The nurse said similar to a small hat!!

  • Madison4568
    Madison4568 Member Posts: 44
    edited April 2017

    I had my nipples done 3 days ago. They bled for quite a while after. 24 hours after surgery the one on my LD flap started turning black on the edges and was bright red on the top with a fluid filled blister which kept popping and oozing. I ent to the ER as directed by the doctor on call and it was a complete waste of time. The plastics resident on call had no idea what was happening, I had no more answers than before I went there. I was worried I had an infection. I called the surgeons office the next day. The nurse said the nipple is trying to establish a new blood supply and the skin on the surface is dying and that I could lose the nipple. Has anyone had this happen?