Can we have a forum for "older" people with bc?
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petite1: Sorry to hear about your DH's presistent cluster headaches. Being awakened at 3:05 in pain is not fun and I hope he can find relief soon.
Nonni: Welcome and I lurked for quite awhile before I ever posted but so glad I finally worked up the courage to do so. It has been such a help to be understood and supported by those who post here. I had no one to talk to about my concerns and was very selective about those I disclosed my dx to due to knowing how they reacted to other personal news. Did not need to deal with snarky remarks or their dysfunction and that is not present here. Hope we can help you as well.
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Nonni2015 - sorry to hear about your reoccurrence. Sending you prayers and healing vibes.
I hope everyone has a pleasant day. We’re starting to hear the sounds of the 17 year cicadas. They should be out full force in the next week or so.0 -
No pain that we suffer, no trial that we experience is wasted. It ministers to our education, to the development of such qualities as patience, faith, fortitude and humility. All that we suffer and all that we endure, especially when we endure it patiently, builds up our characters, purifies our hearts, expands our souls, and makes us more tender and charitable, more worthy to be called the children of God . . . and it is through sorrow and suffering, toil and tribulation, that we gain the education that we come here to acquire and which will make us more like our Father and Mother in heaven. -Orson F. Whitney
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Noni 2015, count me in as sorry to hear that you are having a recurrence. You are MOST welcome here. It is a small portal on this forum as our group is not super-sized and we all do care so much for each other. I hope you can find whatever comforts and solace you may need as you move forward now.
Betrayal, how did I miss your lurking, then giving us a try and finding it fit for you. Sigh !!! Maybe it is really true your head ( brain ) can only hold so many facts and if you can't figure out how to remove the old non-fitting facts some of the NEW ones might be mis-placed which is my euphemism for possibly forgotten.
Petite, I'm sorry to hear your Dh is having to still experience the bad headaches. I so hoped ( knowing you and everyone else did too ) that you and Dh might finally have found a good solution. I don't recall if you might have mentioned that maybe there is a time period while the body gets used to new meds and maybe then better medication results could be expected. Yes, I'll admit it. I asked that question because I was so surprized by what I forgot about Betrayal.
Carole, I am happy your Governor was able to hold the line for so long. I think the pressures must be so great. I hope MOST people will stay watchful and careful no matter what their governors have to un-mandate. Hope they understand we all want a LOT of freedom back but rushing it won't help and only prolong the disomforts. I think there are those who will just be defiant no matter what. If consequences were very even-handed we might not have such a problem with lg. numbers of defiant people but those who ignore rules or norms often don't seem to have to deal with many complications so they look on EVERYTHING as something meant to curtail, even when it is a safety measure.
Mary, Cindy, MC, Keywest, Sandy, Puffin and anyone who I may have missed -- saying hi and sending hugs.
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I've been lurking more than posting lately. Our younger son is at MD Anderson and just diagnosed with a rare subtype of acute myeloid leukemia, one with a poor prognosis. Hoping to have a treatment plan by the end of the week. I am currently at their house (about 3.5 hours drive from my home) to help with their family of 5 kids two of whom are graduating high school seniors in the midst of all the typical end of year and graduation activities. Will probably be going home this weekend. It is a hard decision when one is needed both places!
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Beaverntx,
Bless you for helping with your son's family. I cannot imagine the worry he must feel. Of course, your worries must be enormous as well. His two oldest children are at such a wonderful time of life with futures that are suddenly opening for them. They will need your listening, attentive and loving heart while they share their excitement. Of course, the little ones will have their stories as well while their school years are winding down. I will keep you and your family in my prayers as the days and weeks go by.
Jane
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Beaverntx, Sorry to hear about your younger son. MD Anderson is the best, so if there's a cure they will find it. What a busy time for the whole family. Hugs.
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Nonni - So sorry to hear of your reoccurence. Please return here anytime for healing thoughts and gentle hugs.
Beaverntx - Ongoing strengthening thoughts to you and your family as you navigate your younger son's diagnosis.
Sandy - Glad to hear of the positive Dr visit!
Keywest - Oh my goodness, what a nightmare of dental issues! Glad to hear they will be able to sort things out for you to have your Key West getaway.
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(((((Beaverntx)))) There is a lot going on for you and on your plate. I hope your trials even out. Lots of prayers and hope for answers that are productive for all.
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Sorry to read all the sad news. Growing old is not for the faint of heart. Sending good thoughts to all of you who are in pain, whether physical or emotional. Nonni, stay close.
AZ never had a statewide mask, but most businesses are keeping their mask requirements listed at the door. The local news did report a local gun store which WON'T allow masks however. Our only public restaurant foray was very uncomfortable and it will be awhile before we try again. Tables were literally on top of each other and servers weren't masked. Because tables were so close together, people were talking louder and louder.
I keep trying to decide what supplements to quit. They do get pricy.
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Hello everyone. I'm another oldie who has lurked around this section but haven't participated. I was diagnosed with IBC in January and my dull life has been turned upside down. (How I wish for that dull life again.) I hope to get to know you all. I'm surprised there aren't more older women here since the odds of getting BC increase with age.
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LW- welcome to the club no one wants to join. Come and visit often. Wishing you and easy time through treatment.
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LW422, Welcome.
And welcome to several others that I have not seen before.
Beaverntx, cyber hugs to you.
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More cyber hugs to Beaverntx.
Welcome to LW. Good luck with your treatment and a wish that you can return to dull life without bc.
Hot, humid summer has arrived here. Thankful for a/c.
I remember lurking and gathering my courage to say something!
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The spiritual life is, at root, a matter of seeing. It is all of life seen from a certain perspective. It is waking, sleeping, dreaming, eating, drinking, working, loving, relaxing, recreating, walking, sitting, standing, and breathing. . . . spirit suffuses everything; and so the spiritual life is simply life, wherever and whatever, seen from the vantage point of spirit. -John Shea
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Welcome LV and so glad you decided to come on in. We are a small group and it has pretty much been like that since our beginning. We had some rocky times at first, but we maybe stay here due to the fact that the majority of the major changes in life have come and gone. Kids are grown and even some of our grandkids, and we have maybe retired and down-sized. Actually a lot of us were just planning on a more relaxed later in life, lifestyle -- then the big C hit. We help each other through 'whatever' is going on and find it comforting to come her and be ourselves. I hope you will come often.
Ick is on the weather radar for today. Rained yesterday and all night and more of the same today. I hope by the late afternoon if will stop. It looks like plenty of rain later on in the next few days. Looks like we will be having another really wet Spring. I'll be supplicating the sun god to come out and help me stay in a positive state.
Sending hugs to all who need one and saying hi to all who haven't posted for a bit.
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Beverntx - sorry to hear about your sons diagnosis. Sending prayers and healing vibes to you and your family.
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LW, praying for you. Remember that many of our generation are not computer literate. It wasn't part of the curriculum in grade and high school. I did have to take a computer course in 1970 in college. It was very basic-- pun, there.
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Thanks to all of you for the welcome. This really wasn't where I pictured myself in my golden years!! Nice to find a group who understand and I hope to visit with you often.
MCBaker--nice pun!! I spent 28 years in IT before taking early retirement from a major corporation. Retired at 60 planning a relaxing retirement and look what happened to that plan.
I'm closer to 70 now and spending free time at MD Anderson. It's my new "job." 0 -
LD422 - for many of us the "job" does get easier. As you will see, we tackle other issues of aging too. I really don't think about BC except when I'm here - but I do keep coming back here. Still go the the TP board too although already treatment protocols have changed so usually feel I have little to add.
Went to my first post covid event today. Twelve ladies for lunch and bridge as a farewell for one of the group. It was fun and I felt comfortable. Everyone was vacinated and it certainly beat playing bridge on line.
One hundred degree days just around the corner here in Phoenix.
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So much for ordering from Blair. My two pairs of cropped pants arrived yesterday and were so small I couldn't really pull them up. I will not order from this company again, because by using the pre-printed label to return the pants, it will cost me $9.99. You don't have to wonder why people order from the retail giant, Amazon, with free return shipping. I'm leery of ordering an exchange of sizes, because the next bigger size may not fit either.
Lots of people out with no masks now that the governor has dropped the mandate. A sign on the door of YMCA said masks are optional. The employees at the supermarket where I shopped yesterday were all maskless. A few of the other shoppers, like me, still wore masks. I think not wearing a mask indicates for many people that the pandemic is over. I sure hope they're right.
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Such a great quote today: Remem is one of my favorites.
Life rushes us along and few people are strong enough to stop on their own. Most often, something unforeseen stops us and it is only then we have the time to take a seat at life's kitchen table. To know our own story and tell it. To listen to other people's stories. To remember that the real world is made up of just such stories. Until we stop ourselves or, more often, have been stopped, we hope to put certain of life's events "behind us" and get on with our living.
After we stop we see that certain of life's issues will be with us for as long as we live. We will pass through them again and again, each time with a new story, each time with a greater understanding, until they become indistinguishable from our blessings and our wisdom. It's the way life teaches us how to live. -Rachel Naomi Remen
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Sunny and warm today and I'm expecting the same for tomorrow. That will be really nice as we are going to celebration of life for a good friend who passed on about the same time as my son this past December. It will be held at a local lake but not the one we live on.
Carole, I have had a little better luck ordering some things ( it has been awhile ) from Haband. It was jeans with an elastic waist. They didn't give me a super fit in the thigh area ( a bit roomy to say the least ) but they were fine in the waist and importantly the length. I didn't order anymore and not sure I would although my weight loss may have made it possible to buy the biggest size in misses that ( maybe ) could give me the same overall good fit and maybe even have a tad less room in the thighs/leg area if I ordered now. Just haven't tried. I've looked at both web-sites ( Blair and Haband ) and feel like their sizing is hard to figure.
Seems like a few more people around here are going w/o masks, but plenty still have them on. I think part of the idea was to protest others by our keeping up with masks ( we can still infect others even if we stay well with vaccinations ) and to possibly protest ourselves for now from some of the variants. I plan to still wear a mask when I go into retail stores around here. There are a couple of restaurants around here that I go into and take off my mask to eat. We usually avoid going inside though unless we know there is plenty of 'room' to keep a distance. We try ( if we know we are going ) to choose an off less busy time.
In defense, it has seemed here that cases were taken seriously from the beginning and people had to take safety measures for themselves and others immediately on dx. Likely why we never had a serious outbreak in the general population. There was some at a couple of congregate living places but even there they took heavy-duty precautions to keep it confined and in control. I do yearn for the time when we can go w/o masks and hope it will not be too long before we get a green light.
Have been able to get a bit done on my living room clean/up but consisted mainly of moving some pieces to storage. Looks better in here, but that mainly freed up room for me to start some serious sorting. I will be helping someone else ( I'll be paid ) as her health circumstances have changed and hope to do something similar for her. Actually, it will be a lot easier. Less for me to decide/choose. I won't be attached to her things like I am what is here. Helping her may be a great inspiration for me to be stern with myself. I do think my daughter coming to live here has made it more imperative that I fulfill my desire to have my household ( way too numerous items and kept way, way too long ) way more minimal in scope. So much easier to clean. Hope Kate is not too much like me about keeping things. I do think it seems she is better at getting containers for things you want to keep -- rather than letting them take up much space singly setting around the house somewhere. Fingers crossed.
Hope you all have a beauty of a day and the whole week-end too.
P.S. Carole, we do order at times a whole lot from Amazon and also have their pre-paid program which gives us access to free tv using their Amazon Firestick. We had the Firestick before we took a subscription to Hulu. Afterwards -- Spectrum gave us a deal where we will get 125 channels from them for $14.00 a month for 8 months which we took. After 8 mos. if they don't give us a very similar deal we will cancel the tv part of our service. Our daughter pays for the Hulu and we take care of the Spectrum which includes not only the tv, but our house phone and the Internet.
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Hi, Ladies. I was out and about today. I went junking. No treasures found. Most people are still wearing masks and only one store said masks are optional. DH had a good night without headaches. That means I had a good night and feel energized.
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Great news, Petite. Hope they get it figured out. I gave up on letrozole for much less than you DH has suffered.
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I wore a mask into the YMCA gym yesterday, where the senior exercise class is held, and a woman told me, "You don't have to wear a mask now." I'm expecting the spacing for the class to get closer. It's very popular. The entire gym is filled. I will miss the senior exercise classes when we relocate to northern MN for the summer. Up there we join a small Anytime Fitness where I will back to using weight machines and cardio machines for my workouts.
I'm considering doing some yard work this morning but no firm decision has emerged. It is very humid outside.
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Good morning. It is warm and muggy. DH had another bad night.
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I hope they find something that works for him, and soon!
I still haven't gotten to AF. However, between walking Tippy and working in my garden for almost four hours yesterday, I got almost 10000 steps in. I weeded and planted beans. My neighbor brought over even more mulch, to the point that I told him that was enough. This year's mulch is next year's soil, and my garden Is significantly on a slope.
Today I took Tippy for a walk, then rode the scooter out to Ace Hardware. Got tomatoes, peppers, eggplant, and a coleus. Talked with a friend, and we are going to the city for Mass. I put the plants in the garden and pots, and more seeds in pots. I still have to plant squash and more beans tomorrow. It is 88 out and I am rehydrating. Things are dry, windy. Fire danger set to red, I feel like I am in California.
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Everybody needs beauty as well as bread,
places to play in and pray in,
where nature may heal and cheer
and give strength to the body and soul.
- John Muir0 -
So sorry petite that your Dh had another bad night. I will keep praying that a medication or a combination of them will bring consistent relief.
Had a nice time yesterday at the memorial for our young friend. His wife has lost so much wt. I hope yesterday helped a bit to start her on the path of letting go and accepting her loss. Never easy to lose someone we love deeply and they had no children so she does not have that outlet to occupy her and give her something to focus on deeply. It was warm but windy at the lake so it felt coolish to the point I kept a small jacket on save for eating. Hours out in the wind sure makes you tired. I not only had a really late nap but slept quite soundly thru the night.
Today it is cloudy, but warm enough. I'm missing yesterday's beautiful sun. Well, I'm just grateful it was so pretty yesterday. I still feel a little left-over wind exhaustion, but likely due as well to having had donuts with my eggs this morning rather than toast. My daughter works the late afternoon and night shift so brings things home while we are having morning coffee. Ah, having a person who works for a gas/convenience store has a few health hazards. In her defense she also brings me lots of flowers. They did not have them when she worked at the same corporation in California so she really notices them in her store now and thinks I should be able to enjoy them too.
Also giving thanks today for the energy of all the spring green growth that is around us here in the woods. My great love of Spring is that it renews my faith and hope in life and positive events. No matter what happens -- spring comes calling and is not bothered and influenced by all the things that may drag human people down. It does its very best to do its job of reawakening lots of energy and growth.
I hope you are all going to have a really nice Saunday.
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