Can we have a forum for "older" people with bc?

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  • wren44
    wren44 Member Posts: 7,928
    edited August 2021

    Petite, That sounds like my husband. He passed out in several places. He wore the halter monitor for a month and it didn't show anything. The last time he was seated at his computer and fell out of the chair onto the floor. They implanted a cardiac monitor and discovered his heart was stopping and starting again. He now has a pacemaker and is fine. Definitely let his doctor know about this. I hope there's a simple fix.

    Cooled off here today. 82 yesterday and 75 predicted today. In addition a wind off the water has blown the smoke away. It may even rain a little. We could sure use that.

    Today I'm going to tackle some of the storage in the attic. I suspect most of it will be donated. If we haven't needed it in the past year. . .

  • jasmine2717
    jasmine2717 Member Posts: 16
    edited August 2021

    Hello all,

    Hello I just found you all! I'm 63, diagnosed in June, and I've had a lumpectomy and a re-excision. I have my first OR appointment this week to determine when I start radiology. What a kick in the pants! And here I thought my family's history of heart disease would get me! You just never know do you?

    Hope you all have a lovely Monday!

  • petite1
    petite1 Member Posts: 2,292
    edited August 2021

    Welcome, Jasmine2717 to the place no one wants to be. Hoping your first appointment goes well.

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Welcome jasmine 2717. Glad you found us. I think no one really expected the cancer dx. I think most of us went yr. after yr. and nothing found in our mammogram studies, and you just start to think you will be one of the ones by-passed. Chastised myself so much for being complacent after awhile about something I should have considered a possibility even though there was scant family history.

    We will all send good vibes mixed with doses of hope and care on your appt. day.

  • mcbaker
    mcbaker Member Posts: 1,833
    edited August 2021

    We also have to realize that in 60-some years of cells dividing, mistakes are made, and the accumulation of mistakes upon mistakes, cancer happens more often as we age. And in so many cases, there are little non-malignant carcinomas here or there, just waiting to escape through yet another mistake in cellular division. That is the way I see it, especially given the fact that heart disease at a respectable age is the usual cause of death in my family. Also.



    I just bought a box of 60 peaches. I haven't made jalapeno-peach jam for several years. I don't particularly like the spiced peach jam I made then, so I think I will do pint jars of spiced peaches. In other news, a brand-new acquaintance and I did a bit more work with Tippy. Given how long it takes to work with his fears, by the time I finish grooming him, he is ready for another grooming.

    Welcome to all the newcomers!! Hugs. Once you begin to put this in the past, we support each other, and try to ease the fears.

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Your so right MC and we have so many more pollutants to upset cells too.

  • karen1956
    karen1956 Member Posts: 4,619
    edited August 2021

    Welcome Jasmine.

    Petitie, sorry to hear about your husband. How scary and exhausting. Hope the doctor can give you answers

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    The true end of education is not only to make the young learned, but to make them love learning; not only to make them industrious, but to make them love industry; not only to make them virtuous, but to make them love virtue; not only to make them just, but to make them hunger and thirst after justice. -John Ruskin

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Getting a late start on my day, but otherwise I think it will go well. I will work late but we are going to be trying out a new barbecue restaurant. I'm looking forward to that and I think the whole family is as well.

    More heat and humidity today, but I think it won't be ferocious and we should be fine and not totally un-comfortable. Hope you all have a really good day.

  • cindyny
    cindyny Member Posts: 1,322
    edited August 2021

    Welcome Jasmine.

    Petite - that had to scare you. Hoping he finds out what the cause is.

    IllinoisLady I hope your urinary exam went ok.

    Re BC - I always thought CLL would get me. It’s not supposed to be hereditary but my mom, her sister and her brother had it. BC was a surprise.

    Surgery was 1 week ago today. I’m healing up fine, using my walker and going SLOW as a snail. I’ve had a shower but most days I’m doing a spit bath, or sailors bath - whatever term you use for washing up from the bathroom sink. Hit vitals with hot soapy washcloth, rinse and dry - good to put clean jammies on and head back to the couch. Today I’m washing my hair, oh la la! I do it in the kitchen sink. The things I look forward to!

    My cousin got a hold of Trex to replace the deck floor. It’s overstock type so no choice of color but I put an outdoor rug over it so I’m not concerned; it looks like a milk chocolate color to me (from afar). The good news is it turned out 14, twenty foot boards, $150. The bad news is he backed into the corner of the retaining wall next to my driveway and probably has $1,500+ in damage to his truck. I felt so bad, doing me a favor. My partner was out there, he saw it happening and started yelling. But my cousin has hearing loss and never heard him. He said he was having a bad day, he had put a board through the cap on his truck earlier in the day but luckily not through the truck slider.

    Our weather looks gloomy and calls for rain over the next 5 days. But temperature feels good to me, in the 70’s

    Boredom hit me. After using the toilet yesterday I saw the caulk around the sink had water behind it. I sat on toilet lid with my bad leg tossed off to the right, and removed, cleaned, and recaulked it. Today I got a bunch of towels to the washer, hung them over my walker, and to the dryer the same way. I won’t be able to get them out without a ton of work using the grabber bar. I’ll wait for assistance.

    Have a great day ladies!

  • wren44
    wren44 Member Posts: 7,928
    edited August 2021

    Woke up this morning to a cold house. 60 outside at 8am. Supposed to get to 71 for the high. It will warm up later in the week, but not horribly so. I'm trying to reduce my sewing stash since I rarely sew clothing any more. I've eliminated a lot, but still have a couple of drawers to go. I fear they have my favorites. If we go to Hawaii I'll need to make a couple of summer shirts. I mostly wear t-shirts here but they're not very cool.

    I've culled my books once and will probably do some more. I can barely lift a box with books in it - even when it's only half full. Oddly enough I'm finding some duplicates. I think DH bought some without asking if I might already have them. I really want a lot less clutter but I fear DH really wants all his possessions. I realized how different we are in our attitudes toward possessions. Of course, losing his memory isn't helping any.

  • petite1
    petite1 Member Posts: 2,292
    edited August 2021

    Cindy, Sounds like a creative way to get things done.

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Ego could be defined as whatever covers up basic goodness. From an experiential point of view, what is ego covering up? It's covering up our experience of just being here, just fully being where we are, so that we can relate with the immediacy of our experience. Egolessness is a state of mind that has complete confidence in the sacredness of the world. It is unconditional well being, unconditional joy that includes all the different qualities of our experience. -Pema Chodron

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Hoping for a good day although our warmer temps and humidity are back. Not as bad as before, but then once we start getting the rain that is predicted we will likely be there. Hard to believe Fall is so close now. Our ground looks parched in-between the rains which is one of the signs.

    My car is still doing pretty well although I'm thinking of finally taking it through the car wash soon. Wondering if a buffing might be enough to bring back the luster of the pro-shine I gave it about three weeks or so ago. It should be interesting. Still happy about how it all worked and the ease to use it.

    Nothing special planned today -- just a nice day off. Didn't work very hard yesterday either.

    I hope you all have a really good day.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2021

    Welcome, Jasmine! Petite, sorry to hear about your DH. Hope yesterday's appointment yielded some answers (and that they were good).

    Judy, while I was on hold with Walgreens as they looked up my vax info in order to reissue me a real CDC card (to replace the "Walgreens" logo slip of copy paper they gave me last winter when the stores weren't allocated enough cards), the recording mentioned that boosters were available for the immunocompromised, on a walk-in basis, no doctor's note needed. Suggest you do it forthwith. (My melanoma onc at KCC says that despite my age and cancers, my radiation treatments weren't recent enough to immunocompromise me). Curious about antibody titer, though that test would have to be on my own dime due to Medicare not covering it. Moot point, though--per today's announcement, I'll be eligible for that booster in late Oct., which is 8 mos. after my second shot.

    Glad you made it to Ravinia! (Saw Willie once at FarmAid 2005--as headliner, he played for 90 min., and by midnight we were all ready to collapse...except him). We went to Millennium Park Fri. night for the outdoor "Classic B'way" symphony concert, followed by a lovely seafood dinner across Michigan Ave. on the patio at Remington's. The "fence" of potted plants that shielded us from passerby may also have protected us from petty theft--there were the same six skateboarders rolling by, up & back; and there turned out to be a rash of purse-snatching and phone thefts in Streeterville & the Loop, by kids on skateboards & bikes on the sidewalk. A bunch of 14 & 15 yr olds were apprehended...but most of them "I-bonded" out and were released pending juvie court trial (presumably indulging in their favorite pastime in the interim). We're going to see Iris Dement at City Winery Oct. 1--they're requiring proof of vaccination or a negative COVID test. The Lyric Opera isn't giving the option of a negative test--no shot, no entry, period. And masks inside both venues.

    The city resumes its indoor mask mandate this Friday, for everyone regardless of vaccination status or negative test. Most places I know aren't waiting till then. I've been masking up inside businesses (and some restaurants) for the past three weeks anyway. And at UI Health, they're requiring a surgical mask, either alone or covered by a cloth one.

    Speaking of UI Health, had my followup ocular onc appt. today--last month, they didn't have an ultrasound scanner. New machine today, new sonographer. Everything stable since May. Onc says that what appeared to have been an 0.2 mm increase may have failed to take into account the growth that may have occurred between diagnosis & treatment. He says I can expect to see some shrinkage over the next couple of years. I'm back on the 3-month rotation now. I have a bit of capsular clouding behind my L lens implant, but I'm not noticing any vision problems, so I didn't have it lasered today. When stuff starts to look yellowish and backlit people begin to look silhouetted--or reading through the L eye gets difficult, then I'll get it done. If it ain't broke...

  • keywestfan
    keywestfan Member Posts: 367
    edited August 2021
    • The Willie Nelson concert, Sandy, wondrous as it was, scared me. It was like Lollapaloosa, absolutely no distancing, crammed against the unmasked, every seat in the Pavilion taken, every spot filled on the lawn. One of the biggest crowds I’ve seen at Ravinia. Tuesday afternoon went to favorite little Glencoe Walgreens and got the third Pfizer. I did not bring my CDC card because I had taken a photo of it . They filled in a new card with all three shots listed. I had no side effects really from the first two, maybe partly because I so stupidly took a Tylenol before the first one. This was different. Apart from the usual sore arm, I was exhausted, chilled to the core, headache. It lasted all day today, though I managed an hour on the elliptical. Now I’m waiting to see if I got Covid from Willie. Sandy, I did have the antibody spike test at Kellogg a few weeks ago. Not so many antibodies- 355- but no charge either
  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Sometimes the darkest challenges, the most difficult lessons, hold the greatest gems of light. -Barbara Marciniak, Family of Light

    There are no great people in this world, only great challenges which ordinary people rise to meet. -William Frederick Halsy, Jr.

    Life's challenges are not supposed to paralyze you; they're supposed to help you discover who you are. -Bernice Johnson Reagon

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Going to be a mite warm and humid again today. No rain yet, but reports say it is still on the way. I will not go to work at the farm tomorrow. There has been covid discovered in the family so we are quarantining ourselves from contact for awhile. The up-shot is that the family member along with others in the same family are now ready to get shots when they can. That is good news and it will not hurt me to have a day off now and then.

  • carolehalston
    carolehalston Member Posts: 8,196
    edited August 2021

    We've been promised rain today. Much needed rain. The trees show that they are stressed. Leaves curling. Acorns dropping too early. The temperatures are supposed to come down this weekend and next week. It would be good to give the a/c units a rest.

    The news is so bad that I have stopped watching any cable news reporting. I just skim through the WAPO and NYT and may cancel my online subscriptions. Afghanistan, Covid, Weather disasters. On a more personal level, our neighbor Lyman (Vietnam vet) got bad news that his lung cancer is back. Sometimes it is challenging to focus on the positive.

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Learn to get in touch with silence within yourself and know that everything in this life has purpose. There are no mistakes, no coincidences, all events are blessings given to use to learn from.


    image
    Elisabeth Kuebler-Ross

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    We definitely are having a spate of negative news and I agree it is often hard to watch and experience. I do think many have resilience and ever having hope I am always hopeful for turn arounds and life to show peace and beauty along the way. I will look a little longer and harder.

    We are having our heat wave and still waiting for the rain. In the meantime all the new lawn/gr. cover planting sil has done does require that we water. Our water bill was good all yr. so we can afford to use some extra right now. I think for the first time in a very long time our yard will seem/feel/look a lot more welcoming than it has for some time. I guess you can judge how long someone has not been able to fully care for something by the improvements that come so quickly it seems by our younger family members. Our son in law is a real blessing. He is pretty much a jack-of-all-trades too -- like dh used to be before the older age diminished some of those attributes. We are pretty much okay with that considering the alternative.

    I hope you are all going to have a really nice day.

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Don't Give Up On Your Dreams. Keep Sleeping Shirts...

  • karen1956
    karen1956 Member Posts: 4,619
    edited August 2021

    Happy Friday,

    Gorgeous Colorado day - not too hot, blue sky and light breeze. Looking forward to a long walk later this afternoon. I'm treating myself to a mani/pedi so I want all the cooking and cleaning up done. Most is done, but making cookies.

    Survived first week of the school year. The kiddos start next week.

    Have a wonderful week-end.

  • carolehalston
    carolehalston Member Posts: 8,196
    edited August 2021

    The promised rain poured down! Yay.

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Forgiveness enables you to bury your grudge in the icy earth and put the past behind you. You flush resentment away by being the first to forgive. Forgiveness fashions your future. It is a brave and brash thing to do. The gutsiest decision you can make. As you forgive others, winter will soon make way for springtime as fresh joy pushes up through the soil of your heart. Barbara Johnson

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    Still awaiting our rain which it is said is due this afternoon. Well, just in time for the Balloon Fest. That had its opening night last night which thankfully was dry but seems that won't last. Hope the balloons got up in the air and maybe this morning as well ( I slept in ) as most of the rest of the time which is today and tomorrow will be wet from the sound of things. We could roam over today but not sure we will. It will cost $2.50 just to roam around the sales booths and frankly the last few yrs. they have not been too exciting.

    I actually look forward to some good rain wetting us down. It will settle the dust and we won't have to water. Maybe sil can get out and do a little bit of extra moving of the ground covers.

    I hope you all have a really good Saturday.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2021

    Heat wave is back--and for only the second time this year I lost a tomato to a critter (bite taken out of it, left on the deck--likely a squirrel). We've harvested most of ours that ripened, and Bob still took a dozen to the office yesterday.

    Had my Moderna booster yesterday, and this time the reaction came on faster (<15 hrs) and more intensely. Got sleepy sooner last night (maybe from the wine & food from the repeat Cellars dinner) and my arm was already sore; was awakened at 8am by Heidi nuzzling me and my feeling like the inside of my oropharynx was hot. Took my temp--100.8F (the highest it's ever been since my ill-advised Zometa infusion in 2016). Bob said it was ok to take Tylenol, because the fever was evidence of the immune response already having occurred. He says it's evidence of the shot--as Fauci said--"goosing" my antibodies tenfold. 2 hrs. later, I was back down to 98.6. I feel a bit warmish (though no fever and my oropharynx feels normal)--perhaps standing outside on the sunny deck in 88 degree sticky weather craning my neck up to the sky to watch the Blue Angels perform might have had something to do with it. Had a headache...till I tossed back a shot of espresso. (First caffeine I'd had in >24 hrs.). Still a bit tired & cranky--the kitties will have to make do with the few cans of food (and tons of kibble) we have left, because I don't feel up to going to Petsmart today. Pretty sure it's just residual side effect and not COVID itself (no cough, no drip, and I can smell & taste just fine), but waiting till I've been fever-free for 24 hrs. seems like the responsible thing to do.

    Little Company of Mary is giving boosters this Wed. to any doctor or nurse over age 50 who wants one. Bob is going to get his, as he's almost 72 and he's encountering more patients in his hospitals testing positive.

    How are you doing today, Judy? I bought a bunch more surgical masks yesterday for double-masking--turns out my face & chin are so small that a kids'-sized mask fits me best!

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    I have become my own version of an optimist. If I can't make it through one door, I'll go through another door--or I'll make a door. Something terrific will come no matter how dark the present.
    image
    Rabindranath Tagore

  • illinoislady
    illinoislady Member Posts: 39,653
    edited August 2021

    It didn't rain overnight so we are good there. Our weather says less humidity today -- some cloudiness and some sun. I think it just translates to wait and see. Hopefully no more rain. My car looks pretty good after the rain. The dirt seems to come off while any water left on the car just sorts of beads up. I could get use to that. I never did make it to the car wash though -- the rain took care of it.

    Nothing special planned for the day either. Just working at whatever turns up most.

    Hope you all have a really nice Sunday.

  • cindyny
    cindyny Member Posts: 1,322
    edited August 2021

    Henri should drop some rain here depending on how it goes. I’ve just turned on the weather channel. Apparently heavy rain through Tuesday. Airports expect delays too. Hoping all are spared drastic damage. A friend driving out to Buffalo yesterday said there was a convoy of trucks from surrounding electric companies traveling east on the Thruway. I think my area should have limited flooding in low areas. But all around us are towns on rivers, creeks, etc …that will overflow. Flooding will be a major issue from this storm. Heard RI has 8,000 w/o power.

    We took water out of the pool yesterday. I’m getting around much better and although I couldn’t actually do it, I could provide direction. LOL. I went out with old crutches used more for stabilization then walking. I even had him deadheading the flowers.

    I sat out in the screen house and was ok, not great. We have metal chairs that bounce/rock,with a light cushion. The hamstring incision didn’t approve of rocking. I came in and ordered a purple cushion on Amazon that will arrive Tuesday if all goes as they say (delay due to Henri).

    Hoping your Sunday weather is pleasant. And if you’re in Henri’s path , please be safe.