Can we have a forum for "older" people with bc?
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I follow a couple of threads where Jackie posts, and so far it doesn't appear that anyone knows anything.
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Woried for Jackie. So many people who are active on the internet don't leave directions for updating internet friends.
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A gray damp morning. Not at all inviting for any outdoor activity.
I went to three stores yesterday and didn't find anything that made me fish out my credit card. I was one of the very few people wearing a mask. This time of year (or any time of year) I would just as soon not get a cold or mild illness. I do not wear my mask in exercise classes at the gym. They are important enough to my mental and physical health that I take the chance of picking up a virus.
Hello to Jackie wherever she is. I hope she is doing well.
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Good morning. It is gray and foggy, but 61 degrees and going to 74. I was out doing errands and stopped at a veggie stand. I saw a display of apples that said grown locally. I never knew apples could be grown in Florida. It seems there is enough chill factor in North Central Florida for certain apples to grow. I bought one monster apple and it was wonderful. I ate some and turned the rest into apple salad. It was the biggest apple I have ever seen and I am from Virginia. I even had some relatives with a large orchard. Well, live and learn. LOL
Sandy, I agree with you. I am always making typos because the keyboard is too small and my fingers don't work as they should. What I hate is when Google changes the words and I miss it, send it, and then see I typed something strange.
The biopsy from my Dermatologist appointment came in and it seems I have more skin cancer to deal with. Back under the knife on Thursday. (Squamous cell)
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petite1: My dad was very fair skinned, coated himself with gobs of zinc oxide, covered his head with a towel and sat under the umbrella whenever we went to the beach. This was long before Coppertone, etc was available and he developed squamous cell Ca on his head (he was nearly bald) and face. So far I have been lucky but I can remember getting blisters from sun exposure when I was young so I make sure I get my skin examined annually. She took the precancerous lesions on my face during my screening in November. I just gave myself a present of having the dermatologist burn off my "age spots" since insurance will not cover them and she took far more than I expected (so happy). So right now I look "spotty" since they all have turned dark brown and look like burns. Most I can cover with long sleeves but the hands and face are visible.
I hope they can get it all off during Thursday's visit.
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I had an uncle who worked on the Mississippi River barges for years. He died of melanoma. I had a skin check several months ago, and had an all-clear.
Mammogram appointment this morning. I went out to wait for my transportation, but Tippy was afraid I was going to leave him alone. He nearly escaped, and I caught him. Forgot about my knee, and went down. Couldn't get up. The home health aide for the gentleman next door came by, and played it all by the rules. She called the ambulance. They hoisted me up, and I declined transport. Made it to my appointment without problems. No changes on the mammo. Tippy was happy to see me.
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Has anyone else noted how frequently BC.org is offline recently? There is never an explanation as to why nor is there a way to let them know it is down. Could the moderators who monitor please offer an explanation?It was out for several hours today and this is not the first time it has been offline.
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Perhaps they use Amazon. They were having major problems today.
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Yeah--I originally read it as "We hear Jackie is doing well," but realized that it was really "Hope everyone has a good week and that we hope we hear Jackie is doing well."
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Another gray wintry day, though not cold. The forecast calls for rain.
Mary, sorry about your fall.
Is anyone doing Christmas shopping? My list for gifts is very short, great nieces for the most part, and I will give cash rather than gift cards. In past years we had gifts for neighbors but have run out of ideas and incentive. One year dh made blue bird houses. A number of years I bought various baskets and containers to be filled with dh's home-made oatmeal chocolate chip cookies. One neighbor has moved, two of the husbands have died. Children have grown up and moved away.
I have a tiny black growth on my right wrist that I will have checked by my dermatologist. It doesn't look like a melanoma but I'm due for a checkup anyway.
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Good morning. My Dermatologist appointment is delayed until January. I have to heal from the biopsy. That is OK with me. Too much going on this month.
MC, That's scary.
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Thanks so very much for all the concern and hopes for my health you all expressed. It was a wild ride but two days ago I finally got home again. Had to wait til this morning for some computer service ( he fixed it for free for me ) to get me back online and able to work.
I spent that one week in Carbondale ( SIU ) Hospital getting lots and lots of tests. They felt they did not have all the pulmonary equipment needed for my surgery. This is the part where I went home to await getting a consult for the cardio Dr. from Marion. Before I could do it most of my symptoms returned so had to return to Marion VA emergency. They kept me overnight and all the next day until early evening when a bed became available at Barnes Jewish Hospital in St. Louis, Mo. So a 140 mile ride ( very, very fast ) to the hospital. I was given some further evaluation and tests. They almost over test so they have as much info as needed. Also they generally have much more detail to their pictures etc. though some people have gotten angry about repeated tests.
So at long last on Nov26 I went in to the operating room for my mitral valve replacement. Pretty involved and took a bit longer than expected. No serious issues but I did end up in cardiac ICU for about 5 days ( unstable due to A-fib ) but they got the right combo of meds and I finally went stable.
Then I did the step down unit only expected to take four days, but was there an extra two days as well. I have to say this kicked me to the curb more than anything I've done I think. I am though fortunate to have my family ( daughter and son-in-law ) so was able to come home, rather than a nursing home for rest, healing and some rehab. The visiting nurse came today and was very pleased. No pain -- that stopped after the first couple days. Also the rehab therapist came today and though I didn't see it, my son-in-law said the therapist's eyes got big watching me walked across the floor. Apparently he didn't think someone only home two days would be able to walk so well un-assisted.I will still be somewhat confined yet for some weeks. To whatever extent I think maybe 6 or so. The issue for all this was that my mitral valve had stopped opening all the way while never closing all the way either. This operation had to happen sort of period.
Thanks again for all your healing warm wishes and hope for a very good outcome to all my recent health upsets. It has the world to know you missed me and cared.
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Welcome back, Illinois Lady. I am a 65 year old “lurker” who has been signing on daily for about 18 months to read your daily quotes. I shared the concerns about your health with many others who post on this thread. I’m happy to hear that you handled the ordeal with your valve replacement and are now on the mend. Take care, and I will continue to look for your daily quotes once again.
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Whew!!! So glad to see you posting again!!
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SO HAPPY, JACKIE, THAT YOU ARE BACK!!
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Oh Jackie - you'll never know how much we worried & missed you. Glad you're back!!!
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Welcome back Jackie! So glad surgery went well and you are mending. You were indeed missed. Prayers for a continued solid recovery from here. ❤🙏
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You were sorely missed and I am so glad your surgery went well. Having surgery at this age (based on my October 28th experience) does kick you to the curb and it does take a while to bounce back. They said 8-10 weeks for recovery and I believe them now. You pay in spades for overdoing it and the setback is not worth it. So easy does it.
I was only supposed to be hospitalized for 3-5 days and actually there for 7 days much to my dismay. So take your doctor's advice and take it easy. We need you to keep us on an even keel and for those fabulous daily quotes that bring so much joy and thought provoking moments. Glad you are home again and back online.
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Welcome back, Jackie! I was so worried about you. Glad you have your daughter and SIL with you.
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Jackie, so glad to see you back and on the mend! You have certainly been through the mill. Take it easy and don't overdo the rehab. Those kitties will be there for you when you're ready.
I have sort of an ethical dilemma. My temple's cantor wrote me today saying that she's been given Saturdays off during the religious school year. (We are between rabbis, so she is our de facto spiritual leader). She said that given my vocal and guitar skills, I am her first choice to fill in for her at Saturday morning services. Two problems: not only are my performance skills rusty, my Hebrew...how shall I put this?...sorta sucks majorly. (Having grown up mostly secular, I didn't become Bat Mitzvah till I was 38, and it took a year of solid study). Not just that, I am definitely NOT a morning person--and Saturday services are at 10:30--roughly half an hour before I get out of bed. But she needs me and is willing to bring me back up to speed liturgically & musically. Thoughts???
Judy, we went back to Regalia tonight and it did not disappoint. John, the owner, was delighted that you & your friends came Saturday night. It was sort of slow tonight (we arrived around 8:30 and were the only party there). Bob had the shrimp & polenta app, and I had the Wagyu carpaccio with bone marrow & arugula. We both had the cioppino, which was outstanding--we were hungrier than we thought, because all we had in the way of leftovers was our bottle of Vermentino. They comped us shots of housemade limoncello (better than we'd had in Italy) and the semifreddo flambé. I hope they can get at least a burner phone & Facebook page soon, so people can begin making reservations on weekends (their busiest times---Sat. night they turned over twice) and fill up a bit more on weeknights. This neighborhood desperately needs them to stay open--though they're a bit expensive for the area (at least e. of B'way). They need to attract media attention, as well as patrons from upscale areas. If they can't handle a large party for New Year's Eve, we will discuss a takeout catering menu.
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Jackie - Adding my welcome back along with healing thoughts as you recuperate. So glad the docs were able to fix you up! Continue the healing!
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Jackie - so good to hear you're through the worst and at home recuperating! Best to be home surround by family for rehab. HUGS
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Sandy, I regularly wake at 6:00 A.M. Church is not far away, and I have a list of people who are willing to pick me up for weekday mass. Do I make it to mass on weekdays? No. I prize that first lazy few hours of the day. 10:30 Sunday? Always. My bedtime is 9:00 and lately 8:00. Easy.
Remember the conditions you were experiencing when you chose to do your Bat Mitza. If I were you, I would take her up on the offer and hone my skills. In fact, I would have started lectoring recently, but my knee got in the way of it.
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Jackie, So glad you are back. We missed you. Wishing you a speedy recovery. Cyber hugs.
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I'm happy to chime in and say how glad I am to have Jackie back. I hope you recover fully and can get back to your active routine.
I have a hair color appointment this afternoon. Then tonight dh and I will attend his woodworkers guild's Christmas dinner at an event place. It was cancelled last year. For me, those attending will be acquaintances, not friends, except for one couple. DH knows the men from monthly meetings.
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Sandy, I understand your hesitancy, Hebrew, musical rustiness, sleep deprivation, but also the honor and challenge of being asked.Think of the sense of accomplishment, of service, you will have, how good that will feel. And, of course, with some coaching you will be up to it.
Can’t wait to go back to Regalia.We we’re going to go next Friday with Tony’s in laws, but she, a kidney transplant recipient receiving immunosuppressive treatment for rejection, ( who I thought was nuts for going to restaurants as they eat out almost every night and are very social) now has COVID. We will definitely return to Regalia soon- hopefully with friends
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Sandy, I understand your hesitancy, Hebrew, musical rustiness, sleep deprivation, but also the honor and challenge of being asked.Think of the sense of accomplishment, of service, you will have, how good that will feel. And, of course, with some coaching you will be up to it.
Can't wait to go back to Regalia.We we're going to go next Friday with Tony's in laws, but she, a kidney transplant recipient receiving immunosuppressive treatment for rejection, ( who I thought was nuts for going to restaurants as they eat out almost every night and are very social) now has COVID. We will definitely return to Regalia soon- hopefully with friends
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Mindfulness is simply being aware of what is happening right now without wishing it were different; enjoying the pleasant without holding on when it changes (which it will); being with the unpleasant without fearing it will always be this way (which it won't). -James Baraz
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Jackie, So happy you're back and on your way to recovery. Take the advice to rest and take it easy. We all attempt to do too much and it can put us back.
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Judy, so sorry to hear about Tony's in-law's COVID. Hopefully, she can get into a trial of AstraZeneca's new drug designed expressly for immunosuppresses people who didn't mount an immune response to vaccinations--it's a new monoclonal antibody designed to give up to a year's protection. And hope that existing treatments can knock out her infection ASAP.
I do feel quite honored to be asked by the cantor. It would be a major lifestyle change for me, though, even after I've gotten the necessary (re)training. It would totally upend my weekends (and every other weekend for Bob), even the cats' feeding schedules. Bob has vacation time blocked out for the first week of January. I'm not that worried about leading the hymns, and our new Sabbath prayerbook has transliterations for the Hebrew; but I had to do this once for the Sunday School kids' (abbreviated) service and I really botched the chanting for two of the major prayers. The regular Shabbat morning service includes the full prayer liturgy, cantillation and all, and I am terrified of screwing it up. Reform Judaism has really changed over the past few decades--most of the service is now in Hebrew.
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