Can we have a forum for "older" people with bc?
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It is so good to see all you ladies once more. Since the change-over that came out of the blue I have not been able to get on. It has been a HUGEdissappointment for me and I was afraid it would not get resolved. It seems so far that things ( since it suddenlly worked for me ) are going along fine and I hope I will be able to continue using the site. So far, it hasn't been too bad although I do have some of the issues that have already been mentioned. Anyway, I hope to be back soon and posting daily like I used too.
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Betrayal, and ChiSandy,
This is the same platform but was "reskinned" to look like the new Breastcancer.org site. As you see, this has led to some unanticipated issues as the existing platform is older. There is absolutely no connection with Amazon.
Thank you,
--The Mods
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Moderators nice to know and thanks for the edification.
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When the hard times of life come, we know that no matter how tragic the circumstances seem, no matter how long the spiritual drought, no matter how long and dark the days, the sun is sure to break through; the dawn will come. The warmth of His assurance will hold us in an embrace once again, and we will know that our God has been there all along. We will hear him say, through it all, "Hold on, my child, joy comes in the morning!" -Gloria Gaither
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Just a quick hello to all. Have also had lots of trouble with navigating, very slow, and everything else others have mentioned. Hoping the "bugs" get fixed. Belated birthdays to anyone who had one.
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Thanks for the clarification, Mods. I'm still wondering where that "aws" url in the address box came from when I clicked on breastcancer.org on the intermittent "our site is down" page in an attempt to get in the back door. That "aws" url appeared while I was being redirected to an error-message "access denied" page with a line of code. Nice to see people's avatars reappearing--and glad you could log in, Celia & Jackie!
Congrats on the great checkup, Judy! I am having terrible left-foot issues (specifically, my third toe which has a bone spur and is elongated by a stubborn callus that can't be filed down enough lest it bleed and get infected). The only shoes I can comfortably wear are either UGG boots, or sandals (preferably padded or UGG). The only sneakers I can wear without pain are a size and a half too long, like clown shoes--and I'm constantly tripping over them. My big toenails get ingrown between pedicures too. Some nights that third toe actually wakes me up. Walking for exercise or even in any closed shoes hurts like crazy--and I can't use my treadmill or stationary bike barefoot.
I wish NorthShore's walk-in ortho clinic did podiatry, but it doesn't. The only podiatrist I could find in the system is at Swedish. He impressed me at the initial consult and wrote me a script for new orthotics, but after the X-ray didn't show any fractures or dislocations, he was dismissive & condescending--telling me to just pad the insoles of my shoes or "live with" the painful elongated toe, and get my monthly pedicures for the ingrowns and other calluses. I guess Medicare won't reimburse podiatrists for anything short of surgery unless the patient is diabetic. I wish there were a way to kill the nerve to just that part of that toe. I'm tired of spraying lidocaine (or dabbing Ora-Jel) on it.
As for the ingrowns, I'm seriously considering flying to Seattle to be treated by Huppin & Hale. (It'd take two trips, of course). And of course, I'd have to wait till after Gordy's wedding. I had thought maybe June (Bob wants us to go to DC to visit my sis for Memorial Day weekend), but I just got a folk festival gig for 6/11-12 that'll require lots of walking & schlepping from the parking lot. (Last time they held it in person I had a HC placard so I could park close-in, but I let it expire because I could no longer in good conscience claim to be disabled and ask my doctors to sign the application).
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You find yourself refreshed by the presence of cheerful people. Why not make an earnest effort to confer that pleasure on others? Half the battle is gained if you never allow yourself to say anything gloomy. -Lydia Maria Child
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So good to see everyone today and thanks to all who were concerned when I couldn't seem to get on here. It is I admit still awkward, but my desire to spend time with all of you is mainly a whole lot stronger -- and I do think ( hope and pray ) that all the bugs will get ironed out. I also hope it doesn't take too long.
Still trying to find good time to go do my urine test -- which is/will be a repeat despite the fact that I got a good bill of health from Utah. Still I know I need to get it done. Things are not feeling right.
I finally, at long last, have my car back which will make having to go early morning for the test a lot easier. SIL is home now and despite not having been started for over three months -- his car started right up. I couldn't believe it. I guess next time I need one I'll look for the same kind of battery he has.
Hope you all are set to have a wonderful day.
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For the 2nd day, I was able to log in. Yay! It's gray and windy outside, temp in the high 40's.
My birthday present came from the Evil Bathroom Scale this morning. I'm down 4 lbs since re-subscribing to online WW a couple of weeks ago. Encouragement to continue the effort.
Happy Wednesday to all.
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Carole, love your reference to EBS.
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Well I finally got here. I haven't been on and had to take some time to catch up. Cindy, I love the flower. I has been hot and I had to turn on the A/C, but it is dropping to the 30's on Saturday. MC, I like your new picture. One of these days I will update mine. The sad things is, with BC, the meds, weight loss, etc, I lost my smile. Now I look like a jack-o-lantern, with a space on both sides of my teeth. Carole, that is a shame. Maybe if you keep asking, she will "find" them.
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I will talk to my weight-mgmt team about switching to WW, because although it’s easy to find keto-compliant restaurants, the allowable foods are boring the hell out of me and not satisfying my cravings (to which I give in late at night). I wonder if those munchies are due to the CBN in my bedtime CBD gummy (Receptra Serious Rest). I may be staying up too long after taking it—I should go to bed w/in 45-60 min. I need it to avoid doubling my dose of alprazolam. CBD is an appetite suppressant; but because CBN is derived from stale THC, it improves appetite. The gummy has 25mg CBD and 3mg CBN. I’d use the tincture instead (which lacks CBN) but it has lavender & valerian—a no-no with ER+ BC, or at least with letrozole. Maybe just go back to the sugar free CBD gummies (10 mg ea, maybe take 3) and stick with the current half-pill of alprazolam. I also take 5mg melatonin
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Petite, look into Invisalign Express treatment, which might bring your teeth closer together. Mine took 16 weeks and cost less than $2K (albeit I did only the uppers. You’d be surprised how many geriatric orthodontia patients there are. I’ve been wearing a clear retainer for 2.5 yrs now. I was referred to my orthodontist by my dentist, who was worried my malocclusion was making my upper incisors & cuspids flare out so much they might loosen. The orthodontia reined them in and they’re solid as a rock.
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Coming to appreciate your worth can, in some cases, dramatically improve your circumstances by changing the choices you make and the actions you take. And as you begin to treat yourself with more respect, other people begin to do the same, since we subconsciously "train" others how to treat us through messages we send through body language, tone of voice, and other subtle cues and behaviors. Discovering your innate worth and living from that place allows you to make more constructive choices--to choose the higher roads of life.
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Dan Millman0 -
Good morning. We are awaiting possible snow for tomorrow. It is hard to know in our little pocket here if we will get what is touted or be by-passed. I'm really thinking we will get some snow. I hope not the three inches they say are possible. I didn't put a lot here yesterday. For the first time since I got back here I was getting an error message more than anything else. I hope I am able to do as well as I have so far this morning.
Loving the sun that is outside and we will get into the 40's -- not fantastic but the sun always gives me hope and comfort.
Hope you all have a wonderful day.
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For my dog loving friends:
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Love the above dog texting codes.
Spent several hours today in the guest room which has served as an auxillary storage site for items that belong in the upstairs hallway (still not completely restored) and the living room. It is mostly wall art that needed to be protected and some other fragile items. I did sort through some of the items and have a clothes basket full of items that need to be put in their proper place, given to my children, donated to Purple Heart or Habitat and several items I will give to my son to post on the free Facebook page. I did find where my one cat hides when someone is in the house; it was well defined by the amount of cat hair: a cat nest! So I am laundering some items to get the hair off. I vacuumed and dusted and wet wiped baseboards so the room is cleaner than it was but it still will require a deep cleaning once I can redistribute the storage items. I will need to paint the woodwork in the room and the windows so it will be a several day job when I can finally get to it. It is better orgnaized and looks neater than it did so I do have a little sense of accomplishment.
The vacuum was not working well so I checked to see if the bag was full only to find that it had not been installed properly. So the entire chamber was full of what should have been in the bag and I had to use a shop vac to collect all that dust, etc. I am so lucky the motor did not catch on fire! The bag was still usable since it virtually had nothing in it and I checked it several times to make sure it was functioning properly. Vacuumed another room to see if it worked properly and it did. It's a Sears Kenmore canister model so I will need to see if I can get new bags online since I am down to the last 2. Now I am tired and will take the evening off.
DH made a run to Purple Heart this week to deliver 5 boxes, the Teachersteam.org people will pick up 3 boxes tomorrow of office supplies and my son will make a run to Habitat for us on Saturday. We had so much stuff for Habitat we need his wife's SUV for transport. So nice to see that stuff go where it can be used rather than in the trash.
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Carole - happy belated birthday. I hope those earrings “turn up” at your hairdressers place. It’s sad to lose both the earrings and the stylist.
Feet - I had bunion surgery on my right foot in 2004 & again in 2005. Over the past week and a half my big toe and bunion area have been throbbing like a tooth ache. So on Monday I went to urgent care thinking maybe a screw had moved, maybe a cyst, or maybe bursitis. X-ray revealed nothing. They ordered a script for naproxen and got me a lovely surgical shoe in black. In NY I have a black and a blue one sitting in my garage, just because you never know when you’ll need it. Luckily it only cost me $7 for ugly shoe. The naproxen took 2 doses, 24 hours, before I had no pain. I’ll stop taking it after 7 days and see how my toe/foot is. So Sandy I can relate to toe problems!
I couldn’t get back on here. It has a strange way to find my “favorites.” Sometimes the word Favorites doesn't even show up, but if I click back and forth 2-3x it will show up. This updatehasn’t been easy.
Hot & sunny today, tomorrow less so, Saturday I think 90% rain - blue grass festival for us has to wait until Sunday; and Sunday cool, and truly cold at night for south west Florida. Saturday night Nitty Gritty Dirt Band is playing but based on weather, we won’t be there. Road to and from is pitch black and if wet too, I’ll stress out. Sundays bands will have to be enough, we’ll bundle up. Haha! Ok, long pants and a fleece.
It’s after midnight so it’s already Friday - TGIF.
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I'm a Nitty Gritty Dirt Band fan. One of their cd's is among my favorites. I think they sang Will the Circle be Unbroken.
I attended a funeral yesterday that was perhaps the oddest service of that type I have experienced. The trip to the funeral home in Gonzales, La, was an hour and a half. There were four of us, all golf friends, and the funeral was for the sister of another long time golf friend. She was very grief stricken and needed our support. We didn't know her sister, who was Roman Catholic.
There was no music during the service except a recording of Ave Maria, sung by an opera singer, at the beginning. The man conducting the service was a Deacon, not a priest. He tried to make the service personal but he had not known the deceased. He did some responsive readings. I suppose the problem arose from not having the service at a church where there could have been a mass. It all seemed awkward to me.
Betrayal, I would love to tour your house when it's finished. It sounds lovely and traditional.
It's a good day for golf but I am going to my exercise class at the gym at 11:30. Afterwards I have a list of things to buy at Sam's Club. I'm taking it easy after a rather tiring day yesterday.
We have a brief return of winter this weekend with the threat of freezing weather on Saturday night, I believe.
Happy Friday.
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Carole: When we visited Ireland we would go for three week stints so we would rent a car and drive all around the country. We found oil paintings there and in Cornwall, England painted by locals and purchased them. Usually local hotels (where we stopped for tea) would display them for sale but we also ran into some local art shows during our ramblings. So none of the art work is museum worthy but appealed to our eyes. I wrote to one artist and he replied that he felt "famous" because his painting made it to the US. He was an elderly, retired physician who painted as a hobby so he was thrilled that we chose his painting. I bought a painting in Greenwich, England that cost me more to frame than it cost that hangs in the MBR and for some reason if you look at them all, there is always a water element as a common theme. This one is a scene from a Victorian porch looking at water and the other is from a local artist which features a fountain in a garden courtyard.
The floor guy is to come back on Tuesday so hopefully he will install the edging at the doorways in the basement, add grout to the spot he missed in the foyer and then finally finish the marble sill installation in the MBR. That should finish his tasks and allow me to finally finish the decorating in the basement. I am holding off in laying the cowhide rug, a small table that is near the storage closet where he needs to work and hanging the last picture down there. I still need to hang the photos in the basement stairwell but was holding off until no big equipment, etc needs to be hauled into or out of the basement. The entertainment section of the basement is a Southwest theme so the artwork reflects this as does the other decor. It was nice to be able to display my Painted Ponies and other artwork including Navajo pottery again. They have been in boxes for over 2 years so it almost felt like they were "new" again.
Our home is a colonial and the interior is more traditional since I do like drapes with sheers in the living and dining rooms. Not in to open floor plans for my living but do admire them on HGTV. The chandelier in my dining room I bought in Ireland on my honeymoon. It is Waterford and at that time was more affordable, but still a splurge, than today. LOL, I lived in an apartment when I bought it and shocked my mother because she felt it was a "waste" to buy when I did not have a house. Married in May and was in a house by November so I failed to see why it was a waste. It was just a pause plus I still had to wait for them to ship it which took more than 6 weeks. So there are aspects of my home that to quote Marie Kondo, "do bring me joy" even if others do not feel the same. I just can't wait until it is totally done to its former self.
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Betrayal -- do you hear a sigh of relief. Nice to hear you say soon you will have one less work person because his part will be done. Your home does sound so pleasant for you. It is nice to experience comfort in our personal sanctuary. I always breath a quiet sigh upon coming home. We do not have a fancy house -- just a nice size at the lake -- but the fact that it sits slightly back off the roads and in a heavily wooded spot is my Eden. I'm not surprised by the theme in your artwork. Water is a very spiritual aspect and likely has a great subtle appeal when becoming a feature in art work.
One of the reasons we want to be here is that it is lake property -- even though very little of the lake is actually behind our house. I have always done better overall when I've been able to live very near water.
Carole, we are having some winter here again too. It won't last too long, but after about three very nice warm days -- waking up to freezing temps with a very light layer of snow ( that goodness already gone ) this morning was pretty much the pits. I just hope we are through the worst, but anymore it is hard to feel much confidence for what will happen.
SIL and Dh got the new faucet in, in the kitchen. Sure is nice. The old one never worked quite right because it was new-fangled I guess. Great to have something much more solid and feeling dependable at last.
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I am back, on Edge, rather than Chrome. I told the technician that I refuse to use Edge because I have gotten used to Chrome and have nearly everything else on it. I will have to wait and see if that threat worked.
I have been anxious lately-- I think it is the world situation. But also PT is not helping with my rectocele, so I may end up having surgery for that. And I wanted to send my knee brace to Ukraine, but my sister told me that if I end up needing a knee replacement I would need it again.
PLUS I have been having problems with my sewing job. I told her that I refuse to make anything else out of two saris that are left-- other than curtains. This fabric is totally unmanageable. BUT there are four more projects. And I have two pieces of curtain material and one pastel (primarily blue) print to sell. And remnants of several others, maybe more. I will try making scrunchies and wraps (furoshiki) and frilly-edge serged scarves from the smaller remnants. Hopefully they will sell well.
I am so sorry about the lost earrings. That comment was surely a hint of her plans for them. I would ask her again. Find another stylist if nothing happens.
I am cutting way back on spending, because I want to buy an electric trike this spring. Tippy is going to have to be satisfied with human cookies for treats.
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Mary, I hope things will get better for you. I use Chrome as well. I used to use IE ALL of the time for everything, but it is being phased out. I have a windows 10 and it is pretty much straight Microsoft Edge. I think I have one of the older ones because it only has one font and it is ugly. So, I try when possible to avoid having to use Microsoft Edge but unfortunately I do have to use the Edge to get here. I have to admit, save for one day when I got error messages most of the time, it seems to do all right -- not great, but all right.
I think you are right about Carole's hairdresser. Seems to me the hairdresser doesn't have much self-respect to have treated a long-time client in such a cavalier fashion. Seems easier to ignore your conscience after the horrible four yrs. we had under a person who seemed not to have a conscience at all. Wonder how many people might have been affected in less than sterling ways. Well, getting too close to politics now so I'll be quiet -- but it is just some of the things I ponder.
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Mary, sorry you are having medical issues. Are you seeing a pelvic floor PT specialist? I saw a PT who as a pelvic floor specialist that was branching out into becoming a lymphedema specialist and was in having to complete her clinical hours for LPT. My LPT was on vacation so she referred me to her and she told me about her other specialty and I was impressed that her focus was going to be female issues: breasts and pelvic disorders.
Also, it seems like your sewing job is causing you stress because the client wants you to make something from difficult material. Is it silk? Your other plan of what to do with the remnants sounds like a sound idea. As far as Tippy, can you make him some biscuits. They do have recipes for dog treats online. He sounds so cute and I am sure he would enjoy your cookies but all that sugar could lead to dental issues.
How is your leg doing? For you to want to donate your brace to Ukraine is admirable. Hope things improve for you on all fronts. We have all had to deal with BC stress, pandemic stress and now BCO stress. No escaping what a crapshoot getting on to this site has become and you only have to hope your post even makes it.
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Yes, she is pelvic floor specialist. She wants to try something else, for which she does not have the equipment or the training, someone from LaCrosse will probably have to join with us to give her the training.
Oh, no. Silk is a dream to work with, compared to this synthetic stuff. I probably will have give it another try making dog treats. He is turning his nose up at peanut butter cookies.
I am learning more about how much and what kind of exercise I need. PT gave me some exercises. Since both legs are attached to the same body, the right one determines what the maximum amount of exercise the left one can get. So I am doing the exercises (non-weight-bearing lifts) on both legs.
And don't forget about Ukraine stress. My brother was in the hospital with COVID last week. He woke up early one morning, knew he was in a hospital somewhere, and thought he was in Ukraine. He was downright scared, but finally figured out where he was.
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MC, So true.
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Strength is a capacity for endurance. One of the dividends
of suffering is the universal discovery the we possess a
strength within us we never knew we had. Navigating through
a difficult episode not only shows us that inner strength is
there but convinces us it will always be there to serve us in
the future. Overcoming gives us an assurance of personal
confidence and value that far exceeds what we thought
we possessed before our struggles began.
Dennis Wholey0 -
Strength is a capacity for endurance. One of the dividends
of suffering is the universal discovery the we possess a
strength within us we never knew we had. Navigating through
a difficult episode not only shows us that inner strength is
there but convinces us it will always be there to serve us in
the future. Overcoming gives us an assurance of personal
confidence and value that far exceeds what we thought
we possessed before our struggles began.
Dennis Wholey0 -
Much to be grateful for here. Beautiful sunny day. Snow was forecast but it doesn't look at all likely to me. Even if it did, it is due to be almost 60 tomorrow. We are getting temps. that fluctuate rather wildly at times.
I hope you all have a great day.
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