Can we have a forum for "older" people with bc?

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  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    Nothing special planned today. I may get into storage and look for some of the items I planned to give to my SIL's son who recently moved here. Other than that, whatever gets in front of me is fair game.

    A bit cloudy right now. Rain has been predicted, but I'm not betting on much of anything unless it happens. As long as the temps. stay nice, I'm not caring too much what we have.

    Hope all of you have a good day.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited August 2022

    It started off cool again this morning but it heated up to the mid 80s. After doing several loads of laundry yesterday, will probably relax today. I need to copy some pictures off my iPad onto my laptop, send out the monthly invoice to my kids for the Verizon bill (we share a family plan…still) and watch baseball. My friend in the neighborhood is giving me some baby stuff that she’s not using for her grandchildren anymore as they get older. Picked up a pack n play yesterday and she’s dropping off a jumper later today. She’s already given me a baby swing, which I’ll drop off at my daughters next week.

    Enjoy your day.

  • socallisa
    socallisa Member Posts: 10,184
    edited August 2022

    When I went through chemo 21 years ago, I was overdosed with Neopogen and had bone pain to the extreme and I could not even move for 36 hours. This happened with each Neopogen shot...now 21 years later one of my friends is starting chemo and I had a horrible dream that the pain was back and I could feel it...horrible...maybe its PTSD so many years later. I was happy I woke up.

    Has anyone else had this experience?

  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    Hi socallisa, good to see you. Can't remember whether you posted here and stopped or if I use to taIlk to you on some other thread.

    Anyway, I had Neupogen after my chemo in 2007/08. The first tine I had terrific pain, but then one of the chemo nurses realized they had forgotten to tell me to take a fast-acting Tylenol about 15 mins. before I took my shot. After that I had way less issues. I do recall though having to go a day or two where every bone in my body felt like it was cement. Always glad to get past those periods ( small though they were ) where I could feel I was on the way to a more 'normal' level of comfort during treatment.

    Now I have the somewhat cement bone feeling from having open heart surjury. Never expected to deal with 'hard' bones twice in my life.

    I would be happy to wake up from a dream like you were having too. Would be something to get a dx like you describe after all this time, huh ?? Hope you have been well and happy otherwise.

  • socallisa
    socallisa Member Posts: 10,184
    edited August 2022

    Hi there yourself...long time ago I posted here I think along with all the earlier stuff and chat room way back when...can't believe I will be 80 in three months...how have you been after heart surgery??


  • karen1956
    karen1956 Member Posts: 4,619
    edited August 2022

    Good to see you Lisa. Hope you are doing well. As many side effects that I had on chemo and AIs I didn't have any difficulty with Neupogen (or did I have the other one? It was one shot the day after chemo).

    Not sure what I accomplished today. My summer vacation has come to an end and I guess I'm sad about it. Once I'm back to work tomorrow, I'll be okay.

    Weather is cooling off to the 80s more normal for this time of year. I'm done with the 90s.

    Will try to post pictures from trip with my phone. For some reason, it never works on my computer.

  • 1946taco
    1946taco Member Posts: 300
    edited August 2022

    Hope you had a good birthday, Betrayal.

    Today is our 56th anniversary. I was certain that last year would be our last together as Ken was making so little progress after his surgery so this was a gift in and of itself. Quiet day flipping between tennis, golf, and baseball. Just got home from dinner at one of our favorite restaurants. Their veal is always fantastic!

  • karen1956
    karen1956 Member Posts: 4,619
    edited August 2022

    Taco, happy 56th anniversary 🎉

    image

  • karen1956
    karen1956 Member Posts: 4,619
    edited August 2022

    image

  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    In case you don't keep coming ( but I hope you do ) happy 80th. in three months. I bet you don't come close to "feeling" 80. I would imagine, like myself and I'm sure lots of others here, I could never envision myself at retirement age and beyond. I think that comes from the years when I really was young -- and seeing people my age then as really, really old. Now that I'm where they were and well past in many cases -- I still feel like I'm not at all old. A little mature maybe -- but not old at all.

    I had a slow start in recovery after the surjury just this past late November. For several months I remained anemic -- but once that was duly noted ( I'm still taking iron tablets ) and addressed I have made tons of progress. My only issue remains that my blood pressure is low and the meds I need for my heart all tend to cause blood pressure to go down -- so it has been slow incremental adjustments to get the higher levels going w/o tanking blood pressure.

    Karen, you had the other one. Nuepogen was a full week of shots starting the day after chemo. I think some people did have issues with that one as well but it sounded like it was easier over all -- partly due to having it one time rather than the seven days of Neupogen. As I lived 73 miles away from the V.A. med center, I was given 7 filled syringes which I brought home and put in my fridge. Every night before bed I gave myself the shot.

    Prayed ever since I would not get adult diabetes. I am not squeamish about shots, but can't say it wasn't sort of a downer though.

  • carolehalston
    carolehalston Member Posts: 8,192
    edited August 2022

    Hi, Lisa. I remember you as posting beautiful pictures of flowers from your walks. Welcome and please stick around. I'm not far behind you in age. This year is my last year in the 70's.

    I have a haircut appointment in about an hour so I'd better get moving.

    Happy Monday to all.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited August 2022

    Hi socialisa. Nice to meet you.

    Happy Anniversary taco.

    I had neulasta with my chemo regimen. It also makes white blood cells. I had an auto-inject device that they would attach to my stomach. 26 hours after my chemo the device would start and inject the drug into my body. It took about an hour (I think) to release all of the medication and then I removed it.

    I spoke to someone from my GI doctor office this morning. Hopefully the doctors assistant will call me back with a layman's explanation of my biopsy results from the endoscopy. I don't see the NP till 9/22, so I'd rather see if there's anything I need to be doing between now and then.

    Getting together with my aunt, uncle, some cousins, brother and SIL for dinner. We use to get together every 3 months before the pandemic. This is the first time since last July (my daughters wedding) that we've all been together.

    Enjoy your day.

  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    When your inner eyes open, you can find immense beauty hidden within
    the inconsequential details of daily life. When your inner ears open,
    you can hear the subtle, lovely music of the universe everywhere you go.

    Timothy Ray Miller

  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    I think I just lost a post. Not a big deal I guess only I really can't recreate what I wrote, and no matter what I put down now, I will feel like it can't hold a candle to what dissappeared. That is just the way I am. Nothing much today. A couple of bills to tend too and also a trip to Walmart's. What would that place do without me ?? My support over the years ( even though I'd rather it still be K-Marts ) has been phenomenal.

    I loaned my slow cooker to my SIl's son and family. No point in getting it back -- I will just get another. I think I have more replacement money than they do. I did donate them some pots and pans and a set of Phallsgraff. ( sp ) already. The dishes had become 'heavy' for me at my age and I replaced them some time back with a set of Corelle. Not a regret in the world on that even though I loved the old Tearose pattern of the heavy dishes. The Corelle dishes actually have yellow flowers and are square. They no longer make the sets like I have although you can still get the pattern in replacements. They make enough for that.

    Trying to decide whether to cut my hair short and ge another perm or leave it long with a perm. Or even let it go longer yet. I'm not good with those things and have lost wt. which I think tends to add a sm. amt. of length or my face. Sigh !!! I am not gray ( only a strand or two ) so don't need to color, and the next best way for me to get a lot of body is a perm. I think right now my hair seems fuller since I'm taking the iron supplement.

    Anyway, I hope you all have a great Monday.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2022

    Mary, I forgot to mention--"kitten" heels aren't even "heels" per se. When I was 12 years old, we called them "jet" heels, and felt so grown-up wearing them. They're barely over an inch high. And IIRC, they were thicker than the little "pegs" that are true modern kitten heels. Even at my most able-bodied in my mid-30s, the highest "spike" heels I wore were about 3", and very rarely at that. I honestly don't know people walk in those 5-6" stilettos. In 1997, I needed a cane to steady myself while wearing chunky 2-1/2" heel pumps.

  • socallisa
    socallisa Member Posts: 10,184
    edited August 2022

    image

    For you Carole

  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    Beautiful -- though I'm not Carole, but I'm going to enjoy that too.

  • minustwo
    minustwo Member Posts: 13,342
    edited August 2022

    Lisa - Always glad to see you. I often read this thread but don't post here much. While we're talking about ages - I'm 78.

  • cindyny
    cindyny Member Posts: 1,320
    edited August 2022

    socalisa I love photos of flowers.

    Sandy I was 5'8" before I started shrinking due to back issues. But back in the day, haha, I loved a nice 4" heeled sandal with an ankle strap and toe peep. Oh we'd dance the night away. I could run in those suckers if need be. You've seen my feet, now I just have shoe envy looking at other women's shoes because I can't wear anything with any heel. Maybe a wedge but I haven't tried any in years. Sorry, I digress.

  • mcbaker
    mcbaker Member Posts: 1,833
    edited August 2022

    So right, Sandy. I would rather wear maryjanes than any kind of heels at present. And I have two pairs with low heels that I would love to wear eventually, even with a cane. It takes about four accidents before I give up on something-- you know, only try harder. You are just not trying hard enough. That old line.

  • karen1956
    karen1956 Member Posts: 4,619
    edited August 2022

    Lisa - beautiful flower

  • carolehalston
    carolehalston Member Posts: 8,192
    edited August 2022

    Thank you, Lisa!

    Well, I told the stylist to go a little shorter yesterday and she did. Drying my hair will not take long and that's a welcome thing.

    We had rain last night and this morning and it's dreary outside. Watching the morning "bad news" didn't brighten up the atmosphere.

    DH is off to the gym. When he returns, I will use the truck to go to nearby Eagle View golf course and play 9 holes. Unless I change my mind.

    Have a good Tuesday.

  • petite1
    petite1 Member Posts: 2,292
    edited August 2022

    Good morning. I love all the pretty pictures. We have not had the afternoon storms for a few days and my yard is already dry. I back flushed the filter on the irrigation system, but my yard is not getting the coverage it needs. I am going to take the filter apart and clean it. Hopefully it will increase the pressure and the sprinklers will work better.

    Sandy, loved the shoe discussion. I thought kitten shoes were the very high heels. I think the last time I had on heels was in 2019. They are about 21/2". I wear flat sandals all summer.

    Betrayal, Happy belated Birthday.

    taco, Happy anniversary.

  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    It is always wise to stop wishing for things long enough
    to enjoy the fragrance of those now flowering.

    Patrice Gifford

  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    Hmm, got app. error when I tried to post. That happened yesterday as well. Not sure what gives here, but trying to recall my whole post likely won't happen. I think I did say if I forgot to say it, happy everything to all. I always mean to mention these things at he appropriate time -- when I'm finished with the rest of the post. Then I feel like I'll definitely be ending on a high note. You can only do that if you remember.

    So, making this short in hopes that it posts

    Have a great day everyone.

  • betrayal
    betrayal Member Posts: 3,167
    edited August 2022

    Thanks for the birthday wishes. I am back to mulching and weeding after the fire pit area diversion. I did order a bench for additional seating and it arrived on Sunday 4 days earlier than they had anticipated. Still had room for a small rectangular side table so I ordered one and it will arrive next week.

    Our family dinner at the Capital Grill was wonderful. There were 9 of us so they provided a room off the main dining area so it was quiet and private. The meals were fabulous and everyone ordered what they preferred for drinks, appetizer and main course. Service was wonderful. Since 3 of us were celebrating birthdays (DSGS, DGS and myself) we were given a birthday dessert with smaller sized samples of their signature cheesecake and flourless chocolate cake. The plates were dusted with chocolate powder to read Happy Birthday. It was a nice touch. Surprisingly they do have chicken fingers for younger diners like DGD but DGS now orders from adult menu and eats it all. He tried sea bass for the first time and loved it. DS and DDIL gave me a renewal for my Acorn subscription. DD and DSIL had bought me a fancy purse that I have been using and arrived with a large bouquet of yellow roses, sunflowers, Asian lilies (pink and orange) and alstroemeria. It is large and lovely plus it smells so good.

    Dog DNA test confirmed our rescue Dalmatian is purebred in spite of being rescued from a kill shelter in SC. She's on the smaller side so we thought she might be a mix but nope, she's 99% purebred. She's going to be 14 but lately has lost weight. She lost an eye to glaucoma and has a cataract in her remaining eye. She has lost more vision in that eye so now we carry her up and down the stairs so she can still sleep in our room. Seems depth perception and light accommodation are a challenge for her. Went for her pedicure yesterday and lobby consult with vet about weight loss means a change in her food to entice her to eat more. She'll see him in September for her wellness checkup. She's such a good dog considering all the trauma she suffered before we adopted her at age 2-1/2 months. She was afraid of everything, had kennel cough requiring antibiotics and a bad skin rash that required special baths for several weeks. However, she was bright and house trained in a week. Obedience training then gave her some confidence and she loves the cats. She also used to love watching the parakeets at play. Hard to watch her decline.

    Cool in the mornings but warms up in afternoons. Still I will take it over the heatwaves we have been experiencing. Have a good Tuesday.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited August 2022

    I spend much of the day with my daughter. She lives an hour away, but it’s a pretty drive over a small mountain. We started off at Costco, checking out their supply of newborn diapers (they didn’t have any) and picking up some protein snacks for her. Then to Target to check out their supply of newborn diapers (they were in stock), a few more outfits and then to her home for lunch. Her nursery is really cute and comfy.

    Enjoy your evening.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2022

    Hi, Lisa--nice to meet you!

    Taco, happy anniversary--56 years? Wow!

    I didn't post yesterday due to scanxiety over my ocular-onc visit today. Fortunately, not to worry--everything is stable and the tumor even shrank a little since May. Things went a bit more slowly at the clinic--they added a new higher-res retinal scanner to the OCT camera; and because the ultrasonographer quit for a better-paying job, an ohthalmology fellow (MD) had to take the ultrasound scan. New machine with gentler probe made it a more tolerable experience. Still on the "3-month followup" plan, but if all is well by this time next year I will move to twice yearly. Because I had to have my pupils dilated, I'm missing out on the chance to have my lunch & coffee out on my deck on this lovely mild sunny day. Might take advantage of it later to get my car washed.

    Bob's taking the day off tomorrow for Mon Ami Gabi's outdoor "Monet & Rosé" luncheon, with the producer of the immersive exhibits as guest speaker. He wants to do the immersive Van Gogh if it's still playing anywhere. I wish the Art Institute would bring back the Van Gogh/Gaugin exhibit instead. He's working Saturday but off Sunday, so we're going to a special Air & Water Show watch party at the restaurant attached to Theater on the Lake. The party will be on its south lawn--with an open bar & BBQ buffet--but we're bringing our own chairs (which they suggest doing since they may not have enough). And because it goes on rain or shine, we'll also bring ponchos. General admission includes nothing but the right to sit on the ground (or one's own chair) and buy simpler refreshments. One would think that the VIP tickets would entitle us to one of their chairs--or refuge indoors if the threatened storms materialize.

  • wren44
    wren44 Member Posts: 7,928
    edited August 2022

    I had. bad news today. The memory care that my husband went in on 8/04 is in lockdown due to Covid. He's still negative and I hope he stays there. No visits for 2 weeks which isn't going to be good for him. I'm thinking of leaving a card every day (if that's OK) to keep in touch. He will get a booster the end of the month.

  • illinoislady
    illinoislady Member Posts: 39,593
    edited August 2022

    Oh my goodness. He hasn't been there long and that is a lot of support to go w/o. Two wks. could be a long time for him. Could you call him a time or two during the day as well as leave cards. Could be safer for all concerned to have the quarantine, but sure wish your husband had been there longer bfore it happened. Likely hard for you too. I'll be thinking about you and hoping that the time passes fast. Hugs.