Can we have a forum for "older" people with bc?

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  • cindyny
    cindyny Member Posts: 1,319
    edited April 2023

    Mary - please don’t take a break because you think you’ve said something to offend. I haven’t seen anything. You’re a joy, to hear your bike stories, Tippy adventures and all your sewing work is amazing.

    Maverick by all means, send your letter. They get ahead of themselves with technology, auto sends. I had a nurse navigator but I’m not sure she knew her arse from her elbow. I vaguely remember asking her questions and she had no clue. In fact, I think I knew more than her.

    We’re all different - size, shape, beliefs, and on & on & on. I too will skip over anything I just don’t want to read. I don’t take anyone’s preference as a demand that I agree with them, nor they with me. BC got us here, and I’ll have your back even if we’re on different ends of the spectrum on another issue. We are all members of the club we never wanted to be in. ((HUGS))

    On a funny note, Wednesday is the night our development puts out trash, recycling and any big items for pick up. Another lady and I drive around to see if there is anything out there we want. We’ve gotten some great things. Tonight we’re going around, I’m driving with the windows open because it’s beautiful out. She starts yelling and swatting her hands around. I’m thinking a bug came in and landed on her. What it was - the sprinklers went on and sprayed that side of my car, including her. I’m laughing out loud as I typed this! That’s what friends are for.

  • illinoislady
    illinoislady Member Posts: 39,490
    edited April 2023

    On Arturo Toscanini's eightieth birthday, someone asked his son, Walter, what his father ranked as his most important achievement. The son replied, "For him there can be no such thing. Whatever he happens to be doing at the moment is the biggest thing in his life—whether it is conducting a symphony or peeling an orange." -Ardis Whitman

  • mavericksmom
    mavericksmom Member Posts: 1,275
    edited April 2023

    Cindy, thank you so much for that funny story! I laughed out loud reading it and I REALLY needed to laugh!

    Thank you everyone for the comments of support with my nurse navigator fiasco. I went over 23 hours without sleep last night, then slept about an hour and got up. All because of that stupid "care plan" she sent me! I revised my letter over and over all night long. Then after breakfast I wrote a totally different version of it. Then I edited that one about 10 times, no kidding, I really did! It doesn't help that my keyboard is old and letters stick.

    Anyway, I feel better but I am definitely taking this letter to the post office this morning! My first copies were "too apologetic" on my part. I tend to do that. Then I realized that I am the one who was offended by something she had no business sending to me in the first place. I still wasn't mean or disrespectful, but I let her know my thoughts. I ended it with "Please do not send me anything else! (followed by a couple sentences, then) Please do not contact me! You have sufficiently upset me, please respect my privacy!"

    I can't help but wonder if using nurses as navigators when there is a nursing shortage, is really the best use of nurses in a hospital? Seriously, a former breast cancer patient or someone who understands the disease and can do scheduling would be just as efficient, if not more.

    Karen, you are so lucky to be the same age as your DH! Walking together must be wonderful!

    Betrayal, maybe I should have started the painting inside my house last night to help relieve all my anxiety. On the other hand, maybe my DH would wake up and say "why did you paint everything black?" LOL I do hope you had a productive day again yesterday.

    Sun is out again and it is cooler. I have one errand to run, I want to get a small cake. Today my DH and I have been married for 44 years. When we picked the day, it was due to many things, definitely not because it is National Pot Smoking Day, or Hitler's birthday. When I found out about those, I really wished we picked a different day, but it was a gorgeous spring day.

    We had an evening wedding and while we both had separate apartments in the same complex, we moved into his apartment. My sister-in-laws somehow got into my apartment not realizing my college roommate who was my maid of honor was staying there with me. They saw the suitcases, assumed the wrong one mine and proceeded to stitch all her panties together!

    Then someone else in the family from Michigan, got into my husband's apartment and took off all the labels off of the canned foods and short-sheeted our bed! They also found my car that we were using to go on our honeymoon the next day, which was parked in a different parking lot, and "decorated" it with crape paper and a Just Married sign! Oh the memories!


  • mcbaker
    mcbaker Member Posts: 1,833
    edited April 2023

    I'm feeling better. Thanks for your support. I have theories about what happened. Yes, my impulse control was impaired, and I must have responded when I normally wouldn't have. I think someone brought an issue from the Catholic thread over here.

    I am back to "normal" sleep. The headache is like an alarm clock. Having problems with my bike again, but my mechanic said the biggest problem right now can wait.

    I have another pair of pants to make for my neighbor. Then I will be dyeing, brown and turquoise. After that I will be writing.

    Actually, I would love to make a pilgrimage to Ireland, especially Waterford, where my great grandmother and her sister left from, and may have come from. We have not been able to get anywhere in genealogical research with them, other than family legend. The famine destroyed a lot, as well as everything that the English did. I am really jealous of those who go to visit. I have had romps through records in England and Germany, and they are really clear and go way back. Ireland, no. I'll bet Henry Lous Gates and his team (PBS) could crack it.

    Illinois, glad that you are making a good recovery from your surgery. Karen, still thinking of you. Reader, I listen to Fr. Mike Schmitz's podcasts on a regular basis. Betrayal is also a very busy lady. I hope we will both be here as you take your journey through knee problems. Hopefully Orthovisc and steroid injections will delay it for a long time. Petite, I took my bp for a week, and everything was normal. I discovered that hydration is usually the problem with low bp. MM, she was probably called on the carpet for forgetting some people who should be on her client list. I would respond, including your emotional response that it opened an old wound. And the fact that she sent it out without reviewing your record.

    I have a PCP appointment in a week. Eager to get the show on the road. Taking Tippy on walks is a painful proposition, and I much prefer to ride my bike (or electric granny trike, EGT) while "walking" him.

    Enough catching up. Tippy has already scratched my leg, fifteen minutes ago.


  • carolehalston
    carolehalston Member Posts: 8,182
    edited April 2023

    MM, what a shame that your day was ruined by the mailing. For some reason or reasons you were vulnerable. Maybe on another day you might have dealt with it differently. I'm in the same situation, with breasts that are rather flat mounds. I do have nipples because the surgery spared them but they're flattened, too. When I learned I had cancer, I just wanted it GONE. I could have chosen lumpectomy, but didn't. And don't regret the choice. I'm glad I skipped all those mammograms since 2009.

    Today I have a lunch date with three women friends who are/or were golfers. I made the reservation at a popular restaurant whose owner/chef is well known on the North Shore. I look forward to the food and especially the connecting with these friends. I'll probably search the menu for a salad or a fish selection that won't be too calorie and carb heavy. I've been making a real effort to modify my food intake for losing some extra weight. My immediate goal is 10 lbs although I could well afford to lose more.

    I was never big on eating sweets but I find age has developed more of a "sweet tooth." I know sugar is addictive and that's probably what's going on. DH recently bought a big box of chocolate chip cookies at Sam's Club and I ate a cookie every day until they were gone.

    Funny story, Cindy! We have been known to pick up discarded items. I saw a new looking weed eater put out with the garbage in a nearby subdivision where I was walking. DH went and got it. Made a simple repair and has been using it ever since. A lot of people these days know nothing about repairing things. We also put unwanted items out near the street for other people to pick up. Sometimes I put a notice assuring a new owner that the item is worth picking up. The hot water heater works, etc.

    Funny story. I put out a manual treadmill with packaging that included the manual. Doorbell rang and a cute little woman stood there. Asked if she could have the treadmill. At that moment we heard noise from the street. A man was loading the treadmill into the back of his pickup. I learned later that the lady was the mother of my hair stylist! Coincidence!

    Wishing everyone a good Thursday.

  • carolehalston
    carolehalston Member Posts: 8,182
    edited April 2023

    Jackie, I smiled at your comment about me, that I "keep on keeping on." Very true. No option except to throw up your hands and quit.

  • illinoislady
    illinoislady Member Posts: 39,490
    edited April 2023

    I am thankful you re-joined us Mary. I'm not highly persuasive and was so glad to see Cindy's entry, because so many of you ladies have a real way with words. I'm just mainly smarmy and that does not get to the salient points -- like your comments and stories enlarge our horizons and you know -- often what you do and say helps us accept ourselves. That is what makes you important to the group. This darn disease can really steal your footing and getting the rug back under myself is still going on. I am so happy[y and to get the Tippy stories back as well. Pure bonus.

    Loved the sprinkler story, by the way. How to turn yourself into a windmill in nothing flat. Run into anything flying through a car window -- even plain old water.

    Maverick !!! Wow. 23 hours w/o sleep. You have some catching up to do. I'm so glad you will get that letter to the post office. This was a real trigger for you. I also think the letter revisions were likely good as well. Each second that goes by is a new time in life, so we are prone to changes in how we see something and our deepest reactions which in your case I think were mainly stronger all the time.

    Hopefully, in planning and executing the plan/letter you can defuse the terrible trigger response and get back to a nicer, more comfortable area for you. We have beauty and love and other great sensations waiting to be enjoyed when you are able to push that black cloud all the way out.

    Big day today. I have to have my first video session with the IPad. I think I will call in and make sure I recall how to do what I need to in order to hear and see each other. Ah, the challenges.

  • petite1
    petite1 Member Posts: 2,290
    edited April 2023

    MM, The breast Navigator I had was from the hospital. She had nothing to do with the actual care plan from the cancer center. She was generic with generic information. It is probably something they send out to everyone.

    image

  • petite1
    petite1 Member Posts: 2,290
    edited April 2023

    Music therapy info

  • mavericksmom
    mavericksmom Member Posts: 1,275
    edited April 2023

    I am going to cancel my appointment with my BS that is scheduled in June as well as the appointment I have in September with the plastic surgeon. The only breast cancer doctor I will continue to see is my MO. I trust my MO the most and he is the one who ordered my DexaScan in May and prescribes my Letrozole.

    I plan to take a nap in a bit, but I will set my alarm because I have some things to do in the kitchen before dinner time. '

    Petite, thanks for sharing about the music therapy! What a wonderful program! I will have to look them up online.

    illinoislady, I really hope you have a great video session today! I remember being so nervous doing zoom meetings during Covid. After a few times it was easy! Like most things, it just takes practice! I am sure you will get the hang of it in no time!

    Mary, So glad to see you back, but even more, to hear you are feeling better!

    Carole, hope lunch with your friends was fun! Sounds like you will all have a wonderful time! I think Tippy has a pretty awesome pet parent! Isn't it funny how these furbabies end up training us?

    Betrayal, wondering if Regan has another class tonight. I lost track of when her last one was canceled. Did you mention the sewing machine with the treadle? That is what I learned to sew on! For a long time, it was the only sewing machine we had when I was growing up. My mother would sew dresses for all four of us girls on that machine! Not sure who has it now, along with my grandmother's gold coin earrings, both went to my oldest sister who lived in Texas and who passed away almost 12 years ago.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited April 2023

    Cindy - enjoyed your scavenger hunter / sprinkler story. I'm sure you find many treasures on your hunts. My DH once got a perfectly good craftsman tool drawer. The owner couldn't find the key and didn't have a use for it. DH double checked with him before we put it in our car. He still using it after all these years. One man's trash….

    Glad you're back Mary and that you're feeling better. Hope you're able to get the bike in good working condition.

    Karen - are you back to work this week? Do you have a treatment tomorrow?

    Happy Anniversary Mavericksmom. Sounds like you have some fun memories from that day. Are you doing anything special today? Today is my DS and DIL anniversary. They've been married 11 years. Sorry you had a bad night of stress. I hope you're feeling better this afternoon.

    Hope you had a nice lunch today Carole.

    Illinois - how are you feeling? Hope your zoom appointment went well.

    Petite - are you enjoying music therapy?

    Betrayal - I should have used your tea bag suggestion for my cut thumb. It was still bleeding off and on earlier this week. Next time.

    Had an eye doctor appointment this morning. I'm 4 and 6 weeks out from cataract surgery. I'm use to using the readers and finally found some sunglasses that I like. My eye doctor carries Maui Jim brand, among other brandsand I found a pair that fit. I just ordered a pair of reader sunglasses from Amazon (needed some to help read google maps for DH last weekend). Eyes are all set. Not if the rest of the body would cooperate, I'd be all set.

    It started off in the upper 40s this morning but now is 84. Humidity is low, so we have red flag warnings when the winds pick up.

    Hope everyone is doing well and has a nice evening.

  • mavericksmom
    mavericksmom Member Posts: 1,275
    edited April 2023

    sleep=better perspective I am not canceling any appointments at this time. Trying to put things behind me. Very glad I sent the letter. Reminded myself not to let that NN have power over my care

  • betrayal
    betrayal Member Posts: 3,110
    edited April 2023

    Wow, this forum has moved fast in the last 24 hours and takes some catching up to se what's going on. Yesterday was a laundry day so I washed the guest room bedding on Tuesday night so I would not be "washer woman" all day. Did not address the guest room at all yesterday but was back with a plan for today. I dusted all the walls, the ceiling and the furniture (including the undersides), and wiped down the day bed which is a vintage Swann (manufacturer) I purchased over 25 years ago. Rolled up the current area rug and the old under pad which went in the trash as I had a replacement made. Then washed the hard wood. The old rug was a bit on the small side and the new under pad was larger so I opted to recycle the rug I formerly had in my family room which fits better and gives me a "new" look. I will recycle the other rug elsewhere. I used furniture polish wipes on all wood furniture which was my parent's original bedroom set which they purchased when they first got married. It is mahogany but not in the best of shape after almost 80 years. It has sentimental value. All the drawers were either dumped or rearranged. Lots of former treasures in the drawers, some kept and others tossed. The replacement trundle arrived yesterday and DH and DSIL are going to assemble it now. Still lots to do as far as painting the window grids, vacuuming the mattresses and then redecorating the bed. I need to vacuum and hang the drapes, and then iron the sheers prior to hanging them. I have added back some of the prior decor but there is still a lot to sort through in my DD's former bedroom. I hope to be finished by early next week. I need to purchase a mattress pad for the one mattress so I can complete the bed.

    Loved the story about the sprinkler. I found a very large dog transport carrier curbside at a house where the people were moving. It was in great shape so I took it and stored it in my garage after a good scrubbing. The rescue I deal with passed on it but my DB and DSIL were pleased to get it for their rescue. She is afraid of thunderstorms and retreats into this as her shelter so they call it her "storm condo". One of my students related a story of how she and another student were traveling to campus and she was eating a banana. The driver told her she could not leave the peel in the car so she threw it out the window while they were driving and it flew back in and hit her in the face. We all had a laugh and said the Mother Nature was telling her not to litter.

    Just heard a noise I don't like coming from upstairs so will sign off...to be continued.

  • betrayal
    betrayal Member Posts: 3,110
    edited April 2023

    Unless canceled again, Regan should have class tomorrow. Sending DH with her so they can bond. I will relish some me time while they are gone since she is a velcro dog firmly attached to my butt and I'd like a breather on occasion.

    MM: Enjoy your anniversary and loved the story about your wedding.

    Noise was DD and DSIL assembling the trundle for the day bed. It is quite nice even though it is not one that can be raised. Looked into a replacement that could be raised but cost was prohibitive and reviews were not always good. This is all metal and quite sturdy plus it is white to match the cast iron bed.

    Mary, nice to see you back and wanted to tell you I received a copy of the book you had recommended. It is on the "to be read list" since I am trying to finish my current one. I love hearing about your "granny bike" adventures and the latest about Tippy.

    Petite1: music therapy looks interesting. I loved music when I was in grade and high school and it is sad that so many schools have eliminated music from the curriculum.

    Karen: hope you continue to feel better.

    Illinoislady: hope you continue to heal as well and can resume the activities you enjoy.

    Wanted to comment about other posts but did not take notes and know that if I scroll back, I will lose this.

    I am dog tired and hope I can sleep tonight. Last night was a train wreck since I was awake more than I slept because my knees hurt. I forgot to take ES Tylenol before bed but won't tonight. I need to buy some Tylenol Arthritis and give it a try. Tough when knees hurt since they limit so much of what we can accomplish if we are mobility challenged and really bad when they hurt in all positions: sitting, standing and lying.

    Hope everyone has a good Friday. We will go to lawyer's office to sign new wills, DPA and Living wills. The old ones were really outdated and no longer reflected our current mindset.

  • karen1956
    karen1956 Member Posts: 4,616
    edited April 2023

    MM - happy anniversary - April 20th is my late grandmother's birthday - and my son's bar mitzvah was on April 20th many years ago - so there are good associations with the day including your anniversary!

  • carolehalston
    carolehalston Member Posts: 8,182
    edited April 2023

    Betrayal, Tylenol for Arthritis is my go to pain med, which, I'm thankful to say, I don't have to use often. Two tablets every 8 hours. I also buy the pharmacy knockoffs. I avoid all anti-inflammatory meds as a favor to my kidneys.

    Rain in the forecast but not violent weather. If it isn't pouring rain at 11 am, I will head to the gym for Molly's Silver Sneakers class. It isn't as large as the Monday or Wednesday classes with different instructors because Molly is more challenging.

    The laundry basket is full again so there's always laundry.

    According to the email from the moderators, no access to forums on Monday.

  • betrayal
    betrayal Member Posts: 3,110
    edited April 2023

    A day without the forum will be like a day without sunshine. What will we do without Illinoislady's daily quote, the exchange of news and goings on, etc. LOL. Hopefully if will only be for one day but this has been a long time coming and I hope will be an improvement after this long wait.

  • mavericksmom
    mavericksmom Member Posts: 1,275
    edited April 2023

    betrayal, I love what you wrote and agree about illinoislady's quotes!!!! I hope Regan has a great lesson today!

    illinoislady, is your post op visit today? Sorry, trying hard to keep up with everyone on here, but I forget things so quickly! Thinking of you and hope you are continuing to be healing well!

    Just wanted to say that the reason I deleted my last post was because i wrote that I was keeping all of my scheduled appointments that were made prior to the "Survival Breast Care Plan" came in the mail. That isn't true as I decided to cancel my visits with my breast surgeon. I don't need! Sometimes less is more. I decided the whole mental derailment I had was a wakeup call to revise my whole health care, since I AM the one in charge of my health!

    I like my breast surgeon, he is a wonderful doctor, and I would have followed his suggested appointments if not for that "plan" from the nurse navigator. I really thought about it and decided since I don't have any breasts, what could he do for me that I can't do? I know my body better than he ever will and I spent years palpating many different animals to find abnormalities, since animals can't talk therefore all diagnoses of their diseases come from observation or testing.

    If something doesn't feel right of course I will see a doctor. They made a big deal on that plan the NN sent me about what tests are NOT part of my care plan, listing each one! It would have been easier for them to list only the test that is part of "my plan" which is mammograms! LOL So, I asked myself, "why am I taking up the time of a doctor I can safely do without?" I will definitely keep seeing my MO and my PS, both of whom will be able to monitor for problems associated with my breast cancer and/reconstruction, such as the implant, lymphedema, and symptoms of metastatic disease.

    Ironic that the annoying NN, while not what she indented, helped me make a better health plan for myself!

    I will see my PCP on Monday, but won't bring up any of this unless he asks. I am less concerned about metastasis of my bones, as I am leaning towards osteopenia or osteoarthritis. Very glad I decided to make the appointment with my PCP instead of my MO. I am VERY thankful none of my other health issues come in the form of "teams!"

    Now back to shredding old health records and de-cluttering!

  • chisandy
    chisandy Member Posts: 11,408
    edited April 2023

    Oh my, so much to catch up on! (Typing this on my phone in-flight—free wi-fi. Uses up my battery though, so I will have the flt att retrieve my tote so I can switch to the iPad and log back in).

    Mary, glad you’re feeling better and back here. I doubt any of us took offense. The exchange of ideas and breadth of knowledge here is amazing and humbling.

    Karen, hope you can regain your appetite!

    MavMom, I’d have fired my nurse-nav too had she sent me a survivorship plan like that!

    Jackie, hope your pain eases and your heart rebounds. I’ve been remiss in posting myself, but still miss your wisdom and friendship.

    I apologize for not posting pix, but there was too much to do and see for me to keep taking photos (and we had an official photographer with us who will post his photos on the CBA site). The sessions were the most informative of all the CLE trips I’ve taken, and the Irish panelists delightful. They’ll be visiting Chicago in September.

    The tour that affected me most was of Kilmainham Gaol in Dublin. It was a powerful history lesson about the famine, the Easter Rising, the war of independence from Britain and the civil war that followed. We saw evidence of all of those conflicts on the tour of the Four Courts—namely, all the bullet holes in the building exteriors.

    Didn’t do much solo walking, especially not Grafton Street nor Temple Bar. Not much on drinking for drinking’s sake—I’m more of a “gastronaut, as the late Keith Floyd used to say. I view drink as “liquid food with a kick,” and I don’t even like the buzz. But what I saw of the city from the back seats of the abundant and reasonably priced cabs, and on walks with my fellow attendees, was lovely. (Will post about meals & drink on the appropriate threads—but suffice it to say both were abundant to such an extent that they were a digestive challenge. TMI).

    Kinsale was a delight, albeit chilly, windy, and a bit damp (so much so that we took a pass on the ghost tour; the digestive stuff and “the agony of da feet” put the kibosh on most of the Scilly Walk). Portion sizes in both cities were big enough to choke a horse—didn’t help that psychologically the fact that everything was included led to not wanting to waste a morsel).

    Finally (for now), the return trip—from check-in to security to lounge and now biz class flight—has been the opposite experience of the trip over. Seated on the one-across side (larger plane) and feel pampered. Speaking of which, lunch has started. More later

  • cardplayer
    cardplayer Member Posts: 2,051
    edited April 2023

    I second your sentiment Betrayal. Let’s hope BCO upgrade is a success and nothing like the last time.

    Glad you’ve come up with a care plan that works for you Mavericksmom. I’m on the cycle where I see my BS once a year and MO once a year, 6 months apart. Still seeing my PS every 6 months but that’ll probably change after my visit next week as it’ll be a year since my surgery.

    Sounds like you had an enjoyable trip Sandy despite the GI challenges and foot agony. Safe travels home. Looking forward to hearing more about your adventures.

    I had a well planned day. I was going to do some cleaning and cooking. Got the cooking done. Spaghetti squash and sweet potatoes are all set. I guess I’ll clean tomorrow.I hope every is doing well and has a fabulous Friday afternoon.

  • karen1956
    karen1956 Member Posts: 4,616
    edited April 2023

    Good visit with Hematologist. He like my medical oncologist stick in "their lane" He agrees with Endocrinologist to watch my calcium and no surgery. For the first time in 3 years my Creatinine and Calcium numbers are good. He also said he wasn't sure what is what with calcium - primary hyperparathyroid or MM and goes from the notes endocrinologist sent, she doesn't either. He also asked about having my thyroid checked and when I last saw my primary care. I had a virtual visit the end of March. She didn't think I need to come in for a physical, but I'll make and appointment for June once school is out.

    Talked about lack of appetite, weight loss. and insomnia. He stepped out to take a call and left it to the nurse to deal with it. Nothing new that I didn't already. RN said to eat smaller meals and to snack in between meals. They are doing a referral to Dietician. I doubt she/he will have anything new but my big question is how to force myself to eat when not hungry or full. They also said limit water late at night and take senna with dinner. I've been drinking 12-16oz with my night meds which I take at bedtime. Hematologist is not in favor of meds for sleep but rather meditation, mindfulness, CBTi. I have a link for CBTi through the Mayo clinic.

    Hematologist also asked if I saw the transplant doctor yet. I told him my appointment is May 10th and that it was hard to get an appointment and the mess up with the referral. DH took that to mean that Hematologist is looking for me to have the SCT. I want to do whatever I can do without compromising QOL long term and will give me the longest DFS.

    MM - after 2 or 3 years, I quit seeing both my BS and PS. I was still seeing MO 4 times/year and it was too many appointments. I'll see PS if/when their are problems with my implants. These are from summer 2008, so 15 years.

    8 vials of blood drawn today including for the 84 gene panel. Got an email from Invitae and my insurance is covering 100%

    Today's injections hit me hard like the first time. Pale and very tired - almost immediately after shot. Treatment #2 and #3 were a breeze. 1/4 of the way done - 4 down with 12 more to go.

    DH asked about me getting Covid #6 vaccine as he heard that they are starting to give to immunocompromised. So I will watch to see when they are available.

    Wore my T-shirt - got compliments from several staff and the one other patient and her husband in the infusion room. Might just wear it every week - probably not, but every so often.

    Off for a nap.

  • illinoislady
    illinoislady Member Posts: 39,490
    edited April 2023

    I'll likely forget some things, so just know that I felt everything, everyone said. I should have 'learned' to make notes some few yrs. ago but I kidded myself into thinking the need was temporary. Perhaps back then it was in fact just an intermittent need. Never-the-less, here I am knowing that I should but holding back yet -- just in case, you know.

    I'm really glad to hear you have some positives showing up Karen. That is music to the ears and soul.

    Maverick, your news is great as well. In every negative there could be a gift lying about. I guess that is why that song (music therapy) talks about accentuate the positive. Sometimes it is hard to see and depending on the event, one might not even want to look. You spent enough time with your issue to figure out how to accentuate the positive and look into ALL your medical appts. and what you could excise with confidence. You found the sun in the middle of the rain and I'm hoping that becomes possible for a lot more of our 'incidents'.

    I too have a lot of hope for the soon to start changes here. I worry that since I'm not so hot on electronic things that some of the changes might upset what I have been able to do here successfully. Like putting in my quotes which I copy and paste in -- rather easily. On another thread I put in a lot of memes. In some places I like to share articles I've found and though tricker for me, at least can get them in. So, I feel like if I don't have to try and overcome too many changes in how the site functions I hope to be okay.

    I also think (due to the dust-up that took place originally) that the site will hopefully be easy on the eyes and easy to work with fonts that please us and make reading a lot more comfortable.


  • karen1956
    karen1956 Member Posts: 4,616
    edited April 2023

    Treatment is kicking my you know what!! The nausea is horrible. Almost as bad as BC chemo. I sure hope this won't be a pattern or it will be a long 12 weeks. I took a nap after lunch and when I woke up I took a Zofran and just took a Compazine a few minutes ago. DH said next week, I should take it preventative even before any side effects.

    Have a great night.

  • illinoislady
    illinoislady Member Posts: 39,490
    edited April 2023

    Karen, I think I spoke too soon. You may have some positives but also a huge negative. Nausea is as you say a horrible issue. I hope your Dh is right and you can medicate for nausea before your treatment the next time. Hugs.

  • mcbaker
    mcbaker Member Posts: 1,833
    edited April 2023

    Yes, Karen, premedicate. The knee replacement crew takes a heavy-duty pain med before PT.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited April 2023

    Sorry the treatment is rough this time around Karen. Are the side effects cumulative like chemo treatment? I use to pre-treat for side effects before chemo. I also went in for extra IV fluids, which made me feel a lot better too. And naps. Hope you’re feeling better today.

    Today is my 44th wedding anniversary. DH and I lived together before we got married. His parents said they’d buy us a color TV if we got married. We had a little 9” black and white TV. So we decided to get married. We got married by a justice of the peace at a hotel in front of family and friends. We went to St. Croix for our honeymoon. We’re going to Las Vegas in a week for a couple of days to celebrate.

    Hope everyone is feeling good today and has a wonderful day.

  • carolehalston
    carolehalston Member Posts: 8,182
    edited April 2023

    My sympathies, Karen. Hope the meds for nausea work.

    Happy Anniversary, Cardplayer.

    I have confidence in you, Jackie. You'll figure out how to post your quotes.

    I'm curious to see the next version.

  • mavericksmom
    mavericksmom Member Posts: 1,275
    edited April 2023

    Karen, I too hope you can get relief from your nausea! Horrible that you were doing so well and then boom, you're back to square one with nausea!

    Happy Anniversary Cardplayer! I am lucky to get my DH to go to the park, let alone on a vacation. The extent of our travel will be to the church in May, for our DGS's first holy communion, our DGD's dance recital, and some of each of their spring soccer games.

    Sounds like the new BC.org will be done on Monday and won't allow anyone to get on the message boards until Tuesday? I am not sure how that is going to affect us here, but in case I lose the ability to continue to get logged on, I want you all to know how important you are to me. I feel as if we are a like a family! I can't imagine life without each of you in it!

    Sandy, I hope you arrived home safely! I really enjoyed reading your posts about your Irish adventures and totally understand the lack of time to take pictures! I hope all at your home survived your absence, and my "all," I mean your DH and beloved cat!

    illinoislady, I hope today is another day of healing and feeling like a "new healthier" version of yourself!

  • illinoislady
    illinoislady Member Posts: 39,490
    edited April 2023

    Claiming self-reliance represents one of the most significant turning points in a human being's evolution. It signals the crucial shift from dependence on outer authority to reliance on inner knowing.

    image
    Alan Cohen