Can we have a forum for "older" people with bc?
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Karen, I never had chemo so I can’t help there. But it does sound like pretreat for the nausea before the treatment. I hope it goes away quickly.
I’m in the same group of “I didn’t take notes!” And I should have. Anniversary wishes; safe journey home; healing wishes too.
I spent yesterday or maybe it was the day before…changed all the HVAC filters, washed down all the vents too. Took the vent covers off the bathroom exhaust fans to clean them off, boy lots of lint & dust.
Today we steamed the oven and scrubbed some stubborn spots. Washed & scrubbed the racks. We leave in 2 weeks so I’m trying to get a jump on things. Last year Easter was late in the month and as guests left we had to hustle to clean before we left. This year should be better.
78% humidity at 9:30 this morning, so I passed on my bike ride. 84 now, maybe 90 tomorrow. I don’t like it this hot. Possible rain they said at 1pm, it’s after 5 and nothing. I think a book is calling me. Enjoy the rest of the weekend ladies
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Nice quote, illinoislady! Very appropriate, at least for me it was! I canceled my PS appointment too. I am only keeping my appointments with my PCP ( but refuse for it to be a well visit), my MO, Cardiologist, Eye Doctor, Dentist, and a few others although they aren't even yearly appointments and not related to anything to do with cancer!
I was disappointed, I clicked on the "what's for dinner" thread only to find someone writing about how they taught their seven-year-old to shoot a gun! Won't click on that topic again! It made me very uncomfortable. Why don't people stick to the topic it was intended for?
Actually, I don't need that thread anyway since I have the opposite problem Karen has. I am going back to having Slimfast for breakfast and lunch and then small portions of whatever I make for dinner. I saw on a report my BS sent to my PCP, he listed his finding of my examination and wrote Obese in bold letters! Thanks doc! That is all doctors ever see and every ailment is automatically blamed on weight!
I wish I hadn't made the appointment with my PCP first thing Monday morning. If it was later in the week I would cancel it, but now it's too late to do that. I am not feeling like I want to share anything with him now. At least after I am done with this appointment I won't see another doctor until the end of June, my cardiologist. I hope to lose a lot of weight by then!
I looked up the Nurse Navigator who derailed my medical plan and found her on Linked In! She was just as I imagined, a cute face who is very full of herself!
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Gully washer thunderstorms as predicted this afternoon. Of course they did hold off until right after I left my DS's. We did need the rain since the last storm was a trickle at best and the dirt in the backyard was cracking. So now I am home and dry. DH at a dinner so I have some "me" time and am loving it. I get annoyed that I can be fully engaged in watching a program on TV and he waits until the last 10 minutes to ascend from the basement, where he has been doing his thing for hours, and now wants to talk. He gets annoyed that I am not interested since I want to see the end of the show I have been watching. Doesn't seem to recognize his rude behavior as such.
Attended the soccer game of my 7 year old GD and it is fun to watch how they so quickly lose interest in the game. They were better today with working as a team and it is nice to see how some mother's are fully involved in being their coaches. They have infinite patience and offer such good pointers about how to play their positions. I am enjoying it and hope they don't keep score because so far they have been really lopsided games, LOL.
Cardplayer, happy anniversary and many more.
Karen, I, too, recommend pre-medicating for the nausea. Once it occurs it is hard to get a handle on it. Same goes for pain meds; if they are ordered every 4 hours, take them as ordered because it will take more than 30 minutes for them to kick in, so stay ahead of it.
MM: I think your letter to the NN was a good idea and hope you now can move on, since it seems to continue to needle you which is not good for your mental health. You seem so upbeat most of the time and assuming control of your health care is a step in the right direction.
A friend taught me the easiest way to clean oven racks was to place them in a large plastic leaf bag, spray them liberally with Off Oven cleaner, seal the bag and let them sit for 24-48 hours. Then all you need to do is rinse and no scrubbing involved. I have used it for years and it works every time. I decided to clean some dirty screens (in the bath tub) with Scrubbing Bubbles bathroom cleaner and it too involved only a good rinse plus the bath tub also got clean.
Have a good weekend.
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I am coming in late and I know I've forgotten things already. I would though like to comment on weight. I was OBESE for years. I am not now, but it was negative health issues that got a lot of the wt. off and that is not the correct way to do it. What I will say is that my Aunt Weasy (her name was Louise but most of us as little kids could not pronounce it -- so she became Aunt Weasy) was quite obese and had been that way for most of her life. She also was a darn good Nurse. She passed away when she was 92. Not really from her wt. but a broken hip. She always kept her house spotless as well as herself and her clothes. She stayed on her feet most of her time at work and was usually designated as the Charge Nurse.
I say all this because while I don't know a lot of her medical history (for instance how many pills she might have been prescribed and for what) although she never had to deal with diabetes of any kind. She also didn't go to the Dr. generally more than once a yr. Just saying that while you likely might be healthier if you have less wt., you can also be pretty healthy otherwise. Auntie liked a good dessert, but she ate a very good diet.
Maverick I'm a bit perturbed that The BS POINTED out this issue to your PCP . I realize that being obese is considered an issue where cancer is concerned, but I feel like your PCP was already aware and didn't need the aforementioned help in flashing red lights that way.
I tried everything under the sun -- with some success I might add, but in the end was not able to make much use of the majority of methods that were out there. I started out breaking my arm about three yrs. ago and one after the other of my medical issues has and did result in wt. loss. I don't for a minute want the weight back. Especially now that I'm at least a half an inch shorter. I just feel that wt. is a truly personal thing and people may try hard and still not to do well. I am sorry you had to see that.
On that note I will now wonder what might be in my medical records. Makes you also think -- if we were able to see our whole complete records, just what we might find.
Boy, all I can say is this group of women are such hard workers, it makes me feel like a real slug. But I am trying to catch up. The only thing I haven't liked much about having to do this ICD now. Would have been nice to have done it two or three months ago so I'd be rarin' to go this Spring -- but just a few weeks more.
Saying hi to Mary, and Puffin and anyone else who hasn't posted in awhile.
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What a difference a day makes. Tonight, I finally feel human. Still not sleeping well, but took a long nap this morning. Read this afternoon and went for 2 walks today - had to push myself in the morning but before dinner I was starting to feel better.
Card - happy anniversary - have fun in Las Vegas
I had BC chemo on Thursdays and went for IV hydration F,S,S and extra anti nausea meds in the IV.
I can't take narcotics as they bind me up, make me sick to my stomach and cause severe nausea. Gd wiling any future surgeries acetamenophin will do the job since I can't take NSAIDS
I wondering if #2 and #3 were easier as I was on the Revlimid (its a from of thalidamide (sp) that was used for nausea in pregnancy in the early 60s and my hematologist also said it was used as a sleep aid). and for #1 and yesterday I wasn't. I will definitely get a head of the game next week.
Got lots of paperwork to do tomorrow. Write IEP goals for a meeting on Thursday. Finish work for the class I've been taking since January and start my end of the year self-evaluation for my meeting on May 12th. I have one more observation for the year and that is May 1st at an annual review IEP - will work on that next Sunday.
Curious as well as to what the new platform will be like. I guess we'll find out next Tuesday or Wednesday.
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Illinoislady: Some health care systems provide full access to doctor's notes and some of what is posted is generic including a basic head to toe physical exam that may or may not have actually been performed. Horrors, but it is true and I have called several of my doc's out on this since to me it is falsifying a medical record. Don't record that you have listened to my heart when you never even touched me nor used a stethoscope to gather this data but it is a system-wide problem.
When this first went live, my PCP's note not only had classified me as obese by my BMI but it also appeared in bold RED INK! I called her on this and felt it was unnecessary to use the bold red ink letting her know I was offended not by the categorization (I am obese by BMI and likely to remain this way) but the use of the bold red ink. Seems this note was autogenerated based on my height and weight and she did not use the bold red ink. It is no longer entered in her notes so I guess enough of us have been offended and raised Cain about it. I recognize my body type and don't need it rubbed in.
Until I had children I had difficulty maintaining my body weight at what was considered the norm for height and weigh then. I was a flyweight then and criticized then as well for being too light, so if they want to have issues that is fine with me, just don't expect me to lose sleep over it. I am hoping to shed a few pounds once I stop the AI but if it doesn't happen, again I am not going to stress about it. I am active, still clean my own house, garden, build fire pits from scratch, walk the dog, etc and am not sitting around popping bon-bons in my face. I am on a reduced carb diet and stick pretty much to my daily allotment and somedays eat less. Most lunches are a salad and dinner is not carb/calorie laden. So it is what it is and I can live with it.
The health care system does have a sign posted in each exam room reminding PCP's to address weight issues at each visit and I can honestly say mine has chosen to not make this an issue with me. I think after the fiasco from years ago, she has realized that this focus can have a negative impact due to "fat shaming". She had a difficult pregnancy several years ago and still has some of the weight she gained then, so I think she realizes it is easy to talk the talk but not so easy to walk the walk.
You are not a slug and there were times when I read what you were doing that I felt like a piker. You will get back to a new norm once you have your medical issues under control and that looks like it will be soon. Right now you are conserving energy so you can heal, and then catch your breath as you hit the ground running once again. Loved the Aunt Weasy story. She sounds like a wonderful woman.
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Took a CBD/THC gummy last night instead of the tramadol. Fitbit says I slept 7 hours with no dreaming and little deep sleep. I think I dreamed a lot. For the past few nights, Fitbit said I haven't been sleeping. I don't know what the problem is, but I put Tippy's fleece on the floor where he sleeps when evicted from the bed for scratching. Will alternate gummies with tramadol, and assess which one does better.
Out of sorts because of this sewing job. Would rather be writing. The only thing left will be a caftan, which sews up quick, so I will take a break.
Had brunch with two friends yestermorn. One of them is socially isolated and upset about me leaving, so I am introducing her to friends who can be support people. This latest is everyone's mom and has taken this role for most of her life.
Yes, I am going to move to be closer to family after I recover from surgery. Nervous about it. In fact, last night I panicked, thinking I had left my keys in the apt. No, they were just deeper in my pocket.
I need to put another bag of potting soil in my planters. Half of them I will leave here. I hope to be able to take the other half with me. All will be planted with a bee/butterfly/hummingbird mix, as well as nasturtiums.
I have a Mayo patient portal, as well as patient portal at the local hospital, where my ortho works. I occasionally submit a request for a change.
Glad you are feeling better, Karen.
I just cut this from p. 4396 and pasted it to 4395, but saw nothing else to comment on.
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Betrayal, maybe my breast surgeon didn't make my report to my PCP have Obese in bold lettering? Either way, it was hurtful!
I started drinking high protein Slimfast for breakfast and lunch and only eating a very small portion of whatever we have for dinner. All the years of being called obese has taken away any pleasure I ever received from eating. Nothing tastes the same to me anymore, not due to doctors calling me obese, but just how it is. Things always tasted way better in my memory than it actually does. I eat to stay alive, that's all.
I wrote out what I want to discuss with my PCP tomorrow on an index card. I hope it is a quick visit, 15 mins, and I can get out of there quickly! Had I received the "survivorship plan" prior to making this appointment, I would never have made the appointment in the first place!
You are right Betrayal, that survival plan still "needles me!" I remember when you were having a rough time around Christmas last year, and you didn't want to decorate. I didn't fully understand your feelings then, but going through these last five days has made me think of you a lot. I definitely understand much better, how you must have felt. I wish I understood that at the time and offered you better support! Emotions are automatic, not thought driven. They often leave me feeling broken. I definitely feel broken now but I guess that opened me up to a better way to move forward.
In the long run, I will be much better off not seeing my breast surgeon or plastic surgeon. Most follow up visits are what I call "conveyor belt visits." They are due to what a medical board comes up with and are not personalized, even though they tell the public they are.
I wrote a short message to my MO on my patient portal about the care plan and my decisions. I won't see him until September, so I thought it only fair to inform him of the survival plan that was sent to me and how I plan to proceed with my care. I wonder if the plan was sent by his office, because the women was an oncology nurse navigator?
I was going to send him the results of my latest blood work (ordered by my cardiologist) but decided not too because the nurse navigator clearly stated that blood work was NOT part of my survival plan! If the oncologist wants to know how my blood levels are, then he can order them! I will tell him they were all normal when I see him in September, but only if he asks.
***one last comment on my Survival Care Plan, Oh how I want to tell them what to do with the plan they sent me........but I will be nice. LOL
OK, off my soap box now..................
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Made a strawberry smoothies with one scoop of protein powder (only 70 calories - but more than nothing) - frozen strawberries, OJ and almond milk. Actually quite good. Ate two Eggo waffles for breakfast with the smoothie and I"m FULL, FULLL FULL! I figure I an eat the waffles or English muffin before I leave for work and drink the smoothie on may to work.
Read the notes from Endocrinologist appointment and there were a couple things that I didn't remember from the visit but all in all good. She mentioned possible adding back calcium depending on how my levels do, after DEXA scan this summer, maybe other testing as well. Return in 3 to 6 months.
CMP in Cancer portal - blood calcium right at the cusp of the normal range - kidney function pretty stable but that is good. Hematologist ran 7 vials so curious what else he ran along with the 84 panel genetic testing. To be honest, a little worried about what will show up.
MM I hear you loud and clear. Doctors need to learn to hear and listen to us. My medical oncologist knows me well - Hematologist is just getting to know me an he is beginning to learn that I have a mind of my own.
Mary - good luck with your surgery.
Off to get busy for the day. GF is calling me this morning. Lots to catch up on.
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MM, receiving that "survival plan" definitely hit a raw nerve with you. I hope there can be some positive outcome in the long run. I find the whole subject of weight complicated and mysterious. Genes are definitely involved. I see plump moms with plump little daughters who look like miniature replicas. Then there are those people who can eat whatever they want and stay skinny. I would not be considered medically obese but I am trying to lose weight. In the last 8 to 10 years I have moved up 2 sizes from 12 to 16. I am hoping to stave off outgrowing those 16's. Most of my grown up life I was a size 10 and then a 12 and, like Jackie, tall at 5 ft. 7 in. Also, I'm convinced the sizes are not the same as years ago. Today's size 12 is like size 14 was when I was young.
Betrayal, it surprises me that you are overweight. You are so energetic and active, always working.
This morning I looked out into the front yard and spotted a rabbit sitting peacefully on the lawn near a big azalea bed. He or she must live in the neighborhood, maybe in the woods across the street.
I hope to be able to read everyone's posts on Tuesday.
Happy Sunday.
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I think some doctors treat diseases and forget that there are people who have those diseases. They prescribe medications and send us on our way. I've been lucky that my current PCP team takes the time to listen to me, reviews my medications, checks for interactions, reviews bloodwork with me, etc. I use them as the primary source of my medical care, so when another doctor wants to prescribe medication, I check with them. So far, it seems to be working out for me.
Before my BC diagnosis, I was considered overweight. Before the pandemic, I started water aerobics to see if I could lose some weight. And started to walk everyday. Then the pandemic happened and I stopped going to water aerobics. We walked every day though, but I didn't lose any weight. Then my diagnosis. Chemo took care of the extra weight for me. I lost 35 pounds and so far have been able keep the weight off.
Glad you're feeling better today Karen and have an appetite.
Nice that you're sleeping better Mary. I'm sure your friends will miss you when you move. Will you be far away from where you currently live?
Hope everyone is doing well. I'm sure I've missed some posts, lots going on in everyone's lives. Have a wonderful Sunday and will catch-up with everyone when the site is returns.
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MM: It is hurtful to be "labeled" by not only our care providers but also the public even though the latter don't necessarily put it in writing. Can't say if your BS's letter was computer generated or was dictated but either way, it is hurtful and judgmental. I saw a PS for reconstruction and to make a long story short, he told me due to volume loss due to the 2 lumpectomies followed by 34 days of radiation, I was not a candidate. Then he told me to go with his assistant to have photos of my chest taken especially since these were not "before" pictures. It was something he wanted to display! I told him absolutely not. I was boiling when I left and wrote him a letter telling him what I thought of his lack of compassion, his sadly lacking professionalism and him in general. It was so cathartic and I would never refer him to anyone.
I also reamed out my RO who had for 18 months (she made me wait to see PS) assured me repeatedly that I could have reconstruction. The damage she did to my breast and psyche is still palpable at times. Don't tolerate liars well and once you lie to me, we are more or less finished or at least the relationship becomes guarded. She blamed BS and he blamed her; I didn't have time for either after that experience and think less of both as professionals. Felt they betrayed me with lies when I was clear I wanted the truth.
I do struggle with Christmas. It is ongoing due to negative experiences associated with BC starting with a breast Ca dx on Christmas eve day after mammo and US and bx on New Year's eve day. It goes downhill from there. So a degree of PTSD triggered by Christmas. Hard to explain to others who well-intentioned have told me to "get over it" and can't realize it is not that easy.
Karen: So glad you were able to find a breakfast that worked. The smoothie sounds delicious.
Mary: Good luck with your upcoming surgery and move. I look forward to hear what you will be planting this year. Your sewing projects sound amazing. What are you writing? You talk about it but I may have missed the details and it sounds interesting.
Hope everyone has a good Sunday. It is sunny and cooler today after he thunderstorms yesterday. Spring is back for a bit. Loving it.
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Betrayal, I want to respond in case I can't do it later. You are right, it is PTSD! I think that is what I have from breast cancer treatment too! We are more similar than I knew, In 2003 I was diagnosed with IDC, and I had two lumpectomies, 24 nodes removed, followed by 4 rounds of ACT chemo and 34 rads. I had to stop rads for two weeks at day 21 because they burnt me so badly, large jellybean size blisters on top, entire skin sloughed off the bottom, a real mess! I too got tired of the lies and one doctor blaming the other. I always said I was MUTILATED, POISIONED AND BURNED!
I thought all of that trauma was due to having treated at a local hospital vs a city hospital, thus when I was diagnosed the second time with ILC in December of 2018, I went to Fox Chase Cancer Center in Philly, only to have the breast surgeon there lie to me and tell me it was FCCC policy not to remove a healthy breast unless a woman was BRCA positive! I am BRCA neg. So I could only have a left mastectomy. I did have reconstruction after my mastectomy on that side, but all my PS said was that I might have some difficulty with my skin healing due to the radiation treatments in 2003. That was also a LIE, unless they considered huge, blackened areas on my breast that took a full 7 months to stop bleeding, "difficult healing?" I thank God for my visiting nurse from Holy Redeemer Hospital, she was my angel, my life saver!
Turns out the big hospital wasn't any better, so I went back to my local hospital when I was diagnosed with IDC in my right breast last August. Sadly I was finally happy with my doctors and care. Then out of the blue a Nurse Navigator takes it upon herself to send me that survival care plan! I now realize that I too have PTSD which is why it made me so crazy panicked and extremely upset!
The sun is shining here, I hope to get outside today and enjoy the weather, even if it means pulling weeds!
Wishing everyone a great day and hope we can all get back on this thread easily after the launch of the new...hopefully improved???....BC.org
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Here’s a link to BCO PTSD information https://www.breastcancer.org/treatment-side-effects/ptsd-post-traumatic-stress-disorder
I discussed my PTSD symptoms with a psychologist while being treated. She suggested REIKI for me as well as a few other things. Lots of ways to combat the stress and anxiety related a diagnosis and treatment. REIKI and walking work best for me. I also go to a monthly BC support group. Trying to keep my mind and body healthy.
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Hello Everyone!
A reminder as we are getting ready to launch the new forums:The forums will be going into maintenance mode tomorrow for approximately 24 - 48 hours. This means that the forums will not be accessible while our team works to complete the implementation of the new site.While we regret having to briefly pause the conversation in the forums, this approach is necessary to ensure the best technical experience upon launch for our members.To connect with other members while the site is in maintenance mode, please join us for one of our virtual meetups. The full schedule can be found here.
And you can always reach our moderators at community@breastcancer.org.When the new site is live and ready for our members, we will email you to let you know. You can also check back at community.breastcancer.org for updates.
We look forward to welcoming you there soon!
The BCO Team
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Cardplayer, THANK YOU!!!! I had no idea PTSD for breast cancer was a real thing until Betrayal mentioned it. I printed out the link you posted. No doubt in my mind that I have PTSD thus the unexpected and horrible episode I had Wednesday night, not sleeping, revising the letter I wrote the to nurse navigator, out the wazoo, my reactions later, and the fact that this still bothers me! I feel like I was pushed off a cliff and there is no going back! I am so glad I won't see my MO until September because I want to avoid anything connected with breast cancer! I do have an appointment for a Dexa Scan in May, but it isn't until the end of the month. Hopefully by then I will have my emotions under control, although, it is done at the Breast Center, so maybe not? I am now considering talking to my PCP about this tomorrow.
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Cardplayer, 314 miles by car.
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"Love is stronger than differences. We all live on the same planet. We walk on the same earth. We breathe the same air. No matter where I was born, no matter what color skin I have or what religion I was raised to believe in, everything and everyone is connected to this one life. I no longer choose to prejudge others, to feel either superior or inferior."
-- Victoria Halik0 -
TODAY is one of those gorgeous days at BC.Org -- where epiphanies spring to life from the mutual exchange of feelings shared. I do not enjoy my pain or that of anyone else, but I did experience the profound comfort of Maverick suddenly recognizing what has been a rock around her neck lately. Oh to give it a name -- this rock that you cannot get rid of and which feels glued to youi in so many painful ways. So hard to work with something which as yet as no identity.
Mary, hugs. I think I have dreamed so much more than is usual for me so I'm on late because I just felt exhausted this morning and not as "well" as I had been feeling. Getting out a bit helped me but I'm not bursting with energy right now. Seeing my PCP tomorrow morning, getting my second bandage off, and going along then with only sterti-strips. I'll have questions for her. I'm irritated though. Tues. I will have to go to Marion and see the Cardiology nurse -- because that is how they do it. I do have a ride lined up and won't have to depend on Dh's driving. He feels competent and most of the time he does well enough, but I still find it difficult to feel peaceful when he is driving. All coming from his making so many upsets while we were driving around to the trauma surgeons after I broke my arm. He terrified me a couple of times. Have never felt comfy since.
So, that I'm don't lose this I'm going to send it now. I'm looking forward to seeing you all very soon.
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Rain starting tomorrow night in Denver 1-2" Monday night into Wednesday morning and 1-2 feet for the mountains!!!
See everyone on the other side of the new boards
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I’m going to just jump on. I wish the forums weren’t shutting down. I have my third surgery scheduled Wednesday another mastectomy and it is coming so quickly I’m having trouble wrapping my head around it.
I do agree that PTSD can result from cancer. Mine is linked with income tax time, which is bad enough on its own.
It’s nice to see the support for each other here, and I will take time to read through more posts.
I think I’m ok with the surgery but not the aftermath, I’ve had radiation that left me with severe fatigue once. Last time I had a medical oncologist who wanted me to have chemo, and then backtracked. The whole experience was very upsetting. I had a lot of problem with the anti hormone drugs, lost a lot of bone density and have had to deal with a Stress fracture in my femur since. So I’m extremely reluctant to try them again. But yesterday the nurse navigator suggested I would need them. Yikes! I so much prefer denial. I haven’t even told many people yet. And it was just our 50 th Anniversary. So my poor husband who has been wonderful but is also scared.
I know I’ll be okay but neithercounsellor I saw in the past can see me before surgery. It seems really crazy. I am lucky to have wonderfully supportive son, who has a lot of counselling training so that helps.
Sorry to blather on.
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bennybear,
We will be here for you and in your pocket any time you feel need of extra support. I do wish we had a bit more time with you, and hope you will come back often once the site is back on. I don't know how many people will see your post, but I'm sure everyone here is ready to jump in your pocket and give you tons of care and support.
So good to hear you have a trusted son who can stand in for other professionals just now.
We are with you.
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Thankyou! I will look forward to reading more in this group later in the week! I think it was therapeutic just writing what I was feelingand sharing it with others who get it. This site helped me a lot when I was first diagnosed and at times in between.
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Illinois: thanks for the shout out. Yes, I haven't posted for awhile but I keep up reading the posts. I went on my cruise last month to the Dominican Republic, St Thomas, St Kitts, St Maarten and Puerto Rico and had a wonderful time, saw lots of beautiful birds, 27 were new ones for me. Now I'm waiting for all our snow to melt (we got more again yesterday) so I can get the garden beds cleaned up. The bed beside my patio still has a 4 foot drift over most of the bed. Since it's in a corner facing north the sun never gets to it so today I went out with a shovel and got part of it cleared away. The Red River flooded again this year so birding has been limited too, either the roads are under water or the entire park is under water. This morning I prepared a presentation I'm going to give on my cruise to the residents here at my building.
Hope this transition goes smoother than the last one.
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Puffin - always good to see you. I loved St. Maarten but stayed on the French side.
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Bennybear. - we’ll be thinking of you and waiting to hear how you made out. ((HUGS))
I too hope this is back up and running better than ever. We can hope!
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BennyBear thinking of you as you move forward. Hugs.
Minus, May I ask where you stayed on St Martin and how you enjoyed it, what it was like? We are planning a trip there for a future significant anniversary.
See you all on the other side of the transition.
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I hope eveyone makes it back here! Not easy to navagate for sure! I like the old version much better. I will probably be on here less due to having to navigate through all the "junk" first.
Karen, hope you are still doing well. I continue to think of you daily!
Mary, likewise, hope you are doing ok too!
Betrayal, apparently I do not have PTSD, according to the nurse practitioner at my oncologists office what that nurse navigator sent me "just struck a nerve!" Last time I ever tell anyone about any mental or emotional issue! She said they have no idea why I got that Survival Plan which was clearly wrong and apparently the nurse navigator who sent it hasn't worked there for 6 months! Yep, another reason why I don't trust the medical community.
Not a great week this week either, I had a disatrous appointment with my PCP, who I will NEVER see again. I don't feel like going into the whole thing which was complicated by a previous patient who needed an EKG and my doctor's inability to navigate the computer since they changed systems and went to MyChart last November. Those weren't what ruined my visit, long story short, he wouldn't listen to me, kept asking me the same things over, and over and over again. I would tell him something and two minutes later he would ask me about the very thing I told him.
I wanted to scream at the top of my lungs, "someone quick, Dr. *** needs to do one of those draw a clock papers!"
When I called a different practice, saying I prefered a female PCP, I was told the doctor I called to see isn't taking any new patients until NEXT YEAR!!! Someone pleas tell me, this IS APRIL, not NOVEMBER or DECEMBER, right???? I think they just don't want people switching pratices. So, I will only go my PCP's office if I get sick and will ONLY see the nurse pratitioner! If she isn't available, I will go to our CVS clinic.
I did reschedule my June appointment with my breast surgeon, but have no intention of ever going back to my plastic surgeon. He is a great doctor, but no reason to see him.
I long for the good old days when my doctor knew me, treated me since I was a child, and who I had complete faith in. That will never happen again, so if by any chance I do have bone mets, it will still be there when I see my MO in September. Without examining me, my current PCP diagnosed me with restless leg syndrome and was quick to want to prescribe me a medication that is used for Parkinson's Disease. Yikes! No Way!!! Thanks but no thanks!
Hope everyone returns here, although I wouldn't blame anyone who decided to jump ship and go elsewhere.
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I noticed all the information about everyone's diagnoses and treatments are Gone With The Wind! Definitely not listing mine again.
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Please note:
New discussion forums are on the way! We’re currently still in
maintenance mode doing additional testing. Please check back later, and
look for an email announcing the new site is ready for visitors.0
