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Arthritis vs. Bone Mets

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  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    pmunafoarpil15, I understand your feelings. I do nothing but wonder every day. I saw my onc for my regular checkup on July 21. He called me on Sat. while I was at work and told me to call him back but that it was minor...WTH. I can't believe he called me on the weekend and just left me hanging. He has never called me so I am stressing. I left 2 messages for him and just got through to his secretary and she said he is swamped today but he should call me back after 6 tonight. Oh, I wonder what he wants!!

    hugs and prayers

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    Well, still haven't heard from onc. I did go for pelvic and vaginal ultrasounds this morning. For no other reason but that I have pain on my left side with this arthritis too and wanted to be sure all is well in the female parts. Be back later.

  • slee56
    slee56 Member Posts: 3
    edited August 2009

    Hello last year on July 29th I had surgery a bilattleral mastectomy and a Vaginal histerectomy at the same time. When I went to the surgon he mentioned something about my left femur and something going on there. Before chemo I had a cardio checkout, bone scan and ct scan. The bone scan showed "something on my left knee which was determined to be a b-9 growth. Since i had 2 (only ones materanl Aunts who had both BC and Colon cancer) and a matrernal grandmother who had colon cancer.. in Jan 09 I had a colonoscopy at which time 4 pylops were removed. In may 09 I had my Gall bladder removed because of some large stones in there which were causing problems. My right rib area (the side which the tumor was located ) was still bothering me a few weeks after the sugery so went in for an aray which showed an acute rib fracture. That was in June and the pain has become worse (am taking oxycodone) which helps sort of (makes the pain a little less). I am reciving PT in the form of moving the soft tissue in that area.

    On August 17th I go in for a bone scan and I have oral surgery. I can feel a bump on my right ribcage area that shoots out radating pain like a stabbbing at times ....

    Then on top of all things I have a Morton's nermona on the bottom of my right foot... I am sort of bmmed as i hobble around at times as that really hurts too... ok  enough for now ... just want some input has anyone else here had sooooo many issues at one time???

    The thing is with the bones scans they keep telling me I have a degnertive arthritic conditon in both of my ankles.... I also have Carpal tunnel and have gotten shots for that

  • London-Virginia
    London-Virginia Member Posts: 109
    edited August 2009

    Slee - Moreton's meuroma - the following could help  - I had this til recently too.

    You know those rubbery things you put between your toes to paint your nails?  Well, they stretch the metatarsals and are an inexpensive way of helpfing solve the problem.  You can use them for as litle as 20 mins before bed, or when you are resting.  Over a couple opf months, this did the trick for me.  Socks with toes 9like gloves but for the feet) can do thes same thing.

    Best wishes -

  • slee56
    slee56 Member Posts: 3
    edited August 2009

    Thank you for the info that is a great sugestion as i usally ice the area also b-4 bedtime as that helps... From reading about them it seems like the cortazone shots are the 1st treatment and that did not help my carpal tunnel very long about 4 months or so. They alos have an acholo nerve block that I might be willing to try... I guess the surgery for them has not worked well and I could end up in worse condition then b-4. So I will have to like everything else take this one step at a time and see what my options are. I go in on the 17th for a bone scan because I have been since June dealing with some rib problems on the right side too. An xray showed fractured ribs and they do not seem to be getting better. I also have oral surgry at 1:30 on that day getting teeth pulled and dentures. Maybe getting that problem taken care of will help with healing my body... Take care everyone shar

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    ok, onc called me and said my hemoglobin is low. He wants to repeat the blood tests now and also check the vitamin levels in my blood. Then take it from there. He was mailing the script yesterday. Wonder why that is low???

  • dreaming
    dreaming Member Posts: 219
    edited August 2009

    If you have a SED high it is a good idea to see an specialist, it doesn't nothing to do with cancer, it means inflammation some where in your body, when I was diagnosed with P.M.R. my SED level was off the charts 174, now is down to 80, it has been over 2 years.

  • pmunafoapril15
    pmunafoapril15 Member Posts: 2
    edited August 2009

    I hope you have heard. Good or bad, we need to hear! I waited a week for a repeat blood test which my onc called me about. I went for second blood test and did not hear bac, I waited a week which was a Friday...gave the receptionest a few choice words.. include F..... Doctor did not call following Monday; I called later knowing it was a late day for him and hoping to catch another girl taking his calls. He called back and said my blood was ok...versus CEA going from 1 to 150.. actually 1 to 1.5. I was going nuts wondering.

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    ok, what does SED mean . Also, CEA and PMR?

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    bump

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    Today I went to the orthopedic surgeon. He said, yes, it is osteoarthritis. Yes, it can be extremely painful. He suggests doing an injection ,xray guided under sedation. He says it can work for up to 6 months. Right now, they are seeing if my insurance will pay for it. In the meantime I went for my bloodwork yesterday for my onc. Will hear from him next week.

    Hugs

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited August 2009

    I've had steroid injections, nerve blocks and also epidurals that have worked well. I never had sedation or xray guided though...where is the arthritis? You may get a ton of relief candie, just don't be surprised when you have to do it again. It does wear off, but is well worth it!

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    Barbe, arthritis is in hip...both sides but the pain is in the left hip. I am using a cane to walk it is so bad. They are going by xrays. I am wondering should I insist on a bone scan first.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited August 2009

    You think they'd do that with your bc history!

  • SusieMTN
    SusieMTN Member Posts: 43
    edited August 2009

    Hi ladies!  Glad you posted this thread LauraGTO, but have to say I do miss your crown!

    Any of the Aromatase Inhibitors cause joint and muscle pain for those of us ER and PR positive.  I had some signs of arthritis prior to doing Chemo but since going on Aromasin and prior to that Arimidex I have had an escalating of joint and muscle pain.  It was keeping me awake and one week I only had about 5 hours for the entire week.  The Onc since put me on Tramadol for pain and this great topical analgesic cream called "Trixaicin" a prescription strength capsacin (sp) product which works great! In addition to that Motin to handle the stiffness. They work great and enable me to continue to exercise, I so miss my hikes!  Boy, who would have thought I would be on pain med's for arthritis always handled things natually with supplements, I had no idea it was so painful!  

    I too worry about bone met's (not to mention liver, lung etc...)  Do we ever get over that?  My Onc also does not do Tumor Markers, as he said they are highly unreliable, and it ends up scaring the patient.  He is adament about not wanting to "stress" the patient out and feels your state of mind is important to your survival, he is such a sweetie - just adore him!

       Wishing you well ladies! Cool

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited August 2009

    I used to be on Tramadol, but graduated up to Tridural 300 every single day. I have Demerol and Toredol for break-through pain. Good thing I'm lactose intolerant or I'd die of constipation!

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    Susie, thanks for all your help..you also, Barbe. Even though I do have arthritis, I was figuring the arimidex ia making it much worse. Now why do you think my hemoglobin is low. That is scaring me too. I had more blood work done the other day...so I am waiting to hear from onc. so, this is how my mind workd. My hemoglobin is low so therefore this is bone mets..you see...I toss and turn at night out of fright!! Susie, did you have bone scans??

    Thanks Barbe and Susie,

    Hugs,Candie

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited August 2009

    Candie, your bloodwork can be off as your body fights the inflamation of the arthritis. {{{{{{ hugz }}}}}}}

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    oh ok, Barbe, that makes sense. Thanks for responding. How are you doing? If you don't mind my asking ...what is Papillary Carcinoma?

  • jpann39
    jpann39 Member Posts: 92
    edited August 2009

    I had appt with pcp yesterday, she is sending me to reumotologist(sp?)....she did blood work and said that there is lots of activity...

    On more tread mill to jump on....hopefully it doesnt take long to figure this out and do something about it...

    Best wishes to everyone

    Jule

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    Jule,

    What does PCP mean lots of activity?

    Hugs,

    Candie

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited August 2009

    Candie, papillary carcinoma is a very, very rare breast cancer. I have met only one other person on this entire site with it.

    Sediment rates are one of the red flags when checking bloodwork. ANA is another. There's so much that shows, then has to be interpreted.  Good luck Jule, keep us posted.

    I am actually applying for a handicapped license plate! I can't believe I'm doing this, but I am so sick of the one or two times a week I can actually get enough energy to go to the grocery or drug store and I have to park miles away. This is not my exercise program, it is a chore for me. Woo hoo!

  • jpann39
    jpann39 Member Posts: 92
    edited August 2009

    Candie

    Barb is right.....my doctor talked about sediment rates and such...also about ANA but she said the reuomotologist would be the one to answer most of my questons. Not sure when I see this doctor but will keep posting on my experience here.

    Jule

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    Barbe and Jule, thanks for the info.  Hope all goes well for both of you. We will keep in touch.

    Candie

  • SusieMTN
    SusieMTN Member Posts: 43
    edited August 2009
    candie1971 - I had a bone scan before my chemo and a bone density done about 4 months ago that said I had Osteopenia, so am on calcium in morning and evening.  I have had my knee's and my back x-rayed and I have a thinning of the padding in the knee's, I forget what that is called!  X-rays of the back showed degenerative discs too plus arthritis, so have it all over the place...... 
  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    susie, I have arthritis all over the place too. I couldn't sleep all weekend. The pain in my hip is so bad,constant throbbing and it just doesn't stop. It radiates from my shin, thigh,hip,groin and back.I just cry at the drop of a hat!!

    I also have osteopenia.

  • barbe1958
    barbe1958 Member Posts: 7,605
    edited August 2009

    I have Demerol left over from my kidney surgery and I've been using that once I get to work (one hour drive!)....

  • candie1971
    candie1971 Member Posts: 2,467
    edited August 2009

    The hospital where I am supposed to have the injection called me this morning. They claim they do not give under sedation as the Dr said. Also not guided by xray. So they are sending me there, why? I left a message for Dr to call me back. I am really hurting and I cried when I called the Dr's office.

    edited to add: I could never have that injection done without sedation as it is so pianful in that area I would have to scream my way through it. I scream now when that area "slips"

  • SusieMTN
    SusieMTN Member Posts: 43
    edited August 2009
    candie1971 - With you pain in shin, thigh........  Did you notice it started in one area then additional area's started hurting?  Now the tops of my feet are burning/hurting!  The Tramadol is working for me with tylenol and topical capsacin type prescription strength cream.  Working enough to walk about 1-2 miles, not pain free but doable.  I only take 2 tramadol's per day - hate taking pain med's......  Off to get ready for surgery tomorrow, does the fun ever end..... Yell
  • barbe1958
    barbe1958 Member Posts: 7,605
    edited August 2009

    Candie, you can do it! I've had shots directly in to bursa sac in my shoulder and it is doable. Doesn't hurt any worse than the pain you have anyway and as soon as it's done you feel better. You will get a shot to numb the area anyway.....come on girlfriend...just say yes!

    Good luck tomorrow susie!