Cold Caps Users Past and Present, to Save Hair
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tunegirl-love the video! Made me smile huge! Good job ringing that bell you are such a pretty girl! Love that smile!
Giginb-thanks for your input on the rash I'll mention these drugs to my oncologist or see a dermatologist if it flares up again.
I am doing better my rash is flatter sort of calming down. The prednisone has its own ususal SEs. it is actually making me pretty sleepy which is weird but I welcome sleep these days. Might as well sleep in a bathing suit with all my night/sleep sweats!.
My hands and feet are super numb! I'm super worried about long term neuropathy. They really hurt something fierce with the hot swelling around the second and third day after my first DD taxol dexamethasone infusion. Really scared to do it again. Want to change the drugs...meeting with oncologist again to discuss options. I really don't want to go to weekly taxol either...anybody take abraxane? Not sure what other options there are besides taxotere. Not even sure the taxol was the problem.
I did get my tele ski boots on! Got on my beloved telemark xskis for a bit of excersise up the hill in my back yard this evening! so spirits rising! Super tired now very slow going up though.
Hope the rash goes away and stays away! So irritating, at least it's not on my face much. Still not entirely sure what it is. On my list of possibilities is actually quinoa! I read that some few can develop an allergy to the natural pesticide in the husk, saponin a soapy substance. Anyhow washing quinoa well before cooking is recommended. I quit my daily quinoa breakfast last Friday so we will see..The other possibility was imitrex quit that about ten days ago. Dexamethasone seems impossible but it has been the only real constant. the rash has always been lurking there it just blew up after that last infusion where I got double the Dex.
Haven't washed my hair in ten days and it seems fine. Not much shedding. I expect a huge shed next wash. Do I need to wash or is it best to just avoid if not necessary. Is it okay to leave the toppik in for a long time? I like the toppik! Med blonde.
Hugs everyone
Elastogelgirl
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ladies, to those who iced their fingers and toes, did you do it during infusion only ( im getting TCHP)? if you get perjeta and herceptin, do we need to ice them during these meds also?ty
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So happy for you tunegirl!! Your face say's it all! What an achievement and I love the victory lap and high fives. Made me smile, thank you for that.
Elastogelgirl, I hope the rash keeps getting better. Did you ice your feet during AC? I read that a glass of tonic water daily can help the neuropathy, have you tried that yet? It was on a chemo post here somewhere and the poster said that it helped within a day for her. Her oncology RN suggested it. I have stocked up on that already hoping that it will help as I am active like everyone else here is. I am having Taxol x 12 after AC, which is desirable only because the dosage is less each time and it just might help lessen this side effect. Trying for some optimism here! Drags things out for sure and I will be working through this time period if I am able to, but happy to have less dosage/less SE's if possible. Is that something your or your Docs have considered?
Latisse ladies!! Did you put it on during treatment? I have some but was hoarding it for after the lashes fall out, then put it on hoping they come back faster and possibly longer. Maybe I have that part wrong . . . please advise!!
I think I mentioned I am using Essential Eyebrow Solutions for the brows. Started that a few weeks ago. It may help keep 50% of them intact and they grow back faster. It is all science experiment! The 6 month bottle was $130 so I figured I could start now, as advised, and it would last mostly through my chemo. Made right here in SE Michigan. Heard about it from an RN in New Jersey. Weird how the grapevine works.
Off to work I go, wishing all of you a great weekend and keep the tips and GREAT NEWS coming. All of your are my inspirational support group, so appreciate popping on here and seeing successes and happiness shared.
Anne
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lovesgreen-hi thanks for well wishes and tonic water advice.
I did buy the mitts from elastogel for my hands and feet. I find them to be almost, well just intolerable. The cold cap hurts for five minutes,,the iced hands and feet just hurt. I end up tossing them off ,,then my cappers (my hubby and brother) put them back on me. So as far as really keeping the chemo out of hands and feet I'm not doing a very complete job.
I'm much better this am. the tips of my fingers are numb. My feet don't hurt. I've asked for different meds to calm me during chemo. My MO and I think the Ativan, benedryl, higher dexamethasone are working opposite for me..gave me an incredible rls reaction last time. So if I can actually relax maybe I'll get the hands feet colder next time. I did not have problems at all on AC except nausea and for a bout of face swelling once two days after. My rash was beginning to appear too but it wasn't anything like what I've got now.
As for 12 vs four taxol infusions I'm still not into driving the distance and cold capping that many times. I can switch to 9 more instead of 3. not really considering switching yet. Many gals here have no problem on DD taxol. I get rashy and have alergies with normal everyday stuff. So if your not sensitive like that you may have no problems. You can always switch.
Hugs e
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Tunegrrl- way to ring that bell at rads!! Congrats!!! Made me smile today, which is my nadir for this infusion
Hopfull2- you're so close to the finish line- very happy for you!!
kae_md99- I only iced fingers and toes during Taxotere, and so far with 3 infusions out of 6, no neuropathy symptoms. I've also been taking the L-glutamine supplements that the nurses recommended. Don't know which or whether both are working, but I am thankful that's the one SE that I've avoided so far.
lovesgreenthings- I've been using Latisse during treatment. I realize it may be a waste of money if all my lashes fall out, but I do feel better for now having seen my lashes that I've retained get longer. They're definitely more sparse- especially on my cancer side, and I'm anxious that my lashes and brows are going to fall out PFC like several ladies have mentioned. But in the meantime, I'm just going to treasure the sparse, longer lashes that I have for now. I had bought some GrandeLINER and brow products, but on the box, they said they're not suitable for chemo patients, so I sent them back. Customer service said they haven't run any clinical trials, so that's why they don't recommend them for chemo patients. Boo hoo...
Energy is low today... love you all!
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Tunegrrl! Congratulations! You look adorable! I'm so happy for you!
Lovesgreenthings: Thanks for the information on Essential Eyebrow Solutions. I called and talked to them and read their study. Very impressive! I'm going to give it a go. I've already had 2 rounds of T/C and they thought it would still be beneficial for me to use it. If nothing else, maybe it will help them grow back healthier when I do lose them. As far as Latisse, I've heard that it's just a waste to use until after you lose your lashes because they will fall out regardless.
Elastogelgirl, I'm so sorry that you are having so many issues. I can't even think about icing my hands or feet, so I hope I don't have neuropathy.
My hair shedding has slowed way down. I have lost 3 sandwich bags full! There is so much hair all over my house that the cats are coughing up MY fur balls! I think my hair is noticeably thinner, but my family doesn't. I think they're just being nice because I can feel it and it's very noticeable to me when I look in the mirror! I just hope it can take two more rounds!
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Elastogelgirl, of course, the drive is an issue. My brain is already not working, you have a long haul for sure. I live literally 5 minutes from the hospital so that did not occur to me. I just got off the phone with a successful Cold Capper in my area who is going to come to my house to demonstrate with her mother and they are coming for the first infusion. Honestly, we all see the big hearts some people have when going through this. And ours, of course grow larger. Just so nice of her to offer to help, amazing really. Will be paying it forward for sure.
Catgirl2, glad you hooked up with EES. It may not work, but it is worth a try for sure. I ordered and it came the next day.
Anoncub Your lashes sound lovely!! I am going to save my Latisse for PFC knowing I will lose them but hope they come back sooner. I have really long eyelashes so I will miss them when they go, but it sounds like they do regrow quickly. And thankfully there is Latisse, right?
Well, off to do some yoga and meditation after a long week of so many appointments and trying to keep focused at work. No problems sleeping at night right now with all of this activity . . . .. but I did use a Super Snooze from Puritan Pride last week and it knocked me right out for 8 straight hours with no yucky feeling the next morning. For those of you who are insomniacs, it might be something to consider. Calcium, magnesium, valerian root, hops (!), chamomile, passion flower, taurine and melatonin. Probably not on the MO approved list, but better than a sleeping pill, narcotic or even Benadryl in my mind.
Enjoy your Friday evenings Ladies!
Namaste'
Anne
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Tunegrrl!! You go. So happy for you I actually have (joyful) tears in my eyes. Wishing you happiness and peace. XO.
KD2016 - Thank you for sharing your before and after pics. Nice to hear from you. Your hair is looking healthy and you look good! Hard to imagine you would be there one day, right? I can't wait. Best wishes to you always.
Elasto - glad you're feeling better and perhaps getting some resolution on your rash/pain. So tough.
To everyone - hang in there! So much power and strength and love (and hair) around here.
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congrats tunegirl... In don't post on here often but I'm always reading everyone's post and you ladies are so encouraging.. I'm 2 weeks pfc and while excited I'm also scared looking at surgery the in next few weeks and although the mri and ct scan done after chemo have confirm the tumor has shrunk... I'm scared sh**less of the unknown.. this is my 2nd round with this.. but this time I decided to do chemo and radiation..
Oasn my hair as held up... wish I can post pics but haven't figured it out using my cell phone.
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I wanted to share some good news with everyone since good news is always welcome, right? The Nurse Navigator on my team is just a wonderful person and she connected me with a former Cold Capper in my area who had the same chemo protocol I am having. She had very good success despite her MO's pre-conceived assumptions. HA! T There have been few cold cappers where I am located which surprises me so much as this is not a new thing and I live in an economically sound area.
Anyway, that young lady emailed me earlier in the week and called me yesterday afternoon. She and her mother (her cold capper) are going to come to my house for a demo next Friday night ( I am providing dinner) for all my cold cap volunteers. Also, they are coming to the first infusion to help out. Who does that for a stranger? We do, the Mighty BC Sisterhood. Honestly, I was floored by her generosity. She is taking time off from her life and work to do this for me. They are insisting on doing this!
This horrible disease has really brought out the best in some people, hasn't it? I feel so very lucky to have angels popping up to help and guide me through all of this, just when it seems to be too much. All of you on this thread have been like that as well so wanted to share my appreciation for your tips and posts and also share what this Perfect Stranger is doing for me. I will pay it forward for sure, but thought this was something wonderful to share with all of you. If nothing else, to know that there are people out there willing to help has filled my heart with comfort.
To the poster with aches and pains and sciatica, have you considered a gentle yoga class? They can show you simple stretches that within a few classes may help with that pain. When I started yoga 5 years ago, I was 30 pounds overweight and had the beginnings of arthritis in my left ankle, right forefinger and one hip. Weight is off and no arthritis at all in those areas although it was just the beginning stages and could have been weight induced.
I started very slowly (one class a week on the weekend) and now am at an advanced level. The social aspect is great as well as the meditation part that helps with sleep. I can't say enough about it's benefits and I am a type A++++ person. It took me 6 months to settle down and figure it all out, I thought it was a waste of time until then and was impatient. Not surprising with my make up.
I also swam in my gyms Therapy Pool to work on my arms which are in great shape now. I may not look like Michelle Obama yet, but close and I am 57 now. She was my inspiration . . . wanted to get rid of the jiggle and slowly it happened. Made a ton of new friends and generally feel wonderful after each class as it is calming. There are a lot of yoga classes available that start out slower than the studios popping up everywhere. Yin Yoga is especially good for stretching muscles and fascia that help release the aches and pains. PM if you want more information. Last night I was next to a new yoga lady in her mid 70's with a lot of similar issues and she was amazed at the camaraderie in the class. She was worried about looking good (we do not wear expensive yoga clothes!) and how hard it would be. It is a go at your own pace place. Hope this helps.
Well, had to share my Cold Capper news with all of you!! Here's to doing everything that we can to fight the beast and maintain a sense of normalcy in our lives!!
Anne
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Tunegrrl------BEST Video I have seen in since I started this journey! And may I add you look amazing! Huge Congrats to you and all of us who are moving through our treatments
Wanted to give an update post my last TC chemo treatment (#4).
Hair......
I know there are not many using DIGNICAP at this time due to lack of availability, however I wanted to post an update now that I have completed my last treatment of TC (4 rounds). Sometime in the future there may be others looking for info on Dignicap and I may forget the details. Currently, I have approximately half of the amount of hair I started with. I had very thick hair, therefore when I say most people would not know I lost hair unless they knew me before. I do have a bald spot on the very top of my head. I do have bald spots around my temples. Shedding has slowed at this time (I am 1 week post chemo treatment). I am happy with my results as my goal was not to be bald and to keep as I told my MO at least half of my hair!
Through my treatment right or wrong, good or bad I..........did wear knit hats (which did heat my head right after treatment and probably pulled on my hair), washed my hair 2 times a week with a shampoo that was all natural, did not use any hair products, did use a ponytail holder and clips at times, last 2 treatments used blow dryer on cool setting, did not have my hair cut nor colored (it surely needs it now), used a satin type pillow case and used Wet Brush for comb outs.
Nails.....
There has been a debate on the nail polish. I chose to try the dark nail polish. I believe various chemo treatments affect individuals differently (possibly treatment duration as well). It would be interesting to know if the nail issue mainly affects those who have neuropathy with hands and feet. I have really suffered with the neuropathy throughout my treatment. I did not ice hands and feet as I did not believe I could handle it with cold capping. My nails looked normal until now (post last chemo treatment which was #4). Upon removing my nail polish my nails are tinged with yellow. My first two fingers have nails that are slightly thickened and have waves in them. Each nail (both hands) has a thick white band mid way through nail and below it at cuticle is a purplish color. Did the polish help or make it worse? I do not know. Also, I did have my hands in a lot of water doing dishes as my rubber gloves were uncomfortable with my burned fingers.
Lashes.....
I chose not to purchase any products in an effort to save my lashes. I have noticed a loss but still have some. I only wore mascara (waterproof) to my chemo treatments. May have many fall out later.
Brows.....
I literally have half brows as they end exactly in the arch. I visited Ulta before treatment and had makeup person help match my brow color with a waterproof pencil. When going anywhere I pencil the other side of my brows on. Will be looking into tattooing my brows as I doubt they will come back since they had been thinning prior to treatment.
Perhaps this will help others in some way to make decision that will work for them. Wishing all of us wellness!
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Thanks Summer 2016! Great feedback for all of us! And the ponytail has been one of my worries as I am active and wear a ponytail a lot so kind of wondering how that will go. Hate my hair in my face, but love my hair, right? I bought some silky scrunchies but feel like I am from the 80's with them on. Stupid thing to worry about, I know. Sorry for the neuropathy, another posted suggested 8 oz. of Tonic Water daily and that helped her tremendously. Someone else mentioned soaking hands and feet in warm Epson salt water. I have stocked up on all of this, hoping it will help.
Half of your hair is great!! That is success in my book especially with Taxotere, so happy for you. Thanks again for the tips.
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Summer: Thank you so much for your update! I am 2 rounds of T/C behind you. I had terrible shedding around treatment 2, but slowly tapered off to a normal shed. I also have thick hair and so far, only I can tell that it is thin. I figure that I will eventually get a bald spot or two. It's very thick in the back, but the sides are definitely thinner. I am using Penguin Cold Caps and they are a pain, so I hope it's worth it in the end. I would have preferred to use something like Dignicap, but nothing was available in my area. I'm the first patient at my center to use cold caps.
Lovesgreenthings: That is awesome that a stranger wants to give her time to help you out. When this is all over for me, I want to spread the word about cold capping in my area. I think it is a disservice to these patients that doctors don't at least make them aware of the option. If it wasn't for this website, I wouldn't have known about it myself.
I was wondering if anyone that is having their treatments via IV has had any issues around the needle site. About a week after each of my treatments, I develop an area that looks like a bad burn. It is read, raised, itchy and burning. I have heard that the chemo can leak out and give you a burn around the needle area. My MO thinks it's strange that it shows up a week later. Now I have a scare on each hand This one is twice the size of the other one. I don't want a port at this point, so I guess I'll just deal with it a couple more times.
Thanks for all of the advice on here ladies. You all rock!
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Catgirl-I am sorry you are having problems with your iv sites! I'm not surprised since I get Pain around in port! My two cents about my port, i always have pain around my port more now on the taxol! it's a weird sensation irritating feels hot and worrisome....the port did get slightly infected at first, took its time healing during my first two rounds of Ac chemo. I had it put in only two days before chemo, way too soon!. I also had a pretty bad swelling in my throat and neck after the port surgery probably from intubation. If you only have a couple more infusions I would say you are right about not wanting a port if it is avoidable. It's another surgery or two (one to take it out). I'm glad I have a port for my 8 infusions, only because I'm sure I would not have tolerated chemo directly into my veins with my thin rashy skin type. Hang in there! Maybe someone here will have advice about making the Iv more tolerable.
So I went tele-cross skiing on our back yard mountain yesterday despite my hand and foot numbness and super harsh toe pain. I feel like the heavy excersise really helped. My hands are much less numb this morning. Has my last dose of prednisone for my rash, praying rash does not return. Prednisone has its own issues with SEs. I was so whooped skiing could barely lift my arms at first but wow it helps to excersise. At first I could barely hold or lift the ski poles! by the end I picked up the pace and hand foot pain was unnoticeable, after that it was all about getting enough air.
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Question about Neo-adjuvant surgery? I read way back in this thread that neo-adjuvant surgery gals lost loads of hair after thier pfc surgery? Anyone have tips on protecting hair for my post chemo surgery? I'm going to have my surgery about 4-6 weeks PFC.
I don't know what besides head manipulation during intubation would cause this hair loss?
I'm thinking in need to wear some hair cap thing to keep them from pulling my hair around during intubation etc!
Intubation, at least on me, seems like a fairly brutal experience for the head! Last time I was put under my neck and throat felt like I was in a fight or something.
Hugs
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Tunegirl--CONGRATS!! You look so happy!! I start radiation on Tuesday and probably should start looking for a thread on the website to get some tips, suggestions?
Anoncub--I have been using Latisse on my lashes for a year and a half and it didn't help with preventing the fall out. I'm 4.5 weeks PFC and I lost most of my lashes in the past 10 days and more eyebrow thinning. I have also gotten at least a handful of hair out with the past 3 washings. Hoping it'll slow down.
Deemendoza--Good luck with surgery! That's great the tumor shrunk, all that misery paid off!
Anne--That is wonderful about the cold cappers. I feel the same way about angels stepping into my life when most needed through this journey. The generosity and compassion has been amazing. Even a simple text can make my day that someone cares about how I'm doing. It certainly preps you to be more empathetic to other's in their time of need.
I had been emotionally down (mostly scared) the last week about my worsened lymphedema and although I have a ton to do, just couldn't get motivated. Especially cleaning the house. Seems I do one thing a day, bathrooms, or scrub floor but have appointments or commitments and can never catch up. Well last night my mother in law handed me an envelop and said to take care of myself and get a house keeper. I can't believe her generosity. I can afford it more than her and it's been on my 'to do' list to look into one, but she said this was her way of doing something for me. I wanted to cry--ok maybe I did tear up! These are the kind of things that come when I need it most. I feel very blessed.
Summer--congrats on being done. I didn't have any nail problems, I actually think mine look better than ever! Maybe TC isn't as bad as some of the other chemos. Seems like Taxol is a problem more than Taxotere.
Amapola--My lymphedema started as just a bit of a swollen arm one morning that moved down to my hand by early afternoon. I called my MO to inform her and she had me come in for an ultrasound to rule out a clot (on the side of my lumpectomy). She then diagnosed it as lymhedema and referred me to a PT who specialized in lymphatic drainage massage. I notice that it gets worse if my diet gets worse or if I'm not moving or drinking a lot of liquids which happened over Valentine's day (the weekend before was a lot of socializing on top of the holiday goodies we made for friends and ourselves). Besides doing the massaging she taught me to do at home, I found some tips online such as drinking Ginger tea to stimulate the lymph system, dry brushing the areas, and using the citrus essential oils. I also cut back on salt/sugar the past 4 days and lost 5lbs of fluid that had been in my left arm and both legs (I was wearing compression garments on all these limbs that my PT gave me). I had gained 9 lbs in less than 2 weeks and my hand and feet looked like I weighed 300lbs. Worse on the left side. Although my MO gave me a prescription diuretic, I read that it will only relieve the fluid and your lymph has broken down proteins and toxins that a diuretic won't clear which is where the massage helps. My MO said that lymphedema can happen up to 3 months PFC. I think it'd because the chemo is still in you and killing so many cells and if you had sentinel lymph node removal like me, your drainage system has been compromised and theirs too much junk trying to get through a smaller drain which causes a buildup. Hope this helps anyone that may experience this in a few weeks.
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Thanks Pamela23! I'm happy to be finished with chemo. My hands and feet continue to be a huge problem--------lots of pain and numbness....sure hope it all goes away...oh and the flushing that my MO tries to tell me is chemopause well, I doubt that menopausal women have severe hot flashes every 20 minutes day and night! If they did they would jump out a window!!! There would be no elderly women on earth I'm sure. Next, I have an appointment with genetic counselor to see about testing (they will tell me if my insurance will cover the cost). MO wants to know if I carry an ovarian cancer gene. Nervous about that now.
I wish you the best with your next treatment, radiation. I'm certain you will sail through it too
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catgirl, I had an issuer with my veins. No rash but on my 3rd infusion I got badly bruised they call it the taxotere vein bruise. It's shaped like a vein but it's a bruis. It still has not gone away and that was 9 weeks ago. And my veins also hurt while I'm getting my infusion mainly with the taxotere.
Pamela that was so nice of you in law. My dad had handed me an envelope too to help pay for 1month of cold caps. I was so happy and thankful.
Hugs wv
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I wanted to share this. It works really well to help with the frizzy hair. Wish I found this sooner. I found it at tj max. It's paraben free.0 -
Amapola--my PT goes right into my underarm with the scar. I had major cording which was my biggest complaint since i felt I couldn't extend that arm for everyday uses. The Pt really worked on this the past 4 weeks and my range of motion has improved tremendously. We measured my range of motion pre and post treatments and it was a significant change. I had surgery early Oct so the scar is healed, my surgeon said I couldn't break it open when I saw her in November. She was encouraging rubbing Vitamin E in there to keep the scar from thickening up. She basically y rubs inside of it gently to stimulate the drain in that area. The dry brush is so gentle, I don't feel I'm pulling anything.
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Hopfull2, kshorten, lovesgreenthings, anoncub, Catgirl2, willa216, deemendoza, Summer2016, Pamela23, and Amapola36 - THANK YOU!! It makes me really happy to share my special occasion with you.
I haven't had a birthday party for myself in more than a decade, didn't attend my highschool graduation or university convocation, but THIS feels like something i want to celebrate and share. Getting through all this crap is a tremendous accomplishment for each of us. (Not that i'm entirely done treatment, but the big three are now behind me - chemo, surgery, rads.)
It has helped me so much to feel less alone in all this, checking in here and a few of the other threads. This one is my favorite. Sometimes i even save reading the latest posts, to look forward to enjoying them later (i'm looking at you, willa216). Like parcels delivered to my door and not yet opened.
Keep on keeping on, everybody. We truly are awesome, defiant in the face of chemo attacking our sense of self.
Beyond saving hair, i think cold-capping allows us to retain a sense of control while receiving cancer treatment. Waiting rooms i see are filled with worn-down, discouraged people. I think surrendering to the "normal" way to be a cancer patient engenders helplessness and despair. Taking control and choosing things for ourselves helps to protect us from that. It is great to be around other people taking charge and actively making the best of the situation.
I like having friends with qualities i admire. And i admire all of you. So proud of what we are doing here. It gives me something to be happy about. Redefining the experience of cancer treatment.
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Pamela23, if you can get a hold of some sea buckthorn oil, you might enjoy it on your skin during rads. (Washed off before going for treatments, though.) I started with emu oil after reading the glowing reviews of it on this site. When i needed more, the store was out of it so i tried sea buckthorn oil because it, too, has topical anti-inflammatory and antioxidant properties (and is often used for rads). I like that it is plant-based, and it smells wonderful. Very subtle, woody scent. Pure and natural.
I picked up more emu oil the other day, but now that i'm near the peak of skin side-effects, i'm finding the sea buckthorn oil is more soothing. The emu oil soaks in beautifully, but right now i prefer the slippery barrier provided by the sea buckthorn oil. It feels like a special luxury, too. Indulgent and annointing.
The other things suggested by the rads team were petroleum-based, and i didn't like the idea of that. Just kind of icky to me. Sea buckthorn oil feels like a treat. Everyone said my skin did exceptionally well. Feels like rug burn in my axilla now, but only when i move. Today and yesterday have been the worst yet, and still no big deal.
Best of luck!
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"Sea buckthorn oil is an antioxidant fatty essential oil with high amounts of vitamin C, A, B1, B2, and E. It is known to heal skin injuries, burns, eczema, and sun damaged skin. Sea buckthorn oil is popular amongst the skin care scene for its ability to smooth wrinkles for prematurely aging skin and its long term anti-inflammatory properties which is amazing for acne."
http://www.minimalistbeauty.com/3-skin-regeneratin...
This stuff, although the packaging has changed. Reviews suggest it is good for rosacea, so i'll give it a try on my face as well. https://www.amazon.com/Sibu-Beauty-Sea-Buckthorn-S...=as_li_ss_tl?ie=UTF8&qid=1462558156&sr=8-4&keywords=Sea+buckthorn+oil&linkCode=sl1&tag=holishealther-20&linkId=37fd9d2b0b7a19a5c39ae6d163ec940e
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I ran across this article too--4 natural ways to prevent skin burns during radiation:
https://thetruthaboutcancer.com/prevent-radiation-...
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was wash day today , getting ready for my last infusion on Thursday, I feel like I had more shedding today when I combed my hair out after I showered. I must say I have lost maybe like 25-30%of my hair. But I originally hage very fine /thin hair. So loosing that much hair is a lot. Too me it's equivalent to 50% since I didn't have thick /full head of hair. I just hope the haircut I list grows back soon. Looking at me now you can tell. My sons 8th gr graduation is in June. I just want to look like the way I looked before.
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Hopfull2, by June you'll have two inches of lush regrowth. Lots of time between now and then. (Half an inch a month is average). Lots of volume at the crown with the regrowth! Best of luck. Congrats on being down to your final treatment
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Pamela, there is a cancer support organization that can clean your house for you no charge. I have chemo brain right now and can't remember the name.
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Hopfull--I'm 5 weeks out and still getting a couple comb fulls at my washings. If I put it in a ponytail to wash my face, I can tell it's a lot less volume than I had but I ran into a neighbor today who had no idea what I've been going through and said she'd never be able to tell so the cold cap did it's job!
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Hi ladies, this is my first post as I was just recently diagnosed. I am starting chemo soon and am planning to use cold caps. I'm trying to decide which company to go with. Does anyone have experience (good or bad) with Wishcaps or Chemo Cold Caps? Any information regarding the company/product is appreciated. TIA.
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Hi 33Hopeful! I don't know about those companies, but have unsolicited advice for you since you have a bit of time before you start chemo.
Consider having a trim of 1-2 inches at least a week before your first infusion. Two weeks would be even better. If you have fine hair, avoid getting a lot of layers, since you'll want to keep as much fullness as you can.
Also consider having highlights done at the same time if you have straight hair (and you like having highlights). Not within two weeks of your first infusion though, unless you ask the colourist to avoid touching your roots (i did that and it was fine, just looked like a half and inch of regrowth at the roots). The reason for the highlights is they help create the illusion of more hair, with depth and shine. Since i'm blonde, the highlights also helped reduce contrast between my hair and my scalp, during the few weeks when i was quite thin on top.
This is all just my own opinion, but really i think it helps to start out with a good fresh trim and highlights if you tend to do those.
Not having any idea what you look like, this advice might not apply to you, but there it is. Best of luck!
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