Hormonal Treatment for Stage IV
Comments
-
Heidi,
It could be the Femara, or some dust in your eyes. :-)
Very easy to share good news. I think it helps all of us to remain optimistic.
*susan*
0 -
Bitte. Sprechen sie deutch? I certainly cannot spell it. I think hot flashes mean we are killing our enemy estrogen or at least keeping it at bay....who would have thought something we actually need would end up feeding our tumors? Stable is always good....last time they told me no change, but would not use the word stable which sort of bothers me
0 -
Ja, sicher. My hubby is Swiss as am I by association ;-)
Is it possible they want to see more than one unchanged event before calling it stable?0 -
Susan - so glad to hear you are still stable.
Marybe - maybe soon they will use the word stable for you too. I think Heidhill is right that they want to see things unchanged for more than one round of testing before they use the word stable.
As for me I am so glad the Femara is still working so good for me. At the last check my CA 27/29 is down to 50.3 which is still going down although not as drastically as it has in the last 6 months. Wow I just now added the months up and while at times it seems like I have been dealing with this forever, it has really only been 6 months. My last circulating cell count was 13! Waiting to see what next month brings. The night sweats were getting really bad and I mentioned it to the onco that they were waking me up several times a night and he said to try taking Vitamin E to help aleveate them and if that does not help then there is a prescription that he can give me. So we will see how that works, I will try it for a couple of weeks if it does not help I will call in for the Rx. Hope everyone has restful evening and Happy Valentines Day tomorrow.
0 -
Neirda- thanks for the info. My periods had stopped a few months before I started Tamoxifen and guess what came back a few days ago? Bizarre. I guess I should not complain about the lack of side effects!
Lori
0 -
*susan* woo hoo...so far, so good on just the Faslodex - got me to stable but you know I won't hesitate to ask for Arimidex back if that starts to change...LOL
Hugs...Low
0 -
Heidihill, So you are married to a Swiss?....from where....German sect I am guessing. I love the way they mix the languages like Merci Viel Mal. Just this past Sat. night I had a fondue party and used the fondue pot I got in Solothurn
0 -
Thanks.... I am pleased; just can't get wildly excited about much of anything right now. Does this "flat-line" ever go away?
Lori, make sure you tell your medical team about bleeding again. Any major change in body function seems to interest these folks immensely. :-)
May we all hang with the Stable Boy!
8susan*
0 -
Oh, Susan...Stable is a good thing, it really is. Are you on any anti-anxiety meds....those made me flatline and I did not like that feeling. Did you go to the chat on Sunday?....I went and the room was empty.
0 -
Marybe,
Yes, stable is good. No, I am on no anti-anxiety drugs so that isn't the problem! :-)
I stopped into the chat Sunday night, a bit late, and no one was about. I will try to remember to bump the thread next week. I missed having that weekly outlet.
*susan*
0 -
With Jenny66 having issues - she was the prime mover of the Sunday Night chat - I always forget about it and then when I remember - its late - someone may have to step up until we get our jenny back...
0 -
That looks like a fancy fondue set. Yes, dh is schwiitzer tüütsch.
Last night I had another experience in communal dining - Ethiopian-style. Instead of long forks, you used your hands and instead of day old bread, you had damp, crepe-y sour bread. Fun for the kids!0 -
Jenny66 is undergoing radiation now. She's resting a lot. I think the radiation will be over in about 10 more weekdays.
Lane
0 -
Thanks for the update Lane, I was wondering how she was doing. Please send love n hugs to her for me.
Chrissy
0 -
I need to talk I am freaking out I have an 8 yr old I don't want this I don't look or feel sick I am going nuts
0 -
Jodilynn1 - We're here to listen. Start talking to us.....
0 -
If I don't feel sick I don't look sick I don't get it.. am I coming or going living or dying.. my head is wreck I have an 8 year old I need help tears
0 -
What is going to happen will I die ? Wil I live when will it attack what is happening
0 -
I feel fine my head is a wreck.. I am at work.. I don't look different I have fun I am a Mom I have a job I am on zoladex shots and femera.. I have a wonderful love life when will things happen to me? I am afraid
0 -
is anyone there ? I am a mess
0 -
I'm here. Do you want to call me at work?
0 -
jodilynn, since you're a new member I'm pretty sure your posts are limited to 5 in a 24 hour period until you reach a certain number. I think you can still pm a member if you really need to talk and you've gone over your limit. Get in touch with BaseballFan. She will listen and offer advice. Anybody here will be happy to help you. My Mother is the one with the stage lV BC so I can't help you with any advice about treatment and such, just moral support. When you log in you will see a place at the top to pm a member. You don't have to go through this alone.
Peggy
0 -
sincitydealer - Jodilynn just PMd me and I'm waiting to hear from her.
0 -
Good, it really sounds like she needs somebody.
Peggy
0 -
I just talked to Jody. We're going to stay in touch with each other.
0 -
I'm glad you're there for her, Bobbi.
Peggy
0 -
Me too.
0 -
Jodilynn - there is no expiration date stamped on the bottom of your foot so look forward to a long life. There will be a ton of ups and downs, but we are all here to help and we all have freeked out and still do on occassion. You are not alone so start asking questions and sharing your feelings. This is a good place to share, vent, and get all the information, support and encouragement you need. So keep talking to us. We are here to help.
0 -
I've been away from the board for awhile, but since I was diagnosed with bone mets in December, 2010, I have been reading, but not posting.
In a nutshell, I was originally diagnosed in Feb. 2009, had bilateral mastectomies, followed by 4 chemo treatments (Cytoxan and Taxotere). Finished chemo in Aug. 2009, and was put on Tamoxifen. Began having back pain soon after chemo ended. Reported pain to oncologist and surgical oncologist but was told it was probably a side effect of the chemo and/or Tamoxifen. After several months (almost a year), I was told to see my primary care physician. He sent me for pelvic and back x-rays, then immediate MRI. This was followed by bone scan, PET scan, and CAT scan. Diagnosis: Mets to bone (spine, hip, rib, right skull). I was sent to an orthopedic specialist, and she diagnosed a hairline fracture of my left hip and I had surgery (IM nail and rod to reinforce my femur). Tamoxifen was stopped, and I was put on Femara, and have monthly Zometa infusions and Lupron injection (to eliminate estrogen production). As soon as I stopped the Tamoxifen, the 25 lbs I had gained while on it came right off. So far, no SE from the Femara, Zometa or Lupron. Still recovering from the hip surgery, but not taking any pain meds on a regular basis (just as needed, which is not often). I also had 10 rounds of radiation therapy for my spine and hip lesions, but not skull or rib.
Just recently noticed that I have a bump on my head which is not painful, itchy, red, or draining. I was told that it was most likely a skull lesion that had pushed through to my (left) scalp. Has anyone else had such a thing? I'm going to be getting another bone scan in a week or two and they will take a closer look at it. According to the radiologist, the lesion appeared in my initial bone scan, but was NOT mentioned in the report--only the lesion on the right was mentioned. WTF? I reportedly did not have any mets to any organs, including brain, but this just seems weird to me. Any thoughts?
It also seems to me like I may have had mets to bones right after my chemo (b/c of the back and hip pain). Why wasn't a scan recommended sooner?? I feel let down by my oncologist in a BIG way. This just sucks.
0 -
I don't know if this will answer your question or not about a lump on your skull. I had two. One turned out to be a type of tumor that is benign (Yeah) the other had just started growing during 2010. It really bothered me so I asked to have it removed. First oncologist told me it was probably nothing as did surgeon. The lump is gone and surgeon said she feels she got surrounding area which is good since it turned out to be BC. My new oncologist at Johns Hopkins nailed it as BC before I had it taken off. I had some issues with the incision opening so it took a little longer to heal but it's fine now (just a little dent). Hope this helps!
0
