Hormonal Treatment for Stage IV
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Yay Barbara!!!! That is great news and thanks for sharing!!! It's always good to hear that miracles do happen. Hope it never returns for you.
Well I had the check up and ended up having a bone scan as well which showed some progression. New ones appearing at the top of the right femur, top of the right humerus, sternum and T7 vertibrae. Not what I wanted to hear but oh well, it was bound to happen sooner or later. Thankfully they are all very small so we are not changing me from the Femara, the only thing we will do is monitor closely and if I have too much pain from the T7, then I will get some rads. Hopefully I can get through the next twelve months before I need to be scanned again.
Hope eveyone is doing well.
Love n hugs. Chrissy
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Barbara - so glad to hear of your good news! I hope you have continued success for a long, long time.
Chrissy - sorry to hear that you have some progression. I hope that they do not cause too much pain for you. Wishing you a scan free year.
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Barbara & Susan--CONGRATS ON YOUR GREAT NEWS!
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Barbara - congratulations on your wonderful news. Wishing you a very long remission.
Chrissy - praying for a scan free and pain free year. Hugs and lots of love.
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Just wanted to join Barbara's and Susan's party. Scan this morning continues to show NED! That will be 4 years on Femara. So happy for us!
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Congrats Heidihill - Celebrate each and every day!!
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Heidi,
ALWAYS room for one more! Wonderful news....
*susan*
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Susan, Barbara and Heidi Congrats!!!!!! I just love sharing others good news!!!!!!! YAHOO!
Elisimo, thanks for your good wishes, I hope so too.
Love n hugs all. Chrissy
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A NED party? Congrats!!!
Hoping I might get an invite some time LOL!
Chrissy - small p better than big P I guess and you seem to be taking it well (I know, we have no choice but still - hang on in there)
Laurie x
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Laurie, thanks I agree a small p is much better. I take it for what it is and it's nothing I can control so I just deal............if nothing else, I am a realist......lol
How are you doing?
Love n hugs. Chrissy
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Heidihill, Susan, Barbara,
So great to hear good news. This month is my 3-year mets-iversary, still NED, and continuing on Femara and Xgeva. It's a little frightening, although so wonderful. Always thinking, well how long can it last, but we'll take it, right? Living on the edge is okay. Congratulations!
Chrissy, I hope you get lots more than another year on Femara. Hope your painful areas stop giving you grief. Has your sternum bothered you at all? Mine never did, and I think I read that often it doesn't. Your little squirrel friend is still around. The little devil hung upside down and ate ALL the bird food out of my feeder last week. He's getting quite chunky. I think of you every time he comes by.
Lane
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Hi everybody.
I started out on these discussion boards 3 yrs ago with stage lla IDC and DCIS. I've been through 8 surgeries and chemo. My cancer came back 4 months ago to my lymph nodes in my neck and armpits. I had a neck dissection and complete hysterectomy in the same day. My hysterectomy was done because I had an unrelated benign tumor on my ovary that was large, and because I am strongly ER+ . They took out 12 lymph nodes from my neck/collarbone area and 11 were positive. So now I am considered stage lV and am on Arimidex. I was on Tamoxifen for 2 yrs. I guess it wasn't working. I was feeling really good until about 2 weeks ago when I found another small lump in my neck. I have pain in my right armpit and around the breast implant. I am having my next set of scans on Monday. Yikes!It's nice to see people can live a long time with stage lV, because I am not feeling very lucky these days.
Wendy
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Hey Wendy, welcome back although I know you would much rather not be here. Sure hope the Arimidex kicks some but and beats the beast back for you without too many SE's. Goodluck with the scans and do let us know how you get on.
Lane, the only thing I feel on the sternum is sort of an slight itchy soreness but it comes and goes. I often catch myself just rubbing it lightly without even thinking about it........lol. Loved hearing about the little squirrel and I can just imagine him hanging upside down stealing the seed......if he's dooing that I would think he's getting way more calories than he's used to hence the extra weight.....lol. Guess what? I mentioned to DH the other night your idea of meeting in Italy. The only thing he sad was I'd better get on to sorting out his passport......keep your fingers crossed that something may just happen.....yay!!!!
Love n hugs. Chrissy
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I'd love it, Chrissy, if we could meet in Italy. It would be fantastic. Well, the seed has been planted!! We'll keep watering it and hope it sprouts. Get on the ball with his passport before he changes his mind, girl! JUMP ON IT!
Love,Lane
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I'm game for Italy as long as it's a school holiday! Great to hear your news, Lane!
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Thank you, Heidihill. And, we'll keep you up to speed on any Italy plans!
Lane
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Wendy, Do let us know how you get along. There are a lot of options for us Stage IV gals. There are good days and bad days and we are all here to support each other through it sll.
I was able to get my Aredia treatment on Tuesday for this month, at least the Aranesp shot got my blood counts up enough for that; however, my CA 27/29 is on the way up again. It is not high but it is going up a little again. Same thing happened 3 months ago, but they started back down and now they are going up again. Currently it is at 39 which is up from 1 last September. Onco ordered another CTC and if it is 5 or above we will do all the scans and if it is below 5 we will just stick with the current plan whick is Femara and monthly Aredia. I should get the results from the CTC in another week so until then I wait............
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Oh dang AJ!!!!!! I don't like to hear that the numbers are going up again! Can't they speed up the results a bit? waiting a whole week is the pits!!!!!!! Please let us know as soon as you do as I will be sitting on the edge of my chair until I hear. Love you girl! Sending ((((HUGS)))))
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AmyJo,
Sorry to hear your numbers are going up. I had the same thing happen 3 months ago - up to 40 after being in the 20's for months. Then it went back down and was still down last month. I Hope your CTC is under 5. My onc is starting to use that. He did say it takes longer to get the results on that one, which is frustrating. Hoping your numbers are under 5 and that you can stay on Femara. Good luck,
Lane
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Chrissy and Lane - I would be up for a trip to Italy! (Closer than Japan!) I have not been there since '68 and would love to go again, esp to bee with friends. Keep me in the loop for the plans. Thanks for the hugs and good wishes - I will let you know the results as soon as I know.
Amy Jo
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I'll add you to the list, Amy Jo. Wow - 1968 - the year I graduated from high school! You, too, I'm thinkin'? Or, maybe 1969 for you. Now I need to get busy and start a travel buddies list, since I can't keep anything in my head these days. And I'll keep it right by the computer so I don't lose it!
Good luck on your tests,
Lane
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My list, Not my head. Well, maybe my head, too!
Lane
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Is that you on the third row... or the first?
Don't Postpone Joy!
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First row on the left! How did you manage to click that? I thought we were moving too fast......lol.... As always.....
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Hey Wendy,
just wondering: In your signature it says Her2+ - then why aren´t you getting Herceptin?
Love
Sus
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Susaloh,
I was Her2+ when I was originally diagnosed in 2008, because I had 2 different tumors next to each other, one was Her2+. I did get Herceptin in 2009 for a year during and after my chemo. The recent pathology reports with the mets to my lymph nodes in my neck are Her2- . I was trying to update my profile and signature and photo, but it wont let me for some reason.
I went for my CT scan and bone scan today. We'll see how that turns out next week, but the bump in my neck feels like its getting bigger.
Wendy
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I am so very happy for you ! I know that us stage iv gals are always in fear of IT returning ... my PET scan in jan showed no evidence of disease as well. I was diagnosed with stage iv from the get go in june of 11... everyone around me keeps saying GOOD FOR YOU YOU ARE CURED... well I am not cured! I am enjoying the time between now and next PET scan probably the end of march or april.... then PRAYING
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that the symptoms my daughter had so we did testing and her liver was enlarged and her enzymes were elevated. Better get those symptoms checked out,
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I'm on the third row on the left (with the pillbox hat).;-)
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CT scan came back showing increase in size and number of lymph nodes affected in my neck. Bone scan shows small spot on 2nd rib, that they say may be due to trauma or metastatic disease. That was my first bone scan, so nothing to compare it to. They switched me from Arimidex to Aromasin now. We wait 2 months and see if its working, and then on to Faslodex if it is not. Hope everyone is doing ok, not many posts lately.
Wendy
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