Chemotherapy for Stage IV
Comments
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I am so sorry soleil, Hopefully it will work out and if not praying that the navelbine does its job..Enjoy your chemo free weekend.
Terry
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Doesn't seem fair to me at all. The onc should have the last word, not the insurance company.
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I'm trying to be positive about the navelbine. When doc made insurance presentation she said I may be chemo resistant. That was forboding but now I'm thinking that she was just making the presentation No reason why the navelbine won't work for me.
Trying to be positive but have to get this out. If I was on disability, this procedure would be covered. ARGH! I pay $900 a month to an insurance company and the insurance company turns it down ARGH ARGH ARGH.
So, its a sunny day here in California. I'm going to enjoy every minute. Navelbine....here I come
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Soleil,
I'm so sorry about the spheres not being covered. But your attitude is so bright..I'm praying the navelbine kicks those mets to the curb.
I hope everyone else is enjoying this beautiful Sunday. I'm going to try to straighten things up around my house and then try a walk with my hubby and our babies(my two chihuahuas)..lol. The weather here is finally nice..high 70s during the day but drops down to 50s at night just wonderful fall weather. I was so I'll this summer with that 100 degree weather and high humidity. We spent ten plus years stationed in different parts of Canada..so I got used to lovely summers with little heat.
I made this crazy decision sat week to add a local oncologist and keep my doctor at Barnes Jewish as the lead..to do scans and decide treatments. I got paperwork from new oncologist and second guessing my self now lol. I don't see him till the tenth of October. I was hoping having an oncologist closer would help with hospital stays and such in the future. My oncologist now has to call everything in when I'm in the hospital or I go to Barnes and my family has to commute. We will see..just curious if anyone else does this and how you find it works.
Well my dears have a blessed day and enjoy your day:) my prayers always!
Hugs
Kimber0 -
Okay, trying for the third time to post this link for you. Notself posted in another thread and I read the article. Very interesting BC study reported on this weekend in Nature magazine and article in New York times. Hope you can all access it. Sounds very promising for future treatment of BC, especially triple negative. Maybe if you do a copy and paste? http://www.nytimes.com/2012/09/24/health/study-finds-variations-of-breast-cancer.html?_r=1&hp
I lost a very long post trying to do this. Hate when that happens. Anyway, hope everyone had a good weekend. Soleil, I think it is so wrong that you have to pay so much for health insurance only to have the treatment your doctor recommends be denied. Kimber, I totally agree with your decision to have a local oncologist. I know of several others who post who have two oncologists. I think as long as they are willing to communicate with one another you will always have two opinions. A win-win as I see it.
Looking forward to the next ten days before I begin my chemo cycle again. This is when I feel the best and have the most energy. I have lots planned including a dinner party Saturday night (which may have been a mistake since I really don't like cooking), an Orioles game, a day trip to Pennsylvania, and a visit from a good friend from Kansas. Being a football junkie, I wasted yesterday staying inside and watching football. Today I vow to be outdoors at least part of the day. I'm not ready for fall. I love warm.
Have a great day, my friends!0 -
Glenna, Have fun
Chemo breaks are time to eat up the world and have the moon for desert
Enjoy!0 -
i like that one made me smile! thank u
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So true soleil
you have an amazing attitude. Have a blast Glenna. Hugs to all. K0 -
I like that, too, Soleil! Made me smile big time. When do you start the navelbine? I'll be checking in to see how everyone is doing. Take care, my buddies!
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So excited for you soleil..I pray this is the miracle that kicks those mets to the curb.
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@wannacruise, thanks for the link. Sometimes I forget to go to the active links. There is so much to read here that I tend to go to my favorite threads.
@soleil .... So happy for you!0 -
Thanks, I'm pretty amazed myself. I'm one who basically has non stoppable liver mets. The nurse advocate was very doubtful insurance would okay this. She was amazed herself when she called yesterday. Guess they are opening it up more and more for breast cancer. i'm glad I squeaked in the door. Get to cancel my navelbine appointment today....happy!
Will stay on this post for awhile though, cause I like you all so much. Hope its okay
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Soleil,
Please stay, otherwise we'll be tracking you down to check up on you!! I've got to research and find out what SIRTS is. I'm with Kimber though, in hoping this treatment kicks those liver mets to the curb!0 -
Glenna don't feel bad I had to look sirt up too. Soleil you will have to give us more info when you feel up to it but roughly what I got is you are implanted with radioactive seeds that will kill the cancer cells for up to 14 days. Not sure how correct that is I just read two articles on it...I'm very amazed at what science has come up with to destroy this beast. Soleil, I felt the same way I don't want to over step here but this is home..you gals mean the world to me!
Hope everyone else is doing good. Having some lazy days...I've been able to keep down four tykerb now the last two days which is wonderful. Besides the big d and nausea...I'm having really bad hip pain in my left hip..sure it is just SE but makes walking fun;) going to go nibble on some homemade soup. Have a great night all!0 -
Homemade soup sounds absolutely heavenly. Enjoy!
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Soleil, you have to sty with us. We have to know if this treatment worked, if you are in any pain and if the liver mets reappear. I'm sure there a lot of us who will probably have this procedure later in life.
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Don't worry, I'll stay on here. wouldn't be morning without a hello!
Hows your job going Spamgirl?
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sorry to reply to myself
Looking for info on the traveling pants. I'd like to contact them and don't know how. Anybody know anything?Thanks in advance
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Do a search for travelingpants2.
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Glenna, i tried that, came up wih nothing. Is the name of the pants Michelle? I think I need the member name too.
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Soleil, i bumped this thread for you. go to: If you could do anything with a non-profit on the stage IV thread and you will find posts by travelingpants2.
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http://community.breastcancer.org/forum/8/topic/793836?page=1#post_3219106
I think this is what you are looking for0 -
Thanks so much Kimberly. I'm hoping to get the pants sent to someone who really needs them right now. If this works, you'll find out
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That is awesome soleil..I hope it brightens her day
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Hi all my chemo buddies,
I've had a busy couple of days ... making the most of feeling good before chemo tomorrow. Had lunch yesterday with a BCO buddy and then wine with good friends before taking my youngest son out to celebrate his 30th birthday. Today breakfast with my Al-Anon sponsor, lunch at the school where I worked and then a couple of boring errands (flu shot and turning in tags at the MVA). Sandwiches for dinner tonight because I wore myself out.
Soleil, hoping those pants get to a good place! I didn't realize that's what you were trying to do.
Off to Florida on Friday to spend some time with family there but I will keep in touch!0 -
I did contact the pants girls. Those pants should get around more quickly, I think. Apparantly, there are so many women who need a pants visit, tough to schedule
In my hunt, i also discovered the central address book. I'm slow sometimes. That is a great tool. Everyone was on it, but me, I think.
Glenna, hope the chemo isn't too awful today. Glad you spent Sunday having some fun!
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Good morning gals:) I've been resting..since chemo on Monday. We are hoping to go away this weekend to little rock. I haven't had a trip away in a long time. It is a seven hour drive but the hubby will do the driving. Going to see my in laws and just have a quiet weekend. Lots of sleeping in and good company.
Soleil, how are you coming on the SIRT? Could you maybe give us an depth idea of what it is going to be like..if you feel up to it..I'm very interested in treatments I'm not familiar with as I feel like you ladies are pioneers and we learn so much from each other. Soleil don't feel bad I'm not in the address book either.
Got a note from Laurie..she has been having such a rough time of things it just breaks my heart. Any news from sue?
Glenna glad to hear you are doing good:)
Spam girl...how r you doing?
Well hugs to all..I'm going to go lay down..I'm pooped..lol
Kimber
I hope everyone else has a nice weekend too.0 -
I've been so worried about Laurie. Miss her wit and her positive spirit. I see she's posting each day but I have a feeling she's not feel so well. Don't want to bother her, know she is with her family. But tell her I miss her next time you write.
Enjoy your trip. Sounds like fun
Phase 1 of the procedure went great! I was so scared. But it was all okay.
It is a dye process. They put dye in your veins to map the route of the beads. Mine is radiation. Some have chemo but due to my allergies they are going for the radiation. so, they put a tube in through your groin and kind of shoot the beads in. They ordered the bead. They are hoping for Monday but it could be as late as next week. They are pushing because I have some progression on aromasin. I feel some hope in my heart now. I'll let you know whatever else I learn as I go.
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Hi all,
Kimber, thanks for the update on Laurie. I've been worried about her, too. You ladies .... please, please, get yourselves in the address book or at least give someone (me or someone you touch base with frequently) your contact information. When you were awol, Kimber, some of us were going nuts trying to find a way to reach you. I'm BCO buddy with scuttlers because we play words with friends are in daily contact that way. We exchanged contact info. She has my DH's name and number plus my other contact information. We get to be pretty darned close through our contact with each other and we do worry unless we know you're on vacation or something.
Soleil, thanks for sharing about the SIRT procedure. Sounds cutting edge, to say the least. I'm praying for great success for you.
I had chemo today and made the mistake of having the flu shot yesterday so am feeling a bit yucky. Tomorrow will get the neulastla shot. Onc told me today that I will only be able to get one more doxil treatment due to the maximum life limit that is set because of the damage that adriamycin does to the heart. Will have an echocardiogram on the 17th and see him the next week. He will discuss with the tumor board where I should go next. He says there are still plenty of options and that they come up with new things everyday. I feel like I've tried so many things already and am scared I'm going to run out.
Kimber, enjoy your get-away! I head to my mom's in Florida on Friday and will have a quiet week with her! The weekend of the 12th going to my sister's class reunion with her (she is one year older than me and I know lots of her friends). Looking forward to a good time.
All you other chemo gals, stay in touch and let us know how you are doing.0
