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Calling all TNs

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  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,898
    edited October 2023

    Hello everyone,

    I was looking to see what had happened to Calling all TNs in this bewildering maze that the forum has become. So many people seem to have got lost in it or have just given up. it is so sad. All in the name of "progress!".

    I found TNs and was surprised to find that the last post was from me last August. It is unbelievable. I was posting to encourage people by letting you know that I had reached 18 years since diagnosis after being told that my case was a poor prognosis.

    Let us try to revive Calling all TNs as well as the thread I started back in 2010 Calling all Triple NegativeBreast Cancer Patient in the UK. Both threads used to be very active and mine was not restricted to the UK.

    Where are you, InspiredbyDolce (Debra)?

    Best wishes

    Sylvia

  • martaj
    martaj Member Posts: 307

    I am TN, I find this new forum extremely frustrating and haven't posted in a long time

  • moderators
    moderators Posts: 7,665

    @martaj, we're sorry to hear that! If you're open to it, we'd appreciate any specific feedback. Please, feel free to send us a private message with any issues you may be experiencing. We value your participation in the community, and we're here to help you!

    The Mods

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,898

    Hello @martaj,

    I was interested to read that you are triple negative. Why not tell us about yourself and your story.

    Sending you Best wishes

    Sylvia.

  • jenjenl
    jenjenl Member Posts: 409

    This day 11 years ago, they told us I had stage 2 BRCA 1+ triple negative cancer. We were so scared, and the kids were so young (5 and 2.5 yrs old) . It's the club no one ever wants to join. Today, I got to celebrate the day with my main squeeze shopping, lunch at my fav burger joint and pedis. Thankful for every day and all my peeps. I have a scare every year, sometimes multiple times a year, and my care team immediately investigates. Stay strong and always have hope! xo

  • piperkay
    piperkay Member Posts: 132

    Dropping in to report five years NED! I was diagnosed in November 2018, and today is the five year anniversary of my lumpectomy with chemo and radiation ahead of me. I'm trying not to announce this too far and wide for fear of jinxing it, and no one noticed with me (which confirms that we can get back to a "normal" life, lol) but I did want to share this news with those who need hope. 💕 Anne

  • moderators
    moderators Posts: 7,665

    That is so wonderful to hear, @piperkay! I know that it will definitely feel helpful to those hoping for similars down the line. Thank you so much for sharing. ☺️❤️

    Warmly,
    The Mods

  • cookie54
    cookie54 Member Posts: 609

    Congrats piperkay! Celebrate you!

  • notdefined
    notdefined Member Posts: 267

    Congrats PiperKay! Today is my 5 year date from diagnosis. I don't come on these boards often, but I remember reading some of your posts.

  • piperkay
    piperkay Member Posts: 132

    And Congrats to you, notdefined! I also remember your unique user name. As you can see, I don't check on here very often anymore either. I think that's a good sign!

  • serendipity09
    serendipity09 Member Posts: 769

    Congrats Piperkay!

  • Finished 10 rounds of chemo, now Keytruda, Dmx, rads, and more Keytruda…feeling a bit overwhelmed…hoping for good results. Any tips or items to have on hand especially to get ready for my surgery? Trying to keep my spirits up. Thank you to all who have bravely gone through this treatment journey and are willing to share.

  • santabarbarian
    santabarbarian Member Posts: 2,310

    I am about here are cancer free! 5.5 years and this is the first January with no blood test or appointment!

    My daughter had twins in 2022 and I have been very busy as a grandmother.

    love to all!

  • cookie54
    cookie54 Member Posts: 609

    @santabarbarian Hi, So happy to hear you are doing well! Glad you are enjoying being a grandmother and two times the love! Enjoy and keep on going.