Calling all TNs
Comments
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hey ladies, DC sounds like fun but I certainly cannot make it there
live way to far to just come for the weekend. Anyway I wish you all lots of fun and make lots of pictures .A bit of good news on my side of the world... IM DONE !!!!! I had my last Rad today... total of 8 weeks 5 days per week. Whoooohooooo. My skin looks like burnt chicken LOL but it'll all be good again soon. Was a long road but when ya think about it it all went by quickly..with alot of big bumps in the road .
To the comment about " dont sleep with your pets " well yeah okay.. but just dont let them scratch you or bite you... I know what Im talking about. My puppy punctured my skin on my hand about 7 days after a taxotere sitting... it got infected, almost gave me a sepsis , I had fever etc... I had a complete collapse and ended up in the emergency room.. they hospitalized me for 4 days. About 1 week after the collapse they operated on my hand to get out the infection.. I now have a huge scar on my right hand. SO yes be carefull of your pets, that scratch or small bite can kill you .
Ladies until next time.. take care of yourselves... be back soon
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Babs - thinking of you (((hugs)))
MBJ - sounds like you're starting to feel a little better - hope you continue up hill.
Monish - congrats on being done!!! whoo hooooooo
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Babs37: Praying your surgery will go smoothly and recovery will be quick! Just ask for Versed as soon as they can give it to you... it is a miracle drug for me and I remembered nothing after 5 minutes of getting it! This time tomorrow, you'll be on the other side!
Monish: Congrats on being DONE!!!
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Thanks everyone for your kind words. I am very happy to have found you all. (((Hugs)))
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Babs -
All the best to you and an uneventful recovery.
Carole:
Welcome and sorry you had to join us. You will find great info and friendship here with us. Stay strong and fight!
Linda
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Hi guys. Gone for the weekend to a dog show. Had a great time and my little girl won 2 points. It was great! So Thurs. I was to see my plastic surgeon to discuss recon. Her office is 3 hours away. We get there very early because we wanted to miss the AM traffic, but my app't wasn't until 1030. I wait and wait and we all know how well we like waiting. When I finally registered, they told me I wasn't on the list for clinic that day. I was very upset, and apparently there was nothing they could do because they didn't have my chart. The office screwed up, I had even phoned and confirmed my app't and they ok'd me for that day. I don't know what happened but when I got home I called the office and after going about 3 rounds with receptionist Ratchet she booked me for March the 17th. Disappointment was an understatement for me. They even phoned and gave my BS receptionist heck for giving me the wrong date... I'm glad I had the dog show to take my mind off things, I know I would have stewed all weekend.
Heidi hope you are feeling better soon.
Jenn, I have been thinking positive thoughts for you.
Suze, Hope you have a great time in NY.
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Monish-congratulations!!! And good info on the pets. I'm fostering a dog right now that loves to gnaw on my fingers! He would die of happiness if I let him sleep in the bed...so far I"ve resisted.
Kathy-that so SUCKS!!! 3 hours??? I would have been totally pissed too.
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Hey everyone..Suze..have fun in NYC..! Kathy..what a waste of time for you..I'm always amazed..I used to tell them that I didnt' get paid waiting for them...I
Babs..good luck tomorrow...will be thinking of you and can't wait to hear from you!
We are having TONS of snow AGAIN in Ohio..I'm wondering if spring will ever come.
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thanks Titan, it was a bad day.
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kelben- what a crappy thing to have happen!0
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Kathy: That's horrible! I would have been calling people left and right trying to figure out who made this mistake and what they could do to remedy it! Wow.
Titan: I promise.. Spring IS coming to Ohio! I'm closer to Dayton/Springfield and all we have is a dusting of snow, but we did get a little ice. Last week I cleared away some of the left over perennials from last year and all of them were starting to emerge! So it's coming!!
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Babs: Hope everything is going smoothly! Thining about you!
Titan: Hopefully this is the last snow that you will have for the year! Stay toasty!!!
Kelben: I had that done to me last year and it totally sucks. So sorry to hear you wasted your day!
Monish: Congratulations on being done. Wahoooooo!!!!
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Weights to stave off lymphedema: There's a new study reporting that if you've had lymphedema or are at risk of developing this condition, weight lifting can benefit you. Lymphedema is characterized by excess fluid (lymph) that collects in tissues and causes swelling (edema) in them. You've probably heard of it, if not experienced if yourself if you've had lymph nodes removed to treat breast cancer. Or if
you were treated with high doses of radiation. You've probably also heard, "Go easy lifting the groceries. And don't lift your kids anymore or break out the dumb bells."But in December 2010 a report came out stating that weight training reduced risk for arm swelling by 36% in women who had nodal dissections and then did supervised weight training for one year. The reduction was actually higher in women who had the most lymph nodes removed - 70 percent in participants who had five or more removed.
Based on these latest results, breast cancer rehabilitation should be the standard of care for conditioning and strengthening the arm, and ultimately for preventing injury, said Kathryn Schmitz, PhD, MPH, the lead investigator from the University of Pennsylvania's Abramson Cancer Center. The 77 women in the study looking at 154 breast cancer survivors who had lymph nodes removed, participated in twice weekly, 90-minute classes. They used free weights and machines and were closely supervised.
To find a certified trainer, American College of Sports Medicine: http://forms.acsm.org/_frm/crt/online_locator.asp.
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thanks guys, I'm over it now but at the time, I was crying and everything..... what a suck I am!!
Anyway instead of waiting until June which was their first time they gave me, I pressed them a little and I got March 17th, so not too bad. Here we go again with the waiting... sheeesh
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((((Kelben)))): It doesn't take much these days to reduce me to a blubbering mess! Hugs!!!0
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Sunny Coconut! Hello from across the pond!
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Erica - Hellooo! Fancy meeting you here.
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Ladies
I came back from my 4th Rads today. Radiologist showed me my plans today. Did anyone out there see their plans for RADS, did they get to see what areas of their breast and beyond are being radiated? did anyone get any exposure to their lungs and/or heart? Just curious to know what is the norms. In my case, a little bit on the side under the arms is getting some half dose or something, not to mention that maybe a tiny bit of lungs too. I am freaking out since I came back from RADS. I will ask to take a look at my plans again tomorrow before I do the RADs. I was too freaked out to ask the right questions when she was showing my plans to me and mentioned a half dose to the tiny part of the lungs. It seems like my body is a dumpster, they can do anything they like to it, damage the tiny bit of lungs or whatever, in order to kill the cancer cells in the breast.
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My radiologist offered to show me the images on the computer - very colourful! - and while I'm not expert, he was very clear about how targeted the rads are, missing my heart and minimal lung exposure (this despite a deep tumour). It's true there are trade-offs in BC treatment. It's true that rads pose some risk, but generally far, far less than the risks presented by leftover BC cells. Perhaps you can raise your concerns with your rad onc and see what he/she says?
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Lovelyface - My rad onc showed me the plans, it was actually very interesting to see. He too showed me where it would barely hit the outer edge of the lungs and the very outer tip of the heart.
To all of my TN friends - It has been confirmed, I have three lesions on my lungs and one on my spine - I have a lot to think about over the next week or so, but I will keep you posted.
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Oh dear Jenn - I am so sorry to hear your news, my dear. You know things do work, so this does not mean a death sentence, not at all. I met an older lady recently at my RADS and she told me that she was diagnosed 30 years ago, and now has a recurrence, brain and bone mets. She said the disease is now manageable, and she treats it like a chronic illness, rather than a death sentence. Keep your body strong and healthy by exercise and right food, and you can fight anything. I just came back from Zometa infusion, and have exercised for 40 minutes. I am gonna go for another 1 hr, 20 mins. They said to keep on moving. May we all see a cure very very soon, while we are still going through treatments, maybe a Vaccine! Hugs to you.........
Jenn - when were you first diagnosed with BC? I don't see your profile stats. I am so very sorry.
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Jenn - I am so very sorry to hear that news. I know there is not much I can do, but if you need anything, feel free to ask.
Lisa
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Lovelyface - I was playing with my signature line the other day and must have taken it off in error. My original dx was 6/19/09 - it not even a year since I've finished treatment. These little cells were on the move........
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Jenn, I'm so sorry, that just sucks! Sending you warm thoughts, much strength and unfailing hope for successful treatment.
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Jenn - I'm so sorry to hear your news. My thoughts are with you at this time.
Sherri
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Oh crap Jenn. That just sucks. It's a hard blow for sure.
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Jenn..I'm not very good at words even though I talk alot..but dang..I'm so frustrated and angry right now...I'm sending you a big hug...know that we are with you with this...and hopefully the treatments you have will wipe those mets out...I know you want to get started quickly with this..probably yesterday isn't soon enough for you...it sucks that you have to go through this again so soon..
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Jenn: I hate hearing this news. Really hate it. However, as some others will also say and have said, there are all kinds of treatment to throw at it and kick its butt! And no, it's definitely not a death sentence. Just get your docs to move quickly and start treatment to kill off those cells. Breathe... deep breaths.. take one second at a time if more is too much to handle. My thoughts are with you. Keep in mind there are many MANY women who have been down this road and are here to encourage others.. many years later. We are not statistics.. we are individuals!0
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Jenn3:
I am so very sorry you had to hear what we all were hoping would not be said. Please, please do not lose faith. Words are so trite at a time such as this, and any one of us can hear the dreaded news at any time, just know that we will all be with you, every step of the way.
Linda
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