Calling all TNs
Comments
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Suze - good luck tomorrow! Love the new car.
Kymn - hang in there...you're almost done. I think the steroids mess with us in such a big way and contribute to the depression. Hoping for minimal side effects for your next Tx.
Heidi - where do you get these funny photos! They are always a treat.
Titan - my onc didn't seem too concerned about triple negative either.
It's a beautiful day here in Toronto. Just took my doggie on a long walk and it felt great. I hope everyone's having a good day.
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Love the car Suze..good luck on your ab scan tomorrow...does it ever end for gosh sakes.
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Anyone have their tumor not respond to chemo? I'm early in the process--just had my 3rd infusion, but my doctor thinks that my tumor is growing. My entire breast is red and swollen (probably a DDD instead of my normal DD). He doesn't think that it is infection, but is treating me with abx in case. I have an MRI scheduled for Thursday (because of the study that I am on), so I'll know for sure then. He said that usually they don't change courses of action this early in treatment, but that we probably will if the MRI confirms growth. It seems like my tumor is crazy-aggressive!
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Alrighty, it seems that I am adding more Dr.'s to the payroll. I changed my primary care Dr. & he fouund microscopic hematuria (blood in urine), so now I go to a urologist in 2 weeks, AND he wants me to get a colonoscopy so I see the Gastroenterologist next week. Just when I thought I would have a month off from seeing any more Dr.s except at work. I did make it through Radiation just fine and then had blisters pop up a week after finishing. Now that really sucked.
Beccad
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Prayers for you Suze and blondelawyer.
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blondelawyer - unfortunately yes, my cancer stopped responding towards the end of my chemo and I had progression. It is great your doctor is on top of this. I would also suggest you bring up IBC with him so that it can be ruled out - when do you see him next? The red, swollen breast is concerning, and IBC can be wicked aggressive - but treatable if identified early.
beccad -I'm sorry to hear something new has cropped up. I know my doctor wants me to get a colonoscopy at some point, just to rule things out. Hope all goes well for you!
Trying to get some sleep. Time to pop another Ativan! Peace to all.0 -
Thanks Suze! I will talk to him on Thursday after he gets the MRI report and I am scheduled to see him next Monday for my regular appointment.
Just did a quick search on IBC and note that one of the descriptions is actually the same terminology that my doctor used. He said that the cancer could be caused by the cancer blocking the lymph nodes. I think that I may call him tomorrow so that I don't sit here worrying for the next few days!
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Grrrrr! Wed. Can't come fast enough! Waiting on pathology results from a small place on my scar. I'm sure it's nothing, but I want to hear that so I can stop entertaining the idea of a recurrence! So exhausted spent the whole afternoon at the doctors office waiting to get my trigger point injections for my back. My doctor said radiation has damaged the muscle that wraps around from my chest to my back. Oh the joys of side effects!
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blondlawyer - It does sound like your doctor is well informed, which is great. But I'm glad to hear you are calling him today. I'm not one to ever wait for the next appointment, lol. My doctor has gotten used to it :-). I hope that you guys are wrong and the chemo is still doing it's job, but if not, know there are plenty of chemo cocktails to try. If it is IBC, there is a forum here where you can find lots of information. Good luck on Thursday!
Tiffany - the waiting is the worst! I'm keeping you in my thoughts that all is benign.
Sitting here drinking my lovely contrast for my CT. Blech. It will be over soon, the my waiting game begins. I might hear tonight, but most likely tomorrow night. Have a good day everyone!
And thanks for the comments on the car. I'm super excited to get it! I can't wait to hit these New Englad back roads :-).0 -
Suze35 - that car looks awesome! Fingers crossed for your scan results.
blondelawyer: Suze35 is right - don't worry about being a pain in the neck with your docs. If they're good, and it sounds like they are, they will understand and appreciate your queries. If indeed the chemo isn't showing results, it'll be time to move on to another treatment. Hugs to you!
Tiffany4: Hoping for the best on your path results too!
Beccad: Sucks to be constantly going to docs. But it sounds like yours are staying on top of everything, and that's a good thing.
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Suze-hugs and prayers for your scans, and love that car. I am also going to try the Ativan road today, I haven't used a whole bottle yet, I got it in 200?..., but life and time has just seemed to stop for the moment, so I may as well sleep. Best to all you girls facing scan/test results this week.
Kimn-This is the last one? I pray it is easier for you, tell your doctors, again, how you feel. Anxiety and depression IMO can make SEs worse sometimes. My first cycle of chemo was FEC, I had some issues with it similar to yours. Hang in there!
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Blondelawyer: It sounds as if your dr's are really on top of things--don't be afraid to be a squeaky wheel--your life depends on it! BC taught me to learn to trust my intuition, or gut feeling when it came to my treatment. If something didn't sound right, feel right or just bugged me I just kept asking questions until I felt comfortable with the decisions I had to make about my body. This intuition saved me having excessive and additional procedures and helped me change dr's in the middle of chemo. Bring someone with you to your dr appointments and have your questions written down and have someone writing down or recording your appointments. This is a stressful time and we are so overwhelmed sometimes that doing these little things really help. TN can be very aggressive but there are many treatment options, your dr just has to find the right one for you. Big hugs!!!
Suze: Thinking about you today!!! Thinking of you driving New England back roads in your new car reminds me of a great short story, Mrs. Todd's Shortcut by Steven King. A very fun read!
Beccad: I am so sorry you are having to go to even more drs. My thoughts are with you and I am glad your new dr caught this and hoping it's something easily treatable. Hugs!!
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Stupidboob- The steroids I took before and after treatment affected my vision. i couldn't read anything without reading glasses, but it did pass after a week or so. My onc said that the steroids cause the lens in the eye to thicken causing blurriness. I had TC x4. I hope it gets better for you soon!0
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good morning ladies from wet and soggy southern alberta. My god we have had so much rain this spring and all this week its going to rain some more. When are we going to get spring, well I guess I should just be hoping for summer at this point.
Suze35 so jelous of your car come pick me up and we can cruise with our hair down....LMAO....
Rella40 no not the last one yet its # 5 . I did FEC too the first 3 it was brutal on me. Doxetaxol isnt the greatest but it doesnt last quite as long as the FEC side effects did so guess thats something to be positive about right .
Tiff so sorry to hear about the SE from Rads, I am nervous about them too, I keep hearing that its so easy but I dont know I read an awful lot about nasty side effects from it that dont just lift in a week or so like chemo.
Blondelawyer so sorry things arent going smoothly for you. I sure hope you get your answers soon, I just hate waiting.I wish I could just sleep away the next few months and someone wake me when I am healthy again and can continue living the way I want to live but alas I must find a way to live this new way and find joy. I do but some days its really really hard.
Titan thank you for always being so encouraging to all of us still stuck in the dredges of chemo. I hope I am as helpfull as you when I am through all of this.
Back to to work girls, hope you are all having a great day. I am in the chair on thursday
Hugs Kymn
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Kymn: I remember when I was at #5 of 6 and I couldn't get to the end soon enough! You are almost there and a year form now it will all seem like a bad dream. Hang in there!
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I have been reading posts since my last post. My thoughts and prayers go out to those who are going through the hard times of this disease and I am blessed by all the support and encouragment you all give each other.
Since my last post I have found out for sure that I am TN. I called the Breast Cancer Care Coordinater at St Patrick Hospital here, and she answered all my questions. Today I am going to a support group for Breast Cancer. It meets the first and second Tuesday of the month. I also started a Fit to Fight excercise class and 2 ladies that attend that are also TN. They invited me to the class I am going to today. I went to a Look Good Feel Better Class for people with cancer last week and was given 3 wigs. The American Cancer Society here got a donation of 300 wigs. So as the days to starting the chemo(June 16th) wind down, I am getting familar with what I may go through. I signed up for the Relay for life walk that is here on June 17th. I don't know if I will be able to attend since it is the day after my chemo starts, but I will go if I am able.
I would like to share this song that has helped me through this time. "Blessings"
Blessings to you all!
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Suze... nice wheels! We had one when hubby graduated USNA. Enjoy!
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While on the subject of wheels....
Here's our current fun car. Notice MacFry enjoying the view from "the top". He loves to feel the wind in his ears!
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Loislee2: Way to go - you're getting everything in place! Exercise is one of the best things a TN can do to reduce the risk of recurrence. And I found it really helped me through the effects of chemo too. Plus, meeting other women going through the same thing is good for our emotional health.0
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Nice cars ladies!! Vroom
Exchange surgery for me on the 9th wish me luck and my first 3 month follow-up appt on the 14th. So for the next month I will have to be careful w/ what I eat becuz exercising will be limited.
Take care signing off for the next week to rest and relax.
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Fighter Evjoy your r & r hugs and prayers for your surgery & follow-up
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Scan was CLEAR! Clear clear clear clear! OMG I am so happy! I can't tell you how worried I was about this one, with the nausea, twinges, etc. I feel like going into this next round of chemo I actually have a fighting chance. Thank you all so much for your prayers and good wishes. They worked! I now get a 3 month reprieve before anymore scans...yayyyyyyy!
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Heidi - sweet ride! MacFry looks like he's in heaven! I think my poor old doxie would be beside himself with ecstasy...I'll have to give him a whirl :-).
Fighter - good luck with your exchange surgery, I'm sure it will go smoothly for you. Eating right and exercising...need to join you there again! Keep us posted on your follow up...
Rella - I don't like to rely on Ativan - I get very physically dependent on it and it's a bitch for me to wean off of it, but there are times when the benefits far outweigh the drawbacks. Getting some rest is one of those. Hugs to you.0 -
Suze35-I'm so happy for you! Don't post that much but have been reading about your tests, so glad you are Clear!
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OMG....MGB I have read that Stephen King story several times!
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Fighter_34- we are diagnosis day twins!! Best wishes on your upcoming exchange, I should have had mine early last month, but a port infection slowed me down! Hope it is smooth sailing for you!!0
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Suze35: So happy to hear good news! That's great you get 3 months with no scans. I love your car, it's so cute--I love the orange steering wheel.
Heiditoo: Love your car too.
I want a fun car too! I'll have to start saving up . . .
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Hi everyone. I have a dilemma. I am currently doing neoadjuvant chemo for a tumor that grew to 7cm in a matter of weeks. My response has been very good. (It was clinicallly undectable after 3 of the 8 treatments). I'm going in for #6 tomorrow. Lymph node involvement was undetermined at diagnosis. 2 doctors thought yes, 2 doctors thought no. My onc feels that because I have had such a good response to chemo and will be having radiation after, lymph node removal would be unnecessary. My BS feels because the cancer is TN and extremely aggressive I shouldn't take any chances. I don't want to be stupid but I don't want to deal with more than I have to. Basically it sounds like a 50/50 split to me. I'm aware already of my odds with a tumor that aggressive and large, I'm not even sure if removing lymph nodes would benefit me at this time. If they were involved and there is a recurrance somewhere it will turn up anyway, If they wern't involved it won't matter. If any of you have comments please chime in.
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Hi everyone. I have a dilemma. I am currently doing neoadjuvant chemo for a tumor that grew to 7cm in a matter of weeks. My response has been very good. (It was clinicallly undectable after 3 of the 8 treatments). I'm going in for #6 tomorrow. Lymph node involvement was undetermined at diagnosis. 2 doctors thought yes, 2 doctors thought no. My onc feels that because I have had such a good response to chemo and will be having radiation after, lymph node removal would be unnecessary. My BS feels because the cancer is TN and extremely aggressive I shouldn't take any chances. I don't want to be stupid but I don't want to deal with more than I have to. Basically it sounds like a 50/50 split to me. I'm aware already of my odds with a tumor that aggressive and large, I'm not even sure if removing lymph nodes would benefit me at this time. If they were involved and there is a recurrance somewhere it will turn up anyway, If they wern't involved it won't matter. If any of you have comments please chime in.
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Suze35: You deserve a break, great news - very happy for you! And nice to spread a little cheer around this board.
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