Calling all TNs
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OBXK - from what my chemo brain can remember, tumor markers can rise during/just after treatment because as your tumor dies, it distributes dead cancer cells in your blood, which are picked up by the blood test. So hang on to that thought!!0
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Amazing photo, Heidi!
Ladies, I just had to post a link to a story in our local paper this morning. When I'm feeling down I'm going to think of this little girl and her family and their journey with cancer. Hope it has a bright ending: http://www.theglobeandmail.com/news/national/toronto/from-a-child-with-cancer-a-lesson-in-living/article2067054/
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Heidi darn he DOES!!!!
Checking in surgery went great I feel back to normal. Just exercising and taking it easy. Hope all is well with everyone.
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Fighter: Heal up and be well!
Heidi: That picture is just gorgeous!
Aryanna: Wow, your head must be spinning but thank goodness you have started treatment. I had adjuvent chemo prior to MX and I did really well. I wish the same for you! Big hugs!
OBXK: I hope you get an all clear on your scans! I really hate waiting. Hugs!
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Painting - I also worked through chemo. My first rounds were AC every other week. I had chemo on Wednesday and would start to feel bad by Friday afternoon. I would spend all weekend in bed and would start to feel a bit better by Monday or Tuesday. When I had Taxol every week for 12 rounds, I would also do them on Wednesdays. This chemo was much more doable. My counts stayed higher and I had a better quality of life. I would rest on the weekends, but could pretty much work throughout the week including the days I had chemo. I'm a sales rep and travel. I was actually able to travel and see customers a couple times while on Taxol. Good luck and PM me if you have any questions.
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Fighter_34- PM me if you have a chance and let me know how your exchange went. Mine is next Tuesday!! Glad to hear you are doing well!0
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For those of you following my temperature reset: I found out that my taking Melatonin for sleeping the last year and a half was interfering with me being able to get my daytime temperature up. Even using the pills didn't work until I quit doing melatonin. I am now starting over, without the pills, and I have found my hot flashes at night are now non-existant (though I went through 4 nights of withdrawel and hopefully I am done) I am now trying to manually, without the pills, keep my temp up. I purchased an inexpensive space heater by DeLonghi called SafeHeat and my routine is to get up, have a strong cup of coffee, eat something with high fat content to give me lasting energy, get into a hot shower to get my temp up and then I plop myself down in front of the space heater to keep me at an approximate temperature of 98.6 F. The idea is to build up your ability to hold at 98.6 F for an entire day. If you can do this your body should naturally fight off any future cancers, by dressing slightly warmer then usual (stay away from A/C during the reset period), after two weeks your body should rest itself naturally. By taking your temp periodically during this time you will learn to be able to tell when you are at the proper temp. My right foot with plantar fasciitis aches and my thumbs hurt when my temp is below 98.4 so I use this as my redf flag that I need to bring my temp up. If you are able to finally keep your temp up during the day, you will also sleep better at night.
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Thanks all for the welcome. We are all in this rocking boat together. I just learned that the nodes under the left arm, where a breast still lives, are triple neg, too. Am going to Fox Chase for IBC doc to check me out. I am happy with my present docs, but want another look. BTW, I am stage IV. But there is no organ involvement, just skin and new nodes. Fingers crossed that Xeloda holds things at bay. You people are great!!
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My work as an artist. Some work will be in NYC this summer and I have 4 shows coming up between now and September........can't wait to see what creatures I get when I am on chemo.0 -
Paint: that is a really cute painting!
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Painting, I love it, how original!
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Painting..I actually took a couple of minutes and studied your work..I like it! Do you have a website that we can see your work? I think that is allowed on these private threads..to let us know...
Good luck with your shows! Maybe chemo will bring out even more talent..guess we will see..
I am 27 months out today...the only issue is I have an allergy/summer cold..not sure what..I feel ok..but I woke up during the night and had the post nasal drip going big time (hope that isn't TMI)...I don't know what caused it...and am sneezing my ** off...
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Hope you are OK!!!! Lots of allergies going on...
my website is www.susanmedyn.com
I will add the link. You will see I am alos on soem daily painters websites too...thanks for your interest. I hope this keeps me sane as I go through this process.
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I love your work!!! Very, very nice- and love the kitty inspirations.
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Luah,
That sweet little girl! I sure hope things go well for her with her treatment! What a courageous kid. I hate cancer.
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Painting- thanks for sharing your art! So glad you have a place, to get out of your head.
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painting: your art makes me smile! when are you in NY...I live in NJ ...maybe I can go to your show
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susanhF: I have heard wonderful things about Fox Chase... I think it is imperative that everyone goes for a 2nd opinion
For me, 1st dr. made TN sound wonderful. She said.. all I would need was a lumpectomy and I was not a candidate for hormone therapy afterwards. She was sure I had no node involvement and my right breast which indicated fatty tissue was just that. I would be back to work in 2 days with some radiation afterwards.
My cousin forced me to go for 2nd opinion..and yes 2nd doctor had me go for biopsy of right breast It revealed 2 tumors . I opted for bilateral. I looked into Phila but NY was closer for me.
Good luck! I am sure you will choose which doctor you are most comfortable with
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Does anyone know of a place online that has a good collection of research on TNBC? I am collecting all the information I can to help make my surgery decisions.
Thanks!
Lisa
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Blondelawyer - there's a website for a foundation that's specifically TN. You might want to check it out. It's called Triple Negative Breast Cancer Foundation and I'm sure it would come up if you Googled it. I assume they'd have a lot of what you're looking for. Good luck!
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blondelawyer, I have never been able to find much research on TNCB on line...all I ever see is good response to chemo, higher relapse rate the first couple of years...
I did find somewhere that our 5 year survival is something like 77% compared to Non tncb cancers at 85% (all stages)...
Some people don''t like stats...I would like to just see a little more information sometimes..
Actually I think the research is pretty much at the beginning of our cancer..."they" don't have that much information yet.
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blondelawyer..soemwhere ont he web I found a "positives about negatives" site that was good. the triple negative breast cancer site jsut posted a link to their very recent confernece and all the research studies report on are there to look up...they did not report any breakthroughs this year of anymajotr kind but the studies are interesting to read.
At the MGH site there is the Avon Breat center which also has a link to several studies and research going on on triple negative.
My best, stay strong.
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Blondelawyer: Here's a link to the "positives about negative", scroll down on the left to see a collection of research and articles (which includes non-TN too). http://hormonenegative.blogspot.com/2009/01/want-to-beat-cancer-exercise.html
Titan: Congrats on 27 months out, another quarter down, another small breath to let out. I'm coming up to 21.
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Titan: I am coming up 24 months this September.
Painter: I found art a great outlet while undergoing chemo and took a wonderful Healing Art class. It was great as we used all sorts of mediums. I love your art-very whimsical and of course, being a cat person, I loved that, too! Good luck with your NY show!
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Painting - your art is lovely. My kids would love it!
Luah - I will check the link at some point, but children with cancer always makes me cry
. It just isn't fair.Titan and MBJ - congrats on the milestones! It must be so nice to mark another month off those calendars!!
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Feeling like %&$* today. The radiation is making my throat irritated - they actually owned up to this SE! - and I'm off any heartburn stuff because it was causing me headaches, so I'm nauseas and blech. I also think my gallbladder is starting to crap out on me. Wugh.
Have a good day ladies!
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Thanks, Suze! How is your new car?
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MBJ - the car is so much fun! I'm getting used to driving a carb engine (I've flooded it twice, lol), and the transmission is not what I'm used to - first gear is non-synchronus, so I grind it more than I like. But the wind in my short hair, being so low to the ground, on these windy back roads - FUN!! Thanks for asking. 0
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Suze: How great is that??!!
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Thanks Ladies!
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