Calling all TNs
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LauraJane, Hey girl. I too have been trying to get on with my life, but when I check back here, I always look for your posts. Please know that you are in my heart. You have children don't you? A son? And an older daughter? Do I have that right? You are good at finding joy in your life, and I think you will fight your way back to the joy in each day. God bless you.
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I always read this thread but don't post too often. I just wanted send some good vibes to LJ - I'll be thinking of you on Friday & Tuesday and hoping for the best possible results!
Kymn - sending some gentle hugs your way too!
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Maria_Malta, it's up to you which surgery to choose, not your BS. I had both breasts removed with a 4.5 cm node, grade 3, TN. But I'm a worrywart and opted to throw everything remotely possible at this, so if it comes back later, I won't beat myself up with the woulda/shoulda/couldas. Do your research as much as possible, discuss it with your surgeon and then listen to your gut, no matter what that decision is. That's what I've done. I'm not pushing you to get a bilateral MX, I'm just saying make a decision you can live with.
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Laurajane - I am looking forward to your updated photo with your new hair. Maybe I could copy your style.
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Laurajane, Maria and Lovely -
Much thanks for all your kind words. Losing a child, is just so very, very painful. She was 39, but she was and always will be my "baby."
L.
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Laurajane, Maria and Lovely -
Much thanks for all your kind words. Losing a child, is just so very, very painful. She was 39, but she was and always will be my "baby."
L.
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For those getting their haircut.
I've had mine cut 3 times now and a hairdresser in New York said to not let anyone use a razor. he is so right the first two cuts frizzed like crazy from the razor and my last cut was scissor only and loved them all but this ones the best. I've been so into the girly thing, facials, pedicures and manicures. I really need it and it feels great. Sadly for those of you that can understand. I was just crushed when I broke not one but three of my nails.So I will cut them all and regrow them. For those of you who lost all of your nails like me to chemo what fun to have them grow back. Yes they reeally do.
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kimn, so sorry about your friend. It really is so sad.
mity- wow no memory loss on your part. Great hearing from you and everyone else.
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LauraJane... good luck tomorrow....there is so much that can be done and so much that just sucks.
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Having 2nd chemo of TC tomorrow...barely over mouth sores...they will adjust the dose down. I hope it will be as effective.
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Laurajane - I have also been absent here, only checking in on the TNS thread every once in a while. I came to BCO today to read about my friend Junie on the drinking thread, who is not fairing well in the hospital (not bc related). Anyway, I was so happy to see you posting and then I read your post. I HATE THIS F#*KING DISEASE!!!!! I had a recurrence in my right breast last year (same breast that had FC the first time and I had removed). I was so devastated by the news. I would go to sleep so I wouldn't have to deal with the truth, hoping I'd wake up and it would all be a nightmare and I was ok. Then one day my friend's sister came over to pray with me (and I'm not really that religious). Just the feeling of hope made me feel so much better. Also knowing I was surrounded by people who loved me made everything a little better too.
I hope you have GREAT RESULTS next week. Scanxiety is not fun, but we will all be keeping good thoughts and prayers for you. Take care and keep us posted!!!
((((hugs)))))
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By the way, I had my hysterectomy and oopherectomy last week. Everything went well. It was done laproscopically. My obgyn said that sometimes tissue changes with chemo and mine did. a gyn onco did the surgery with her and deals with cancer all the time. My cyst lookd benign and they did a pathology on it during surgery, which also said benign. I haven't heard anything on the final pathology, so hoping no news is good news.
I had a breast MRI the week before surgery and it came back clear! There was some inflamation near the area where they removed tissue and radiated. It's most likely due to the radiation. My scar capsule hardened after radiation. I'm havng the PS fix that next month. I had some pain in my right leg so they did a bone scan, lower back MRI and CT Scan on my abdomen and pelvis. All came back clear. My PCP decided to run a blood glucose test on me in case it was neuropathy and to rule out diabetes. The results came back that I don't have diabetes, but may have hypoglycemia. WHAT???? Now I have to see an endocrinologist in August. How many doctors does a person need??? Now that I'm recovering from my hyst/ooph, I noticed that the tops of both of my thighs are numb. I'm getting a little feeling and a burning pain again (more on right side where it was before, but a little on the left too).
I am being good and resting a lot after my hyst/ooph like my obgyn ordered. She is very conservative and does not want me doing much of anything for 2 weeks. Funny how my male doctors push me to do more and my female doctors both tell me to take it easy (my onco is also a woman and was pi$$ed when I was pushed to work more by my employer during chemo).
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I have been gone for 2 and a half weeks and there are 12 pages to catch up on. Not sure I can do that so here is a general wish for everyone that things are going well, whether you are about to start, in the middle, or living life after treatment.
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It's good to hear from you Gilly and Kitty!
Have I said I hated cancer lately...!
My Dh was paying the bills tonight...of course there is always a Dr bill for me..or two..or whatever..he wasn't complaining at all..but it just never goes away does it?
I hate cancer.
Sorry guys..I'm just in a pissy mood
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Well, last week I heard my rad onc had left the practice and this week I cancelled my BS MSK appt (figured I no longer need to run to NYC for mammos...want to keep things local now).
So, that leaves just my med onc and GP in the picture and an annual mammo. Progress, right? But there's still a small part of me saying.... hmmm... 2 less people keeping an eye on me. I'm 22 months out from my Dx.
Damned if I do, damned if I don't. Geesh...
Went "sailing" today, but no wind. Spent the afternoon swimming after Boston Terriers in the river. Water was warm! Pups love their new Cabellas life jackets. Thought they were Super Dogs!
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Heidi - my rads onc discharged me as a patient last August after my first post rads appt. I've not seen my surgeon in almost 1.5 years and my GP says there's no need to see him anymore. So, I'm in the same boat as you (...not sailboat and no pun intended)...my medical onc sees me every six months and I see my GP in between and get an annual mammogram. It is progress!!
I've been following everyone's posts. LauraJane - I'm hoping all goes well with your scans tomorrow and Tuesday's results. I'm thinking of you.
Busy day at work and I'm zonked.
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Had my surgery on the 14th of this month - went to bed with 99.2 fever last night and it climbed to 101.6 tonight. No redness around incision but my bones ached all over all day and also tonight. Going to surgeon tomorrow. He thinks it is a virus not a post op infection. Bad case of poor mes today - I haven't felt good since Feb and I'm tired of it. And I know I should be grateful that this is all I'm dealing with right now.
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Chemo day is over....I made it but after a few break downs. Call me a baby whatever but posion is poison no matter how you look at it. So, I was really tired and slept about 10 minutes tops and then BAM, I am the energizer bunny and I need to be sleeping. I had many drugs today and
just praying that I don't get the horrible side-effects but right now I am just glad that today is over and I did not have an allergic reaction. Now to hopefully be able to handle anything side-effects tath come with it. ON said I will take the Nuelasta this week and if my numbers are a certain about next week then he won't make me take it the next week. He did not approve for me to get Abranaxe but I tried. 3 more treatments to go.The surgeon said not to worry about the spot I felt, it was just a skin flap of some sort.......he named it but I don't know what he said. I was just relieved that he did not feel like it was anything.
We have met an older couple up there and she brought me a little gift today and had it wrapped in white tissue paper with a purple bow. My favorite color is purple........:) She and her hubby will be coming to our end of town if she feels up to it and they are going to call us and if I feel up to it, we are going to try to meet for
dinner.I AM SO SORRY for all the sad going on with people and so HAPPY for the happy that is.
Titan you may have posted this and I missed it but I too would like to know the benenfit of taping your sons finger to his stomach
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Mity- love your pic and your new hair! Mine looks about the same~ and I love it being short! The brown hair is still startling, but I'm finished with constant hilights. My friends seem to like it ??!! I"m hanging here because the SE from chemo have kept me down and I look daily for encouragment cuz its tough. Have a good weekend everyone!
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Last week I had my third treatment of TAC - I know the doctor upped my dose, he's been doing that with each one but I was unable to get my nuelasta shot until Monday and it's normally Friday. Well, my WBC is only 1.4 and I feel like crap today. Doc put me on Cipro and I got the magic mouthwash for a sore that I think was starting on my tounge. Just called into the once complaining of achyness but no fever, I'm afraid to take anything for my headache since I don't want it to interfere with a fever if I should get one. Is this normal? Do you think the Cipro can make you not feel good, my husband seems to think so.
Thanks.
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What is cipro?
I am off to my pet/ct scan. Please keep your fingers and toes crossed for me! My doc usually gets the results for me same day. I am a bit nervous and have butterflies in my stomach-better take an ativan!
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mccrimmon - any antibiotic can make you feel like crap, especially nauseated. I hope that is all it is!
Laurajane - thinking of you today.
bak - fingers and toes crossed for you today also!! Ativan does have its uses...
Linda - if I did not say so before, I am so sorry about the loss of your daughter. It will never be right that a parent has to endure such pain. Hugs to you.
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I'm having a tough time physically - my major joints are driving me nuts. Knees, ankles, wrists, fingers - all are stiff and painful, especially my right wrist. I'd be worried about that one, but my left wrist is also tender in the same spot, just not as much. Too much computer use is making it worse I think.
Have a good day everyone.
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bak94-Its an anti-biotic, good luck today!!!
Suze35, hope you feel better
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I haven't posted here in sometime, but wanted to drop in to say hello.
LJ - So, so sorry to hear of the recurrance - Cancer sucks!!!! there is no way to say it nicely. As for leaving the boards trying to put it behind you, we all do what we have to do to move through this horrible disease and if putting it "all away" worked for you no need to apologize for not being here. That is the wonderful thing about these boards, you can take a break when necessary, then come back to open arms when you need them. (((hugs))) Jenn
mccrimmon - as Suze35 said, Cipro can sometimes make you feel worse than what you were taking it for. I find that antibiotics really upset my stomach, both upstairs and downstairs. Hope you feel better soon.
bak ((hugs)) scaniexty is not fun...
Christina - so sorry you're feeling terrible and that you have a fever, fever's wear you down. I sure hope you feel better soon and will also give you a big warm (((hug))).
Kittycat - glad to hear that you're recovering well from your surgeries, continue to take it easy and enjoy the "lazy days".
My updates: We just got back from a week @ Perdido Key Beach - had a wonderful time!!! And.........my DD#1 got engaged last week while we were on vacation, I am so happy they make a beautiful couple. Next week I'll have bone cement put into the collapsed vertabre area and from what I am told I should get instant relief. Then back to chemo. The Gemzar/Carbo or should I say Gemzar is knocking my blood counts through the floor and it seems that lately I've needed blood transfusions after each chemo. Not fun, but as of right now the combination is shrinking the tumors so I'll stick with it.
Hope all is well with everyone and you're either staying dry from all of the rain, cooling off from the drought ridden area and sunburn free from the sunny areas. Jenn
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Mccrimmon all anti-biotics makes me feel tired and worn down and sometimes dizzy and upset tummy
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I swear I had no idea that anti-biotics could make you feel like crap, I feel better now knowing whats causing me too feel like this. Thank you everyone.
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Jenn- So sorry I wasn't their for you when you went to stage 4. So happy that the Gemzar is shrinking your tumors. I did that last January but I was getting the nuelasta I had to skip a few times but that did seem to help.I'm so happy you had a great time in Perdido, not sure where that is but glad you had a great time.
Painting my way thru- I haven't been on in a while but heidi posted some photos of my paintings a while back. Painting kept me sane thru all of the chemos. Have you posted your paintings?
Teka- I haven't tried the minnow ped but sounds like fun
Kitykat- I need to get more active on the drinking thread. Do they respond to new joiners. I've been drinking more than enough to fit in to any drinking club LOL. I agree to take it easy. I was way to active after my surgery and it ended u setting me back. Hope you are back to par soon.
heidi- how are you feeling? Last I heard on FB was that you were feeling pain. Hope you are better.
Suze- I hope you feel better. I know what aching joints feel like and if your like me I hate taking the pain pills they keep giiving me. They make me itch and sleep restlessly. Have you tried MSM? Glucotomine?
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Jenn, I am also sorry to hear that you are Stage IV. I hate cancer!!!! UGH!!!
Linda, I am very sorry to hear about your daughter. It is so unfair for you to lose a child. (((hugs)))
Laurajane, I saw you posted on the drinking thread. It's a fun thread and the girls there have been very supportive. It was one of the first ones I joined when I started on BCO over 2 years ago. Cheers! I hope you get GOOD RESULTS from your scans.
My sister sent me this book, The Emperor of all Maladies, a biography on cancer. It was pretty interesting. It took me a while to read because I work full time. Having time off this week, I decided to dive back into it. They mentioned all this progress they made on cancer treatments for some cancers and then not so much on others (like triple negative breast cancer). UGH! I really hope that they find a treatment that works and is non toxic. I lost a very good friend to TNBC last month. I hate this disease!!!!
Anyway, I hope you all have a great weekend and we have good results for everyone having scans.
For those of you going through chemo, take care of yourselves. Eating nutritious food helps, even when you don't feel like eating. Drinking fluids helps. If water tastes nasty, then drink flavored water or smoothies. Anything to hyrate! At my low point of chemo, my numbers had all dropped dangerously low. My onco was ready to send me to the hospital for a blood transfusion and I had to go on antibiotics because my WBC was a 1. I was working full time and had pushed myself too hard. I learned a valuable lesson in the importance of taking care of myself. Listen to your body! Do what you need to feel better!!!!
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Have been reading through the last pages and been trying very hard to think of a good joke to tell you to make you all smile, but I can't think of one!!! How lame is that!!!???
Laurajane thinking of you specially today and fingers very tightly crossed for Tuesday...Stupidboob & Painting, I've just come through a week from chemo 7, and have only one to go in a fortnight, so yours will pass as well, so concentrate on one day at a time and before you know it you'll get to the end. Each cycle was a bit different to the previous one, but things DO get better and you will go back to enjoying your food again (probably the worst thing for me as I love to cook and eat). Kymn hope you are feeling a bit better today.
Titan, how is your boy?
Riley, thanks for replying to my query re bilateral mx...like you I feel that I don't want to look back in 1/2/3 years time and blame myself for not having done everything possible to make sure I don't have to go through this again..I know there's no guarantee, but i think I'd feel better in my head if I had it done..and so far I haven't yet come across anyone who has had it done and regretted it...
Very best wishes to everyone else on this thread, have a calm and tranquil weekend surrounded by the people you love, preferably in a beautiful place with a lovely view...
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Suze and Kittycat:
Thank you both for your kind sentiments regarding my daughter. It is much appreciated. Suze - you know you have had and will continue to have, all my loving prayers and wishes for complete and total success with all you are going through. This disease is such a horror and doesn't follow any damn rules whatsoever.
Love,
Linda
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