Calling all TNs
Comments
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Bak, yes, agree with the others... a bit of time off and self-pampering would probably do a world of good.... if you can manage it. As for the reconstruction decision, I had a Lx so haven't had to face that choice. But I do know how relieved I was once my 2 surgeries were done, and how my prevailing concern was and still is physical health. Take some time, you'll know in your heart what's right.
missmollyb: Good to hear you have a plan in place. I did 5 boosts too and, fingers crossed, so far so good.
Best thing that happened to me today... a very early morning drive to the airport to meet my son, 19, home for the weekend (Canadian Thanksgiving). My older son has the weekend off from work and we will be spending it together up north with my husband's family. I am now 2 years out... and truly thankful for my health and the wonderful men in my life!
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Thank you Le Ann. Yes I am waiting to hear from ssdi. Should have an answer by the end of October, at least that is what they said when I called. I am just so worn out. I only work a couple of days a week, have chemo weekly and have other appoinments in between. We aslo have many animals and when my husband is at work I take care of them, but that is something I enjoy most of the time. Hubby does the heavy duty cleaning thank goodness! This cold has really gotten me down, just talked to the nurse and she thinks some of it is allergies to the chemo and just general allergies, which I ussually do suffer from.
Thanks Luah, I have time to decide and I think I will come to a decsion that I am comfortable with.
I asked my mo what I was going to do after surgery and radiation, if I was doing more chemo and he said he was going to keep me on avastin for a full year, which I started in August, so I will be on it except for time off for surgery until next August! I don't know how I feel about this, maybe good, as I will continue to be on something. Anybody else on avastin for a full year?
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Laurajane: I posted this huge, long and convoluted reply to your latest post and then my computer lost it. Know this: We are all hoping you come through the other side with this latest treatment. Of all of the people I know I somehow want only the best for you and your beautiful family. If you daughter needs any help with that new home, you know my number. Sending you much light and love in hopes that you can kick the beast to the curb. Hugs!!!!
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LJ all I can say is I admire you for your strength and you are an amazing woman. Big hugs to you and lots of prayers going up for you!
You are an inspiration to me!
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Wow, teka, you were on it a long time! Yep, all sounds familiar, propponal is contoling my blood pressure and fast heart rate. I am having a full cardiac workup before my bmx. I always have an UA before each avastin. How are your kidneys now? Do you still have high protein levels? How often did you do avastin? I am doinf every 3 weeks and that is probably what I will continue with.
LJ-I am thinking of you also, I think we all are. Please let that chemo be kicking some fc a$$. You are a wonderful person, your family sounds like they are a direct reflection of you.
Suze-How are you feeling? Has your pain subsided? When do you know which arm of the trial you are in?
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Hi everyone, i'm moving from this forum. Have been posting on the triple negative in england by sylvieexmouth. I just find it difficult to keep up with everything.
Thanks to all, you have been the greatest with support and i wish all of you the very very best.
Lots of love, Bernie
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Good morning all of you wonderful ladies. Thank you for all of the wonderful well wishes and right back atcha'!
My onc said she thought avastin worked better along with something. Interesting.
I have such admiration for those working during chemotherapy. Im like a baby when it comes to my naps. I just love them.
I went out to dinner with my daughter last night and it was so much fun getting dressed up together and going out. It was so enjoyable having that One on one time with her. We talked for almost 4 hours straight without any interruptions. It's the first time we've done that since my grandson was born and he turned two in august. He had a great time having alone time with his papa.
I hope all of you have a wonderful weekend.0 -
Laurajane: Sounds like a lovely evening-what a great way to spend your time! Hugs!!!
BernieEllen: Please chacke back in from time to time to let us know how you are doing.
FYI: If I seem a bit rushed or short lately I am in the midst of a big move and it is taking all of my time and energy. Wishing everyone well. It's so gorgeous out after a couple days of rain here.
Best thing that happened to me today: My shoulder finally gave in and went back into place and it isn't hurting so deeply as it has been. Must have slept right or something. Hugs to al!!
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laurajane, daughters are pretty special,i have 4 and 2 sons. i enjoy the girl time with them. hope you have a wonderful weekend,too.
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Teka: Gosh, I sure hope so!
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Best thing that happened to me today?
I'm cracking up...seriously. I've been seeing a chiro for my neck of late, and I'm actually starting to think it may be getting a bit looser. Time will tell. Last night in bed I turned my head and heard a big "POP" and then felt instantly better.
So, proof positive that I am a crack-up, I guess.
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Heidi-You are a crack-up! Ha ha. Glad you fixed yourself.
LJ-you could just nap on a bathroom floor at work like I did:) It actually helped me, it's a big bathroom and I cleaned it before my nap! Working is hard on chemo, and don't you do landscaping design? Physical work is near impossible on chemo, I get out of breath getting ready for work, thank goodness i get a break in my car commuting!
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Oh, I got shot down at work again the other day. I asked for help (just wanted her to shampoo a client for me) , was denied so she could go paint her nails. WTF? This is someone I helped train, took time out of my days to work with her, helped her formulate colors and so forth. Could you imagine telling someone "no" and then go paint your nails to make sure you couldn't help?! She is really very nice, I was shocked, I couldn't look at her the rest of the day. I used to bend over backwards to help everyone, and they are not sick! What am I doing wrong? Am I too whiney? My husband thinks I do not complain enough, that maybe they think I am faking it because I put on such a smiley face with my clients. I go in full makeup, wig styled and dressed as nice as I can, maybe I need to go in and show the real me, dark circles under my eyes, super pale skin, and no hair. I was thinking of writing a note that the owners could share with everyone at the next meeting which I will not go to. It would say thank you to those that have helped me but then somehow mention that I have not felt support by the majority and ask them if that is the way they think I would behave if the situation was reversed. I probably won't write a note, it would just open a whole can of worms.
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Thanks for all the kind thoughts.
bak94, you are so right about the way people are - you are supposed to look sick. My ex boss only ever helped me out when the the big boss was around to make himself look good. She'll need you one day and then you will just have to be too tired to help.
Best wishes to all of you
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Wow - just lost a whole long post..... So frustrating. Here goes a shorter version.
Laurjane. Just read the posts for the last week. So sorry to hear your news. Your son and daughter sound amazing. I am so glad that you have them to help you thru all of this. I pray that the new drugs give you more time (all the time in the world) and allow you quality time with your family.
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Speaking of sleeping at work. One day I was so tired that I went in search of a couch in any of our offices. I didn't find any so at lunch I went out to my car, set my phone alarm for 1 hour and went to sleep in the back seat of my car. Why I didn't go home is beyond me - I should have! You know while you are going thru it you don't realize how utterly exhausted you are. It was about 6 months after chemo that one day I really felt my old energy had returned and then I looked back at the previous 6 months and realized how tired I had been. I didn't recognize it while I was in it. Besides my appointments, I only took two days off during my chemo and worked full time, I am pretty proud of that fact but I don't know if I would suggest it to others. I think I was stubborn and afraid. Being single and all there was no way I could jeopardize my job.
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bak94,i am so sorry about your work situation. i think you are right you don't look ill so they don't know how bad you feel. i think you should go to work showing the real you,give them a wake-up call. just my opinion.
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Bak - I don't know what to say. That girls behavior is inexcusable. When I worked in a salon we always shampoo'd each others clients when it was busy and if we said no to go paint our nails our boss would have been infuriated with us. Secondly, apparently she's selfish and rude and her parents did a poor job of raising her. Sorry but purposely being rude to someone in a workplace is a huge pet peeve of mine, especially with everything your going thru now.
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Heidi: We must both be a crack up because my shoulder spontaneously popped bck into place, too. Snap, crackle and pop are the sounds I now make on a daily basis!
Bak: I agree, no excuse for that kind of selfish rudeness. I also would refuse in the future to ever lend her a hand and would probably even say to her, you know, I think I am going to go paint my nails right now. People can be so awful. Hugs!
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Bak - I can only imagine how difficult it is for you to work through chemo. Standing, talking to the client - remembering how to mix chemicals with chemo brain. Were it me, there would be a lot of unhappy green haired people running around
I am so stunned by your co-worker's attitude. Most people have had some brush with cancer, and know how difficult treatment is. She must be young. If that's the case, life will teach her the error of her ways. In the mean time, stitch yourself up a little voodoo doll - it's amazing how satisfying a little pin jab can be :O
Wishing everyone a good week ahead. I'm recovering from our big, festival weekend. Ice on my knee, heating pad on my back, while using a massager on my thighs. The only thing missing, is the BenGay and Geritol.0 -
I have been walking lately and I have noticed that when I sit for awhile when I go to stand up I am so stiff! By the time I get to the other end of the house I am fine. Yesterday we went hiking and my leg started hurting at the joint, it hurt all night and is still hurting. Is this normal? I dont see my onc until November. Could I be overdoing it? Thanks for your input ladies.
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ksmathews: yeah, everthing hurts after chemo. Be sure to get lots of protein and do lots of stretching and ease back into a full workout. We become much more fragile after chemo.
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ks- you sound exactly like me! I'm just over two years out and *finally* some of that pain & stiffness is subsiding. But it took over twice as long as I'd expected. Go figure.0
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I sure hope you able to work out all the kinks and pains that come along with all of this- KS. Just really proud of you for starting. A walking routine is a great way to work all the little attacks we have on our bones, muscles, and more especially joints. I feel for you. They tell we're allowed to have a massage and I sure hope you have the opportunity to have a few. Sometimes our medical plans actually provide for a few of these comfort treatments. Really proud of you for moving forward step by step.
bak- Making choices at the various crossroads we have can just be the pits sometimes. I do know the SSDI can compensate about 3/4ths of our income, depending on how long we've worked. I hope your not having to sweat your finances and more especially your medical coverage through all of this. I go through all these fears too. The one thing I have discovered in life is that things all have a way of working their way out and our fears and needs all seem to wind up being met even when we don't see how. Your in my thoughts and prayers. Have a good day.
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Just checked online for my ssdi and it said a decision has been made, but didn't tell me what the decision was! I called, but today is a federal holiday, of course! Fingers crossed! Thank you for all your support, sometimes I feel like I should just be more appreciative that I have a job to go to and it is flexible enough that I can work only a couple of days a week.
Feeling lazy today after feeling like crap yesterday. Work tomorrow.
Good thing going on-Making a halloween costume for our chihuahua, we bought a football, cut it open and fitted it to him. I think he actually smiled when we put it on him! I am going to buy football jerseys, or t-shirts as the real jerseys are too expensive, for my border collie and for me. We will go to a doggie halloween parade on the 30th. See what happens when you don't have children! Your dogs become your children! I will try to post pictures after the parade!
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bak: crossing my fingers for you!
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Bak - The waiting would drive me crazy!! Keeping my fingers crossed for you.
We don't have kids either and are poor dogs are always getting stuck in costumes or having to persevere thru the Happy Birthday song with hats on in order to get their cake. It never gets old. Can't wait to see the pics.
Good thing this weekend, we finally bought a new livingroom sofa & chair, ours was 10 years old!
Hope everyone has a great week.
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KSMathews, Your stiffness and pains sound familiar to me too. For easily 6 months after I finished treatement I couldn't build any muscle, but just kept hurting myself when I tried. I had all kind of bizarre stiffness in my body and even doing streatches that I used to do easily, I would pull muscles. It all got better, gradually.0
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Just a drive-by to say HI!!!
Had a great time in NYC - the shoes were a hit, and I was pleased to introduce my wonderful single sister to a great guy, and they really hit it off. Happy happy!
I start my chemo on Wednesday, everthing appears to be a go. I had a rough Thursday trying to get all of my pre-tests done - long story, everything was scheduled wrong - but the research nurse got it sorted, and I'm signed, sealed and delivered! I probably won't know which arm I'm in until Wednesday, but I'm okay either way since I'll just switch sides if progression happens.
My back pain is under control with meds - I just have to stay on top of them. I'm getting used to being a little loopy with the morphine. The bathroom issues suck though!!
My best to all - I'll keep you guys posted after Wednesday
.LJ - thinking of you! Hoping your return trip to Indiana was good, and that you are focusing on your drawing and those amazing kids.
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Thank you all! I did talk to the RO today and he said it was muscles not bone pain and to just keep at it. So maybe I can quit worrying. It sux cause every pain you have you get so afraid it is cancer!
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