Calling all TNs
Comments
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It's nice to hear from everyone on here. I wish LauraJane would stop in and let us know how she's doing.
Suze - sending you good vibes for Havalan to keep the FC at bay or, better yet...improve things immensely.
It was exactly two years ago today that I had my very first chemo treatment. What a scary time. Thank goodness for BC.org as it was (and still is) a lifeline.
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Isn't amazing that we can forget alot of things but not the dates of diagnosis, first chemo, last chemo...all that stuff...
33 months out on 12/20 at approx 1:30 (out of surgery..tumor GONE).
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I couldn't care less about losing my breasts. They were tiny to begin with, and I looked at this as an opportunity to get the ones I always wanted. It wasn't free: I lost my hair and it took longer than I had hoped. So I have some scars. I am 50 years old, who doesn't? I don't bother to remember the dates of first diagnosis, BMX, or first chemo. I have more interesting things in life than that. I also choose to block out the sh!t. I don't remember the date my mother died of BC, I don't remember the date my husband died, and I don't remember the date I dumped or met my last BF. It's bittersweet. More sweet than bitter, bitter than sweet.
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Dawn--- not a bad way of handling things IMO (though today *is* the 2 year anniversary of my last chemo
).Seriously though, I truly believe that my life is 99% back to where it was pre BC. I like my hair (makes me look younger), eat healthy (most of the time) and I spend very little time thinking about cancer, which is why I pretty much skim all the posts in here and prefer to just post stuff to lighten things up.
I hope that doesn't come across as insensitive. It's just that I have moved on but, in the process, checking in here has become more habit than necessity. Does that make sense?
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MJB-I seem to be stuck in the detachment phase. Also have the automatic behavior.
Heidi-It makes perfect sense!
Also thinking of LJ.
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How long has it been since lj last checked in? Does anyone have contact info for her to make sure she's OK?
On a partially lighter note, we're not the only ones who love the kitties (litties?) My local news had a story about a yellow lab who found a bag of kittens left on the road to die and dragged them home to his owner, whining and pawing at the bag until the owner opened the bag and found the kittens. Two survived. The anchor made the point that the dog behaved more humanely than the human who tossed them out. What a good doggie!
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thanks MJB for the post.
I don't know how everyone else feels about it but I have tried to live my life just the same. I joke and tell my friends "what will it do, give me cancer?". Ha, well I already have it so I should be able to live the way I have always lived. Well, there is something to be said for a change in lifestyle, I just can't seem to get there yet. Does that mean I'm stuck in denial? I don't look at myself in the mirror anymore, I don't shop for clothes and I don't make long term plans. It seems sad yet I am not sad. Sad is just a waste of my time.
Instead I make sure to laugh and ensure that others get the joke. BTW I suck at telling jokes! I am covered in scars and get "looks" from small children with my lack of hair. The upside is I can now buy only swimsuit bottoms and am free to play on the "skins" team without offending anyone. I guess I am in the bitter stage today. It comes and goes and worries those who love me when I talk like this. I just can't come to terms with this whole crap called cancer. It sucks and nobody gets to tell me that so and so had it and they are fine. Really?! How fine do I look (insert pic of me lifting my shirt)?
Ugh....sorry ladies, just had to vent! I do get the process, just not ready to participate!
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Hi everyone, thanks for all the support.
I'm a bit worried - I didn't have taxol and it can go into the long bones of the leg. will just have to wait and see.
Early Christmas present from DH , he has booked me a complete hair and makeup for the christmas party on saturday.
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Inmate=I think that is a good way to live your life, I just can't seem to get past this cancer crap. I tend to wallow in it and I want out! Maybe it is because I just had my surgery a week ago. I am sad, sad that right now I can;t do the things I used to. I know I can get there again, but it may take awhile. Oh, and I hate being bald and my hair seems to not be growing back in. It has been 6 weeks since my last chemo and I have hardly no stubble and a few 1 inch stray hairs! My hubby thinks I am cured now and doesn't quite get why I get sad. Oh well, I will just keep putting one foot in front of the other!
Riley-I love the dog story. I can't believe people actually do that, so sad. I wound up with 4 of my goats because someone abandoned them and they were almost dead from thirst and starvation.
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Hi guys, sorry its been a few weeks since my post. This chemo is really knocking me for a loop. Had a really rough round last time and was excited that it was going a little better this go around with the Marinol, but now I have a GI bleed
Hemoglobin or something like that was pretty low and I go today to see if I need to get a transfusion and get scoped tomorrow to find the bleed. Just creaping past half way and they keep reminding me effects are cumulative, so I am starting to worry about how Christmas is going to go with treatments the Monday before. SUZE: so sorry about the clinical trial but really do love how positive you and your doctors are. Really glad this new infusion went so quickly. So hoping for Neds and a beautiful white Christmas for you.
BAK: Wow, wonderful news... I'm so glad for your chemo response!
TITAN: More than 3 years out! Awesome...and I think those dates are seered in my mind forever.
HEIDI: I love all your light heared posts. They always life my spirits.
Lee Ann
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Christina1961:
That happened to me to. Can I get into this trial? Can u give me some contact info?0 -
LJ was "last seen" on November 24. I believe that she is from Indiana. That is all I know.
Bernie: What a thoughtful DH. Enjoy every moment.
Hello to everyone....I read everyday and send comforting wishes to all.
Navy
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My RO asked me last week if my life was getting back to normal now, and my reply was "I never let cancer stop me from living life to begin with!"
I hate cancer, it has took loved ones, friends from me. I refuse to let it take my life, and I personally feel like attitude helps alot in how I feel. I know that isn't the case for all of us.
One of my really close friends has brain cancer and now has found a lump in her breast, they are checking it on Monday. Another close friend of mine has had her lumpectomy and starts chemo on Dec. 19th. Oh did I say I hate cancer?
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I echo what others have said: does anyone have a way of contacting LauraJane?
LeeAnn, sorry you are having a tough go. Take it one day at a time and be patient with yourself.
For all of us, I think Christmas makes us contrast our former selves with our new selves, our memories of pre-cancer years with our new realitites. We need to use our good minds and hearts to move our emotions into a better place. Suggestions?
I've heard it raises happiness to focus on being grateful for something every day, and I think that can be done without denying the other emotions of anger and sadness. I think I will try each day to be grateful for some thing.
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Mity: I've been doing the grateful thing everyday for several months now. Sometimes it carries me through the day and sometimes it doesn't. But it does help me remember to let go of the small stuff and take hold of the things that matter.
KSM: I couldn't get the link so not sure whats up.
Navy
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It was a link off my internet home page, that might be why. I tried to figure out a different way of doing it. Let me google and see if I can find it on another site.
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I just read an article in the Chicago suntimes. Talks about 2 new breast cancer drugs that have been promising for our stage IV sisters. Pertuzuamb is for HER+ and Afinitor is for ER+. Still praying for the reseachers to come up something for TN. And on that note, I would like to say Thank You to all who have volunteered to participate in a research project. We all need you gals.
Navy
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KSM: I posted before I researched your post! Guess we were on the same page!
Navy
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Heidi: I feel the same way.
Hubby said to me I think you are going to be okay. Me: Why you say that??? Him: You are shopping agian.
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LJ does not appear to have been active on her personal and business facebook pages since the end of Nov. I have located a phone and email for her but, truthfully, I am very reluctant to intrude into her life.
Hopefully, she is just being kept busy and will report in when able.
I've got a raging headache at the moment and can't take anything (aspirin) for it since they are trying a new procedure on Monday to try and mitigate these almost daily occurrences (spinal injection). It appears I am one of the under 2% of people who suffer from cervicogenic headache. I've taken a Cellebrex and it's made me dizzy and nauseous.
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Anyone keeping up with the news out of the breast cancer conference in San Antonio? Sounds like a lot of hope, but only for er+. They're going back to saying zometa is GOOD for post-menopausal women over 40, but only the er+. I don't get it. Do they not even include er- women in any of these studies? Getting very frustrated.
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Same thoughts Minxie^^^^^
I heard the news flash across the TV this morning and I couldn't wait to read it only to be DISAPPOINTED!
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Heidi, I feel the same way about intruding into LauraJane's life, since she is not posting here. I do keep thinking about her.
Here is some good news about Metformin for us: http://hormonenegative.blogspot.com/2011/12/diabetes-drug-metformin-prevents-spread.html There is also a considerable thread about Metformin on the TNBC forum.
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Hello to all TNS. Dr. called me at work this week to let me know my tumor marker bloodwork is elevated. Here we go again. PET scan on Monday. I was putting off any more testing this year and almost made it. Feel a little beat up. Unilateral done 6/09 with 6 rounds of chemo taxotere and cytoxan and 26 rads. 2010 pretty good & no PET scans. This year PET scan in february lumpectomy in March (couldnt find tumor) another lumpectomy in June & did get tumor. PET scan in July and now ta da another PET scan. Argh!!!!!!!!! my question is when does it get easier? Hubby is distraught, he is my rock, so what can I do for him? What can I do for me? Well, this is the best place for me to vent. Keep up the fight.
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It sounded like Laurajane was looking into possible alternative options in Mexico and NM, so perhaps she is away. Let's hope to hear from her soon, and in the meantime, not intrude.
OliveO: Sorry for all you're going through, no wonder you're feeling a little beat up. Try not to get ahead of yourself though, tumour markers aren't always accurate and reliable indicators. Fingers crossed for a clear PET on Monday. I know the waiting must be awful - can you and hubby find some fun distraction for the weekend?
As for San Antonio, yes I'm frsutrated too. I read about the 2 drugs they're calling the biggest breakthrough since herceptin and once again, they're not for TNs. Damn.
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My MO told me tumor markers are not at all accurate for bc. Who knows?? Seems like we all get different info and advice.
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Proof that cats are smarter than dogs (they can *read*):
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Unfortunately, they sometimes lack judgement...
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