Calling all TNs
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Doris Marie Yes, there are those of us with TNBC who do not fit the profile. I was 67, and less than 2 months after routine mammogrgam, my cancer popped up without warning. I thought all of my cancer story was rare until I found this site a few months ago. I was astonished that most women worked through chemo and rads. I was way too weak to go anywhere, but I was retired and didn't have to. Best wishes as you go forward with your treatment.0
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Just popping in to say hello to all you lovely ladies. A very good friend is coming over today and we are going for a long walk. The sun is out and I am ready for some fresh air and exercise. Well, my body still wants to sleep. Sleep is for later! Today we walk!
CS.....where are you today?
Welcome to all of the new ladies.
Have a wonderful day! Love to you all.
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Cocker...please check in ...your silence makes me antsy!! Look forward to your daily posts.
Got all my info turned into the PS that I am pretty sure I will go to. Will know once we do a consult but she seems to be exactly what I need for recon and LE surgery. She is Dr Marga Massey and she also does a lymph node transfer surgery that may wipe out my LE for good!!! Just gotta see what the insurance says about traveling over state lines for this specialized surgery.
Maggie
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and this thread moves FAST - zipp! Love it!
Lovely~ we seem very similar in our trials, so here's what I learned so far if it helps you at all, from my BS from my MO and my RO. They have all been very upfront with information so much so that I don't feel the need to get on the net. But, my MRI on Wednesday was first and foremost negative for cancer! It does show blaa blaa blaa consistent with post radiation treatment. My MO and family doctor have told me chemo can cause nerve damage, and sometimes when the nerves try to repair that hurts as well. After surgery I ended up with a seroma, a large seroma that feels hard as rock in my breast. I've also noticed a lot of this pain is more intense right before my period, as I am swelling up. My pain started much later than treatments which is why I think my medical team (they really do work as one) believe that nerve damage is the true culprit. I'm on gabepentin right now.
I have always had shoulder and arm pain and suffered for over 20 years with it. I never believed in chiroractors until the guys here at work talked me into going to one that they have used forever. After about a month of twice a week appts, I finally felt better. It is weird at first, but if you can hang in there for a month or so, you might really feel better.
Jan~My BS told me when I had the BRAC test that there are program to help get it paid for if it's not covered and either way it wouldn't cost me more than 400 out of my pocket. Luckily my insurance paid. My mom had bc in 1998 ER+, and was BRAC negative. He said there is a small chance only that the gene passes from the dad's side. I'm BRAC neg as well.
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Kathyrnn - perhaps we are, to some degree. Most of my medical treatment and assistance happens at the DF in Londonderry, NH. Do you get everything at the main center in Boston?
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BernieEllen - that's awesome!!!
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ha ha ha... that is going on my fridge
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Good Morning Ladies. I'm still around. It's 11am and I'm still in my dressing gown.
Welcome to all the new ladies.
I got a bit bamboozled yesterday with all the different abbreviations and I didn't know what the hell everybody was talking about. What is a DIEP. And what is it when a lady talks about a TE Fill. I certainly will have to go to America you know just to learn how to speak properly.
On top of that I can't type very well. My hand on the BC side is swollen a bit and all my fingers are numb. Just what I need. On top of that I still have my boil, dratted little bugger won't go. It's better but the core hasn't come out yet and it has to doesn't it?? All my fingernails have gone flat and funny but apart from that everything in the garden is rosy, so to speak. I could be in a bad way you know lol.
Heather - what a wonderful place you live in. The scenery must be so beautiful. Add a wine to that and you will be all set.
Lovely - good luck with your scan.
Karen - Glad you enjoyed your concert. I would love to have seen the bear. Wow.
NanyMom - hope you had a great time catching up with your wonderful son.
Who is Dr Susan Love ladies. I put her name in Google and about a million names came up.
It's Saturday morning here and its sunny but freezing bloody cold. Roll on Summer. Even Chloe was good yesterday although I can hear her eating out of the cat's dish right now cause she rattles it around the laundry floor trying to get everything the cat has left.
Well the brazil nut theory didn't last long. The old fellar ate them for three days and then said it wasn't working. Considering he said there was nothing wrong with his prostate beforehand how the hell would he know!! Said he didn't feel much different so I guess out the nuts go. I did tell him he didn't look any different lol.
My youngest girl has gone to Australia for a girls long weekend away. It's only three hours from here by plane. She's left her two kiddies with her husband, wise very wise, and she text to say she is having a ball.
Now what to do today. I could clean the house, I could do yard work, I could do ironing, I could even get dressed but I feel like blobbing so I might do that.
Have a good day ladies. Keep well, keep smiling and keep away from side effects. Annie
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Had a giggle at this -
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Cocker - my favorite cartoon, I have it up on my fridge! DEIP, is one type of breast reconstruction surgery. TE fill - I don't have a bloody clue? Dr. Susan Love is a BS and the Guru over here when it comes to this disease. She now heads the Dr. Susan Love Research Foundation.
Yup LUVRV, I'm at the main facility (*thinks about transferring to NH!)
Sagina - I'm looking at $1700. Out of pocket, and an insurance company that is dragging it's feet to even give me the paperwork to try and appeal it. Their argument is that since they are paying 50% ( the benefit by their rules should be 100%) that I haven't been denied service and don't have a right to appeal. I was trying to go through the proper chain of command, but if I don't get the paperwork, that they keep telling me is "in the mail", I guess I will have to jump up the chain to the Group Insurance Commission.0 -
TE's are place by the plastic surgeon...they are tissue expanders that go in place and are filled slowly with fluid to stretch the skin before the implants are placed.
I am considering the diep procedure...they move the belly fat up to make breasts...added bonus..flat tummy. In my case I am looking at it from the standpoint of it helping my LE as they can now do a lymph node transfer and may make my LY symptoms improve.
Cocker...elevate that arm and keep a good eye on it for more swelling. If it gets any worse than call your Doc for an evaluation by a lymphedema therapist. Keep hydrated also. Take care love!!
Maggie
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I'm officially CANCER FREE!!! Surgeon and onc both agree no need for radiation, my nodes and margins all clear, am stage IIA. Doing the happy shuffle!!!
Doris, been there done that, so best of luck on your next treatment!!0 -
Doing the Happy dance for you Naan!!!! Congrats!
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Naan - how fantastic! dancing away!
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Thanks ladies couldn't have made it through this without all of u, my back dancers!
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Dancing with ya Naan... words we all want to hear. congratulations.
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sweet sweet sweet....so happy for you Naan!!! amazing news for all of us
Maggie
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Maggie--What's a lymph node transfer?
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Naan - doing the Chicken Dance for you. Yay!!!!!
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Naan, definitly doing the happy dance for you!
CS - lots of water/fluids.
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Good to hear from you cocker..I don't like brazil nuts either...yech..don't blame your old fellar for not liking them
The abbrevations can get confusing...it's kind of like texting...you just get used to them after awhile...
Have a great weekend everyone...my son is having his friends over so I'm hiding out in the den...these kids don't start partying until 10:00 pm...not much sleep for me and my guy tonight I'm afraid...
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Welcome to the new ladies!
Annie - so glad you checked in. Hope you are feeling better soon.
My husband ordered some type of prostate vitamin product - he hasn't started taking it, it's been sitting there for weeks. poor old things
Naan - Woo !0 -
The port is OUT!! Woohoo! Mags- you were right, it was simple but took longer than expected. The reservoir was kind of stuck. The surgeon and nurse seemed surprised when I asked to keep the port. ( I have a photo project in mind for it.)
Heather, didn't you keep yours also?
Kathryn - that would have cracked me up!
Anyway, I am happy that it's out.
Phyllis0 -
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Hi Bernie ellen
loved the pilates must suggest it for our tuesday sessions at the centre, think it will work wonders!
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Hi Caroline,
Just wondering how you are doing. Think you had appt with onc and also 2nd chemo.
Thinking of you
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phgraham - if you mean me, unfortunately I still have my port in. Dr said to wait a year to get it out so I have my 3rd 3 month appt coming up then I can ask about getting it out in the following.
Have a question for you ladies, how do you post pics from facebook? I can do it from photobucket but can't seem to figure out fb.
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Thanks for the welcome..this sure is a wild ride..right? glad to have connected with some on the same roller coaster..LOL..
naan...great on the no cancer report..that is what I'm waiting for..
phgraham..on the port out..is that another hospitol thing or done in dr. office? 5 more tx and hopefully mine can go bye bye..it sure is irratating...kinda aches all the time..besides being a big "bump" ..I must have the giant industrial size one..LOL..
hoping the best for all my "sisters"..Doris
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Heather - from Facebook I just right click in the picture and select "copy" from the dropdown menu. Then come here, click in the text box, right click the mouse and select "paste"
Just did exactly what I described with a picture in my newsfeed from the PhantomGourmet...need to watch this program later this morning! They are going to talk about where to get the best fried clams...mmm...
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