Calling all TNs
Comments
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Kathyrnn- Great DF article. Very interesting and informative. Thanks for posting the link.
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Jazzy - so glad you made it through your first treatment!! You are very brave. I know 5 hours seems like a long time, but you feel worse, when they rush it. I have Netflix on my iPod - I would watch movies.
Annie - glad you made it through #7. I hope you don't have too much swelling. Big hugs your way!
Heather - tell DH he could make a fortune keeping us in those butter cakes!
Love to all. Have a happy hump day!0 -
Good News - "Sparse benign follicular epithelium and colloid, consistent with benign thyroid nodule". I have been doing my happy dance ever since the doc left a message, saying we had to discuss good news. I went straight to the medical records, picked up my record to read it myself - treated myself to a great lunch, then a large milkshake, not a small one (I have MS once a year, it is one of my grand treats). bought a concert ticket for this Saturday and am living life to the fullest again. Here I come, with my future plans, floor upgrade, new clothes, until whatever hits next. Everything is halted every time I go through a scare, I know it shouldn't be that way, but that is what happens to me, my experience.
Also, did I tell you guys that I met my Onc. today, which was for my routine 3 monthly appt. Forget about all the Onc. crap, it is more important to telll you ladies, that I think we both have a sort of a thing for each other, perhaps maybe just I do. Ha! ha! ha! Maybe he is just being kind and considerate and knows the severity of what I faced, maybe I am reading his kindness differently - but boy, I sure feel something each and every time. Hey - I am single, I am allowed to feel..... not sure if he is married, don't think so, there is no ring. I have a smile on my face as I think of him, what he said, how he said it. This is the highlight of my day, ladies. Once he had said something which had made me mad, but after that, there is only agreement with me whatever I want, and smiles and good wishes............ I will write more later to tell each of you how your posts helped me get through this nightmare.
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Back in April, I injured my R wrist. There's a burning pain from the base of my thumb up my wrist. Eventually, I had an MRI, which showed microtears in the ECRB muscle (extensor carpi radialis brevis). If the damage was on the elbow end of the muscle, they'd call it tennis elbow, but my damage is on the wrist end of things. Weirdly, it's worse in the morning and then loosens up to a mild ache. The next morning, the burning pain is back. I've been taking NSAIDs before bed and sleeping in a soft brace.
So now I get to practice being a one-armed lefty. Saw the Occupational Therapist about my wrist injury, and she wants me in a rigid brace as many hours as possible for a week. And to ice it and massage it about 3 times a day. And I have stretching exercises. She made me a brace by dropping a blank into hot water to soften it and then molding it to my wrist and thumb, and then attaching velcro straps to it. I'll see her again next Tuesday.
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Lovelyface - your post made me laugh. You know what they say about patients falling in love with their doc's!! In my case I have a woman!!! Better tell the old fellar I'm not what he thought I was. So very happy for your good news. I am all for the retail therapy so bugger the floor upgrade spend it all on new clothes. When I am worried everything normal seems to stop until the panic is over so you are not alone there. Keep that smile on your face. You never know, when 'Love is in the air".
Riley702 - you poor little thing, now you have a wrist injury. Will this never cease. The burning in your wrist is the inflammation and the NSAID's and wrist splint should help you a lot. In NZ we can buy wrist splints from the doctors surgery or a Pharmacy. Hope you feel better soon.
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Three friends married women from different parts of the world..... The first man married a Greek girl. He told her that she was to do the dishes and house cleaning. It took a couple of days, but on the third day he came home to see a clean house and dishes washed and put away.
The second man married a Thai girl. He gave his wife orders that she was to do all the cleaning, dishes and the cooking. The first day he didn't see any results but the next day he saw it was better. By the third day he saw his house was clean, the dishes were done, and there was a huge dinner on the table.
The third man married a girl from Ireland. He ordered her to keep the house cleaned, dishes washed, lawn mowed, laundry washed, and hot meals on the table for every meal. The first day he didn't see anything, the second day he didn't see anything either but by the third day, some of the swelling had gone down and he could see a little out of his left eye and his arm was healed enough that he could fix himself a sandwich and load the dishwasher. He still has some difficulty when he has a pee though
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Hahaha, Bernie! Don't mess with the Irish gals.
Thanks, Cocker_Spaniel. I do feel like I'm falling apart some days and I'm only 51! Yeesh.
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Riley702 - not much hope for me then at 65 aye. Your only a wee youngster. But I know now what the girls mean when they say they just want to feel normal again. I wonder sometimes if I ever will. I can't believe still that I felt so well and had so much energy before I was diagnosed and that it all changed in the wink of an eye. I thank god each day that I have all of you on here and I can't believe how much all you ladies have helped me through this nightmare. You keep me sane (Have I ever been sane!! beginning to wonder now lol) and If I never do get to meet any of you I thank you all for helping me and being my friend from the bottom of my heart. Tearing up now at all of your great friendship for me. You are all so bloody wonderful. (I must stop keep saying bloody!!)
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Jazzy - glad you got treatment#1 out of the way.....you are one step closer to being finished!
Lovely - Yay! So happy you got good news on the thyroid, and you have every right to celebrate. Have 10 milkshakes if you want them! BTW, I have a big crush on my BS...lol.
Ladies I'm having my 6 month mammo today, and I'm feeling very anxious. I feel stupid even posting this, as others here are having worse problems....but if I don't say it here, where can I say it? Nobody else really understands. I think I should be much braver now, since I'm 2 years from dx. Does anyone else still go thru this? Does it ever end?
Wishing you all a great day.
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Such good news, Lovely. Go celebrate in what everway makes you happy!.
Fighter, so sorry for the loss of your father. May sweet memories carry you through this sadness.
Hey, ATeamNana: waving at you!
Bernie, thanks for the jokes...I look forward to them
Hello to the new gals here. Thinking of you as you travel along in your BC journey. We are here to help you and give you a soft place to land if things get rough.
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happy dancing with you LOVELYFACE!!!! Great news
thanks for the hug Cocker...definitely needed on this end
Maggie
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Lovely: Very happy for you... glad you can get on with life again.
Hope: I don't think the fear every goes away, but it does get better the further out you get. For me, the fear arises with any little ache or symptom that might just possibly-however-remotely-don't-want-to-even-think-about-it-but-I do-think-about-it-constantly be mets!!. Without symptoms, I have never gotten anxious about doc visits or mammos, because I figured it was just good stuff to get checked out regularly. Try and stay calm, all will be well.
Ladies, a few pages back I replied to someone (sorry, forget who now) about soy. Here is an article on the latest evidence which shows that dietary soy reduces the risk of BC recurrence -- and its beneficial effects are particualrly noticeable in women who are TN. http://www.theglobeandmail.com/life/health-and-fitness/health/study-links-soy-breast-cancer-prevention/article4350376/
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Lovely - I am so glad you have some peace of mind. Enjoy it!
Riley - I hope your wrist recovers soon! I have trouble with my right wrist - really can slow you down a bit - opening bottles and doorknobs can make me saw bad words:)
Bernie - Good one!
Hope - it can be maddening, living from scan to scan! I hope it all goes well. I still get anxious over things too.
Hugs all around...0 -
Fighter,
I am so sorry that you lost your father. Somehow I missed that when reading through these threads earlier.
C
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Lovely: GREAT news on the thyroid. Happy dance it up with your milkshake and then dance some more on your new floor in some hot sexy new cloths. I had to giggle at your "crush" on your MO. Mine too is a woman but I must say, I do love her. She's amazing and I felt like I was in the BEST hands. I am happily married but I think I had a kind of a "trauma" bond with my MO. She seemd to have all the answers when I was spinning from the information.
HOT HOT HOT here today in Ontario. 42C with the humidex. Can't wait for the kids to get home from daycare so we can swim.
Happy Wednesday and first day of SUMMER everyone xo
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Great news Lovely!! I don't know if you have Sonic restaurants there, but today their milkshakes are half price all day!
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Fighter, so sorry about your father.
Lovely, glad to hear it was benign!
I had my 6th rads today, so far so good... Last one should be done on July 30th. I am planning on going back to work July 10th, right in the middle, which has me a little worried about fatigue... I'm hoping they'll be tolerant at work if I have to do less hours some days. I have a stupid plastic marker for rads high up on my chest that shows with all necklines, and then the half boob left from surgery, and all the weight I've gained from not exercising. Not really looking forward to showing myself to the world again!
Inmate, how are you, I know you asked way back why Dr C only recommended the 2 chemo regimens (FEC and TC ?)... I asked about Gemzar/Carbo and she said they had better luck with that on BRCA + women and metastatic cancer. I am seeing my regular onc Friday to see what he thinks, but I am still leaning towards no more chemo unless I get some compelling reasons.
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Happy that you have #1 of treatment under your belt Jazzy...one step closer.
Cocker... so NZ isn't like Oz with their huge spiders then? Hoping the 7th Taxol is treating you not too bad. Sure hope your week gets better - you've really been suffering lately eh? And still making us laugh.
ksmatthews - hope the pain in the underarm dissipates.
Titan... hope those allergies clear up. I have never suffered allergies..but have the taxo'tears' and continual snotty nose and if that is anything like allergies - eurgh !!
Best wishes for the mammo Lory.
Happy for you Lovely... and please keep us posted on the possible/maybe ‘romance'.
Riley - like you are not going through enough... you now have a wrist problem - hoping it heals soon.
Hope - I've not gone through any follow up mammos yet... but I'm getting anxious thinking about last chemo this Friday and not have my MX until beginning of August... I mean what if.... So I can totally understand your anxiety... bet it is so very normal. Good luck - let us know how it goes.
I am sure I have missed people here - Oh! Bernie I loved that joke...my DH is Irish - ha ha !!
To you all and wishing you a wonderful Wednesday - for those of you in treatment here's to very minimal SE's.
Peace & hugs xxxxxxxxxx
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Just back from my mammo & ultrasound....everything was fine. I feel like I'm free to enjoy my summer now...but first things first....I'm celebrating with a big bowl of ice cream, to be followed by a nap! It's a hot one here today...95.....yesterday it was 70....crazy. Thanks to all for your words of support. Hope everyone is having a good day.
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Congrats Lovely and Hope!
Good to see you Minx and hear you're doing well.
Kisses to everyone.
Hope the following will make you chuckle.
I wanted to tell you the last part to my cable saga. Parts of these instructions are very important, so you may want to save them for future reference.
I walk into the kitchen and Mom tells me the cable is out (shit, I thought I had two more days!). Ok, I suck it up and open the box from cable and remove the digital adapters.
@. (Dear God NO! Not another go round with customer service! !!!!)
Now this is where you might want to start saving these instructions.
*Open a shot of Rum, pour over ice and pour a splash of coke,*
*take sip of rum, while keeping back to Mother to avoid full effect of evil eye *
Go further in instructions and find that both TV's have to be hooked up first.
*take sip of rum* to celebrate that MAYBE, you won't have to call customer service*
Go into living room and while grunting frequently manage to shove a 2 ton console away from the wall. Immediately realize that because the adapters require power, you now don't have enough outlets.
*crawl up from floor, take a sip of rum*
Proceed to search the house for the power strip you KNOW you brought down. Said power strip is nowhere to be found.
*DO NOT SIP THE RUM!*
Take a shower and get dressed so you can drive to Home Depot. Stop at neighbor's house to let him know he may have to pretend to be Dad if customer service has to be called. Find out said lovely neighbor has an extra power strip. *Kiss neighbor.*
Return home. *take a sip of rum*
Set up living room TV. See same exact message to call Comcast.
*take another sip of rum*
See in instructions that remotes have to be set up. States that channel button may have to be pressed "numerous times" to do this. Program first remote.
*take sip of rum along with 2 aspirin for the pain in your thumb*. They were serious when they said numerous!
Program second remote. Look at TV to find same message to call Comcast.
*bang head on counter 3 times, then take another sip of rum*
Look further to find out you can activate your service online (been there, done that, doesn't work from a mobile phone) or you can call a number (different from number on the TV) to auto activate. (OMG, could it be my beloved robot lady again??????)
*take a sip of rum*
Dial phone and reach your beloved!!! Walks through activation in no time flat. TV's working!!! Confuse poor robot lady by saying "I LOVE YOU ROBOT LADY!!!!
*while watching TV , take repeated sips of rum till beverage is finished*0 -
Hope - Hooray on the good news!!!!!!!!! Yeah! Live normal again until the next time. I guess that is our new reality. There is just no way around it. Enjoy the ice cream, just go all out and do whatever feels good and it sure does today.
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Awesome news Hope and yes, just in time to have a great summer.
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minxie - is there any way in the world you can delay going to work another few weeks. I swear I was in the same exact position as you, except I also had my son's wedding. I had to go back to work for a week or so, then be on vacation for my son's wedding, then go back to work again. That was absolutely not a good idea. I did not feel good about myself as I needed a little more time. I suggest finish the rads and then go to work. My Onc. told me that "I deserved the time off". BC is not a small matter, my dear. You are dealing with a huge situation and it should be "your" decision when you feel good enough to be a normal human being again.
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kathyrnn - this really happened to you, didn't it? So funny! You are a very good writer! I chuckled all the way through! Ha! ha! Loved the last line the most...........ha! ha! ha!
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wonderful news lovely - enjoy !
kathyrnn - laughed out loud throughout.
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Waving back Navymom! Hello to all the lovely ladies on this thread. I rarely post but I do read n try to see how you are all doing. Wishing you all the best:)
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This thread is great - makes me smile! Thanks!
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Good Morning Ladies
Hope you are all well.
Minxie - Glad you are back and everything so far is good for you. It's not so easy with your job is it to take time off if you need to keep it or need the money but try to take it as easy as you can. Will be thinking of you and sending hugs.
Kathyrnn - That was hillarious.
Tazzy - Yeh not feeling too special at the moment. This taxol is kicking 'my arse to the kerb'. I don't think I have felt as bad as this as when I first went onto chemo. I have never felt more like making a bucket list. Can hardly type because of fingers but have to, terrible thrush in the nether region that the creams hardly touch, rash all over my hands that itches like mad and generally feeling unwell. I don't feel miserable just tearful especially if I see an unloved animal on facebook. I really feel like I don't want anymore. Well thats my pity party (never heard of that until I came on here) over for the day. Time I bucked myself up and got over it.
As for the spiders, hell no we don't have Aussie spiders here or I wouldn't be here. Ours are nothing compared to theirs or yours come to that. Years ago when my old fellar had had an accident, there was a spider, all of ½ inch long on the bedroom ceiling one night. I said you will have to get it or it might crawl down and go in my mouth when I am asleep. He was balanced on the bed with his leg in plaster, one arm in plaster and he killed the spider with the crutch he was using at the time. My hero!! He was probably hoping it would crawl into my mouth to shut me up.
Hope60 - Wonderful news on the mammo and ultrasound result. The big bowl of ice cream, the nap and a long hot summer is just what you need. Just go with it girl and enjoy.
ATeamNana - Good to hear from you. Hope all is well.
Well somehow I have got to get going and type as I have mounds of it but a bit hard when I was awake all night. Enough self pity, time to enjoy the day.
Have a good day ladies. Go out and do something reckless like treat yourself to something expensive. Lots of warm hugs to you all. Annie
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Annie, Warm hugs to you, too. I wish I could comfort and inspire you as you have done for so many others on this blog. I so well remember the crappy feeling I had during chemo and that I often felt like giving up. You and so many others have to focus on the NED goal and that minute by minute time passes and we get better. And a selfish reason to carry on: we need your humor to keep us all smiling.
My PCP referred me to 3 specialists: an ob/gyn for possible hysterectomy; a CT of head for chronic headaches; and more lymphedema therapy. It's another round of appointments right when I want to spend time with my little grandkids. They live 300 miles from here and I want to make up for rarely seeing them last year during all my treatments. I have to stop and remember I survived a very serious disease and am lucky to have great insurance and don't have to work. Oh yes, my husband is good old feller.
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Jan69 - ditto to your comments re: Annie. Sorry to hear you have to go through all those appts. and yes its a bad disease we are all fighting. How old are your grandkids? Are they visiting? did I miss a previous post.. ha ha - blaming that ol' chemo brain again.
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