Calling all TNs
Comments
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My Onc says that what you feel through the first cycle is a good indicator of how future treatments will be, but some people who have gone through it say that's the SE's get worse. Guess it depends on each person and how we respond.... One day at a time my friend.
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Maggie - Have fun picking out your new Foobies! Remember that D's are not all that :-)
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Cocker - big hugs - cancer freakin sucks!
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Question, how long after chemo did u start your period or did some of u end up not starting at all. Just wondering what I should look forward to, although I don't miss my period, but then I don't want to be caught off guard.
Titan, on behalf of all the TNs thank u! You're awesome!!
First day without the kiddies, don't really know what to do with myself. They r away at a one week camp for kids of cancer patients. I'm sure they're holding up better than I am. I guess it's been too long since I had any me time, my DH and I both r clueless as to what to do with our alone time. Yesterday, we got ourselves a 1hr Tai massage for only $40, it felt so good, it's been yrs since we both had such a good massage.0 -
Jazzyj... Thnx for the info. I did already get the Claritin and aleve. Whats in your smoothie? Glad u had an ok time with the first treatment. I know I am probably making it much worse than its going to be but I am such a worrier! I will get thru it but man oh man what a bump in the road! I keep telling myself I got thru the surgery which I was freaked out about and it wasn't that bad. Hoping this is the same.
Maggie. Thnx for the words of advice. It is so great to have this thread for support. I have two scripts too and was told to take them even before I felt sick. Hopefully it works. I was also told hydrating will help a lot so will do that too. I am just hoping my SE are minimal! I had no complications or anything after surgery and recovered unbelievably well(was at daughters softball game two days out!). I also never had and sickness during both my pregnancies. Don't know if that's any indication but I keep telling myself that means I will do fine :-). Wishful thinking right?!0 -
Melissa - I hope you have minimal se! I have been lucky with mine, just finished #5 of T/C and it is doable. I know a lot of ladies have a really hard time, so I am very blessed it hasn't been worse! I took my naseau meds on schedule regardless and never got sick (knock on wood!) and drank tons of water. Good luck!
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Julie, mine never came back, but I was 49. My onc. said most under 40s will get their period back and most 45+ won't. I took that to mean those 40-45 were a toss-up.
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Julie- I was 45 at the time of chemo and mine has not returned 18 months after.
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Hey Melissa, here is the smoothie recipe. Hope you have a lot of ink in your pen;
Naked Green Machine Juice
1 banana
6 frozen/fresh strawberries
1 serving of Alive Whole Food Liquid Vitamin
2 Tbs Barlean's Omega Swirl Flax Oil (Organic lemon for smoothies)
2 Tbs Barlean's Omega Swirl Fish Oil (Organic Strawberry Banana for smoothies)
1 scoop of Matrix Whey Protein - 23 grams protein (vanilla flavor)
1 tsp Liquid CO-Q10
Blend til smoooooooth.
Enjoy!!!!0 -
Thanks to all for the Shingles advice. After seeing 3 doctors I finally got the meds I need, anti viral, .steroid, Lyrica for nerve damage and Percocette for pain and sleep.
You ladies are all great. I wish all of you, happier, healthy days.0 -
Jazzyj
Ok first of all thnx! I will try anything to help. But this might be a silly question. Where do I get that stuff!? Lol!0 -
No silly questions here! We buy the Whey Protein from Suppliment Warehouse on line and all the other ingredients from Vitamin Shoppe. You can probably get them from your local health food store too. The Protein is a ton cheaper on line. $40 bag, but it lasts a long time.... And lastly the fruit, from Publix Supermarket :-)
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Melissa - 1 tbs of each oil, not 2 of each! Sorry for the oops.
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yes Melissa...I took the meds b4 I felt sick for a few days after the treatment...key is to stay ahead of it and then you can control it.
I was 43 when doing chemol...had last period in Oct 2011 and nothing since. Doc says it may come back anytime. Others on this forum have said it took up to two yrs...errr..hoping it never comes back for me. Not wanting more kids now anyway..just a bother.
Jazzyj---doc's assistant who sets up the consult asked me what size I was and ehat size I wanted. I was shocked as i thought I would at best get a b or c cup but she says that I can probably get my d/dd back...now I must decide what I want. I joked with my daughter that the good news is you have enough belly fat to get d's...the bad news is you have enough belly fat to get d's...haha
Maggie
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The chemo put me into chemopause to and being that I was 33 when having chemo and just turned 34 last month I am not sure if mine will come back or not. MO can't tell me forsure. I hope in a way it doesn't come back so I don't have to go through all the hot flashes again. They are HORRIBLE for me. But I have a feeling that because of my age my period will come back. We'll see. My last one was January 1st/12....on Day 3 of my first chemo. NICE eh?!
Off to decorate the house for my son's 2nd birthday tomorrow. My other son picked out all the decorations and things for the dinner tomorrow. Even the balloons. Going to be a fun day tomorrow.
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Off to bed, but I had to comment on your last post, Mags. Well dam, I can have FF, if it's based on belly fat. Just some advice from an old lady with big boobs. (actually plan on having a breast reduction). Gravity is a cruel mistress. When you get old, 42 DD's turn into 42 long!!!!!! Even though I had a LX, I'll be dam*ed if I've gone through this hell and don't end up with a nice new, perky, sporty pair.
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Julie, I am the same as Riley....49 at dx, my period never came back.
Kathy, 42 long...so funny but so real.
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Stay safe you gals in Florida. Also for the ladies in the west where the fires are devasting acres and acres everyday.
Prayers to all.
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Maggie - Thanks for the laugh! I'm in same same boat... D's and a healthy mid section :-). Have fu pn with them!
Need some help ladies.... You helped the Claritin trick. Anything for mouth sores? I rince every 3 hours faithfully, but have so much natural acid in my system that I knew this would be a given SE. Can anyone recommend any other rinse please? Or a food that helps, or anything? All in all I feel pretty good, but I can barely eat today :-(0 -
Jazzyj- Ask your doctor for a rx for the "magic mouthwash". It's really magic and worked right away on my mouth sores.
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Jazzyj- talk to your dentist about prescribing Magic Mouthwash. It is a combination of Lidocaine, Milk of magnesia and something else (darn chemo brain). Your MO might be able to presribe it as well. I used Biotene toothpaste and mouth rinse several times a day and never had a mouth sore. Sorry you're dealing with this crappy side effect.
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Looks like Babs and I were typing at the same time!!
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Thanks gals! Will ask for the Magic Mouthwash. Kind of annoys me that when I called yesterday, the nurse said to add salt to the baking soda. Even my nostrils and upper lip hurt today. Oh well, could be soooooo mush worse. Thanks again!
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Thanks gals! Will ask for the Magic Mouthwash. Kind of annoys me that when I called yesterday, the nurse said to add salt to the baking soda. Even my nostrils and upper lip hurt today. Oh well, could be soooooo mush worse. Thanks again!
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Jazzyj, also invest in the Biotene toothpaste and mouthwash, helped me prevent mouth sores like Tifj.
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Jazzy - same advice as Tifj, Babs and Naan. Used Biotine toothpaste and mouthwash and was lucky with minimal mouth sores. Pardon my French, but screw that nurse!!!!! Call back and insist on a prescription for Magic Mouthwash. They MO's all know what it is. Also, what did you mean by having to much acid? Just in case someone else needs it, the Nuelasta combo is Claritan24-Zantac-Aleve.
Sad thought as I said every MO knows it. About 10 years ago a friend's teenage son was in the hospital fighting cancer (died about 3 weeks after.). My friend called and one the things she was so upset about was that his mouth sores were so bad he couldn't drink. I asked what they were giving him for them and she said nothing. I didn't know about Magic Mouthwash back then, but I did know one of it's main ingredients. I told her to have the on call doctor call me. When he called I asked him why they were not using viscous Lidocaine to make him comfortable and to help him drink. His answer: "Geeee, I never thought of that". My thought was, You're a doctor in a major children's cancer treatment facility and you never thought of that simple solution???? You need a different career buddy!
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Jazzy I suffered with mouthsores and still deal with puffy lips at times. Yogurt helps me a lot even though I don't like it. They also gave me Valtrex. Vitamin E capsules break ad put gel on sores also. Hope you get some relief soon.
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I had biotene and never used it. Onc recommended rinsing with a solution of water and baking soda. That seemed fine, my mouth sores never got bad. Many women swear by club soda - and that's easy too.
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Damn! I just took a bad fall in the house. Fell on the leg, that I broke the kneecap of last Sept. Huge goose egg on my shin. Luckily I still have my cold water, circulating machine, from that fall. I don't think I've broken anything. Just when I was hoping, to spend less of the day in bed!
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Love Karen... Who is pouting0
