Calling all TNs
Comments
-
njpm: How's you skin holding up. Since I started the saline compresses the redness and sensitivity has really improved. I was worried when it happened so quickly. I still lube up 3x per day and the Doc said that is good.
I am so excited. I just booked a flight back to England for November 21 - December 5 to see my Mum, Dad and Sister and her DH. My Mum was all snot and tears when I told her - but I knew she would be.
0 -
Taz - good on you. Will do you the world of good and your mum as well. Have a great time but don't forget us.
0 -
ok it was not the hr at my job that said for weeks it is the paper pusher at my bs office. She is the one that answers the phone and will not leave a message for the doc to even call me back, I know the bc would give me longer. Any way I called her and gave her a piece of my mind and she said the bc can only give me 4 weeks that I would need to get the rest from the plastic surgeon. Therefore, I took him the paper work today and he ask me "when do you want to go back" I said idk I have never done this before and he said that I would need at least 6-8 weeks. I can not wait to see my bs on 11/7 and tell her about the bitty in her office!!!!!
0 -
You go brower
I could never forget you all. My Mum would love your's and Bernies jokes.
0 -
Bernie..my son may be coming to Ireland this summer for school...if there is any way at all....dollar wise..I will be there to visit him...we will have so much FUN! I am part Irish by the way...
0 -
A friend of mine just told me her niece, age 38 was just diagnosed with tn,,,everyone I know has it..can't believe it is really considered "rare" I know that "they" are researching and "they" are concentrating on us now..but things need to move a little quicker..
0 -
Titan - a friend of mine rang as she has got a friend with it who is about to have BMX. She wanted to ask me to talk to her friend as she was really nervous. Made me concentrate on being positive for this lady to put her mind at ease bless her. I know what she is going through. Enough is enough now. All this talk of treatment thats coming for us. We need it NOW though I didn't say this to the lady cause she has got enough to worry about at the moment. Realisation will come soon enough for her.
Bernie - yes I forgot about the six week driving ban, same for us here.
Annie
0 -
brower...get em girl....attack!!!
Tazzy...glad you got something to look forward to!
Titan...I agree...this is epidemic
to all my sisters...love to you all...just cannot keep up with everyone...
Dawn (inmate), Hope and Karen...extra hugs your way and keep strong
Maggie
0 -
Browerl, I once read that if the person who answers the phone pulls the crap that she has, it absolutely needs to be reported to the doc -- what she has done is totally unacceptable. I hope that time will not lessen your anger. You have enough on your plate, you do not need to be arguing with a wanna be doctor. You go girl!
0 -
Titan - oh yes, we would have fun. Let me know when.
0 -
There is a dangerous virus being passed around electronically, orally, and by hand.
This virus is called Worm-Overload-Recreational-Killer (WORK). If you receive WORK from any of your colleagues, your boss, or anyone else via any means DO NOT TOUCH IT. This virus will wipe out your private life completely.
0 -
Hello everyone,
I'm new to this board. New to BC. Only family history is my grandmother - dad's side. Just had lumpectomy on October 8th. Got clear margin but not enough of a clear margin on one side, so we're going back in on Monday the 22nd. Due to my age, they wanted a wider band of clear margin. I'm 46.
Found out this week that I am Stage 1 Grade 3 and triple negative. Tumor was 1.2cm. Lymph nodes are clear. Bone scan clear, chest xray clear, still need MRI of liver but they don't seemed to worried about it. Since I'm TN will it require a masectomy or is there anyone like me out there that just did the lumpectomy?
My head is swimming after reading the pathology report. Haven't had appointment with oncologist yet got all info from my surgeon who specializes in breast cancer surgery. I'm a little stressed to say the least it's only been 1 month ago that I had the biopsy and less than 2 months ago when I had my yearly mammogram. That's how they found it. It's way in the back so I couldn't feel it. Thankful for the mammo tech who got it all in the machine or otherwise this could have been worse.
Thanks
0 -
Hi txjunebug. You are so welcome. I only had a lumpectomy - March 2011, luckily my margins were clear and no lymph node involvement.
It is not an easy journey and it does take time for the realisation to set in.
The ladies on this forum are superb and will help you all the way through. Any concerns or questions, please feel free.
Bernie
0 -
bug - there are many of us TNs at different stages who had a lumpectomy. Being TN does not mean you should or should not have a mastectomy.
0 -
txjunebug; my stats are very much like yours Grade one stage 3 TN. I am 41. I elected to have a lumpectomy but I did not know I was TN until after the surgery. I am almost finished my chemo I breezed through the AC part looking back on it my the Taxol is kicking my ass. I have gotten infections have had to take more time off. Would I have done it differently if I knew I was TN. Not sure. Recovery time is front ended with the surgery. Lumpectomy was day surgery had it on Thursday and was back to work on Monday. One thing is for sure if you have a MX you will not have to have radiation (I don't think) I still have that to look forward to.
0 -
Just like me! I could have written your post. Mine was 1.2 CM and deep in the breast, Stage 1, Grade 3. I did a lumpectomy, chemo (T/C), and rads. I was 44. I know we are all different but I wonder if I had done A/C instead of T/C that my BC might not have come back. Too late now. I hope you will be cancer free soon and never have to worry about this again. Namaste'.
0 -
junebug, I did 6 rounds of TAC, then lumpectomy, had clear margins, no node involvement. Then did 25 radiation treatments. I am NED! I wouldn't change my choices at all. The chemo is doable, not fun but you can do it. Radiation was a breaze other than fatigue.
You will love this board and you will soon see we are all sisters here! Sorry you had to be here, but hopefully you will find love and support here.
0 -
Thank you all for responding so quickly to my question! I have found so much encouragement from this board. It is nice to hear from so many others who are in the same boat.
0 -
txjune-I am having a bmx because the breast surgeon does not think she can get clean enough margins bc I allready have implants.
0 -
Surgical stuff finished! If anyone is curious about a liver biopsy, it's like being stabbed in the liver by a well spoken assailant. I'm a little achy from that and the new port. Headed home to my boys tomorrow!!!!!
0 -
Yikes Karen!! I hope you get over the achiness soon. New ports suck! I'll bet your boys are excited!!
0 -
Hey Bug...welcome...I was on another website..and am certainly no doctor..but reading on this other website..plus on here...but with tn you want the strongest treatment possible...my tumor was 1.8 no nodes effected and I had adriamycin, cytoxan and taxol...just saying..hit it hard NOW...with the strongest treatments possible...it may be worth it in the long run...tn is nothing to mess with.....but...here is my but...that is still no guarantee...just saying
WOW..KAREN..OUCH. we feel your pain..hopefully it goes away soon..
Blah..I hate breast cancer
0 -
Karen, did that "well spoken assailant" say, "This may pinch a bit." ?
I had my pre-op labs done today. I'll have a prophylactic mastectomy on Monday. I'm feeling a little strange about this as it is a totally elective surgery. But I'll be so glad to not have to wear that heavy prosthesis any more. As Inmate Dawn said, I'll go flat top. Just somewhat concerned they'll find cancer in this breast, too.
Welcome June Bug! Tie another knot in your rope and hang on tighter. We'll be here to help you along the way.
Wishing all a good evening and a good weekend. Jan
0 -
Hello Ladies, I found out in April that I was TN. Later found out that I'm also brac2 , surgery next friday bmx and removing my ovaries at the same time. I haven't been sleeping to well these past nights. I'm scared but positive that this is for the best. I still hope or wish to wake up from this bad dream.
What I'm really worried about is going threw all this and then get BC again in a few years, I need to hear from survivors with no reaccurence. Somebody give me something positive, I need to know this fight is worth it. I'm 37 and got lots to live for, my son is 17 and he still needs a mom around for a long time. Plus I'm not done nagging him yet! lol0 -
Funnygirl75, I'm a 3 year TN survivor.....also have strong family history but DNA testing was negative, although geneticist said was most likely cos testing wasn't specific enough and I am most likely brca. You can do this. Three years from now you'll be having the same conversation with another newbie! (((((Hugs))))) xxx
0 -
funnygirl-there are lots of stories of survivors without recurrence, and even survivor stories of those that do have a recurrence or new primary. The fight is still worth it even if you get a recurrence, at least it is to me. Sorry to say that nobody can make any guarantees, but what choice do you have? Just give up? Those of us that have had new primaries or recurrences are not failures or negative, we are just trying to get by like everyone else. Oh wait, you didn't want to hear from me because I have had a recurrence, sorry!
0 -
wow! bac94 thanks for the lovely words...... What I meant was that I just need to know that its gonna be ok. I'm very positive in life, had my chemo and made it threw that with a smile(90% of the time). It's just hard for me to think that one week from right now I won't have my breast anymore. So, im looking for some positive in this cause it's hard to swallow. Giving up has never been an option, I am a single mom and I'm fighting mostly for my son.
Failure is in the attitude not the result........ So, no, I didn't want to hear from you, not because you had a reacurrence, the fact that you had one and didn't give up makes you a perfect example that we can do anything, that I can also do anything but your delivery sucks!
thx fmaclean, I will be just fine, even if I have a reacurrence but it's nice to hear that some TN and brac can go on cancer free after all this pain and hard time.0 -
Funnygirl welcome to our site. There are lots of ladies on here that have not had, and have had recurrences. I can't help there because I am only just a year from diagnosis. When I was first diagnosed I hung on to each post that had made if through because I was so scared and still am at times but nobody knows what is in store for us. I think you are just plain scared out of your wits as we all were. Losing a breast is horrible but in time you will come to feel that, that is only a little part of you, the rest of you is still here and you will fight for your son and for your own life. There are plenty of positives you will find them every day and yes you can do anything. You have made it through chemo (which is more than I thought I would) and have come out the other side of that. You are young and have the whole of your life before you. This will be ok. I always had a fear of motor neurone disease where you choke on your own saliva so when I think of that I am glad I got breast cancer instead. Does that make sense. Once you get your surgery over with and you start to feel stronger you will see that you are ok and you have made it. Everyone of the ladies on here have felt the same as you so stick with us and we will hold your hand through all of it. Love and hugs to you. Annie
0 -
Hi, triple negative over 60, white and also had gastro bi-pass, hoping in all of U.S. there would be someone like me out there. In Canada so much smaller population and less blacks, so less of this type of breast cancer.
My treatment is FEC-D. I did not notice anyone of you mentioning the Fluorouracil, Epirubicin Cyclophosphamide and Docetaxe;(taxotere)
I am at Princess Margret in Toronto, our leading centre, but wondered if U.S. was doing something different.
0 -
Hi Laura and welcome to the group!
My oncologist told me they use epirubicin instead of adriamycin in Europe. It is the "sister" drug to adriamycin and there were some reports that it is easier on the heart than adriamycin. I had both because of a adriamycin shortage in US at the time of my chemo treatments so I had first two cycles with E. It caused less nausea for me and while I'll never know for sure, it seemed to shrink the tumor more because once I switched over to the A, my tumor quit shrinking as much. I believe the fluorouracil may be used along with ACT at MD Anderson, one of the leading US centers. I also had taxotere, cyclophosphamide.
0
