Calling all TNs
Comments
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Stupidboob,
I am only 9 weeks out from chemo but am having so much difficulty with the numbness in my fingers and feet from the taxol that I'm looking for an acupuncturist. I'll post any results here.
Did you see an acupuncturist?
Sorry this is lingering for us both.
Hugs,
Peggy0 -
Stupidboob,
I am only 9 weeks out from chemo but am having so much difficulty with the numbness in my fingers and feet from the taxol that I'm looking for an acupuncturist. I'll post any results here.
Did you see an acupuncturist?
Sorry this is lingering for us both.
Hugs,
Peggy0 -
Tracy, what is the receptor status of your tumor (EStrogen, progesterone, her 2)? What is your k score? What stage are you? These data (all but the stage) should be in your biopsy pathology report.
Someone else might have these same characteristics and might be very helpful, but ultimately, your MO should explain and give you a referral for a rad onc consult and a breast surgeon consult. If all three are in agreement with the current plan, you can rest as assured as most of us(?!) are about our treatment plan.
Putting these characteristics. (Above) in your signature line can help people here help you. Just a suggestion.
Hugs,
Peggy0 -
I suggest you ask them that. I am sure they have a reason or you could explain your concerns. Have you had surgery (what type), chemo? They were on the fence with me and ultimately I was able to decide. If you feel strongly about it then fight for it.
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Peggy no I did not see an acupuncturist as they were getting better but numb on the tips unless I put them in hot water. Then I had to start Taxotere and that just made them worse. I "hope" I only have one treatment left and I will go from there. I hope you get some relief and please do share the info.
Tracy I did not get offered radiation either (I did not want it but I did not get offered either). I have 2 nodes that were positive and one that I guess they were not sure because if you read the actual report is says 3 but then hand written was 2/15 cancerous.......I wondered if I was told wrong but the surgeon and the MO said no radiation needed. My new oncologist said that she did not see a need at the time of surgery either.
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sweetpickle I thought I answered you on the inhaler. If it keeps up I will have to go to my primary and see what she says. I go for chemo Friday so I might ask her again.
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Sorry, the taxotere has my eyes all watery so reading anything has been dificult lately, I must have missed that. I will be so glad when my normal vision returns! :-)
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taxotere did the same thing to me - my MO had me use natural eye drops and it helped. He explained to me that it was the chemo irritating my eyes...I remember thinking crap this stuff really does go everywhere.
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Jen- yep im using some drops, they dont seem to help much though. I started taking zrytec and it lessened the watering some but not all the way.
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sweetpickle I have only a occassional teary day but I do have days where it seems they are glazed over and I can't see real good right now especially trying to read a book...........partly chemo, partly just my eyes getting worse
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I know a lot of you are on anti-depressants and for years I have avoided it and now I am thinking that I will never be able to get my life back without them. I am not depressed per-say but I tend to have a lot of symptoms of depression and my Xanax helps but I need something for an everyday thing. I am so UNHAPPY and I know I am the only one who can change that but I don't seem to be able to make the changes. Today, I have eat all day and all bad things........well did have a salad and some cucumbers but they can't make up for all the JUNK I had. I KNOW that I have to lose weight and stop some of the junk eating and I just won't do it...........WHY-WHY-WHY............I mean come on, what has to happen to me to make me do that right thing.
So, anyways...........if you don't mind sharing what are you all taking and how do you like it?
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Stupidboob- Im not on anything at the moment but in the past I dealt with depression for about 8 years. I started out on zoloft but that stopped working so I switched to Celexa for the last two years I was being treated. I came off the Celexa about six years ago and have been good since. I have some periods of anxiety but it passes. With my cancer diagnosis Ive taken Ativan when my mind just wouldnt shut up.
The meds definately helped me in conjuction with therapy. I havent felt much depression lately but would try Celexa again if I needed it. The Zoloft seemed to make me really angry for some reason. You kind of have to try differnt ones with your Dr. Until you find what works for you.0 -
sweetpickle I am glad that you are doing well. See, I have heard of different side-effects and shoot my mind is messed up enough with all my anxiety. My neighbor was one of the strongest women I know and they put her on Prozac and she became this scared lady who did not want her husband out of her sight (not her at all). I am so afraid of meds and after getting the cancer I have over come a lot but still have the fear in me. I guess kind of like you can take the girl out of the country but you can't take the country out of the girl
thanks for sharing
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Peggy,
I am grade 3
0 lypmph nodes
2 nodes - one small and one at the larger 2cm x 2cm
All Triple Negative - no meds woulld help
only option from former doc is chemo and surgery
I got tired of the run around from this doc I have a consult at Johns Hopkins in Baltimore tomorrow where I get another pathology and they suggest the same or new treatment I hope that helps. John Hopkins initially indidcated they could follow with radiation also. So we'll see.
I am also waiting on my brac results
Praying tomorrow will be better news.
Tracy
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I will gladly post my new pathology reports when they come back. Johns Hopkins likes to do their own pathology so Ill have it posted as soon as it comes back. They are doing the consul and everything tomorrow so I can get a quick turnaround and into chemo.
Please send prayers for me tonight. I am so scared of the appt tomorrow. I am tired of already being poke and told so different things from diffeernt. I am glad I am going to John Hopkins. They are the best comprehensive breast care center in the country. I will take what they say and follow their plan.
My app is at 4pm.
I will post after/
Tracy
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Good luck Tracy..hang in there...and I'm with you on being poked constantly....I have a mammo, onc appt and bs appt all in one week...yeah..the week from hell...not looking forward to it at all.
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Sending you strength for the appointment tomorrow, Tracy. This part of the BC journey is so hard. The feeling of not knowing what is going on and your life spinning out of control is very hard on your nerves. You will feel better once you get a plan in place and feel good about the Drs that are taking care of you. Hang in there. You can do this. We are in your back pocket. Hugs
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Good luck Tracy! Hopefully they won't poke you too much!
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Good luck Tracy! Stay strong!!!!
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hi everyone. Tomorrow is my 3yr follow up w/mri...I keep hearing this is the crucial year with TN, was wondering what you all thought of that? fingers crossed..mammo was good...do you think I should ask for other scans? I was initially under Farber protocal, bone scan, ultra sound of organs, chest x-ray, all ok three yeas ago. Would love to hear our experiences/opinions. THanks!
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Titan/Tracy thinking of you both as you go through this. All will be well I am sure. Hang in there girls. Lots and lots of prayers and hugs coming your way from me. xxxx
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Stupidboob - I started taking celexa when I was dx. It took about 2 weeks for me to feel better. I don't cry hardly ever and my mind is much more clear for work, home life and making the medical decisions. About 2 months ago I thought I was good to go but I found myself crying all the time over everything, anything and having deep dark thoughts of death. So I realized I really needed the celexa. Back on it and feeling much better.
I was mostly against anti-depreseents but I got sick of crying and be scared everyday.
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Jenjen- Did you stop the celexa abruptly? I spent four mnths weaning off it and didnt have any problems but a coupe of my friends who stopped more quicky had experiences like you dscribed.
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Hi Everyone,
I haven't had a chance to catch up on all the posts, but just want you to know you're in my thoughts and prayers. I did notice some newbies, and I hope this thread is bringing you some peace.
I haven't started treatment yet. I have second opinion this afternoon, so things should start moving after that. The last few weeks have been a whirlwind of tests, other procedures that need doing before treatment, and dragging my Mom to a gazillion appointments so hopefully I won't have to take her anywhere after surgery.
Just hoping everyone is doing the best that is expected and you're in my thoughts.
Kathy0 -
Tracy....crossing my fingers for you. Am sure you will get the answers you are hoping for.
Two years later and NOW I am getting depressed! I never really read my path reports in detail until lately because I am taking Anastrozole so I just went with the flow. THEN I realized I am TN (2% ER+) and the MO says they are just words. Yeah...words ya never wanna hear LOL
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sweetpickle - yes I just stopped one day no weaning off.
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Ah Schatzie...listen to your onc....he isn't going to tell you something that isn't true...the most my onc would say was "I think you are going to be alright"...so I hang on to that during my dark moments...we need it...
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I am 41 and I'm positive for the BRCA1 mutation. My tumor is small (0.5 cm) and my oncologist advises TC x4 three weeks apart. I have not had a body scan and she said she would not do one unless symptoms present. With a triple negative diagnosis, I want to make sure I am doing enough upfront. My oncologist thinks anything more is overkill, but I'm scared about a recurrence with only four rounds and no A. Am I being paranoid?
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Hi Mel,
I insisted on a bone scan because I wantec to know that they were clean. My tumor was large and I was very worried it had gone elsewhere. Both the bone scan and CT scan came back clean though so I was able to start chemo feeling a little better that it was only in my breast.0 -
I'm new to this board. dx 7/12 TN. stage III. dd 4 AC, 1 taxol, 3 taxotere. I had very bad reaction to taxol nerve pain. surgery bmx and te reconstruction 12/12. 28 rads with bolus, ending 3/21/13. I thought I was clear as I had almost PcR . tumor completely gone, 3mm spot in 1 lymph node, thought rads would take care of any stray cells. I saw my RO 5/7/13 for post treatment check, everything seemed great, see her again in 6 mo's. To my surprise, that night a pea sized lump appeared on my breast. yes, ONLY 10 hrs later!!! If I hadn't witnessed it myself, I would never believe it! Biopsy positive, PET shows no systemic disease. I saw my original onco today, suggest carboplatin and gemzar. I'm getting 2nd opinion wednesday at U of Penn hospital cancer center. Would you consider this a recurrance, or failed initial treatment being that its so close. My head is spinning. I had a really good attitude with initial dx, now I'm scared out of my mind. So surreal! ps, since biopsy, atleast 2 more lumps came up.
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