Calling all TNs
Comments
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Ada, fighter-34, Luah and all the ladies that offered me advice, all I can say is thank you, thank you, thank you so much! I am much better today, and I even drove my son to school today! I haven't been able to do so and I was so glad I did! After that I even went shopping, very relaxing picking up small Christmas goodies for friends family who live overseas. Life is so beautiful and I enjoy every minute of it when I am off side effects.
I have learnt my lesson that I will take my meds in advance to avoid SEs.
Hugs to you all!0 -
Lovingmymom...thank you so very much for sharing your mom with us...I loved her smile and how much she loved ALL of you......she certainly knew how to enjoy life and made everyone around her love life also...I know she did me......0 -
Lovin' - that was lovely.0 -
Oh, forgot to mention that I just learnt today that my nurse did gibe me Emend through IV on my chemo day... Still I felt bad, guess everybody is so different.
Cycle 2 will be hard I think as this will be the time to lose hair...0 -
lovinmymom - what a wonderful tribute to your home. always with a smile your mom! always remember that smile dear. warm regards - jen
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Ladies & Gent!
I just got call from MO doctor. PET scan came back clear! No evidence of disease.
Blood work in normal ranges.
I am so relieved. I suppose because of my having to stop chemo because of health side effects has made me more apprehensive. I am not at one year yet but feel good with results. Still taking my B 12 & is seeming to help.
Such a weight off.
Praying for a good day for all!!
Marsha0 -
Lovingmymom thank you so much for your post. Your mum was very special on this thread. Always cheerful, always happy, always smiling. She will always be in our hearts as will you and your family.
lookingforw that is such wonderful news. Take each day as it comes and go and do something special. All will come right.
Jianchi hope you are feeling good today. It isn't nice to lose your hair but I had mine cut off at the first sign of hair coming out so that it was my decision and not cancers. At least it will come back though after treatment.0 -
lookingforward- glad for your good test result!! You should celebrate!
Cocker- I am feeling better since Sunday. Thank you! I was thinking the same way, shave my hair before chemo does the trick
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Jianchi..not sure about NOW..but when I took Emend it was in pill form I took one before chemo,one after chemo and then 2 each day after for 2 days...total of 6 pills...then I had the other pills to take if needed..Lorzieapam..or something like that....don't think that the iv emend is enough.0 -
Titan - I remember emend being pills too. And other stuff at the same time and then on an as needed basis. Which I never needed. I did need Prilosec though!!!
Today was my six monthly oncology appointment. All was well; another one under my belt.0 -
Gillyone great news that all is well. Yep another one down. Soon they will be a passing memory.
With the Emend, my onco gave me them for three days each time I had chemo. I also got Ondansetron and Stemetil if I needed a top up which I didn't need as the Emend was so good. The ondansetron gave me nothing but constipation which I still live with even now yet never had it before chemo.0 -
3 month ck up yesterday and all looks well!! Tumor markers were at 0 (ctc) and I have graduated to check ups every 6 months!
Maggie0 -
Thank you everybody for the emend advice. I will talk to my MO. Gilly and Maggie, congratulation on your good results!0 -
Lovinmymom what a great tribute to your mother. She is deifinatly missed on the boards. May she rest in peace.
I was just wondering if anyone has been diagnosed with costochondritis? I have been having pain in my breast and chest and my bs tells me this is what is going on. He said it could have been caused from radiation, but I did radiation 2 years ago. Just wondering what your comments are. Thank you!0 -
mags that's awesome news! Congratulations! Celebrate somehow!0 -
Gilly...also great news! Glad to hear when people are doing well! It's uplifting!0 -
I was told by our Pharmacist that Emend, in pill form, works better than anything, but is extremely expensive so insurance rarely wants to pay for it. Pharmacist says insurance wants the docs to use compazine...which is cheap. Same with Zofran, kind of expensive. However, my wife's insurance did agree to provide 15 Zofran pills every 23 days. Where the hell they come up with 15 for 23 days is beyond my pay grade.0 -
ALHusband,
I priced the pills last year and if my memory is correct, it seems ones like Zofran cost about $1-2 each. Emend costs about $100 per pill, and you need three of them each time. Merck Labs does have an assistance plan for those who qualify.
Carol0 -
I remember having Emend in my IV, but I just now remembered (damn chemo brain) that I was also prescribed an Emend patch for each chemo. I put it behind my ear the day before and took it off the day after- worked very well. I don't know what it cost, my co-pay was $30 for it.0 -
mags - great news. Just curious what tumour markers you get done. I have asked my MO about these and she told me there are none for triple negative. I know every oncologist is so different in their treatments and testing afterwards - wonder why this is?0 -
Gotta add to the good news. Had my 6 mo Onc appt on Monday. Exam was fine and labs were drawn including the CA 27-29. My MO will mail me a copy of the results in about a week. And as I predicted, she offed me a PET scan. I declined. I am feeling good and can't justify the radiation exposure or the cost. So I will continue to live life as fully as possible and try not to second guess my decision. She said that she wants to see me in another 6 months and then I be RELEASED! Holy cow....never thought I would see the day.
Hugs to all our gals that are in treatment. I know you are tired of hearing this....but there are better days ahead and right now you just want to kick cancer to the curb.
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adagio--she alternates each time...this time was the ctc and next time it will be the ca 27-29
Mags0 -
Congrats to all with good news!! Nice to hear!0 -
Navymom you will be getting released at 1 year? I am 2 years 8 months out and I am still on every 6 months. I think in March I go to a year, but I was told with TNBC i would be coming for 5 years. Thats awesome news though! I know I am ready to be done. I still see my bs and onc and I always schedule them the same day.0 -
Navy Mom is almost 5 years out as I am....released is such a wonderful word...! I'm 56 months out as of today....! 60 months in March...time really does go fast ladies...can't believe almost 5 years0 -
Yep, Titan is right. I will be 5 yrs out next May. I think that I have been on the 6 month plan since somewhere in year 2. Still see the BS every six months and I would like to stay no less than once a year with her....she gives the best breast exam. Plus I just like her as a person. I also see the PS once a year, but after my appt in 2014, that will change to every other year unless I have some type of problem. I am Grateful to see some of the appts come to an end....ya know, by the time ya get the gyne, dermatology, dentist, ophthalmologist and PCP it just seems like enough already! A girls gotta make time to get her hair and nails done once in a while, too.0 -
Congratulations to Mags, NavyMom and Titan. You are all doing so well. It's give us all hope and encouragement. Keep it up Ladies.
Adagio my BS does the CA15-3 but I don't know whether it is particularly reliable. I hate it when he gives me a blood work form to get it done. Raises my blood pressure something terrible with the anxiety, makes you wonder whether it's worth having it done.0 -
cocker - I get what you mean about the anxiety of the tests. I get no tests whatsoever and I am not too bothered about that, but I do ask every time I go for an appointment about tumour markers and I get the same response - not reliable and not necessary. Who's to say what the right thing is?0 -
I am 3 years 3 months from diagnosis and see my BS every 6 months now (started at 2 years) and still see my MO every 4 months. My regular MO retired so I will be seeing an associate of his in Dec. Maybe he will switch me to 6 months since I will be 3 years from end of chemo Dec. 30! I saw my PS once after I had the exchange surgery and he never asked to see me again. I hope I get to hear the word "released" someday!!!0 -
So happy to hear the good news for everyone!! Yay!! I just had all my checkups and even though they didn't do any testing I am free from doctors till February when I have my first mammo to give a new baseline. Scary without tests, but I'm trying to put it out of my mind the best I can till February. Have a great day ladies.0
