Calling all TNs

17607617637657661190

Comments

  • DorMac
    DorMac Member Posts: 153
    edited December 2013

    Cocker,

    Thanks so much for sharing your personal story of Karen. She seemed to be such a brave person. I'm glad you were her friend and she had you to chat with every day by e-mail. I'm sure you will miss her, as we will, but she is no longer in pain and she will live on in the memories of friends and family. RIP, Karen.

    Doreen

  • BanR
    BanR Member Posts: 238
    edited December 2013

    thanks Cocker for sharing her story..

    I salute her spirit...  

    Do post a picture of her if possible, many of our friends here have never interacted with her but heard about her through this thread..i am sure they will love to see her.

  • netty46
    netty46 Member Posts: 68
    edited December 2013

    Cocker how long was she fighting this? 

  • lrm216
    lrm216 Member Posts: 534
    edited December 2013

    Sleep gently, Sweet Karen.  We will all miss you very much.  And so, another star shines brightly down upon us all.

  • Jianchi
    Jianchi Member Posts: 237
    edited December 2013

    Rest I peace Karen.  I don't know too many people here, however, I wish everyone the best.

  • candi07
    candi07 Member Posts: 77
    edited December 2013

    So sorry to hear about Karen's passing. I didn't know her, but I feel like we are all family here so my heart is heavy. I'm praying that God will see her family through this really rough time.

    Take care everyone...

  • Lory48
    Lory48 Member Posts: 266
    edited December 2013

    Thank you Cocker, I never knew that part of the progression. She will be greatly missed. She did send me a small message after I go the stage IV diagnosis last month.. Fight on!

  • belleeast
    belleeast Member Posts: 96
    edited December 2013

    Lory48,I am sorry to hear of your stage IV diagnosis. Sending you strength and positive thoughts your chemo kicks this F****** cancer's A**. (((Hugs)))

  • Babs37
    Babs37 Member Posts: 320
    edited December 2013

    So sorry to hear about Karen...My deepest sympathy to her family and friends.

    Oh Lory, I'm so sorry... Wishing you all the strenght and positive results with your treatments. We are here for you. XX

  • TifJ
    TifJ Member Posts: 804
    edited December 2013

    All I can say is Goodbye Karen. You were loved and will be missed, tremendously.

  • lookingforward66
    lookingforward66 Member Posts: 148
    edited December 2013

    Just want to wish Everyone....

    Happy New Year. 

    May we all be healthy & happy in the coming new year. 

    Marsha

  • Stupidboob
    Stupidboob Member Posts: 330
    edited January 2014

    I am so sorry to hear of Karen's passing.  

  • Stupidboob
    Stupidboob Member Posts: 330
    edited January 2014

    After hearing of yet another loss, I was going to wait to post this but maybe it will help someone else.

    As I have said my pet scan came back clear, and then today I had my mammogram and it is all clear too. 

      I have been having some major pain in my hip and back, and my hip has advanced arthritis in it, and degenerative disc disease in the back, but this is a new pain and so I will be going to have it checked out but I thought that if cancer had gone to the spine it would show up on the Pet Scan and when I told the oncologist she said well they don't really look at the spine but nothing was reported.   I was so dumbfounded that I could not even get myself together to find out what all the Pet Scan does show.  I will though but what are your thoughts on that.   Does it show? 

  • jenjenl
    jenjenl Member Posts: 409
    edited January 2014

    Someone sent this to me and is quite meaningful for me: 

    I've
    come to decide that the best way to help people is to help them find
    comfort in the chaos and uncertainty of life. That fear of that chaos,
    of that uncertainty, is essentially fear of life, and is the source of
    so many problems. And that by embracing the chaos, learning to accept
    the uncertainty, the not knowing, we can more easily take control of our
    lives, and more easily make ourselves the people we want to be. 

    Happy New Years ladies :)  Health, Happiness & Prosperity for 2014!

  • Kruise
    Kruise Member Posts: 242
    edited January 2014

    stupidboob - yes the pet scan would show any areas of concern.

    I had one after surgery and they found a spot on my neck and a spot on my upper back that they then told me was most probably metastasized bc. But they kept telling me there was no way of knowing for sure. Then the rad onc suggested an MRI also and thankfully I did that because that confirmed it as not bc but something called hemangeomas (like clusters of active blood vessels). 

    So now I try not to worry when I get the neck pain and back pain. I figure it's just those little gems doing something like flaring up.

  • Stupidboob
    Stupidboob Member Posts: 330
    edited January 2014

    thank you Kruise..............I am glad that yours did not end up being cancer.  
    Happy New Year

  • adagio
    adagio Member Posts: 713
    edited January 2014

    JenJen - thanks for sharing that - accepting the chaos and uncertainty of life is an ongoing intention of mine. Thanks for the reminder!

    Wishing everyone a healing time in 2014.

  • slv58
    slv58 Member Posts: 486
    edited January 2014

    I'm so saddened about Karen. For some reason I kept missing this thread when checking active topics. Through the months I was always so impressed with her positive attitude, but more than that- her ease at accepting her situation and making other people feel that their situation or concerns were more important. She always had something comforting to say. She truly was selfless and generous in spirit. I pray she passed as peacefully as possible. I also wish her family knew how much she helped us all here and how grateful we all are for touching our lives. It's a sad day, another beautiful sister gone too early. 

  • Gwenie56
    Gwenie56 Member Posts: 23
    edited January 2014

    Slv58 ~ you wrote so well what I was feeling about Karen.  Thank you. gwen 

  • Nettie1964
    Nettie1964 Member Posts: 627
    edited January 2014

     Since I'm new here,  would you mind telling me what Karen's  original dx  was and when.  It's hard news  to hear when one of us passes.

  • lrm216
    lrm216 Member Posts: 534
    edited January 2014

    Nettie, here are Karen's stats as she listed them on her posts:

    Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda

    edited to add that Karen was originally diagnosed with estrogen positive cancer, which when it came back morphed into triple neg.

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited January 2014

    Please add me to the list of prayers. 

    I went to the BS on 12/31, and on the right side of my neck the DOC found a swollen lymph node, I later found another one under my left ear.  I had an ultrasound done that day, and I am scheduled to go back on Friday to have it biopsied.  Anyone else experienced this?  We just got a cat not too long along, and I am praying the little kitten gave me cat fever.

    I have already gone there in my mind!! Tears. Worries. Not fair.  The waiting is the worse part, it is hard to keep it together and act normal for the kids.

  • Gwenie56
    Gwenie56 Member Posts: 23
    edited January 2014

    Fighter_34 ~ I will keep you in my thoughts and prayers. 💕

    hugs, gwen

  • DorMac
    DorMac Member Posts: 153
    edited January 2014

    Fighter_34

    Definitely sending hugs and prayers your way that this is due to kitty and nothing else. I know it's difficult but try to keep positive thoughts.Your sisters on this thread will be with you on Friday and every time you need us!

    Sending positive vibes and many {{{HUGS}}}.

    Doreen

  • lookingforward66
    lookingforward66 Member Posts: 148
    edited January 2014

    Fighter_34

    My prayers & hugs are with you!

    Marsha

  • slv58
    slv58 Member Posts: 486
    edited January 2014

    Fighter, sending lots of positive thoughts-we are with you holding your hand and giving strength through numbers! Prayers for fri. It's so unfair we have to worry every time something feels "off", isn't it enough going through everything we have already faced? All of us are STRONG women and only we can understand the inner strength we count on to get us through-I will pull from that "source" for you!

  • TifJ
    TifJ Member Posts: 804
    edited January 2014

    Fighter- Sending prayers and good thoughts that it is kitty related or an infection of some sort. Will be thinking of you.

  • simplelife4real
    simplelife4real Member Posts: 341
    edited January 2014

    Fighter, I'm pulling for you too.  Waiting for test results is sooo hard.

    I had AC #3 on New Year's Eve.  So far, so good.  I gave myself my Neulasta shot last night.  One more infusion to go, and I'll be onto surgery and radiation.  The AC has shrunk my tumor dramatically.  I can barely feel it now.  I'm hoping for a pCR at sugery.  I just got my BRCA results on New Years Eve too.  I'm negative.  If I had been positive, I would have gone with a BMX and my ovaries out.  Since I'm negative, but my MO and surgeon tell me a MX will not increase my chances of survival.  I'm going to trust them and go with a lumpectomy.  It's a little scary being triple negative and only getting a lumpectomy, but I drive a long distance to get treatment from experts.  I figure I will listen to them.

  • mags20487
    mags20487 Member Posts: 1,092
    edited January 2014

    fighter---we are all here for you! 

    simple---woo hoo for negative brca!

    Mags

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2014

    Oh Fighter you have always been on my list of prayers.  We automatically go to that 'dark place' when we find a bump or something unusual comes up but little kittens sometimes scratch your skin without you realizing it. Extra prayers are coming your way with big huge hugs that this is nothing.