Calling all TNs
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Bluebird,
I'm keeping my uterus! Lol
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Bluebird I appreciate your candor, and yay yay lucky Mr. Bluebird!
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Mags(((hugs))) hoping it's just scar tissue! In my thoughts and prayers...
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Mags, I'm sorry to hear they decided to biopsy the lump. I hate this disease. I'm with belleeast in hoping it's scar tissue (or fat necrosis). (((hugs)))
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Mags I think it's good they are being watchful, although I can understand how you feel, hugs. Hoping it's nothing and goes quick and painless. I will be thinking of you Mon.
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FierceBluebird - I don't think people are getting that recommendation bc they are TN, it's bc we are BRCA1/2 +. Not having a uterus has not impacted my sex life. If you keep your uterus there is a very small part of the fallopian tubes that is left in place. That small part of the tube can obviously get cancer. Hope that clarifies.
I'm looking forward to the long weekend, we are headed to Charleston for a week. Hope everyone has a good long weekend. xo
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mags, hang in there! We will all be in your pocket!
Meadow and radical, I just feel like there's hardly any "me" left! Lost my breasts, chest numb, 25 " incision across abdomen which is also numb. So I'm not sure how lucky mr. Bluebird is, but at least I have one part of me that functions well! Lol. And he's always game to try so I'm the lucky one. We've been together since I was 17, and he's still the best thing in my life 32 years later.
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jenjen, I am brca also. Had prophylactic surgery to try to reduce my risk. But with triple negative not being a hormone fueled cancer, developed it anyway.
My surgeon who did my SAP did some type of procedure where the tube cuts are turned into the uterus.
But as we all know this 'effin disease has its own mind on who it strikes and when. You can try to reduce your risk the best way possible, but there are no guarantees. It's scary as hell.
But very happy you still function well without your uterus! That is awesome!
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Fierce - LOL, I hear ya. Happy 4th my friend!
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((Mags))
Yes Bluebird, your Mr. Bluebird sounds like he is an amazing man and I am so very thankful he is right there with you. I have a Mr Meadow who is the exact same way thank God. He sure is a blessing.
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Thanks so much, ladies! I placed the order for the angel wings this morning. I'm looking forward to giving them out.
Mags, I will be thinking of you and sending prayers that it's nothing more than scar tissue. Hugs.
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Just got home from the old 6 month oncology check-up. Everything is looking good! I was a little worried about some pain in my inner thigh and hip area, but the Dr. is sure it is muscular, not bone related. He said the difference is bone metastasis would hurt when weight is placed on the bone such as standing or even sitting. Mine only hurts when I move my leg a certain way. He said when I hit 5 years next year I can choose if I want to "fire" him or keep coming in yearly! Guess I'll cross that bridge when I get to it!
Happy 4th everyone!
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TifJ that is aweome!
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Yea Tif! Congratulations on another good checkup! That is good info to know about the difference between muscle pain and bone mets too. Thanks for sharing it.
Hugs,
Kay
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Here's another study that looks promising for TNBC... Just thought I would share it.
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Thank you Simple! I love seeing these studies! I just love that they're paying attention to us!
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Tif congrats-that is great! Also very useful information about bone/muscle pain, thank you!
Ladies I need some emotional courage. When I went for my one year mammo and check up with mo, I asked her how long chemo brain lasts. She asked me what symptoms I was having and I explained the usual forgetfulness but also mentioned my frustration (and embarrassment) at using the wrong words sometimes. Well she didn't like that and I have to go for a brain MRI on tues. I've never had one so I guess it's good she is checking, but I'm nervous. I'm afraid of the implication and a bit nervous about the procedure.
Happy 4th of July to my American sisters! Celebrate, life is great!
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Oh Shari, I'm so sorry you are having to deal with a brain MRI. Scary stuff! I am wishing the best for you .... wear big pockets so we can all hop in and support you on Monday. I hope that they are able to give you the results immediately afterward and that you will be dancing with Ned on Monday evening. (((hugs)))
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thanks Simple, I'll be wearing huge pockets! Test is on Tuesday night and I'm almost certain I won't get results until my MO gets them. I'll ask how long I have to wait, just to prepare. I thought I was holding it together but as the date gets closer, I'm getting more nervous.
To anyone who has had an MRI, are there any tips you can share? I've been prescribed Ativan to take prior, but I do get claustrophobic and hope I don't freak out. Honestly, I just want to hear that I dont have brain mets.
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Slv58....no personal experience, but my mother has had MANY brain mri' s. She is very claustrophobic but she manages. Just make sure they know and they will take very good care of you!
Wishing you the best!
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Slv, I ALWAYS take my own wash cloth with me, and fold it over my eyes before I am placed it the tube.......dry not wet. It keeps me from opening my eyes, and if my eyes are shut, I do not get claustrophobic at all. It really works!
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Thank you for the support...................:)
Here is a website I ran across tonight and thought it might help someone. It is to get free stuff and or low cost relating to breast cancer. I know many can not afford things, I wish I would have known about this site.
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slv58 best of luck to you....................I do not do well in MRI's so I can't offer any advice except for the wash cloth over the eyes makes me more nervous because if you want to move it you can't. However, if it is just for the brain, see if they will let you take one with you and hold in your hands. I was having a different test and the man actually gave me a rag to hold on too because so many of his patients said it helped them. It did help me but this was not in an MRI0 -
TifJ congrats................good to know about the bone pain
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Mags I hate that you are going through this....................it just sucks all the way around.I know what you mean by wanting your mommy.................I MISS mine so much. Mama's just seem to be able to make things easier.
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Hi ladies,
I saw some of your posts regarding removing the uterus. Does anyone know if uterine cancer and breast cancer are linked? In the last 2 weeks I learned that both my great grandmother and a first cousin had uterine cancer....before this I had no knowledge of breast related cancer in my family. I hope you don't mind my joining on this thread...Simple, I was encouraged by the post you made in regards to a virus being a potential cure -hoping my daughter never has to deal with this. Thanks in advance.
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Meadow, Stupidboob and Simple thanks for the tips. Hopefully the test will fly by and I won't have an itchy nose! I will bring a washcloth for both eyes and hands and do some meditative breathing. Sometimes I'm so sick of all this.
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Canuck,
There is a small link in bc and uterine cancer for BRCA positive gals. The main risk is the link between bc and ovarian cancer. Honestly, in BRCA gals, the risk for all cancers goes up, some are just increased more than others.
I'm not sure if you've done it yet, but if you're finding several "female cancers" in your family line, you may want to investigate the BRCA testing for you and/or your daughter.
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Slv58. I know the anxiety your experiencing. I am going for CT of brain on Wednesday morning. MRI out as can't take contrast. Was told next best was CT.
Have had a 7 week headache. Nausea, slight weakness on left side. I'm praying for acute sinusitis.
My case is a mess as my allergies prohibit a lot of options.
The anxiety is worse than the test for me. I'll have to practice my yoga breathing. The not moving the head is scary.
I'm in your pocket Tuesday evening.
Marsha
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I.had open air mri...I was still claustrophobic. I'm very claustrophobic don't even like elevators. But I was able to power thru. But I would never go in the tube. NEVER but that's me.
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