Calling all TNs
Comments
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Stupidboob, lymphedema doesn't cause shortness of breath except in very advanced cases which have been untreated for several years. Well-controlled lymphedema would be VERY unlikely to ever reach that stage.
As others have said, this is a bad time of year for the upper respiratory system. Please take care!
Gentle hugs,
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Radical2squ: I am hoping that is all it is.
Luvmydobies: I have not but I did call the lady today that treated me for Lymphedema and she said that not normally but anything can happen. I can come back in if I feel I need them. I might at a later date.
JoeyJamesMo: Thank God my breast surgeon was still following me and I was there for my 3 month check up and ultra sound. That is how it was found and then even though I could tell from the girls face that it was not good, we then had to do a biopsy to confirmed and unfortunately it was back.........:( I then switched oncologist and started normal Pet Scans, this lady gets it done. When I went in this time and told her about the breathing and what the NP said about allergic asthma she was not comfortable accepting that so she had another Pet Scan ordered. I like that. I don't like having to go, but I like that she will get stuff done. I am getting the ball rolling. I have an appt. Wednesday to do some breathing test and I talked to the lady today who did my Lymphedema treatment in the past and we got a plan to try, and I will see her or some one else if no improvement.
Binney: thanks for the support.
Thank you all for the support and input.
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Stupidboob, I am glad to read you have the ball rolling, so you can at least get a piece of mind.
And no one could blame you for wanting one considering all you have been through.
I can imagine when I finish up with the chemo and surgery, I am going to fear the worst whenever
I feel the slightest bit of pain or discomfort.
I guess it is just another thing we all need to work out.
Hope you have a wonderful day!
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Hello.. haven't been on here in forever.. why, I don't know because there is so much good advise and answers!! Thank you all for being on here!!!!!
I am getting ready for my last dose of taxol on the 30th.. yeah!!!! The numbness in my hands is aweful.. have it in my toes too but the numbness there isn't as bad.. my hands and feet feel swollen .. Will this go away?? My onc told me too it could be carpal tunnel since the main numbness is in my thumb s and index fingers... And while I am asking questions, might as well throw them all out there, right? Constipation advise anyone??? it sucks! Weight gain??? I have gained 11 lbs since I have started all this....
And the silly hot flashes.... Goood gawd!!! Will they quit??? Then..since I started my chemo before my mastectomy.. how long do they make you wait?? 0 -
I like your thought
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Hi All,
I'm sorry not to be replying to individual posts, but I just wanted to comment to Brook and Sadie. Brook, I don't know if it is feasible for you, but have you thought about getting a second opinion for further possible chemo? What clinical trail are you going for? I hope it all works out for you.
Sadie, I'm glad you are getting further testing, but I hope they don't find a thing and your breathing problems are all asthma related!
We are in the middle of week 3 of a wonderful 4.5 week vacation travelling out west with lots of camping (and not much internet). Last weekend, we were in Las Vegas and I got to meet 7 other ladies from around the country that were part of the breastcancer.org Sept 2013 chemo thread. It was a fantastic experience. One of the other ladies is also triple negative and it was particularly nice to get to meet her in person. Here is a pic from the gathering. I'm in the front row on the far right. The other TNBC'er is in the back row on the far right. I think we all look great...particularly considering we were all bald this time last year!
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You all look amazing! How fun to meet up with other posters. Love it!!0 -
Hi Simplelife4real! Wonderful that you were able to get together with others from these boards! Thank you for posting and for the photo!
As I sit here without energy, hair, eyebrows, or eye lashes, your post and photo brought tears to my eyes. It is reassuring to see how you all look, and that things will, indeed, get back to 'normal.
Keep enjoying!!
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Thanks for the info. I have been staged now but from what all the doctors have said you are right that staging is just a reference. My prognosis is also determined by my health and age so not to get worried about staging. Their main concern for all the tests were to make sure it had not spread. I am ready to kick cancers butt. One chemo treatment under my belt!
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My beautiful wife Kathleen, hands held high, in the "Survivors' Walk" (I'm the "photographer" so not in pic. She's number 3836) associated with the Liz Hurley Ribbon Run in Huntsville, Alabama this past weekend. I wish everyone in this forum many decades of "Survivors' Walks" of your own!
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Redporch,
You already are kicking butt! Keep at it!
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HI TNBC Sisters,I went back to work on Tuesday October 14th and by Saturday I was in the hospital diagnosed with Pneumonia. Eventhough, I ended chemo on 9/23 my immune system was not ready. While in the hospital I had 3 CT scans (brain and chest). Brain was clear but chest detected the pneumonia. I also found out I can NOT have an MRI with the type of tissue expanders I have (Allergan 133SX). So, my MRI scheduled today was cancelled.
Anyhow, everyone at work was so happy to see me and even dedicated Friday to my return (everyone wore pink). I am now out of work for the next two weeks while I recover.
Everyone take it easy! It is flu season and not safe for any of us.
P.S. I should have taken the that last Nuelasta shot
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Al, your wife is a doll! happy happy for her, and for you. thanks for sharing
Red, so sorry youare sick, hang in there!
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hi Redheel, so glad to "see you" ! Been thinking about you and wondered how your test had gone.
Take good care of yourself!!!! Maybe yiu could wear a tiara on Fridays too?
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Last week I had my first scans since end of treatment, 6 months out. So happy to report I am still cancer free, NED. Thanks for all the support, and thanks to God.
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praises to Him Meadow!
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Great news, Meadow!!
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Hi ladies. So many posts to read and catch up with.Simple - fantastic photo of you and the other ladies. Wonderful that you were all able to get together and you are looking great and cancer FREE.
AL Husband your beautiful wife is just like you said. 3836 is so beautiful. We also do the Pink Walk here in NZ| and so many girls and men turn up for it. It's always a fantastic day.
Stupidboob - thinking of you and hoping you gets some answers soon for the breathlessness. I should imagine its not easy to lose weight especially when you are worried about the cancer coming back. I have the same trouble with doing exercise. I sit and type for the major part of the day and when I get home I am just too tired to even think about exercising.
Lovemydobies - as much as we probably all hated periods I hope that is what is happening and yours will return soon. I do think its best if you get another opinion for the vaginal discharge though so you can put your mind to rest.
Somebody asked about pain in their other boob. I have been having intermittent pain in my right breast so have just had a scan and a mammo. All was well thank goodness but they said the radiation can cause this pain and said it was costochondritis (Inflammation of the ribs). Radiation can make them rub together and cause the pain. Since the tests came back all clear I haven't had the pain (Duh, it's all in my mind).
I really believe its the skill of our surgeons that determine our fate. I had complete faith in mine from day one because for the simple reason I had nobody else to trust. He has turned out to be spot on and I wouldn't look for a second opinion all the time that he is around.
Our minds will always go to the fear of recurrence with every little or big ache or pain. This is so natural but I find the more I push it to the back of my mind the better I feel and the longer those thoughts stay away. I stay away from Mr Google and any threads that mention recurrence because I just don't need them and neither do I want to go there, my mind does enough of that without extra help.
Thinking of you all ladies and sending big warm hugs. Its my birthday tomorrow and I never thought I would be so pleased for it to come around again.
Annie
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Cocker_Spaniel -
HAPPY BIRTHDAY!!!! May you be blessed with many more.
Enjoy your day and those who love you!
~Janet
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Happy Birthday Cocker! Time to Eat CAKE!!!
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HAPPY BIRTHDAY, to our sweet Annie. May this year bring you every happiness!
Love,
Linda
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hello ladies popping in to say hi and that I think of you all often. I tried to read some posts but way to many. I hope everyone is doing great and that we lost no one. Love and hugs
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I'm loving joan Lunden on all the shows recently. She's doing a great job in a classy way I think. She seems so real but they dont give her enough time on the shows. Today was dr. Oz. she wanted to talk to audience girls longer but was cut off due to time. Following her on fb and her blog
Annie, happy birthday. I also have intermittent pain ( small twinges) in R unaffected side. Mri last month showed nothing. Twinges are in the same area as my lump in leftie, strange
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Annie, wishing you a wonderful, healthy happy birthday! I agree with you about how your attitude changes when you get to celebrate another birthday-I love mine now! lol
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Happy Birthday Cocker! I am looking forward to more also. Hope you are doing well.
Hugs, lilyrose
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Happy Birthday Cocker! Meadow...GREAT news!
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Happy Birthday Cocker!!!
Meadow, so happy for your good news!
HUGS everyone!
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Happy Birthday Cocker.........We made it another year! I miss hearing the latest stories of your dog, whose name I can't remember. Jan
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Thank you for the birthday wishes ladies. It was a lovely day and my family all came last night for dinner, which my beloved old fella cooked.
Jan it's Chloe and although she has given up taking out tins from the recycling bin and chewing every little inch of them she still gets up to other things. I brought a lovely big new cream shaggy rug. I found out last night that if she wants to hide a piece of her meat from Tessa she hides it in the rug, little sod.
I told a joke to my work mates today. I said "You know, out of all the 7 dwarfs, only one of them is happy" One of the girls said 'which one'.
Keep well and happy ladies. If you are having side effects may they fade away quickly.
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Ah Cocker! I'm up at 0245 here in the States with corticosteroid induced insomnia, and your home made it with it! Thanks!
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