Calling all TNs
Comments
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WannaCruize, I'm so sorry you had to find us. There really aren't words to tell you how sorry I am that you lost your daughter (no parent should ever have to endure this!) and now having to face the monster yourself is just unfair. Please lean on us whenever you need to, as this is a wonderful group.
Cocker, I can't tell you how sorry I am about Tessa. I know how devoted you are to her and that this is just heartwrenching for you. I'm just so very sorry.
I wish I could take this away from both of you.
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Hello. I want to add that I am so so sorry about your bad news Cocker. Also very sorry that you have had to join us Wanna cruize and so sorry for the bad time you have had these last few years, it must be very hard and you sound so resilient and positive. This is a wonderful supportive place for TN sisters. Regarding a port, my MO said I could not have one because I previously had a deep vein thrombosis 15 years ago and my blood has a deficiency which makes clotting a problem. Everything I've read about ports makes me wish I could have one, no one who has one seems to regret it. I too have only got to have 6 infusions but with all the tests and so on I feel like a pin cushion nearly every week. To make things worse I also have a nickel allergy which sometimes makes my skin react to the needles.
There are so many examples of women who have genuinely been cured of this: I have heard this very week of two women aged 86 and 91 respectively (the mothers of two of my friends) who each had breast cancer over forty years ago and have had no Cancer recurrences since treatment. Scientific advances have improved the survival rates dramatically since then. There is a lot of hope. Love and hugs to you all. XX
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Cocker...I join everyone sending you sorrow about your beloved dog. I can relate to every emotion you are feeling. We lost our sweet cockapoo last year. He was 13. They are here for such a short time, but fill our lives with such love...and, then leave us too soon. So sorry.❤️
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Cocker your post brought tears to my eyes. I don't know you but you have been very kind to me and a lot of women here on this board. My heart aches for you to have your pup who was your guardian now in need of prayers. Take it one day at a time know we are here for you.
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Burning irritated face!!! Has anyone had this side effect. It started three days ago, approximately two weeks from my last TC infusion. I tried so many lotions and creams. Today the nurse prescribed a steroid med pack. Would like to find another solution before I start on more meds. I've been doing very well on the TC. This is really my first side effect. Any suggestions?
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Cathy, could be an allergic reaction...of course keep your team informed. Hugs.
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Cathy, when I was talking to my nurse about my rash, she said steroids can cause flushing in the face.
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Meadow..do you mean allergic reaction to the TC? LoveMyVizsla..do you think the steroid med pack is not the right solution? I'm thinking of trying Benadryl tonight
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i think I would try the benedryl first and see how you are in the morning.
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Is anyone doing neoadjuvant chemo? I had my third AC this week and I barely feel any difference in my tumor and I'm getting worried. Up next is Taxol and possibly Carbo. I was really hoping to feel a real difference by now 😕. My MO didn't say much, just that we would get an ultrasound after my 4th AC.
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Hi LifeAloft! Neoadjuvant chemo here. I am doing Taxol and Carboplatin first, then AC. I had Taxol #11 yesterday. Will start AC on 3/11.Also had an ultrasound and mammogram yesterday and happy to say my tumor is less than half its original size.
I could never feel mine to begin with. If I were you I'd try to take some deep breaths, let the AC finish and wait til the ultrasound to see AC's progress. Also if you can, definitely get the Carboplatin! I tolerated Taxol just fine and Carboplatin gave me some GI issues but it was very doable.
Best of luck!!
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Thank you Angtee15!! I appreciate your input. I'm admittedly not the most patient person in the world. Slow deep breaths being taken now. 😊I'm definitely going to push for the Carbo.
Thanks again!
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LifeAloft I feel you on the unease with keeping these things in us for the duration of chemo. My oncologist was saying I was responding based on her manual exams alone and had no plans for an ultrasound until I was finished completely, saying that was the "standard." Whatever. So I pushed her. Peace of mind is the least they can give to us neoadjuvant girls! I finally feel like I can take those deep breaths after yesterday. I will send you good vibes for a great response to AC!!!
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Stacey - so glad to hear you're home and feeling good. Rest up and take it easy. Sending you gentle hugs.
Life - I would probably push for an ultrasound prior to the 4th cycle of AC, seeing as the cycles are every 3 weeks, that's quite a while to wait. However, if there's no change, I would think they'd get you into surgery asap, so it's not a decision they'd take lightly, which is probably why they're trying to hold off. I'm so sorry you're not feeling a change. Maybe you could approach asking for the ultrasound earlier as a peace of mind thing...just a thought. Sending you much love and hugs.
Cocker, you've been in my thoughts and prayers. xoxoxo
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Cocker..just read about your pet. So sorry to hear that. What does the vet say...is there a treatment for them too?
Scotbird....nice to hear from you that 2 of your friends' moms got cancer 40 years ago and living heathily since then. Would you have any idea about the treatment those days..as in did they receive chemo and radiation?
all the women who are on treatment...please hang on!!
hope everyone else is doing well...
Its a wonderful sunny weather here in Milwaukee ..stepping out for a long walk
love and hugs!
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Thank you all so much for your posts ladies. I couldn't find my Tessa this morning when I woke up, I looked everywhere. My daughter came and she was hiding behind a tree and I couldn't see her. We got her to the vets and she passed away herself before he could even give her the injection. She was my beloved girl and I loved her so much but I also feel enormous relief that she is free of pain and suffering and is now at peace. Thank you all for being there for me and my Tessa. xxxx
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Oh Cocker I am so sorry for your loss! These little creatures become a large part of our family and lives. Your Tessa was one of the lucky ones to have been so loved!
Keep happy memories in the forefront!
Sending hugs to you and family
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Cocker...so very sorry to hear this news. Tessa is now free of pain. She must have had an amazing life filled with so much love from you.
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My dear Cocker, I'm so sorry you have lost your little love. I'm sending hugs and warm thoughts as you grieve. Love, Jan
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Dear Cocker
I am so sorry for your loss. Tessa was lucky to have you, and she will Live Forever in Your Heart.
Hugs
Arlene
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Cocker, I'm so sorry about Tessa! (((((HUGS))))) I'll keep you in my prayers. I know she had a great life with you. RIP sweet Tessa.
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Sending hugs your way, Cocker.
Loved your post, Greenae.
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(((((((( Cocker)))))))))- I am so sorry.
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Cocker...so sorry to hear about Tessa! I have always wanted to ask you to send a picture of your cocker spaniel ..thats what your member name is too!! I hate this disease Cancer...it has eaten away so may wonderful lives ..and it has not spared animals too. There is no cure and the damn disease has been around since 5000 years..that is the beginning of civilisation and all we can do is helpless die or watch our loved ones die.
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Cocker,
Many hugs.
Marsha
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cocker hugs to yo
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Hi all,
I rarely post. Last year, I forgot my password then I had to re-sign up to get my new username&password.
I just want to stop by to say hello to the newbies and all tnbc sisters.
I have passed the 4 years mark. So far so good.
The newbies sorry to see you here but glad you find this great place. You will get what you need to support you during your treatment.
I see Navymom and Cocker are still here to support each other. Kind and helpful.
Cocker, so sorry about your adorable Tessa. RIP.
Nuan
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Cocker - wrapping my arms around you and giving you a huge hug. I'm so very sorry. I wish we had more time with our beloved fur babies. You gave each other wonderful years and were beyond blessed to have one another.
Arlene - beautiful post.
Nuan - congratulations on 4 years.
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First post. Diagnosed October '15 (Age 60) with TNBC Grade 3, Stage 2/3. Tumour was about 3 x 4 cm so quite big. Definitely 2 lymph nodes involved at that point. Had 12 weeks of Taxol with Carboplatin added each 3 weeks. Tumour reduced significantly during this but was still evident before surgery. Surgery 4th February - lumpectomy. Had Sentinel Node Biopsy but surgeon removed about 17 nodes (first layer). Pathology report showed no cancer in lymph nodes or tumour so a pathological complete response (pCR). Return to oncologist today who had suggested 4 rounds of AC spread over 12 weeks plus if I wanted to, to add two more rounds of Taxol/Carbolplatin. I did seek a second opinion on this and recommendation was to do dose dense AC over 8 weeks only and that there was not enough evidence to warrant more Taxol/Carboplatin. Radiation would follow chemotherapy.
I handled the Taxol/Carbolplatin really well with limited side effects apart from tiredness and of course hair loss. Fingers are crossed that next type will also go well and hope that I am making the right decision about not having the extra taxol/carbo but from my research it appears the dose I have already had is sufficient.
Didn't see myself ever posting on a site like this but here I am. My treatment is being carried out in Singapore where I work but I will return to Australia in June (to retire) and hope all of this will be behind me.
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Oh cocker, I am so very sorry for your loss. Bless you and bless Tessa.
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