Arimidex - Coping with the SE's
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Janet...that makes sense to me, too. If there's one thing I've learned through this whole experience, it's this: If it doesn't make sense, it's probably wrong!
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Me again. Have any of you poor souls suffering with migraines tried marijuana for pain relief? I have a benign brain tumor which, although killed off by radiosurgery, still kicks up its ghost in a nasty way, and I have found it to be most helpful. Plus, it lowers my use of pain medications considerably.
If you live in an area where prescriptions and stores for medical marijuana are not available, your best source, unfortunately, is probably a teenager attending a local high school. If you do not want to smoke, it can be put into food as 'seasoning'. Brownies are good...
paamboli
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When I was in college, I thought that it ruined the taste of a perfectly good brownie!!!!!
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sunflowers-
Thanks for your response. I didn't think that I was an isolate in the desert of crazy sleep patterns, but it was good to have your reaffirmation. The only person to enjoy this disruption has been my 22-pound cat Beanie, who wound up with two breakfasts! (Yeah, I know he's not human, but at 71, and living alone, I cut myself a lotta slack when it comes to fancy distinctions).
paamboli
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Thanks again ladies for your suggestion. As to the snack, I usually eat some Chobani yogurt, or a piece of fruit and a big glass of water. I do eat very healthy foods. I stay away from all soy, but try to get as much protein as I can from the yogurt, organic cheese, and very lean meat (without hormones). I also have spoken to the cancer center pharmacist, and he was unable to explain the fatigue with the exception of recommending that I discuss it with the cardiologist. I have an appointment at the end of the month and will address it with him. If that doesn't work, I guess I'll have to chalk it up to Arimidex or the trauma my body has been through since January. Meanwhile, the fatigue continues. I'll keep you posted.
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Hi everyone...yes, I've traveled to Boston when Botox was used off-label for migraines, and also had it done again here, nope, doesn't work for me, but damn I won't get wrinkles~!
I have also tried marijuana, makes it worse. Everyone please try to understand that I've had this since I was 17 years old, the pain is the same day in-day out, one adapts, as one HAS to. We are SO far beyond trying to find the 'cause' (impossible), and there is no cure, only 'treatment', such as diabetes. I thank you all for caring and your concern, and I'm truly sorry I brought it up. It's difficult enough to explain to people who do NOT suffer daily migraines to understand that at some point, one does NOT need to subject one's self to constant meds that do not work, but make head pain/nausea/vomiting worse. (No vomiting meds work either, and yes, we've tried them all, even thru chemo). Again, thank you, but I'm doing the very best I can to handle everything and still have been able to drive myself to all my chemo/radiation treatments. I'm very independent and HAVE to rely on myself. Doesn't make me any stronger than any of YOU who go thru your own health issues. We are all survivors, and we are tough~! THX! ~juli0 -
Dallas, I think we have a problem! Is anyone else experiencing frequent and copious urination? I had a grilled cheese, coupla tomatoes, pickles and cupa rooibos tea at 9am yesterday, an apple at noon and that was it for the day. Since midnight, I've lost count, I think I've urinated ~ 9 times and it's not even 6 am. This has been going on for a while and now I'm worried. Thanks.0
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Ditto sunflowers to julia.
I really had no 'big' s/e's on tamoxifen for the past 3 1/2 years, now on Aromasin for over a month, and sure noticing alot. Eyesight is poor/more blurry up close; hair falling out/thinning; rib pain (just had my annual CTs today); bit of bone pain--nothing to complain about. Will see onc. next week to discuss CT results, and will inform him of the s/e's of Aromasin. Still have hot flashes/night sweats, 4 years after being chemopaused. Doc says that is a GOOD sign, means the meds are working on us EST+ bc patients. All my best to everyone, enjoy Monday! ~juli
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I've had the fatigue too. When my md tested for the hormone levels he also tested for the adrenals and found I had a very strong dip mid morning then the level started to rise again after I had a rested at lunch. I now take a supplement for it and it has helped. I also go to an acupuncturist and he has worked wonders with my energy level. He's been treating the whole body but in particular the liver. After the rads, surgery and all the meds he thinks the liver is stressed.
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For some time now I have had pain down the outside of my foot from the fourth toe out...about half way down my foot. Not everyday,but often. Today I was sitting in a chaair with my feet up on the ottoman. All of a sudden my foot turned in and I had a charliehorse all the way up my calf. Luckily one of the hockey players that live with us heard me screaming and came out and rubbed my foot and leg until it was ok. The pain was awful and now my calf hurts. They talked to the team trainer and he said I was probably dehydrated. I am a water freak...drink it all day long. The boys even think it is something else.
Any of you had this problem?? If so what did you do about it.
Catch my hug!
Teri
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How are your potassium levels? Used to get cramps all the time. A banana a day keeps them away.
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Teri,
I used to get them a lot, but haven't had any since I stopped working. I've been wearing sandals and flats since I stopped and haven't had any at all for months. Do you wear heels a lot?
E
P.S. You have HOCKEY PLAYERS living with you? I love hockey! How can I get me some players?? :-)
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I would like to order a hockey player too......for medicinal purposes, of course!
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Hahahaha we need a catalog, I think!
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I agree. I'll even pay shipping
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Girls,Girls,Girls...
No, I do not wear heels.. Take extra Potassium.
How do you get hockey players? We have junior A players...ages 16-20. Our local Western Hockey League is a part of the Canadian Hockey League. Each team has Billett Families that keep players for the season They are great kids. We have been doing it for eight years and love every minute of it. Sorry I won't share. When the news got out I was diagnosed with BC the boys who had lived with us got together and all came "home". The surgeon was quite intiminated when they all stood up when he came out after surgery.. They will all be back next summer for our daughters wedding. A couple of them now play in the NHL.
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That is so neat!
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That must be so fun! And how wonderful to have all those "sons." I wanted to do the same with our AA ball club but my house couldn't offer them a private bathroom.
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Now, back to those older hockey players..... ;-)
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I'll be glad to shelter an old, used up one from the NHL!!!
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Hahaha! Me too!
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It ia really a shame that we all do not live closer...I could see it all now...the cougars vs. "the young guns". The hockey world is very involved in Brest Cancer Awareness month. The teams have special ties they wear...our team has a night in Feb. they paint the ice pink,tape their sticks with pink tape and have pink laces on the skates plus special jerseys with pink boarders with the pink ribbon on them. The fans bid on the jerseys and the money goes to our local cancer center to pay for mammograms and treatment for uninsured women. The best part is that the night they have this game they find a survior that is celebrating five years and have them drop the puck. When they announce five years the rink goes crazy and is so loud with applause. It is quitte a night.
I will now leave you darlings to your fantasy dreams. I need to chase a girlfriend out...10:00 is curfew.
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personally...at 60 I am going towards the HL team owners.
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I am thinking at 60 I need to looking at the owners of some of these NHL teams.
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I thought diabetes also, thank you for your replies. I bought Clinistix and tested for glucose and it was negative. My 3 month check after starting A is next week, I'll ask for a fasting BS. Btw the fast on Sunday was my experiment to see if the bladder would slow down at all and as I mentioned, it did not and is still gushing. Eating/drinking very little, don't know where all this fluid is coming from, hope it's not bladder cancer. It's ironic, with my first infusion in March I couldn't void for ~12 hours even though I was drinking what seemed like gallons. I initiated a forum here and the kindness, swiftness and correctness of that special lady who responded with take electrolytes saved me.
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What about a urinary tract infection?
Back to hockey for one moment; what a neat sounding night they have, and it sounds like we are rowdy enough to fit right in!
and my only requirement is that my player/manager/owner would be that he still have a few teeth left!!0 -
I think I might have trigger finger in both thumbs! I have awakened the past two mornings with both thumb joints locked and unable to bend them. Finally after over an hour I was able to get them bent, but they made a loud cracking, popping sound. It was painful. What can I do about this? I know some of you have experienced it. Please help me. I work all day doing financial work with a computer and adding machine. I have for years and can't afford to have this problem at work.
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OMG! I LOVE that this thread turned to hockey playas...:) SHUCKs on not being able to 'order' one, that was funny ruthbru. Also on having teeth..you guys truly rock! Thanks for the delightful laugh for the day. ~juli
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No other UTI symptoms, very clear specimen. Apparently, they don't sell the multistix anymore that checks for protein and other things, I did ask for that at the pharmacy. Surgery tomorrow, excising a cyst (she thinks) on L tonsil so I need to wait to deal with the other end. Ruth, thanks. Julia
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I am with Arimidex for last 3 and half years. I am experiencing no big side effects with it, but of course gain weight troubling me all the time. I do mild exercises, like breathing, step walking and yoga asanas (easy one) just to keep myself active. I also eat very little but drinks lots of water but my shape remain same particularly my stomach.
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