Calling all triple negative breast cancer patients in the UK
Comments
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Hello maryna8 (Mary)
Thank you for your post
on Monday March 17th. I have had a very busy week and am
trying to catch up with the thread today.It is true that
Adriamycin (doxorubicin) is hard on the heart and I would think that
the other drug in that group that is used in the UK Ellence
(epirubicin) probably does not do the heart any good either. They are
both called the red devil. I think it is probably better to focus on
the fact that they are killing off cancer cells and keeping people
alive, rather than the negative side effects.It is very good that
you were able to see the big room with lots of windows and reclining
chairs where your treatment would take place rather than just being
confronted with it on the day of treatment.I was most interested
to know about the 'hormone' that you will be taking. It sounds as
though it is a good idea to be taking it if it mimics the action of
the human erythropoietin which stimulates the bone marrow to make red
blood cells. For anyone wanting more information just Google the
word. I was interested to know that your husband takes it for
anaemia.Exmouth is not a bad
place and it does have a nice sandy beach, but I would not exactly
describe it as warm at any time of the year. The coasts around the UK
are cool. You can always have a look at Exmouth seafront on the
Exmouth web-cam. Exmouth is a very popular family holiday place.I hope all went well on
Tuesday March 18th with your chemotherapy.I hope you and your
husband are managing to cope.Thinking of you.
Sylvia xxxx
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Hello Michael
Thank you for your
post.I think women would
still want to carry out their breast checks at home on a monthly
basis and report anything that bothers them but if there could be a
move away from mass mammogram screening with the radiation risks, it
would be a good thing. I am not sure either whether all this
squeezing of the breast with mammograms do the breasts any good.As for detecting
dormant cancer cells, I do agree with you that we could be treating
cells that may never become active. I think this is all in its early
stages anyway.I too read about the 19
year old woman who has died of cervical cancer because she was too
young to qualify for a cervical smear test. I think the NHS has got
to stop making all these rules and regulations for tests. The body
does not think in terms of age and there are always exceptions.
Everything within the NHS seems to based on age and yet this is
supposed to be against the law. It is all done to save money.I hope you had a good
time with your stepson Alex and that you celebrated his 24th
bitrhday.Fond thoughts.
Sylvia.
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Hello InspiredbyDolce
(Debra)Thank you for your
post. It is always nice to hear from you. You are certainly keeping
very active. It is only about 50 F in Exmouth.I was glad to know that
your hair is looking so healthy.Thank you for bumping
up my September posts so that they are here for the newly diagnosed
and a refresher for all of us. That was a very good idea. I did go
back to the beginning of this thread at one point to bump up past
information or at least give the page numbers but I found it was
quite time consuming and I do get busy with other obligations.There is such a lot of
information on this thread from me and others. Peter actually read
this thread from page 1 before he started to post! I really admired
him for that.It would be so helpful
if when you have information that you put on TNS that you also post
it here. I do read the TNS thread but do not post as it is a huge
thread and it is hard to keep up with all the names.Thank you, Debra, for
all your input on both threads. I really appreciate it all.Today March 20th
I have now reached 8 years and 9 months since diagnosis. I was
interested to see that Titan on March 20th has reached her
5 years.Keep posting and try to
pop in more often.Thinking of you and
wishing you well.Sylvia xxxx
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Hello Norma
Thank you for popping
in to support Peter and Liz. I think we all understand their anguish
and that they need our comfort.I hope all is well with
you.Fond thoughts.
Sylvia xxxx
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Hello adagio
Thank you for all your
input on this thread and congratulations on all the exercise you are
doing.How is life in
Vancouver?Best wishes.
Sylvia xxxx
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Hello everyone
It has been a busy week
for me in my role as a volunteer director in the apartment complex
where I live. I do not know where the past few days have gone. As I
said in a preceding post I have now reached 8 years and 9 months
since diagnosis and I want that to be encouragement for all of you.I just wanted to say
hello to Jackpot (Gill) and to say I was wondering whether you had
the result of your ECG.To apandy (Anne) how is
life post-treatment? I should think the school term will be ending
soon as Easter is very late this year. Easter Sunday is not until
April 20th, so I should think the term will end soon and
begin straight after Easter Sunday.To bigleggy (Sandra) I
so hope you are fully recovered and enjoying life post-treatment.Special hellos as well
to linali (Lindsay) in Ireland, susaninicking (Susan) in Germany and
Hero1967 (Wales).With Mothering Sunday
fast approaching in the UK on March 30th, what are you all
doing to mark that day?Carolben – I hope you
are still making good progress.Best wishes.
Sylvia
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Hi Everyone! I will post and then forget to follow back up. LOL I need to add this as a favorite threads so I can find it easier.
To give more info on the workouts ... they are hard to get in, and you have to have a certain plan for trying to get them in on a regular basis. For me, I keep a list on the fridge for the entire week, and I can monitor if I'm ahead, behind or on track for my weekly goal. It also gives me a little flexibility to plan on what days I want to do 90 minutes and what days I want to do the 1 hour to get in 8 hours for the week.
Another tip (may not work in very busy households) is that I find going first thing in the AM is best. Now, if I even stop to check my phone, or check e-mail, before I know it 2 hours have passed and I'm way behind getting out the door, and it's all downhill from there. The pressing obligations of the day start to pile up and before I know it, I'm arguing with myself about whether to go work out at 9PM at the gym. The answer usually results in yes. So the key to getting it done is to get it done first thing in the AM, because there will always be a million things that we need to do instead of the workout. All different types of things get thrown at us during the day, so for me, it's best to do it first thing. It also sets my mind in motion that I had such a great day working out that it helps me sustain a healthier eating, and I come back from gym feeling oh so happy! I also belong to a very small gym, it's on the property where we live, so very easily accessible. I think accessibility is key.
When I went through chemo, I did not work out, and prior to my bc diagnosis, I hadn't worked out ever in my life. I had chemo from Feb to April and then had my exchange surgery in May. I started working out about 4 weeks later. However, during chemo I was active by sprucing up the house on a daily basis, including daily vacuuming (just a slight bit of obsessive compulsive disorder!)
During chemo I also did not concentrate on doing anything special at all with eating. In fact, my Onc did not want me to add in anything special, such as I was going to add blueberries and he said no. He didn't want me to do anything that might mask an active cell from the effects of chemo. I do remember living on chicken fajitas quite a bit, and chicken (dipped in wing sauce) salads from Chili's to go orders. I think my goal was to eat what I could to maintain strength during treatment, so I was a bit liberal. However, I did cut out all chemical drinks (no diet cokes) and no coffee and went to spring water and organic green tea immediately upon diagnosis. I'm still drinking only those two things.
The eating healthy was a gradual approach as well after chemo, and the exercise was also worked up to gradually. Although I think I did cut out chemicals in food rather quickly. I first started with only 1 mile on the treadmill and I could only do 5 minutes on the EFX! I have gained stamina and endurance.
I think during treatment your focus should be on treatment first - and cut yourself a little slack from all the expectations of life ... and put yourself first.
Hope all of you are doing well, keep up the excellent progress, and enjoy today!
- TNBC Exercise, Chemo and Exercise
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Hello everyone but
especially the newly diagnosedSince we have Mary who
has just begun chemotherapy I thought post a list of the possible
side effects of chemotherapy.I have found this
information in Understanding Breast Cancer by Prof Mike Dixon,
published in association with the British Medical Association.Chemotherapy drugs are
active against all dividing cells, so tissues such as bone marrow,
hair follicles and the lining of the gut and bladder, are all
affected by chemotherapy. This explains why there are unpleasant side
effects. There are now treatments to combat most of these side
effects.The side effects are
bone marrow suppression, reducing the production of blood cells in
the bone marrow, white cells, red cells and platelets.A lowered resistance to
infection.Anaemia, deficiency of
red blood cells.Bruising/bleeding.
Nausea and vomiting.
Sore mouth and ulcers.
Hair loss.
Premature menopause.
Fatigue.
Diarrhoea.
Constipation.
Thrombosis and
pulmonary embolus.Problems with veins.
Damage to your heart.
Cystitis.
Damage to nerves.
Redness of the hands
and feet.Skin and nail changes.
Red urine.
Dizziness/hotflush.
Temporary taste
changes.If you want more
details, written in an easy to understand way, have a look at this
book, pages 153 to 160, or if you want to know more about one in
particular of the above you can always post to ask and I can post
more information.Thinking of you all and
remember, you can get through this.Sylvia.
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Hello everyone
I was very upset this
morning when I saw a post on TNS saying that our thread was 'too
alternative' and that alternative medicine was a load of fluff. Our
thread is certainly not alternative at all. We have all been through
orthodox breast cancer treatment or are going through it and we all
know this is what has saved us or is saving us. Just because we put
up information from charities such as Cancer Active does not mean we
are promoting it. We are entitled to read any information we like and
if we want to try other things in addition to our orthodox treatment,
that is up to the individual. If we want to believe that certain
foods such as broccoli, blueberries, or anything else or that
drinking green tea may help us, is there any harm? It is up to us.The alternative threads
on this forum are the two that follows, as far as I can see.Complementary and
Holistic Medicine and TreatmentAlternative Medicine
Thanking all of you who
post and view.Best wishes.
Sylvia.
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Inspired - I totally agree with you about the checking e-mails etc in the morning - 2 hours can fly by before we know it - what a great suggestion to get the exercise done before anything else. A great start to any day! Thanks for the encouragement.
Sylvia - I don't think this thread is alternative in the slightest, and I totally agree with you that we should all have the freedom to read what we want and likewise to to do what we want with that information. Congratulations on your milestone of 8 years and 9 months - that is such an achievement. My arm is getting better very slowly still not much mobility and I am in a considerable amount of pain especially at nights. I am having physio now and it does help a lot albeit painful because she stretches all the tight muscles around the shoulder.
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Hello Sylvia
Thanks for asking after me! Am fine apart from being affected by a nasty bug in our school - staff and children dropping like flies.
Your position as long time survivor is uplifting for us all and that's why I like this thread, not alternative at all, more a case of being positive, informative and uplifting.
I read this site regularly and will always chip in if I feel I can offer something that may be useful/helpful/supporting.
Do hope Peterand Liz have some good news I have thought about them a lot.
Good luck with your new role!
Fond thoughts
Norma0 -
thinking of you both, Peter & Liz, hoping for good news. hugs
How did your first infusion go Maryna8? It sounds like you are in good hands. I'm sure all chemo nurses are angels - I also love the warm blankets and we get a small heating pad too, so comforting! Sounds like you have a challenge with preparing food - any chance that friends could prepare the odd meals for you & you husband? I found it really hard to cook, never mind eat (at times) and it was so much easier having someone prepare the odd meals for me. I also had an ECC before Adriamycin, just as a baseline because it can damage the heart.
Hello, InspiredbyDolce, nice to see you again! Thanks for putting all those links into order and posting them, lots to read through. Admire your exercise regime - there's so much out there about the benefits of exercise, lovely to hear you're well. I love yoga, I get to one class a week, sometimes 2, and do a couple of sun salutes in the morning each day. There are a few interesting articles on yoga and cancer treatments on webmd. I do like to swim, but our sea water is cold and the water at the swimming pool is not that warm anymore either. Although I have to admit that my body just cannot do cold anymore. I'm kinda skinny and get cold so quickly, am going to be dressed in about 20 layers this winter! If I fall off my scooter I'd just bounce!
My son is out here from Israel and we went paragliding yesterday. It was really very easy, not physically exerting, just lovely. We flew in an area on the coast, with forests and lakes around it, really very beautiful, and it was so serene and quiet up there. What a beautiful planet we live on - being up above all the daily stuff, just seeing the beauty gets things back into a more balanced perspective for me.
So, that's another one I can tick off the bucket list! I'm loving having my son here, he's just amazing, so calm and loving, makes me laugh so much, he really gets me and I'm just besotted with him. He's the biggest gift in my life. He can communicate, laugh and cry with me, he's incredibly insightful about what I'm going through and I feel like he gets it, (as much as anyone who doesn't have it can really get it). I feel so blessed.
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Hi Sylvia, have you heard of Kombucha tea? There are a couple of people here in town who make it, and I'm just curious to know if you have heard of it and if so, what do you think? Here is a link I found.
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Hello adagio
It was nice to hear
from you and thank you for your words of comfort. It was nice to know
that you agree with what I said about the freedom to read and to do
what we want with any information. I have a very enquiring mind,
think deeply about everything and make up my own mind. Thank you for
your words of congratulations. It is strange but after nearly nine
years I still cannot take anything for granted, but I carry on each
day quite normally.I was glad to know that
your arm is getting better. These things take a long time to heal and
there is not much to be done about it. I do hope the pain will ease
up. Do you put any kind of pain relieving gel on your arm? I do hope
the physio will get you better.Fond thoughts.
Sylvia. xxxx
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Hello Normandee
I was glad to know that
you are fine but that you have been affected by a nasty bug in your
school. There seems to be something going around. Last Friday night I
woke up feeling really awful and feeling nauseous. I got up to go to
the bathroom and was promptly violently sick. I felt weak and vague
and ended up spending Saturday in bed and feeling useless on Sunday.
I have gradually picked up during the week. This morning a friend of
mine who lives in the apartment complex phoned me to say she had been
up in the night, sick twice and had actually passed out. I went to
see her and she was really poorly. The doctor has been and diagnosed
gastroenteritis and wrote out a prescription. We must have had the
same bug. It is strange how these things hit you.I am so glad to know
that my survival helps you all. You will all do the same. What you
are doing is exactly what we need on the thread. It is help, comfort,
encouragement and information to others going through this journey.Wishing you all the
very best.Sylvia xxxx
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Hello Carolben
I was so glad to read
that you are having such a good time with your son. Enjoy every
minute. I do think you are very brave to do that paragliding. If you
have any photographs, please post them. I do admire all you
adventurous ladies!!!You asked about
Kombucha tea. I have heard of it but I have never tried it and do not
know much about it. I have just been looking up information about it.
The link is:http://en.wikipedia.org/wiki/Kombucha
There seems to be
different types and it appears to be a mixture of fermented tea and
yeast.I have just read the
information on the link that you posted and found it very
interesting. It sounds very complicated to make and fraught with
problems. When I am next in town I shall have a look in the 'natural
food' stores to see if they have anything like it. There are so many
products that are making all sorts of claims in connection with
certain illnesses. Are you thinking of taking it? It claims to be an
immune booster.I am sure if anyone on
the thread has tried it they will soon let us know.I tend to carry on with
a very simple diet of plain food. Since diagnosis I have never
stopped drinking green tea and eating bitter apricot kernels. Whether
they are doing any good, who knows, but as far as I know they are not
doing me any harm. The immune boosters that are well known are
pycnogenol and astragalus.Thinking of you and
sending fond thoughts.Sylvia xxxx
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Hello everyone
I just wanted to wish
you all a good weekend and hope that you had a good week. A special
hello to Peterandliz and hoping you will pop in to let us know how
things are going.Fond thoughts to all of
you who post and make the thread what it is.Sylvia
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I live in the USA, but enjoy reading the posts. They are very encouraging and I am hoping you don't mind if I pop in every once in a while and comment...
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Hi Sylvia and Everyone!
Sylvia, you are so valuable and I too enjoy your posts. Whenever I need some detailed medical information, I know that if I can't find it or make heads or tails out of it, that you will have a great understanding of it. You also provide us with a great variety of things to read - which I think is important. Some people are interested in medical protocols, some in integrative strategies, and I think you share a wide array of information for us, that is helpful to each of us in some way with our survivorship plans. You are right, we can pick and choose what we read - it's not any different than researching something on the Internet and picking and choosing what we want to read from those search results. On this forum I have found some of the most helpful information from you, and from several of the members here as well. I am thankful that you do take the time to present all information to us without excluding any due to a majority weight, because we are all unique, and we all approach things from different places of experiences, expectations and perspectives.
Keep being you! Live on, live strong and inspire!
Oh - and have an excellent weekend too!
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Hello shorfi
Thank you for your post
and of course you are very welcome to pop in as often as you like and
to say what you like. Anyone can post here.I have been reading
your details with great interest and I can see that you have been
through a great deal since your first diagnosis in August 2004. That
is a year before my own diagnosis.I was interested to
read that you were first diagnosed with hormonal breast cancer that
was HER2 negative and that you were in the clear until June 2013,
almost nine years and then had DCIS in June 2013, again hormonal but
HER2- and this time DCIS and not IDC as the first time. Then, just
two months later in August 2013, you have IDC but this time triple
negative. You have really been through it. How are you feeling now?I do hope all will go
well when you have your permanent implants done on April 9th.I noticed in your
details that you do say you had lymph node removals in the past and
lymph node dissection, but you do not say whether you had positive
lymph nodes. I was also wondering whether you had any genetic testing
and if so whether you were negative or positive for BRCA1 or 2. You
also do not mention your age, which is always useful to know with
breast cancer.I saw that you were on
tamoxifen for a year and then, presumably, because you had
prophylactic removal of the ovaries, you were switched to Arimidex
because you were post menopausal.I have read in the past
information about how if you have long term use of tamoxifen you can
end up with triple negative breast cancer, but you were on it only
for a year. I am not sure whether Arimidex has the same effect, but I
do know that aromatase inhibitors, such as Arimidex, can affect the
bones and cause osteoporosis. Are you still taking Arimidex which you
started to take in 2006?According to the
information I have, Arimidex can have the following side effects.
Vaginal dryness, hot flushes, muscle and joint pains, fatigue, and
increased rates of bone fracture. I would interested to know how you
have fared on these drugs.Reading through your
details, it makes me realise even more that with by being just three
months from nine years since my diagnosis, I cannot take anything for
granted. Your case also shows me that those of us diagnosed with
triple negative receptors cannot feel too sorry for ourselves and
must realise that it is no picnic being diagnosed with hormonal
positive receptors either. I have said often on this thread that
there is a lot about which to be positive in having been diagnosed
with negative. I have said as well that I am glad that I am not
taking any medication post orthodox treatment. I am allowing my body
to grow strong through my lifestyle and can only hope that it will
keep recurrence at bay, but there are no guarantees.I am sending fond
thoughts your way and wishing you all the best.Sylvia xxxx
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Hello InspiredbyDolce
(Debra)Thank you for your very
interesting post. I certainly enjoy all your posts and I am glad to
know that you enjoy mine. I am amazed at how much research you do and
appreciate all the information and links that you post. Please keep
this up.I do try to keep a
lookout for any information, as cancer in general is very much in the
news all the time now. I look in newspapers, magazines, in bookshops
and so on. We all need to keep up to date. There is so much
information that we can only decide what we think might be valid for
us personally. I do look on the internet but I have chosen not to
take any notice of all the negative information about triple
negative. I think all the different breast cancers with their
different receptor status are challenging. We just have to deal with
whatever we have been diagnosed with.I am very proud of this
thread that we have made together and I do think the women on here
are very caring, thinking people. I have great respect for all of
you.You are certainly
amazing and determined in your efforts.Have a good weekend and
keep in good spirits.I noticed you said your
were a writer. What kind of writing do you do?Fond thoughts.
Sylvia xxxx
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Hello again
InspiredbyDolce (Debra)Did you read the post
from Carolben asking about Kombucha tea? Do you know anything about
it?Fond thoughts.
Sylvia xxxx
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Hello Sylvia and all,
I had my first chemo on March 18. I think I have now stuck my head out from under my rock, looking to see if it's safe to come out! Not my whole body just my head! This is the first time I have touched my keyboard since Tuesday. Here is my testimonial on protein, constipation and other appetizing subjects.
I have eaten since Tuesday, here and there what I felt like eating. I guess I hadn't eaten enough. Yesterday morning I felt very bad, bad enough to call the chemo nurse and ask if there was anything else to do. She offered me fluids if I would come in and get them. But I didn't want to, and didn't have a handy ride anyway. So I laid back down and thought, what I really want is a big plate of roast beef. We just happened to have some, so I heated it up for husband and I, and laid back down afterwards. An hour or so later the doc called and said to drink Gatorade...but I think the roast beef brought me down to earth a little bit, I felt better after that. I have found that nothing tastes as I think it will taste, that is disappointing. A friend brought over some nice fish last night, and I ate it, but it didn't taste like I wanted it to taste. I think you mentioned, Sylvia, that protein is very important. Thus the roast beef came in when needed.
As to the big C word, I have had issues with constipation before. Chemo does not make it better. There has been a hard-won battle going on here, not sure yet who is coming out on top!I will try to be better prepared before the next bout.
Good to see all is well out in the world. Sylvia, sorry you had a quick intestinal bug, but at least it was quick and over. Wonderful about your 9 years cancer-free, I'm sure it changes the way one looks at things.
I'm going to look for a little bet smaller rock for a little while, then will hopefully be back.
Best to all, Mary
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Hi Sylvia...in each breast cancer there was never any lymph node involvement, and I was very happy about that. I was diagnosed this time with DCIS, ER and PR positive and her 2 negative when I had my initial biopsy. Then when I had the mastectomy that is when they found I had IDC, Triple negative. I was devastated and thought I was sentenced to death. But my BS talked to me extensively and told me to cut it out. I wanted to die because I never expected to hear that. I thought I would be clear with just the DCIS and didn't have to do chemo, but when they found the IDC it was too much to handle. She said the cancer was very small and caught early. I had just had a routine mammogram six months prior and then had my routine breast MRI when they spotted a problem. A visit to the MO wanted me to initially have 8 rounds of chemo and when I came back for another visit she cut it down to 3 cycles of aFEC and 3 cycles of Taxotere. The last three cycles were a piece of cake, but the FEC was horrible. The nausea was terrible. I had my last treatment was January 10th and they wanted me to have 3 months of rest before doing my final exchange.
BTW...I am 59 years old. I was diagnosed the first time at 49 and would be turning 50 that following month. I had chemo induced menopause. When I was done with chemo I was pit on Tamoxifen for one year and the following year I was finally in full menopause that is why I was changed to Arimidex. When the end of the five year treatment was finished I was asked by my MO if I wanted to continue taking the Arimidex but I wanted her to tell me what to do. She didn't. So I stopped.. After stopping I didn't have anymore joint pain and finally felt like I could lresume a normal life.
Then here I go again. I thought I was done. No one ever told me that I would be at high risk because of having breast cancer in the past. My MO told me my prognosis was excellent. Hard for me to believe but my BS said she has no reason to lie to me. We shall see.
Never took the genetic testing. No one in my family has ever had breast cancer. My grandmother died from colon cancer at the age of 58, my dad had a heart attack 21 years ago and my mom passed away from Alzheimer's Disease 4 years ago. Three years ago I had my colonoscopy and they found 3 polyps which were excised and were benign. I am supposed to have one this year but my MO said I can wait a while. I don't want to but she said I had too much going on and it's ok to wait. I guess she knows better than me...lol
Thank you for your well wishes and looking forward to talking to you as well as the others soon.
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Hello maryna8 and
shorfiThank you for your very
interesting posts.I shall reply to them
later in the day as I have to go out for a while now.Fond thoughts.
Sylvia xxxx
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Hi Mary...To help me with constipation I use Miralax everyday. My primary doctor as well as my MO says it is very safe to use everyday.
BTW Sylvia, I am a Black woman and I am 59 years old. I will be 60 in September. I think I forgot to mention that in my previous post. I still feel like the mammogram missed my diagnosis prior, but thank goodness my routine breast MRI picked it up.
Hoping all is well with you and all the other ladies here.
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Shorfi, thanks for tip on Miralax. I have some in my cupboard. I thought I preferred Metamucil but I am finding things I liked before are maybe not the best choice now. I will try it.
Best wishes, talk soon
Mary
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Sylvia and Carolben,
I bought Kombucha tea at Trader Joe's, came home and read this info from Mayo Clinic, and then took it back. I also noticed in the article it says its made with sugar, which I'm trying to avoid.
http://www.mayoclinic.org/healthy-living/consumer-health/expert-answers/kombucha-tea/faq-20058126
- Kombucha Tea, TNBC Health and Nutrition
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Hello maryna8 (Mary)
You now have your first chemotherapy
session behind you and you now know what to expect.During your chemotherapy you must
remember to drink as much water as you can. This is very important.
Drinking water or perhaps herbal teas but not caffeine is very
important. The next most important thing is to rest. You will find it
easier to eat very small meals often and not big meals. Eat whatever
keeps you going but try to stay with healthy foods. Remember to have
some breakfast before you go off for your chemotherapy sessions. I
found hard boiled eggs sliced onto some wholemeal toast was very
good.Some patients do have problems with
food not tasting as nice as they are used to and describe the taste
as metallic. I was fine with taste while having cyclophosphomide
(Cytoxan) and epirubicin (Ellence) and only found my food tasting a
bit odd when I was on docetaxel (Taxotere). I kept to plain food such
as poached fish, mashed potatoes and vegetables. At the hospital here
they seem to want you to eat high protein, but I just kept more or
less to the same healthy diet that I was on before diagnosis. I do
not eat meat, poultry or dairy products.For constipation I think it is better
to eat foods such as prunes and dried figs rather than medication,
but everyone is different.Take great care in the weeks building
up to your next chemotherapy. Drink plenty of fluids, get plenty of
rest and keep looking forward.Fond thoughts.
Sylvia xxxx
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Hello shorfi
Thank you for your post and all the
information.It is interesting how different people
react to these different chemotherapy drugs. Some seem to suffer more
with the FEC and others with the taxane. I seem to have been very
lucky to have gone through six moths of chemotherapy without too many
problems. I had not the slightest nausea or sickness and really just
fatigue, apart from the inevitable hair loss. I was not really aware
of it at the time, but my worst side effect and long term seems to be
the peripheral neuropathy in the feet. I thought my feet seemed
strange after chemotherapy but it was in the years following that I
became aware of the numbness and stiffness in my feet. This still
bothers me and I have been told there is no cure.I was interested to know that you are a
black woman because when I was first diagnosed I kept reading that
TNBC affects black women and Hispanic women more than whites. I do
not know the statistics on this. Do you have any opinion?Take care.
Sylvia xxxx
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