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Calling all triple negative breast cancer patients in the UK

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  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello InspiredbyDolce (Debra)

    Thank you for your post. I must admit
    that what I read about Kombucha tea did concern me. I have not seen
    it anywhere here. Like you, I try to steer clear of sugar.

    Thank you for the link.

    I was interested to know that you are a
    business writer. That must keep you very busy.

    Wishing you all the very best.

    Sylvia xxxx

  • shorfi
    shorfi Member Posts: 437

    Good morning Sylvia. I heard the stats also on how TN breast affects Blacks more so than Caucasian women. 

    You seemed to have an easier time than most with FEC. It was just absolutely horrible for me, and no amount of anti-nausea meds seems to help. Well...the Compazine did work along with taking Ativan, but I was in a stupor from it...but I did get some relief. I had to set the alarm to wake up to stay on top of my meds. And I suffered for one week after the chemo round. 

    I met an interesting woman on Saturday while out shopping for new wigs. She is a survivor of 8 1/2  years, but mentioned that her hair growth was very minimal. I hope that is not going to be the case with me because my hair always grew very fast. It is starting to come in now, but it is white. I think I mentioned this before, but I always had my hair colored black. 

    Nice chatting with you Sylvia and hope you have a great day Nerdy

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello shorfi

    Thank you for your interesting post. We
    do all react differently to all of our treatment. That is why it is
    best not to take too much notice of how other people react to their
    treatment. It is all very individual and I think a lot of it depends
    on our general state of health and past health record when we begin.

    I was interested in what you said about
    the woman, eight and a half years survivor, and her minimal hair
    growth. Without knowing all the details we cannot really know why
    this has happened. Do not worry yourself too much with this.

    I have read in the past that sometimes
    your hair does not regrow, but I have never heard of anyone saying
    this on this forum. Just treat your hair gently as it grows back and
    let nature do the trick.

    Wishing you all the best for April 9th.

    Sylvia xxxx

  • Jackpot
    Jackpot Member Posts: 141

    hi Sylvia

    I hope you are well

    Just resurfacing after quite a stressful week, first of all I went for my ECG last week and the nurse told me that there were some signs of damage showing up on the results and to make another appointment with my gp to discuss the next step, then went on to tell me how it would probably be treated like angina, I made the apptointment and it wasn't till this week so I had a long wait. 

    In between that I had the second anniversary of my mums death and my alcoholic sister telling me for the forth time she has cancer (the previous three times were lies) as this time is....pretty sick thing to do don't you agree, anyway were not on the best of terms right now but it has got me down a bit because I don't like falling out with people.

    Anyway my drs appointment came around and he doesn't seem to think the damage showing was as bad as the nurse has made out and said it was "a shaky result" his words...but nothing to worry about for now as it could still be side affects from all the treatment and could well correct itself with time, so they are just going to monitor me from the next couple of months and then follow up if I'm still having chest pains then....so that was a bit of a relief to what I was expecting to hear.

    I hope everyone still going through treatment are doing ok and the side effects are not to bad it doesn't seem no time I was here as a newly diagnosed, treatment will go faster than you think 

    Take care

    Gill

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello Jackpot (Gill)

    It was nice to hear
    from you and I am so sorry to learn that you have had such a
    stressful week.

    I can understand how
    anxious you must have felt when the nurse told you that there were
    signs of damage showing up on your ECG and that the condition would
    probably be treated like angina. I can imagine the stress of waiting
    to see your GP. There seems to be a contradiction between what the
    nurse told you and what your GP said. I think if that were me I would
    be talking to my oncologist and getting an opinion. We all know that
    chemotherapy drugs can cause heart damage and I would ask her whether
    the epirubicin (Ellence) and docetaxel (Taxotere) could have caused
    damage to the heart. I do hope the chest pains will go away and that
    if there is anything wrong it will right itself.

    I can understand the
    sadness of going through the second anniversary of your mum's death.
    That is a difficult time.

    It must be very
    distressing to have an alcoholic sister telling you for the fourth
    time that she has cancer. It is an absolutely sick thing to do. We
    had someone here who was an alcoholic and he also spun a tale in some
    of the local shops about having cancer, when it was absolutely not
    true. I was so angry about it. You have to be really sick to get up
    to these kind of tricks. If that were me, I would be demanding to
    know what kind of cancer and when are you beginning treatment? I can
    understand your feelings.

    Thinking of you and
    wishing you well. Do not let others get you down. Jean Paul Sartre,
    the famous existentialist philosopher, famously said that hell was
    other people!!!

    We need to steer clear
    of people who have a negative impact on our life. I am still watching
    my way through episodes of An Idiot Abroad. I do like Carl Pilkington
    and I do share a lot of his views. I have seen most of the series of
    the seven wonders of the world and am starting to find a second
    series. These episodes are better than any bottle of tonic.

    Wishing you all the
    best.

    Sylvia xxxx

  • shorfi
    shorfi Member Posts: 437


    Sylvia, the funny thing is I shampoo my hair every morning with baby shampoo and condition it too. My husband gets a kick out of that. I am taking longer in the shower since I have no hair...lol

    Gill, like Sylvia mentioned earlier, don't allow people with negative energy to have so much power over you. Since being sick, I have fewer "friends" than before, and I don't know why. These are people that I talked with on a regular basis, and now all of a sudden they seem afraid to talk to me. So I have learned to ignore their bad behavior and move on.

    I understand how you must feel with the anniversary of your mother's passing. I wish my mother was still here. Even at my age of 59, I always felt better when Mom was around. She always made things better even when things were at their worse.

    Take care dear and happy that your doctor reassured you with the "shaky results".

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello everyone

    Just popping in to say I hope you are all having a good weekend, whatever you are doing.

    The thread is quiet and there are no new posts so I am hoping all is well with everyone. Most of you that have been regular posters have now finished treatment and perhaps you are all taking breaks.

    Remember we have Carolben having treatment for mets and she was having scans at the end of March. We also have Maryna8 who has recently started chemotherapy and has had only one session. Remember that we have shorfi who is facing breast cancer for the third time and this time she has TNBC. She is also having reconstruction on April 9th.

    Thinking of you all and wishing you well.

    Sylvia xxxx

  • maryna8
    maryna8 Member Posts: 1,832

    Hi, Sylvia and all.

    My first chemo didn't seem to go as easily as yours did.  The first 5 days weren't too awful; I felt like I had flu but I was still somewhat functional, kept up with eating and drinking.  The 6th day I felt really bad, could barely stand.  The 7th day (Monday) I called in and they told me to come in and  get fluids.  So I did, they also checked my blood and told me my WBC was already very low.  I should come back Thursday, draw another lab and I would get a shot of the fast-acting Neupogen bone-marrow shot. Tuesday I woke up and felt even worse.  I dragged myself to the couch and fell asleep again until noon.  I was hot when I woke up and had a temp of 101.3.  They had told me to call if I had a temp so I did, they told me to come in, and then called back and said to go to the Emergency Room of the hospital. So my friend got me there and they checked my blood, my WBC was .03, my absolute neutrophils were very low too.  That means they kept me there, I ended up in the hospital from Tuesday till Friday.  They did not give me the Neupogen shot until Wednesday, and then I had one on Thursday and Friday too.  Friday my WBC was 7, and I was released. Yay!  While I was there they gave me antibiotics, more fluids etc.  My blood cultures turned up negative for growth.  I felt pretty good yesterday, today am okay but tired.  I didn't sleep much last night, I don't know if I'm still getting rid of hospital drugs, chemo drugs, but husband isn't sleeping well either.  We are quite a pair!

    It was very worrisome to leave him alone so suddenly and end up in the hospital; not that I was much good to him at home.  Thank God for friends and family!

    I'm glad all is well with you, and I am hoping for a good week.  My next chemo is April 8th.   The doc did say they might cut my dose a little bit.  My oncologist is on vacation, of course.  So the other docs are having a meeting about me tomorrow, and they will decide what they think is best to do with me.  To perhaps keep me out of the hospital.  I sure hope it goes better, I tried to do everything they told me to do.

    I'll talk to you soon, best wishes for a great week for us all!

    Mary

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello Mary

    Thank you for your post. I was so sorry
    to read that you have been having a bad time with your first lot of
    chemotherapy. As I have said before, we all react differently. I can
    only emphasise again how important it is to get fluids down you,
    especially water. I was told at each chemotherapy to start drinking
    water as soon as I got home to flush out all the toxins from the
    drugs and that this was especially important in the first few days
    but had to be kept up all the time. I was never far from a glass of
    water or a herbal tea. Keep away from anything with caffeine as it
    dehydrates. You probably felt awful because of those white blood cell
    counts.

    I hope you will feel better after the
    next lot of chemotherapy on April 8th.

    It seems to me that you had your
    Neupogen shot quite some time after your chemotherapy. I thought
    patients were supposed to have them much sooner after the
    chemotherapy. I was not offered these shots in 2005/6 and did not
    have problems with white blood cell count but I know that some women
    do. I would check this out before your next chemotherapy.

    It sounds as though you have had a
    really rough time and it must have been awful getting to the hospital
    when you were feeling so low. When you do have problems, the hospital
    is probably the safest place to be.

    Just try to keep looking forward, drink
    fluids and get plenty of rest.

    I can understand how difficult things
    must be for you and your husband, so do not hesitate to bring in all
    the help you can from your family and friends. They will want to help
    so just let them help as much as they can.

    I do hope you will have a better week
    and that all will go well on April 8th. Try to relax and
    do gentle things that will take your mind off all of this.

    Thinking of you and wishing you well.

    Fond thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello Mary again

    I have just read that the lowest levels
    of white blood count occur about 7 to 10 days after a dose of
    chemotherapy. It is very important if you feel hot or unwell and have
    any flu-like symptoms, including signs of fever, to contact the
    hospital immediately because these are signs of an infection. If this
    happens, you usually have to go into hospital and receive
    antibiotics. If this happens for subsequent courses of chemotherapy a
    drug to stimulate your bone marrow to produce white cells can be
    given, or the dose of the drug can be lowered to stop this happening
    again.

    I remember being given a thermometer to
    check my temperature by putting it on my forehead and I did this
    every day.

    Good luck.

    Fond thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello shorfi

    Just to let you know that I am thinking
    of you and hope you are not doing too badly.

    Fond thoughts.

    Sylvia xxxx

  • shorfi
    shorfi Member Posts: 437

    Hi Sylvia,

    I'm feeling well and thanks so much for thinking about me. Just wanted to clarify something....this is my second time being diagnosed with breast cancer and it was a new primary. Saw my onc this past Friday and once again she reassured me that my prognosis was excellent since the cancer was so small. 

    Mary I hope they will find a new treatment plan for you where you won't have to suffer so much. Take care in the meantime. 

    Countdown time...9 more days until my final exchange...woo hoo. 

  • Carolben
    Carolben Member Posts: 265

    quicky just to say my scan shows I'm still STABLE!!!   This is great news!  My onc doesn't think we'll get any regression after this long on the Xeloda, but stable is good.  Also no visible spread is very reassuring.  Am so happy my son was with me to share the good news.  So we're looking at another 4 cycles of Xeloda.  

    I'm up with my sister in Johannesburg till Thursday when I'll go back home.  Will catch up on all the posts here when I'm not so involved with family, just want to spend every moment with them, I have 5 great neices and nephews and 3 beautiful nieces here and I love to be with them, they are so alive and smart and funny!

    Thinking of you all with love

  • susaninicking
    susaninicking Member Posts: 121

    Carolben I am BEYOND HAPPY FOR YOU!!! 

    Such great news. Enjoy every second with your family! 

  • Jackpot
    Jackpot Member Posts: 141

    hi Sylvia and everyone

    Mary...so sorry your first chemo was so rough, I hope your second on the 8th goes better for you, remember to take Sylvia's advice and drink loads of water,

    Shorfi...just a little tip when your hair starts growing back get some fast shampoo and conditioner, I've been using it since I finished chemo and I've got the thickest hair I've ever had albeit still very short it looks really thick and healthy

    Carolben....so happy for you...stable is great, enjoy every moment with your family, it's nice to get time away from hospitals and treatment isn't it 

    Susan...how are you I hope your keeping well

    Sylvia.....I hope your well....I've had a lovely few days with my boys being spoilt rotten for Mother's Day, one of my treats was spending today on a narrowboat on the Leeds Liverpool canal, it was a lovely relaxing experience and I would recommend it, I would like to spend a week on one but they are so expensive around £1000 for the week, so we've booked a week in Turkey in May instead and I'm really looking forward to that, are you going away this year? 

    I was discharged from my radiologist this week they were happy to the way I'd recovered from the radiotherapy and I've got my first three month check up with my oncologist on April 9th and hopefully that will go just as well, 

    Are you still watching an idiot abroad or have you finished them? I still watch repeats when I see them on there that funny there worth watching twice,

    I hope everyone's enjoying the sun, it's such a mood lifter a little bit of sunshine isn't it....

    Thinking of everyone especially those still going through treatment

    Take care

    Gill x

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello shorfi

    I was glad to know you
    are feeling well and thank you for your explanation about the fact
    that it was your second diagnosis.

    We shall all be
    thinking of you on April 9th when you have your
    reconstruction. You have not too long to wait now.

    Thinking of you.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello Carolben

    I was so glad to know
    that your recent scans show that you are stable. That is very good
    news. I do hope all will go well with another four cycles of Xeloda
    and that you will continue to remain stable.

    I hope you have a good
    time with your sister and look forward to hearing from you when you
    return.

    Take care.

    Fond thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello susaninicking

    It was nice to see you
    on the thread. How are things going in Germany?

    Wishing you all the
    best.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello Jackpot (Gill)

    It was nice to hear
    from you.

    I was interested to
    read that you had recommended 'fast shampoo and conditioner' to
    Shorfi. What exactly is this?

    I was glad to know that
    you had had a lovely few days with your boys. Your trip on the Leeds
    – Liverpool canal sounded interesting. I hope you have a good time
    in Turkey. It is very popular with lots of people.

    I am very well. We do
    not go away on holiday any more.

    I hope all goes well on
    April 9th when you have your three-monthly check up. This
    will be your new routine now that treatment is behind you.

    It is a very wet,
    cloudy day in Exmouth and not very warm. I hope to catch up with some
    reading later on today.

    I know that you are
    interested in health and nutrition so I thought you would be
    interested in a short article that I saw on the Good Health page in
    the Daily Mail on Tuesday April 1st. The heading was 'Soya
    foods linked to lower risk of cancer'. The article goes on to say
    that according to researchers from Curtin University, Australia,
    eating soya regularly has been linked to a lower risk of ovarian
    cancer. They compared the diets of women with the cancer against the
    diet of healthy women. According to this, those who had at least
    120grms of soya foods such as soy beans, soy milk, tofu etc. a day
    had a 71% lower risk of the disease compared to those who had less
    than 61grms. The scientists said phytoestrogens, a form of oestrogen
    found naturally in plants were likely to be responsible.

    Apparently, in lab
    studies, phytoestrogens have been shown to induce the death of
    ovarian cancer cells and block their growth.

    The article ends by
    saying that every year 7,000 in the UK are diagnosed with ovarian
    cancer.

    I found this article
    interesting but I still do not believe in one magic bullet to deal
    with cancer or to prevent it. On the other hand, in China and Japan,
    where the people are not on a Western diet, cancer rates are lower. I
    do eat plain soy yoghurt, soy beans and enriched fresh unsweetened
    soy milk on a daily basis and have done so for many years.
    Occasionally I have some tempeh (fermented soy).

    Are you still reading
    What Doctors Don't Tell You? I have been reading the April edition,
    which has a very detailed article entitled 'Reversing osteoporosis'.
    The second part will be in the May edition.

    I am still watching an
    Idiot Abroad and look out for it on Pick every week in the Radio
    Times. Raymond and I really enjoy them and think there is a lot of
    truth in what Karl Pilkington says. I think we have seen all the ones
    about the seven wonders of the world. We have also found some about
    Your Bucket list. We recently saw Karl in Alaska and I think this
    week there is one where he is in Japan.

    Keep enjoying life.

    Fond thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello everyone

    I am just popping in to
    say that I hope all is well with all those of you who have finished
    treatment.

    Apandy (Anne), Bigleggy
    (Sandra), Normandee (Norma), Chatterbox2012 (Michael), peterandliz
    (how are things going with you?), adagio (have you seen the article
    about osteoporosis?), linali (Lindsay), InspiredbyDolce, Hero1967,

    I hope life is treating
    you all well.

    Best wishes.

    Sylvia

  • linali
    linali Member Posts: 185

    Hi Sylvia,

    I havent posted for a while but have been reading the posts . 

    Not sure whether it works or not but I keep everyone on this thread in my thoughts especially during our healing meditation at our centre. What wonderful women and men! The meditation gives me a sense of peace but also of strength and healing.

    The centre is  busy and there have been several fund raisers for us . The most enjoyable was a performance of the Calendar Girls by The Ennis Players. They did four nights and divided the proceeds between 4 local groups.

    Leigh is home and today we are going for lunch and then to see Captain America. Yesterday was Autism Day and I watched a programme the previous evening about a woman who had dedicated the last 50 years to the study of autism. She said that 80% of adults with autism could not live independently and it made me feel so proud of Leigh and despite many setbacks how SHE lives a varied and interesting life. I just wish that we could get more support for daily living skills or pay for a cleaner to go in to help. The aspergers group says that it isn't possible.

    I volunteered to take part in a study of post cancer fatigue and the meeting of a focus group was held in Galway university. It is being conducted by a PHD student and overseen by a clinical psychologist. Hopefully they will come up with coping strategies and more importantly the medical profession will accept that it is real and unfortunately can continue for many years for some people. It was fabulous to just stroll around the campus as yesterday was a lovely day here.

    I am still doing Tai Chi and would highly recommend it. We are having a day long session with a Buddhist on 13th of April.

    It is wonderful to hear that Carolben is stable, you are such an inspiration.

    To everyone going through treatment... the time will pass and if possible try to fit a treat for yourself inbetween treatments. I bought the most fabulous pair of blue suede boots whist going through chemo. I still like to look at them, they are so soft to touch.

    Heres hoping that at last the Spring is here.

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello linali (Lindsay)

    It was nice to hear
    from you and to know you are keeping up to date with reading the
    posts.

    It is true that we have
    a really nice thinking group of women and men on this thread. They
    always have something to offer when they post.

    If your meditation
    gives you a sense of peace, strength and healing, then can it can
    only be for the good.

    I was glad to know that
    the centre is busy and that there have been several fund raisers for
    you. Fund raising is very hard but so important.

    I hope you had an
    enjoyable day with Leigh. I did not know there was an Autism Day. Was
    that just in Ireland?

    I am sure that the
    study of post cancer fatigue must be very interesting. I think that
    this fatigue, which can last for years, and may be permanent, must be
    due to the lethal effect of the drugs on the body and the way the
    immune system is undermined. I do wonder whether a person really ever
    gets back to normal and of course as each year from diagnosis goes
    by, you have the ageing process kicking in. I do wonder what coping
    strategies can be found other than pacing yourself. As people in the
    medical profession become diagnosed with cancer and become patients
    themselves, there will be more understanding of this post treatment
    fatigue. I think a person just has to pace themselves and when
    fatigued have some rest.

    I keep reading about
    the various things that people are doing to cope and I know that Tai
    Chi is very popular, as is Pilates. I think anything that relaxes the
    mind and takes away the troubles of the day is beneficial. As for me,
    laughter is my best medicine, especially before going to bed.

    We are all so happy
    that Carolben is stable. She is definitely an inspiration to all of
    us.

    I agree that it is
    beneficial to fit a treat in between your treatments and that can be
    anything that makes a person feel good.

    I hope all is well with
    your family and your grandson Oskar.

    Sending you fond
    thoughts.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello sam52,

    I have not heard from you in such a long time. I do hope things are not too bad.

    Love, Sylvia xxx.

  • maryna8
    maryna8 Member Posts: 1,832

    Hello to Sylvia and all

    I have had a pretty good week, unfortunately husband went to hospital so there I was again.  In the hospital again only this time I was upright!  I brought him home yesterday.  My internet connection has been off all week too, just got that repaired.

    I haven't talked to the chemo doc yet, that will happen next Wednesday before my chemo treatment.  I do understand from talking to the nurse that they want to take me off the Taxotere, and I guess only give me the Ariamycin and the Cytoxan.  She said it will still work as a cancer fighter, my question for the doc will be if the Taxol/Taxotere is not necessary for the combo to work, why do we have to do it??  I guess they think it is too toxic to me after my reaction to the first chemo.  I will find out more Wednesday, just wondering what you think about this.

    We are having a nice sunny day here after 2 days of very heavy rain, wind, tornados etc.  Lots of tree limbs laying around.

    Hope everyone has a nice weekend, Mary

  • Carolben
    Carolben Member Posts: 265

    thank you all for your kind words, I so want to bust some of the negative perceptions of how stage IV is thought to be. Of course I know I'm one of the lucky ones!

    Had the most loving and happy visit with my son & family. Met our newest edition to the family, who is almost 3 months old. Saw my Dad well settled in a new house in a retirement village where he'll have help when he needs it - he's 92! It's just so sad to say goodbye again.

    Got home Thursday and was up all night with diahorrea & vomiting, terrible stomach cramps too. Spent Friday flat on my back. I think it was a 24 hour tummy bug, but it's scary how hard it knocked me. Still feeling weak as a kitten. And I'm in the middle of my 2 week cycle on Xeloda. Drinking lots of water and rehydrate and Ensure, the supplement, & trying to get bits of food in too. My appetite is non existant on this stuff, but I know if I stop eating I'm in big trouble.

    Got up this morning & showered (big achievement) so am on the mend. Most of the time I can almost forget I'm on chemo, then something like this happens. We're approaching winter & I'm terrified of getting the flu.

    I spoke to my onc about having the flu vaccine & he said no. There seem to be different schools of thought about having flu shots during chemo. I will follow my onc's advice, just interested to hear your thoughts...

    Linali, I do yoga & get so much from it, come out of a class all ironed out and peaceful, enjoy your tai chi!

    Maryna8, they seem to give Taxotere here after the AC, not at the same time, I hope your next infusion will be easier!

  • susaninicking
    susaninicking Member Posts: 121

    Hi Carolben, I would also do what the onc says about flu shots but just for general interest, my chemo dept. last year put up a sign telling us all to get a flu shot! Feel better soon. 

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello Mary,

    It was nice to hear from you and to
    know that you have had a good week.

    I was sorry to read that your husband
    had to go to hospital, but glad to know that he is back home now. All
    this cannot be easy on the two of you.

    I was glad to know that your internet
    connection has been repaired.

    Please let us know what happens when
    you see your oncologist on Wednesday April 9th to sort out
    your chemotherapy. Let us know if it is decided to take you off the
    docetaxel (Taxotere) and just give you doxorubicin (Adriamycin) and
    cylcophosphomide (Cytoxan). If you are taken off Taxotere the medical
    team will have a good reason. Perhaps they will give you a lower dose
    more often. In a way it is a pity because the taxane drugs (brand
    names Taxotere and Taxol) are newer drugs and are supposed to be very
    effective in the treatment of breast cancer with triple negative
    receptors.

    The reason why we are given a
    combination of chemotherapy drugs is that the drugs act in a
    different way.

    The group of drugs such as doxorubicin
    (Adriamycin) – A and epirubicin (Ellence) – E are known as
    anthracyclines have been shown to be one of the most effective types
    of drug in the treatment of breast cancer.

    The anthracyclines are often combined
    with cyclophosphamide (Cytoxan) – C and 5-fluorouracil – F.

    These drugs pre-date the taxanes. These
    taxanes are derived from the bark of yew trees and there are two
    common agents in use, paclitaxel (Taxol) and docetaxel (Taxotere).
    These trees grow in Europe and the US.

    By the way, cyclophosphamide belongs to
    a group of drugs known as alkylating drugs. This drug forms a
    chemical bond with DNA, causing breaks in DNA, and errors in
    replicating DNA. This is the information from one of my medical
    books.

    I think this means that these drugs and
    the others stop cancer cells from replicating.

    I remember from when I was going
    through chemotherapy and had treatment every three weeks that the
    dose of the treatment was given according to your weight and height.

    Your medical team should know what is
    the best treatment to get you through chemotherapy.

    All of these drugs appear to have more
    or less the same side effects.

    Try not to worry too much. You can get
    through chemotherapy like we all have done and do not think too much
    of the side effects but think of the big benefit, which is these
    drugs keep us alive.

    I was glad to know that you had had a
    couple of sunny days. The rest of your weather sounds awful. It is
    raining here today and is dull, overcast and misty. In fact it seems
    to have been raining here most of the time for months, with just a
    few days of dry, sunny weather. The Spring bulbs now look somewhat
    bedraggled!

    Take care and rest assured we are all
    thinking of you.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello Carolben,

    Thank you for your thoughtful post. I
    have been reading some of the other threads and felt sad to read
    about patients with stage IV being told to go home and get their
    affairs in order. This is most discouraging as people can live for
    years with stage IV and there are cases where, for some reason, the
    cancer disappears. This happened to a friend of mine.

    I think we should all keep our affairs
    in order. None of us knows what can happen to us on any one day. I
    firmly believe in a minimalist lifestyle when it comes to possessions
    and personal belongings, like clothes etc. I cannot believe the stuff
    that some people have. You cannot take it with you when you go! One
    of the programmes that I find really interesting on television is The
    Hoarder Next Door, where people have so much stuff they can barely
    get through their front door. There have been variations on this but
    the series at the moment is one where a psychologist visits the
    people and tries to get to the bottom of their hoarding and two
    professional de-clutterers come in and help to get the places in
    order.

    I was interested to know about your
    family members. Your dad sounds amazing at 92.

    It sounds as though you have been
    suffering with the kind of bug that has been hitting people here,
    including me and some of my friends. It comes on quickly, goes away
    quickly but leaves you feeling weak and tired for quite a while. I do
    hope you will be feeling better soon. You must try to eat to keep
    your strength up. Take small snacks as and when you can.

    Wishing you all the very best.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello susaninicking (Susan)

    I just wanted to say hello and add that
    when I was first diagnosed and preparing to start chemotherapy, which
    I had before surgery, I was told to go and get flu shots and also the
    once in a lifetime pneumonia shot. About three years ago I stopped
    having the flu shots here because I thought my doctor was being too
    secretive about what was in the shots. I also thought that it would
    be good for my immune system to fight things off.

    Hope all is well with you.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943


    Hello everyone,

    I am just popping in to say to Gill
    that I hope all goes well on April 9th with the
    three-monthly check up.

    I am about start watching series 3 of
    An Idiot Abroad. I this one up to date or is it still a past series?
    If so how many series are there?

    I do hope all of you who have finished
    treatment will still pop in.

    Do any of you going through treatment
    or having finished, read the free magazine Vita. You need to
    subscribe. It calls itself the breast cancer magazine and comes from
    Breast Cancer Care. I have been receiving it ever since I was
    diagnosed. The latest edition is issue 19 Spring 2014. It is an easy
    to read magazine with lots of participation from cancer patients. I
    am sure that you will all find it useful. It is a good forum for
    asking questions and getting answers. You can visit online at
    www.vita.org.uk. There is a
    Vita poll going on about the following: People often say that having
    breast cancer is life-changing. The Vita poll this month wants to
    know what your experience was. Head over to Vita online to take part
    and have your say.

    Thinking of you all.

    Fond thoughts.

    Sylvia