Calling all triple negative breast cancer patients in the UK
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Hello Lindsay,
I shall certainly be thinking of you and your daughter on June 10th and because of my own diagnosis I shall never forget June 20th. You asked how it feels to be coming to the ten year point (44 days to go). I do feel a bit adrift and it is very much like the feeling that I had after I had finished my chemotherapy, surgery and radiotherapy, had my check ups post treatment and then had to settle into the check ups every three months, then six months and then a year. Treatment time is such a busy time that you barely have time to think. Now I am not with the hospital any more and I feel as if my fate is really in my own hands. I do not think of myself as cured and I still cannot take anything for granted.
It is true that people are usually discharged after five years, or it seems to be the case for those with hormonal breast cancer. That is what has happened to some of the women that I know here. I have read that the advice now is to keep these women on drugs like tamoxifen for ten years, but I do not know if that is in general.
I think my oncologist kept me on for ten years perhaps because she was studying my case or because, as she said, I got off to a very rough start, so she might have been expecting it to come back. I remember that, after I had had my chemotherapy and was preparing for surgery, she asked me if I would consent to having a portacath inserted on my left side above my breast, while I was having a mastectomy to my right breast. She said she thought I might need some more chemotherapy after surgery, but as it turned out I did not. I was told the port could stay there for life, but some months later it had to be removed because it became faulty. I was glad to have it removed because I was well aware of it under my skin and it was bothering me.
I also remember on diagnosis that the breast cancer surgeon said it was a poor prognosis because it was not hormonal and she could not give me tamoxifen. Here I am nearly ten years on when in fact I thought I was probably doomed. It just goes to show that none of us knows what is going to happen.
I shall continue as I have done for ten years and will probably be even more strict and vigilant. As I told adagio, I shall continue with the green tea and the bitter apricot kernels, both of which I love. I shall continue with the same kind of nutrition, keep active in my everyday life but not going to the gym or anything like that. I shall try to avoid negative stress and negative people and try to worry less, as I tend to let things bother me.
How do you think you will feel if you are discharged on June 10th? I picked up on what you said about not liking visits to the breast clinic etc. I know we are in different countries, but the procedure I went through after finishing treatment was to have check ups every three months, alternating between the oncologist and the breast cancer surgeon. I saw my actual oncologist and my actual breast cancer surgeon for the first year after diagnosis, but then the visits went to the oncologist's registrar and the breast cancer consutlant's medical assistant. I think this was because the oncologist and breast cancer consultant were busy with new patients. After that my oncologist had visits to the local hospital here in Exmouth and I was able to go there. Consequently, most of the time I saw my actual oncologist during the past ten years. I was discharged from the breast cancer consultant about two years ago and the oncologist dealt with everything.
I do hope you will eventually have no pain in your shoulder. It is quite possible that you did too much after surgery or were not doing things correctly. It is so easy to do this.
I do remember that the day after my surgery in the hospital, the morning after, a physiotherapist came to see me, showed me a few exercises to do with my right arm and told me to do them straight away. I do remember, also, after surgery, in the hospital, that the nurse put a pillow under my right arm and told me to keep it like that while I was lying down. I continued to do that for quite a time after I came home. I also asked for physiotherapy at the local hospital, went there for a few months and then kept doing the exercises at home. I also went to see the nurse at the lymphoedema clinic and learned how to do manual massage to keep the lymph moving around the body. It is very important to do all this if you have had lymph node involvement. I had just one lymph node affected, the sentinel node, but nevertheless I did all these exercises diligently.
How did max get on with his heart scan yesterday in Dublin? I do hope that you get more support. You all need it. It is just not right that there are so many cutbacks in the health service. I think the past five years in this country under the Conservative coalition has been bad for the NHS. It is underfunded and needs more money put into it. When it was introduced in 1948 there was a much smaller population and there was not all the high tech expensive equipment and medication that we now have. The money needs to be used on front-line services and not on bureaucracy. Hospitals have also become too big and impersonal. Local hospitals should not be closed down and nor should care homes. There are too many elderly people in hospital who are not getting the care which they need and which they should be getting in homes. I do not know whether this shall ever be sorted out.
I do hope the situation will improve for Kerry and that she will get help. Would she be the type of person to start her own blog in support of parents with Down's syndrome babies and help herself and others in that way?
I was so sorry to hear that a fox had killed all her chickens.
Please post to let us know how you get on with the celebrations at the centre.
I do hope, like you, that people will keep in touch on the thread. As you say, we do not have to talk about cancer all the time. Talking about everything else that goes on in our lives is important therapy as well, so I have always said that the people coming here can talk about anything they like. They can come here to celebrate or just have a good old rant and of course they can come here for information, comfort and support.
It is a dry day here in Exmouth with high winds but a little sunshine. Raymond and I went to vote this morning. We had to vote for our MP as well as for local district councillors. We now await the results. It looks as though we may have another coalition, going by the polls. I get the impression that there is a lot of support here in East Devon for Independent candidates at the local and national level.
I shall think of you this evening as Raymond and I watch the results. I doubt we can knock out our MP but I would like to see him go.
I would be interested to know what some of the women at the centre thought of the C-word drama.
Thinking of you and thanking you for the great contribution you make to the thread.
Fond thoughts.
Sylvia xxxx
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Hello Sue,
Thank you for your post and your kind words. I was glad to know that you have had a couple of holidays over the past months, as you needed it after all you have been through. Where did you go and did you find it beneficial?
I was so sorry to read that you have a friend with TNBC that has spread. Do you know exactly where it has spread? Has it spread to places such as the lungs, liver, bones or brain? These are the most common sites for breast cancer to spread to.
I was glad to know that you had been supporting her and, of course, I can understand how shaken up you must have been by this news.
How long after treatment did the cancer spread? Did she have a lumpectomy or a mastectomy and did she have both chemotherapy and radiotherapy? Did she have node involvement and what was the stage and grade? What kind of breast cancer does she have? Is it IDC (the most common one) or did she have one of the less common ones, such as inflammatory breast cancer? How old is she?
What is the planned treatment for her?
If she wants to come and join us on the thread she is most welcome.
I was so sorry to read that you are experiencing pains in your kidney, side & groin since you were diagnosed with breast cancer 18 months ago. Have you had both a CT scan and an MRI scan? For your peace of mind your oncologist needs to get to the bottom of those pains and tell you what is wrong. Try not to worry too much about what might be wrong. Try to wait until you get a definite diagnosis of what is wrong. You say you are frightened that the CT scan on the abdomen has been ordered because of raised tumour markers, but you do not say that you have been told that they are raised. If that were me I would phone up straight away and ask whether the blood test has shown raised tumour markers or what else the blood test and the ultrasound scan have shown. You have a right to know and you should not be left in a state of anxiety until May 19th. Take control of the situation now so that you know what is going on. Waiting until May 19th and then June 8th is just not on. Let us know what happens.
By the way, my oncologist told me that tumour markers are not reliable and I have read that they go up and down.
I was sorry to read that in addition to all this, you are having a difficult time with your daughter. I do remember your telling us that she had been badly let down by her ex-fiancé last year.
She is probably still recovering from all that and acting on the rebound. It certainly does not seem to be a good situation if she is involved with a controlling and aggressive man who has a drink problem. There would not seem to be a future there. I would not like to be mixed up with a man who is only nice when he is sober.
Since you work with women who suffer with domestic abuse, you will know better than anyone that there is no future in that relationship and it will end in tears. Perhaps you will have to let your daughter learn from experience and be there to pick up the pieces when it all goes wrong. Your daughter must eventually realise there cannot be a future with a man who has a drink problem and is aggressive and controlling. Perhaps she needs to get out more and meet different men. Mr Right is out there somewhere.
I do hope some of the wise people on this thread will post to offer help and support. It must be so difficult having these three problems going through your head.
I am thinking of you and sending best wishes your way. Keep in close touch.
Sylvia xxxx
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Hello everyone,
I just wanted to let you know that I have been in touch with Carolben on another thread and I know you would all like to know that she is still having a rest from chemotherapy for her metastatic breast cancer and that she does feel better off the drugs. She is on pain relief and managing to get through her days with some rest. She is still doing a little bit of swimming, which I know she loves.
She has meant such a lot to me on this thread and is such a lovely lady.
She mentioned that a friend of hers had been recently diagnosed with TNBC.
I hope she reads this and knows that we are all thinking of her.
I do hope all is well with everybody.
Are any of you doing anything tomorrow for VE day (Victory in Europe)? It was the day 70 years ago that World War II came to an end in Europe with the unconditional surrender of the German army. The war still continued in Japan and the Far East.
Are you going to be celebrating post-election day? I suppose some will be celebrating and others commiserating.
Thinking of you all.
Sylvia xxxx
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Hello sam52
I have not heard from you in a while and I was wondering if everything is alright.
I remember you tried to send a PM but you lost all you had typed.
I have been thinking of you and wondering how you are, since you must now have gone past 14 years since diagnosis. Are you still with the hospital or have you been discharged?
I was discharged last Friday after nearly ten years since diagnosis. It will be ten years on June 20th.
All seems fine with my parathyroid but it is not checked. I was told it was not necessary.
I continue to self care with the osteoporosis.
Sending you fondest wishes.
Sylvia xxxx
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Hi Sylvia and thanks for your reply. I have been to Florence and to Poland over the last few months which were both lovely. I went with my son to Florence and a friend to Poland and saw some memorable sights including Auschwitz which was heart rending at times.
My lovely friend is just 2 years after diagnosis and she has a brain met and small lung mets. I don't want to give too many details without her knowing I have shared them but she was stage 3 at diagnosis 2 years ago and had chemo.
She is doing OK and is a real inspiration. She is having radio therapy to the brain and we went for lunch today and a short walk. I love spending time with her as she is still such a laugh and has hope.
I will take your advice re ringing for my results. My CT is on 19th May so will try and get some answers a week after that. As you say tumour markers can be raised for all sorts of reasons.
I had words (raised ones) with my daughter today about this chap she has taken up with. She does make me feel so frustrated at times and can't see why I am so worried. Hey ho she must make her own way but I worry she may get injured or worse by him.
Bets wishes to you all Sue x
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Sue - it is so challenging to stand by and watch our adult children make what we perceive as mistakes! I have to remind myself repeatedly to just let go. I feel your pain - have been there with one of my daughters and it is so very hard indeed. Glad you got two nice vacations. Look after yourself.
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Thanks for your support Adagio, you are right I know but it is so hard.
I hope you are doing OK and best wishes to everyone on the site
Sue x
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hi everyone
Hope you are all doing ok . Had my surgery on Tuesday they said in the end chest was clear and ok to go ahead. The hospital and staff were fantastic ( I wasn't private ) . I just stayed in overnight
Got drain in at mo said it should come out within 7 days ( yippee it's driving me mad) how long did everyone's drains stay in ?
I have a bone scan arranged for Tuesday as shoulder still sore.
Does anyone have any tips on vitamins healthy eating etc they don't give you any of this advise at hospital , I don't smoke or drink I used to run three times a week and have always been a healthy eater but any advise would be great. I've just started drinking matcha tea as well.
Hope you all doing ok and enjoying this bit of sunshine 😘xxx
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Hi Sylvia and others
After my treatment I have started eating healthier food, more vegetables and fruit and less and less red meat. I also eat nuts every day and try to addict myself to doing sports. At the same time I have started to take a walk in a state park with a group of friends who are my daughter 's friends ' mothers. After driving my daughter to school every morning we meet each other in front of the school and then go for a walk. I enjoy it a lot as this is the first time I take a walk with some friends.
In spite of occasional anxieties, I try to enjoy every minute of my life and enjoy friendship more and more. I think this is the only way I can help myself mentally which I heard is very important to prevent this disease from coming back.
Sylvia I want to appreciate your sharing your precious experiences here and all the support you give the ladies here. This thread is my great relief whenever my worries strike me.
Thanks for everything
Lots of love
Hanieh
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Hi Sylvia
I am just catching up on the news here in the group. I was wondering what you think the implications of the Conservative party win has on the NHS? I know they have pledged £8bn extra but I am not sure if that is for the whole UK or just England. As Westminster only controls the NHS in England that is probably where it is earmarked for. In NI we are without a health minister again, they all seem gaffe prone. at present it is a DUP brief but after the next assembly election it rotates to another party.
Weather here is awful today. We are paying the price for being stuck out in the Atlantic.
Michael
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Han Tagh - I think it is wonderful that your walk every day with a group of women. Walking and talking is very beneficial physically and emotionally. Coming on a site like this is reassuring in that we can read about other women in similar situations as ourselves and to hear that we all have a life outside of cancer! Cancer does not define us!!
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Hello Suewirral, adagio, Amanda10, Hanieh, Michael,
I have just been reading all your interesting posts and so glad to know that you are all doing such a good job of interacting and supporting one another. I am so proud of you all.
I shall make it a priority tomorrow to answer all of you. For the past few days I have been very busy with my work in the running of our apartment complex and have not had time to think.
I was so glad to know that your surgery is over, Amanda, and it will not be long before the drains are out. I think we can all have a good conversation about how to keep ourselves well and healthy.
Sue and adagio, I am sure you can help each other with your grown up children.
Hanieh, thank you for the kind words you always offer.
Michael, I was glad to know you are catching up with the thread and I shall post more about the general election tomorrow. I did follow the Northern Ireland part with interest as I wanted to sort out the parties. I now know there are four. I was quite upset with the result and felt low on Friday. I believe the opinion polls were manipulated to make it look as though Labour and the Conservatives were neck and neck to frighten people. I think the same manipulation was going on with the Scottish Independence referendum. Again the opinion polls were saying the two sides were neck and neck and yet when it came to it it was 45% for the Yes and 55% for the No. I think the first past the post system is unfair and has had it, but the Conservatives will not change it. In fact, I think we are very disunited and that we need a Federal system with a central government and four devolved parliaments for the four countries of the UK. It may be controversial to say it, but I think NI should be part of the Irish Republic. I know how much they had to fight for home rule.
As for the NHS, I think the 8 Billion is probably for England only. We are on the way to privatisation. A friend told me the other day that there is a big building in Exeter known as Virgin Healthcare.
Best wishes to everyone.
Sylvia
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Hi Sylvia
Just a quick note to your comment about NI joining the Republic. A couple of years ago I carried out a MORI survey asking that very question. The area I worked was 98% nationalist/Catholic and 80% of the people I asked didn't want to join the Republic of Ireland. It surprised me but as I write this it has occurred to me that they may have said that because of my London accent, perhaps they didn't want to offend. Just shows you what rubbish polls are.
Michael
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Hello Suewirral,
It sounds as though you had some very interesting holidays.
I do hope your friend will get some good treatment. Did she have radiotherapy the first time around? It is supposed to be very important for mopping up any stray cells, although I keep reading about the problem of stem cells, which do not get picked up, lurk around and then present themselves somewhere in the body as cancer cells. I do hope the radiotherapy to the brain will be successful. I think it is called Whole Brain Radiotherapy (WBR). I remember Carolben mentioning it.
Do you have any more information about your results? Be sure to keep us up to date about what is happening to you.
Fond thoughts.
Sylvia xxxx
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Hello adagio,
Thank you for coming in to support Suewirral. I am sure she appreciates it. I hear so much about problems with parents and their grown-up children. I suppose you have to let them learn by their own mistakes, however hard it is.
What is life like in Canada these days? I read in the paper that in the Province of Alberta they now had an NDP government. How things change. What goes on in British Columbia these days?
Sending you fond thoughts.
Sylvia xxxx
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Hello Amanda,
How are you doing a week after surgery? Have you had the drains taken out?
How did your bone scan go today? Was it a bone nuclide scan or was a bone density scan known as a DEXA scan and is done to detect and diagnose osteopenia or osteoporosis. The bone nuclide is more complicated and is done to see if there is cancer in the bone.
You asked about healthy eating. The most important is to get plenty of fruit and vegetables. You need to get a variety of different coloured vegetables and fruit, a rainbow diet. Blueberries are very important, as is broccoli and all members of the cabbage family. Some say meat should be limited and the emphasis should be on fish, especially oily fish. To give you an example, for dinner this evening I had a piece of wild red salmon, with a mixture of carrots, leeks, baby brussel sprouts and cabbage, a couple of small new potatoes and I always fry a couple of tomatoes to flavour this and get the important nutrient lycopene (said to be anti-cancer).
I always have a mixture of fresh fruit for breakfast throughout the week (blueberries, blackberries, raspberries, strawberries, red and black grapes (resveratrol), kiwis etc. In the evening I have a citrus fruit and an apple. Throughout the week you need to get as much variety as you can.
I am sure women (and men) on the thread will tell you about what they eat and drink.
It is most important to get vitamin D in your diet through supplements, oily fish and especially calcium enriched drinks, I steer clear of dairy products and drink Alpro unsweetened almond milk enriched with calcium and vitamins. I also eat organic live culture soy yoghurt, called Sojade and Tesco's soy yoghurt enriched with calcium.
For vitamin D you need to get some sunshine each day, when you can.
I hope this helps a little. I have plenty more to say about healthy eating but have run out of time today. I have had a busy day and not achieved all I wanted.
In order to strengthen your immune system there are supplements you can take. I took astragalus and pycnogenol before, during and after treatment.
I shall post more later. Take great care.
Fond thoughts.
Sylvia xxxx
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Hello Hanieh and Michael,
I have not forgotten the two of you, but have run out of time and energy. I shall definitely post to you tomorrow.
Fond thoughts.
Sylvia
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Hi Sylvia and everyone
I always get happy to hear from you. I forgot to tell all the ladies here that the last time I went for my checkup I saw a lady in her 40s who had passed her 13 years NED and just had her regular checkups. Also during my treatment I visited some ladies who had passed their 4, 12 and 14 years NED.
Lots of love
Hanieh
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Hi adagio
I completely agree with you that we should not be defined only by this disease. After all we have just experienced a harsh disease with all its not so kind effects on our bodies. Yet we should try to move on despite all our fears. We can enjoy our lives like any other person. We can hope for the best things and a good future. Now I know the value of friendship more than ever and enjoy it to the fullest. Our morning walks and our gatherings have given all of us the opportunity to learn the best things from each other and to share our pleasures and anxieties.
Tomorrow I will take a short trip to the north with the hope of enjoying the spring in the glorious scenery of the sea and jungle.
Wish you all the best
Hanieh
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Hello Hanieh,
I am glad to know that you are eating healthier food with more fruit and vegetables and less red meat. In my post to Amanda I was describing the rainbow diet, lots of fruit and vegetables of all different colours. I had not got to telling here about how important nuts and seeds are considered to be and how they form a very important part of my nutrition. I eat a mixture of almonds, Brazils, cashews, hazelnuts, pecans and walnuts. I also buy pistachios from time to time. As far as seeds go, I buy pumpkin seeds, sunflower seeds, linseeds and sesame seeds. I alternate them throughout the week, grind them up and use them as a base for my soy yoghurt. I was glad to know that you eat nuts.
As for exercise, I walk, do lots of gardening, housework, but I do not feel the need to go to the gym or anything like that. I also feel it is important to keep mentally active. As you say, helping one's self mentally is very important.
I am so glad to know that you are finding this thread helpful. It is a good place to find relief from anxiety and stress, as it is very bad to keep it all bottled up inside one's self.
Thinking of you.
Sylvia xxxx
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Hello Michael,
Thank you for your posts. To answer your question, I am very concerned about the NHS in the hands of the Conservative government. I do not think they care about it whatever they say. I would imagine most of them are using private care. Last night I was listening to the repeat of the Daily Politics at 7:30 pm on the Parliament channel, there was a man from the King's Society who was saying that even 8 billion was not enough, that the NHS was underfunded and it was heading for trouble. It is so much more expensive to run now than when it was started. We have a huge population, greater expectations with treatment, very expensive equipment etc. I also read that we still spend only about 9% or less of our GDP on healthcare compared to the higher amounts they spend on healthcare in France and Germany. I was very glad to hear on the news this morning an item from some organisation representing doctors saying that GPs should cut down on giving unnecessary medication, blood tests etc. to patients. I think they want to get away from the idea that when a patient sees a doctor there should always be a pill given. When I see the number of prescriptions sitting on shelves in pharmacies awaiting collection, I always feel there is something very long. The elderly, especially, are on cocktails of medication that cannot be doing any good.
I would be very interested to hear from you about the four different parties in Northern Ireland. I saw that Sinn Fein had lost a seat and had gone from four to three.
I saw your other post about the poll you conducted. I think the polls are worded in such a way so that the powers that be can get the answer they want. I am sure the in-out referendum on Europe will be a farce, even if we actually get it. It seems silly that Cameron will be organising this referendum and campaigning for staying in, when he knows the people want to get out. I think he used the promise of this referendum to get a majority Conservative government. I think the people have been duped once again. He will go to Brussels and then come back saying he has gained reform and so we do not need a referendum.
As for the Labour party, I do not know what will happen. I have been following the people putting themselves forward as leader and do not think any of them will be any good. It looks as though in England, judging by the vote, a lot of people do not care about inequality and lack of fairness. It looks as though the 'I'm alright Jack' philosophy is in full swing.
I hope your weather improves, but remember it is the rain that makes the Emerald Isle live up to its name.
Best wishes.
Sylvia
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Hello Hanieh,
That is very good news about those ladies who had gone all those years without any evidence of disease. Were they TNBC or hormonal? It is also important to know what kind of breast cancer they had in addition to the receptor status.
Here in the apartment complex where I live one neighbour who had hormonal breast cancer is still NED after 14 years, but she is still taking medication. Another woman I know was diagnosed in 1988, had a lumpectomy and radiotherapy, is still NED after 27 years. She did not have any medication, but at that time I do not know whether tamoxifen was given and patients were not told much. She was just 32 at the time.
It is always good to hear these stories. We have to hold on to the fact that more of us survive than do not.
Fond thoughts.
Sylvia xxxx
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Hello Jackpot (Gill),
I hope all is well with you as I am concerned that we have not heard from you in a while. How are things going?
On Sunday night I discovered that on Pick they have begun that series with Carl Pilkington entitled the Moaning of Life. This one was all about weddings. It was very funny but very profound. I found myself agreeing with most of what he thought.
I am sure I am going to enjoy this as much as an Idiot Abroad.
I have also been watching some episodes that I had not seen of Not Going Out. They are on Dave.
I would love to hear from you.
Fond thoughts.
Sylvia xxxx
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Some more photos for you all.
Enjoy.
Sylvia.
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Hi Sylvia
Thank you so much for your support. You are such a lovely person to spend so much time to support others. Congratulations on being 10 years free . The photos of your garden are beautiful I love flowers. As for Carl pilkington he is sooo funny I loved idiot abroad and the moaning of like.
The scan I had was the bone nuclide. I've not finished treatment yet and still have rads to go.
Hanieh even though I'm not finished with my treatment yet I'm trying to do the same as you. To get out and enjoy everyday spend more time with family and friends and even though it's difficult try and be positive.
hope everyone has a nice day and is making the most of the sunshine.
Amanda
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Hello Amanda,
Thank you so much for your kind words. It is very enriching to do all this and I have met really lovely women over 203 pages. Many move on but a lot of the names stay with me and some of the things they said.
I was glad to know you enjoyed Carl Pilkington and his two series. I am going to look at the repeat of the first episode of the Moaning of Life. This is unusual for me, but I find there is so much depth in what he has to say. I thought the part about smelling other peoples' clothes in a bag and matching them according to which smells they preferred was hilarious. I think it was called pheromones. What do you think about that? I think I could have a good chat with Carl Pilkington.
I do hope you will have good news from the bone nuclide scan. I had a CAT scan and a bone nuclide scan before and after treatment. I also had an ECG before and after treatment. I thought this was useful because of how chemotherapy drugs can affect the heart.
You are right to live your life as normally as possible, even through treatment. I did not do much gardening in the grounds at that time because of the risk of infection. I did not eat salad food for the same reason. I was told not to eat it by the hospital. After treatment I got back to eating a lot of raw food because I find it makes me feel so good.
Have you been told when you will start radiotherapy?
The photos I posted are of the grounds in the apartment complex where I live and where I do a lot of work.
Fond thoughts.
Sylvia xxxx
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Hello Marymargarethope,
I hope you and your family had a good time at the holiday resort.
It was a pity we did not manage to get together, but Friday and Saturday did not work for me. Perhaps we might do it another time and perhaps it was better not to dwell on cancer during your family weekend.
Did you come into the town at all? If you did, what did you think of it? I know you had a lot of things planned this spring and summer. Where are you too to next?
Fond thoughts.
Sylvia xxxx
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Sylvia
Sorry I forgot to ask in the last post . I read that you found bitter apricot kernel beneficial. I was just wondering where I could buy this from. I tried holland and barratt with no luck. Also do you eat it raw or sprinkle over food, similar to flaxseeds.
Amanda
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Hello Amanda,
I have been getting my bitter apricot kernels on line for the past ten years, but I mentioned them to our local natural food store and she got them in stock. They are exactly the ones I was getting on line. They come in a tub and are produced by Creative Nature. On the tub it says Himalayan, raw super seeds, extremely bitter, gluten free, soy free, source of laetrile and they weigh 300 grms. It says that laetrile is a powerful anti-oxidant. www.creativenaturesuperfoods.com. I paid £9.99 in my local shop. This is about the same price as on line but you have to pay postage. The tub lasts a long time.
Holland and Barratt do not sell them. They are good for vitamins, nuts and seeds, but do not have these. If you have any independent natural food stores you might find them there or they might order them for you. Creative Nature has all kinds of super foods.
I have been taking them since I was diagnosed and decided to do some research before consenting to orthodox treatment. I had a private consultation of over an our with Dr Nicola Hembry in Bristol and these were on her recommended nutrition sheet. I have also read about them through Chris Woollams at Cancer Active. I love the bitter taste, but others have said they do not. In this case grind them up and eat them with some other seeds with yoghurt (non-dairy, non-sugar) or some cereals.
I eat mine as they come, five at a time, three times a day, usually with green tea.
I hope this helps.
Love your little smiley.
Fond thoughts.
Sylvia xxxx
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Hello everyone,
This is a programme alert (in the UK) for this evening for all of you who feel like a glass of natural tonic.
Wednesday March 13th
9 pm Newzoids (ITV1) for half an hour.
9 pm The Moaning of Life Karl Pilkington (Pick) for an hour.
10 pm Rory Bremner's Election Report (BBC2) for half an hour.
I am not sure whether the Moaning of Life is a repeat of the one I saw on Sunday. It looks as though I shall be channel hopping. I feel the need to relax this evening.
I saw in yesterday's Daily Express in the Health Section yet another celebrity, Gwen Taylor, an actress aged 76, who has been going through breast cancer treatment. I do not know her but apparently she is best known for her roles as the long-suffering Rita Simcock in a Bit of a do, and Barbara Liversidge in Barbara. Interestingly she had been on HRT for 25 years since approaching menopause. Try to have a read of her story on line. She emphasises the benefits of walking.
http://www.express.co.uk/life-style/health/576662/Gwen-Taylor-early-cancer-diagnosis
Wishing you all the very best.
Sylvia xxxx
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