Calling all triple negative breast cancer patients in the UK
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Hello everyone,
I was just looking through the Calling all TNs when I recognised the name Teka, with whom I have corresponded in the past. Imagine my surprise when I saw she had posted a beautiful card for me. It made me feel overwhelmed. I am reproducing it here for you to see.
Sylvia,
I hope you enjoy it as much as I did.
Best wishes
Sylvia xxxx
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Hi Sylvia
This card can bring as much pleasure and pride as receiving a gold medal in a championship race. In fact living in the world of cancer, each day can be a blessing and passing 10 years in remission can be looked on as a great honour. Again congratulations on your 10 year cancerfree. I wish you many many years NED to come.
Sylvia I really don't know how to express my gratitude for your commitment to help and support us here. Thanks a lot for posting the address and telephone number and also sending email to Chris Woollmans about Dipherline. If only I could get rid of both the burden of Dipherline injections and also the fear of not injecting them thus highering the risk of reoccurance .
I sent the Amazon link of the two books to my cousin and right now I'm waiting for his reply . If he doesn't manage to order the books there I will send him the address and telephone number you posted.
Though far away you are one of my best friends I have ever had.
Wish you the best
Hanieh
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Hi Sylvia Again
Regarding your newly diagnosed neighbour I think it's better for her to remain ignorant since for some people ignorance can be a blessing. Although knowledge is power, ignorance can be a pleasure for some patients . If I hadn't continued searching for more and more information I would have naively lived without any urge to learn about my diagnosis, treatments and the side effects that could result in the clash that I have with my oncologist's idea about Dipherline. But I really do not regret it and think this is my body and I should make a hard decision soon.
Love
Hanieh
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Hi Sylvia
I haven't been anywhere exotic unless one counts the Cooley peninsula as exotic. I don't think it would make it to the list.
I have trouble getting my head around the voting system for the Labour leadership but my Alex seems to think he stands a good chance. I don't see that the party has anything to loose. They could give him three years and see how it goes and if it is not working out, oust him. With the other candidates it will be more of the same and a slow decline of the party.
Alex is in Brentwood at the moment and I hope to be there on Thursday. Do you know which part of NI that your friend was in?
Michael
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sylvia - I would like to ask your opinion about something, since I have great respect for your knowledge and your ongoing research in cancer treatments. I mentioned to you some time back about the pain at the base of my spine which has been present since October 2014. My oncologist adamantly insisted it was not cancer, and I was happy to believe her! However, the pain is still very much present so she ordered an x-ray which I had done 2 weeks ago, then I saw my onc just a few days ago. It turns out that there are 2 fractures in my sacrum - that explains the pain I have been having. The radiologist suggested it was trauma from a fall. But my oncologist wants to rule out metastases, so she ordered a rush bone scan. I had this done yesterday, so now I await the results. I mentioned to my MO about my osteoporosis and she did say that the fractures would take longer to heal because of the porosity of the bones - but she highly recommended that I start on bisphosphanates. Like yourself, I am not a fan of these drugs, but when the bones start breaking - what does one do? I am in a quandary. She said whether there was cancer there or not, I should take the drugs, the reasons being that a) the drug will strengthen the bones to prevent further fracturing, and b) bisphosphanates help prevent reoccurence of breast cancer in the bone.
I am trying not to worry, but it is on my mind constantly, and the thought of making such a huge decision to take the drugs is overwhelming. The drugs she mentioned are Pamidronate which is given IV once every 6 months. The other one is Denosumab which is also given once every 6 months by subcutaneous injection. I have read about the side effects of these drugs and they do not sound pleasant at all.
I will keep you updated - in the meantime - if you have time. I would value your input greatly. I know the decision is totally mine, but I want to know what others think. I am going to see a Naturopathic oncologist to get his opinion also, but I will wait until I get the results of the scan.
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Hanieh - you and your family look so very relaxed, and your pictures are so clear. Are they taken with a smart phone or a camera? I greatly appreciate your positive outlook on life, and like you I try to be grateful for each and every day that I am alive and try my best to life to its fullest! Your little daughter is beautiful. One day I may visit Iran - my son-in-law tells me that I should. I have learned a lot about the Persian culture from him and have even grown to enjoy many Persian foods.
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Hi adagio
I have taken these pictures with my smart cellphone. I'm happy you liked them.
As your son in law, I recommend you to visit Iran. You will never regret it. I would be really happy to welcome you here.
Lots of love
Hanieh
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Hi Sylvia
I have started to have a rainbow diet. My cousin has also ordered the book and I think I will have it soon.
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Hello Michael,
I do not know the Cooley peninsular but I am sure that Northern Ireland is beautiful, as is the rest of Ireland. As you know, I did visit NI many, many years ago and I found the countryside stunning and I have never forgotten it. As I mentioned before, my younger brother spent two years in Derry when he was lecturing at Coleraine University. I enjoyed my visit there. I wonder whether there will ever be a united Ireland? The relative who was in NI recently was living east of Belfast and working in Belfast for a bank.
As far as the voting system for the Labour leadership goes, it is being done on the preferential vote system. This means that, if the leading candidate does not get 50% on the first ballot, the one with the lowest votes drops out (this will be Liz Kendall, who is trailing far behind) and their second choice votes are then distributed appropriately. This goes on until one has 50% or more. I do not like this method because you end up with a candidate you do not really want. When I get my form I am going to put Jeremy Corbyn as my first and only choice, so I shall be leaving second preference blank. Raymond will do the same. I cannot believe the poisonous attacks on Jeremy Corbyn. The knives are out for Jeremy Corbyn, a truly decent man who reflects the true heart of the Labour Party as it was when formed and how it was with the 1945 election. If Labour had not been elected in 1945 we would have no NHS and no welfare state. With Jeremy having most support from the constituencies, all this hatchet job from the MPs is not saying much for the wishes of Labour party members. I do believe that the Labour party does have to rid itself of the Blairite virus.
I agree with you that the other candidates will give us much the same as the Tories. They are Tory-lite, opportunists with no real convictions. Watch this space!!
I shall think of you in Brentwood and give us news when you get back.
Best wishes.
Sylvia
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Hello Hanieh
Thank you for your posts. I have been thinking a lot about knowledge and ignorance in general, and in particular with reference to going through cancer treatment.
It has got me thinking about knowledge is power versus ignorance is bliss. My mind is too active and I never stop asking questions and coming to opinions about everything. I have an enquiring mind and an insatiable appetite for knowledge and information. I could not have gone through my cancer journey in silence, just sitting back and taking the treatment. I do agree that not being silent and asking questions makes you anxious and fearful but I could not have let others be in control of my body. Ignorance may make it easier, but the world would not have progressed if we had all remained ignorant. I think ignorance gives power to the bullies. I think when it comes to medical treatment the patient has to have the last word about what he or she will consent to.
I think your rainbow diet looks wonderful and thank you for posting the photograph. Recently I have been reading about eating as much raw food as possible because cooking destroys valuable enzymes. Of course we have to cook some things, but colourful salads are very good for us.
I have been reading the latest edition of What Doctors Don't Tell You and will post some information about cancer when I have time.
Take care.
Fond thoughts.
Sylvia xxxx
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Hello adagio
Thank you for your posts. I shall answer them later on today when I have some more time. Monday has started off being busy again, even though I thought it was going to be a quiet day!
Best wishes
Sylvia xxxx
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Hello adagio,
I was very sorry to read about your problem with pain at the base of your spine, which has been on-going since October 2014. I do remember your having mentioned this in the past. I was sorry to read that you have been told there are two fractures in the sacrum. I do hope this turns out to be the result of a fall as your radiologist suggested. If it is this I have read that the sacrum will in time heal itself. Remember that bone is an ongoing process of new bone formation and getting rid of old bone.
I can understand that your oncologist wants to rule out metastases and that she ordered a bone scan by which I am assuming you mean a bone nuclide scan. I do hope you will not have to wait too long for the results and that it will rule out metastases to the bone. Please let us know your results. This must be a worrying time for you.
It is true that as we get older bones take more time to heal. If it turns out that it is fractures, if that were me, I would let them heal naturally, but that is my own opinion. I am not surprised that she has recommended bisphosphonates because that is the standard treatment for osteoporosis. When my osteoporosis was diagnosed ten years ago at the time of diagnosis, bisphosphonates was the next word from the oncologist, the person taking a DEXA scan and ongoing with the GP. I have always said that I will never take bisphosphonates. I think they do more harm than good. I have read they cause brittle bones because they stop new bone from forming and you just keep with the old bone material. I think bisphosphonates are being dished out too easily along with statins and steroids.
From the very beginning I decided I would self treat my osteoporosis and I made up my own daily diet and supplement regime. The GP when she realised she would not win the battle with me about bisphosphonates suggested strontium ranelate. I researched this and decided it was just as lethal as bisphosphonates. As I have said before, I treat my osteoporosis with 4,000 IU of Solgar soft gel vitamin D, Solgar Bone Support Calcium citrate and the other vitamins and minerals needed are in that supplement (magnesium and vitamin K). I also take Dr Best Strontium Citrate (this is natural whereas strontium ranelate is synthetic). As you know I eat a calcium rich diet not from dairy products, which I avoid like the plague.
When bones start breaking I think it is best to let them self-heal. That is, of course, my own opinion. It is strange that you should be asking about this because I have an elderly friend who has osteoporosis. She is 87. For seven years she was on bisphosphonates and nobody told her that you are not supposed to be on them for more than five years. She stopped taking them three years ago when the dentist told her she had a problem with her jaw. I am not sure whether it was full blown necrosis of the jaw, which is caused by bisphosphonates, but she was in trouble. Despite having taken these bisphosphonates (Fosamax) she has continued to lose height. Last Friday she went to see her GP to ask for a DEXA scan (for bone density) and was told she had had one just last year. She was told she had a bone break at the top of her spine and that it would be alright for her to go back on bisphosphonates since she had had a three year gap and her body would be clear of the drug. I am not too convinced about all that.
I think if I were you I would wait to get the results of your bone nuclide scan before making any decision. I know there is a lot of publicity at the moment about using bisphosphonates in the treatment of metastatic breast cancer. It comes over as though it is all new. I remember reading about this treatment ten years ago when I was diagnosed. I asked my breast cancer consultant about this and she said that bisphosphonates were nasty with awful side effects. I also asked the homoeopathic consultant who treated breast cancer patients alongside their orthodox treatments about bisphosphonates. She also told me they were awful and being used to treat metastatic breast cancer that had spread to the bone. Neither of these women mentioned bisphosphonates as being used as a preventive to metastatic breast cancer. I do not know whether they are now being used for prevention. It would seem that, if cancer can only affect new growing bone, then taking bisphosphonates which stop new bone growing, then it might stop cancer penetrating the bones.
I am not surprised that you are in a constant state of worry with all this going on. You might want to research IV pamidronate on the following link.
http://www.webmd.com/drugs/2/drug-11598/pamidronate-iv/details
You might want to research Treatment of Sacrum breaks on the following link.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3279068/
I do remember the drug Denosumab because my friend and neighbour, who had metastatic triple positive breast cancer and sadly died of it, was taking that because she had been told her spine was in a mess. I do not know if she was ever diagnosed with osteoporosis I think all the different drugs she was on for the metastatic breast cancer ended up killing her.
I do know that denosumab is one of the class of drugs known as monoclonal antibodies. I think, if I were you, I would look at the following link. There are two types of denosumab and it looks as though the one they are suggesting is Prolia. The link is as follows.
http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/cancer-drugs/denosumab
I do not like the sound of the common side effects. Breathlessness, diarrhoea, and, above all, bone, joint or muscle pain that is sometimes severe, and arm or leg pain. This is in addition to occasional side effects. The occasional side effects are unbelievable, such as low calcium levels, cataracts, dead cells in part of the jaw (osteonecrosis).
Have a very careful look at this link!
It all makes me wonder how the medical establishment can give these medications. I thought they were not supposed to do any harm to their patients!
You are dead right when you say that the side effects of these drugs do not sound pleasant at all.
I would be most interested to know how you get on with a Naturopathic Oncologist and what he comes up with. There has to be some kind of alternative to these lethal drugs that are being prescribed. I do hope one day cancer will be able to be treated without surgery, chemotherapy and radiotherapy. They keep us alive initially but all three procedures can lead us up the path to more cancer.
I am thinking of you and sending fond thoughts and best wishes your way.
Please keep in touch.
Sylvia xxxx
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Hello Adagio,
Please let us know what you have learned about Persian culture from your son-in- law and which Persian food you have acquired a taste for.
Best wishes,
Sylvia.xxx
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Hi Sylvia and everyone
Sylvia I am happy to hear that you are interested in knowing more about Persian culture.
Regarding knowledge or ignorance, I'm the kind of person who strongly believes in knowing more and getting as much information as possible.
Yet , during treatment I got to know some patients, especially some older ones, who were scared to death because of the word cancer that nothing could calm them down. The only thing I could do them was to tell them that they were going to be completely cured as there exist lots of cancer survivors. Knowing more was the last thing that could be of any help to them. In fact this knowledge could have been of some help to them if it had happened before their diagnosis. However , among my friends who have never been diagnosed I can see the fear they have ,that I would never suggest them think about the issue at all except having regular chechups and that makes me wonder how I went through all this process.
Knowing more about cancer and also the probability of recurrence and side effects can be destructively paralysing to some rather than power. Yet for you and me it is always power.
Lots of love
Hanieh
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Hello Hanieh,
A deeply, thoughtful post once again, which I am sure will get us all thinking. The word cancer is probably one of the most feared words. I think there are a lot worse diseases and the most fearful for me is probably any kind of dementia. To lose your mind is absolutely awful. There are really incapacitating diseases such as motor neuron disease, multiple sclerosis and Parkinson's disease. The problem with cancer is that you go through the standard treatment, go into remission but you have to live with the knowledge that it can return at any time. Nevertheless, we do manage to put it in a corner and get on with our lives in a normal way.
All for now.
Fond thoughts.
Sylvia xxxx
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Hello Maryna8 and linali (Lindsay),
I am just popping in to say I was wondering how the two of you are and hope to hear from you as you are important posters on this thread.
Fond thoughts.
Sylvia xxxx
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Hello everyone,
I thought I would just post the latest Cancer News from the magazine What Doctors Don't Tell You (www.wddty.com). It is just one page and is under four headings.
1. It is not a disease of old age.
2. Family history not a death sentence.
3. Diet the key to survival.
4. The hype, and hope, of immunotherapy.
Apparently in the over 80s cancer is the least common cause of death.
When it comes to breast cancer, family history is not such an important factor according to new research.
Hereditary factors are reckoned to be responsible a quarter of all cases of breast cancer, but according to researchers from the Universities of Southampton and Oxford, they do not make any difference to the prognosis.
Apparently, a study of 2850 breast cancer patients discovered that women with a family history have the same chances of surviving as women without such a history. All the women in the research were under age 41 and some had a family history of breast or ovarian cancer.
There was no difference in the rate of cancer recurrence after treatment.
As for diet, it is stated that the food we eat can determine whether or not cancer is lethal. Research apparently shows that men diagnosed with prostate cancer who continue to eat a western diet which is meat based are three times more likely to die from their disease. A dairy based diet is not good either.
Those who change their diet and dropped the meat and dairy and also refined grains for fruit and vegetables, fish and whole grains are more likely to survive.
In case you are wondering how prostate cancer relates to breast cancer, remember that both are hormonal problems. We all know that the good diet for all breast cancers is one that is based on plenty of fruit and vegetables (a rainbow diet), plenty of oily fish, as well as whole grains (wholegrain rice and quinoa).
As for immunotherapy there has been a lot of publicity about this recently. Obviously it makes sense to support the immune system. We all know what chemotherapy treatment does to our immune system. The thing about immunotherapy drugs is the cost - £100,000 per patient and the fact that the treatment extends life by only three months. At least that is the conclusion of the biggest trial that has so far been used to test the drugs. In the largest trial so far, the drug nivolumab extended life by just three months over chemotherapy in lung cancer patients.
If you want any more information just do some research.
I hope you will find this information helpful. I think all newly-diagnosed patients and those going through treatment will have to make their own decisions about how they will deal with their cancer journey. Some, like my neighbour, will go through not wanting to know anything and just taking the treatment, whatever it is. Others, like me, will want to know everything and will want to be in complete control of their cancer journey.
Here in Exmouth it is a sunless, cloudy and cool day with rain forecast.
I am very concerned with all the number of young women that seem to be getting diagnosed with breast cancer with triple negative receptors. There has to be reason for this. It would be interesting to hear from you and to know what you are being told, if anything, about the possible causes of your breast cancer. Those of you who have been viewing this thread over the past five years will remember the discussions we have had about breast cancer risks and how some of us think that the birth control pill could be implicated.
We welcome all comments and discussions.
Tom, if you are still viewing in your busy life, we would love to know what you think about immunotherapy and virotherapy. How is your own research going?
Best wishes to all.
Sylvia
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Hi Sylvia
I have largely ignored the stories about Jeremy Corbyn as I can guess what they are saying. I rely on Alex to keep me updated but he had been away for the last couple of weeks so I haven't had a chance to chat to him. He is back this afternoon so perhaps I will get a catch up.
Michael
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CIB1 Protein May Be a New Target for Triple-Negative Breast Cancer
News | July 01, 2015 | Breast Cancer TargetsBy Lauren Evoy Davis
Image courtesy of ShutterstockResearchers at the University of North Carolina (UNC) Lineberger Comprehensive Cancer Center have identified the potential of a protein called CIB1 as a new drug target for patients with an aggressive form of breast cancer.1
Leslie Parise, PhD, UNC Lineberger professor and chair in the UNC School of Medicine Department of Biochemistry and Biophysics, and colleagues believe the cancer cells depend on CIB1 for survival. Knowing about this dependence, they deleted the protein using genetic engineering, and discovered that they could kill certain cancerous cells and decrease tumor growth in mouse models.
"We believe that this protein could be a potentially safe therapeutic target for triple-negative breast cancer, and the future could bring drugs that specifically target this protein to kill breast cancer cells," Dr. Parise said in a UNC news release.
This finding was first published in the June 2015 issue of Breast Cancer Research and Treatment.2
Study author Justin Black, calls CIB1 a "unique target because it is not an oncogene, nor is it an enzyme, yet it appears to have a crucial role in triple-negative breast cancer tumor growth." His work as doctoral candidate in the Department of Biochemistry and Biophysics will continue as the team partners with their newly formed company, Reveris Therapeutics, along with the University of North Carolina at Chapel Hill's Carolina Kickstart.
Triple-negative breast cancer, which doesn't have estrogen or progesterone receptors, is particularly insidious because its tumors tend to grow and spread more quickly than other types of breast cancer, according to the American Cancer Society.3 Therefore, traditional hormone therapies do not work for this cancer type. Considering 1 out of 10 breast cancer patients are diagnosed with this kind of breast cancer, research teams like this one are working feverishly to discover new, effective treatments for this aggressive disease.
REFERENCES
- See more at: http://www.oncotherapynetwork.com/breast-cancer-targets/cib1-protein-may-be-new-target-triple-negative-breast-cancer#sthash.RDCkrrkS.dpuf0 -
Hello maryna8,
I am just popping in to say thank you for that information. We shall just have to wait and see what materialises.
I do wish they would not keep describing TNBC in such negative ways. We have to be positive about triple negative and i for one am glad that I did not have hormonal breast cancer and having to be put on nasty drugs such as tamoxifen and Arimidex.
How are you things with you.
Best wishes.
Sylvia xxxx
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Hi Sylvia
We have not heard from you for a while. I hope everything is well with you.
Lots of love
Hanieh
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Hello Hanieh,
It was nice to hear from you. I have been checking the thread regularly, as I always like to answer posts promptly but the thread has been unusually quiet. I replied to maryna9 on August 6th and, until you posted today, no one has posted. There has been a lot of views but no posts. Of course, we are right in the middle of the summer holidays, all the schools and colleges are closed and people are going to all different places for a holiday break.
We have to remember, too, that the last group of women to go through their treatment with us on the thread have all finished. No new patients have posted, which is a good thing if it means that fewer women are being diagnosed. I do not think this is likely, because in the UK it seems that more and more women are being diagnosed, and I definitely get this impression with the US. I keep reading about younger women with children being diagnosed. In fact I saw a post freshly created today from a husband saying that his wife had been diagnosed with medullary breast cancer, with triple negative receptors, shortly after giving birth. This is by no means the first case that I have read about and we have had several women on this thread who have gone through treatment while being pregnant, taken a break, had the baby and then resumed treatment. I am thinking of mumtobe (Carol) who now no longer posts, and more recently Marymargarethope and the wife of Tom. We have not heard from them in a while. Do you have any theories about why this is happening?
What are you doing during the month of August?
Recently I saw on the news the case of a campervan parked outside one of the museums in London and it had a sign on it saying Iran is great. It created a lot of attention and the police were called. It turned out to be the family home of a husband and wife with two children. They had just parked their camper outside the museum while they went in to visit!
There is already a feeling of autumn here.
Sending you best wishes.
Sylvia xxxx
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Hi Sylvia
The reason why people do not post anymore after treatment is that they may want to get themselves as far as they can from the cancer world. But I think we can inspire and support each other here. We can encourage each other to move beyond cancer and lead a happier life.
That was interesting to hear about that camper. Some people are really funny. But be sure, regardless of what politicians say or do we ,Iranians, are not terrorists. Criminals exist all over the world. But they have nothing to do with the original Persian culture.
Unfortunately my friend's mother has recently been diagnosed with stage 4 breast cancer and these days I'm trying to be as much help as I can to them. In fact her mother is devastated after her diagnosis and is in terrible pain. I think her symptoms suggest IBC. I'm really sorry for her and pray for her everyday.
Wish you all the best
Hanieh
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Hi again
To change mood I want to announce that right now I'm in a hair salon having my hair highlighted. It's much pleasure to have a change after months of avoiding hair salons as a result of being bald and after that unusual short hair.
Love
Hanieh
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Hello Hanieh,
Thank you for your post. You always have something profound and interesting to say. I am sure that what you say is true and that after treatment people want to get as far away from the cancer world as possible. That is only natural. I think that when they do this they also need to have a moment of reflection about how much other women were there to support them through treatment and how much it helped them. I suppose I am talking about having a sense of duty towards others. It is a bit like President Kennedy once said "ask not what your country can do for you, but what you can do for your country". It is a bit difficult at the moment as we have no one going through treatment, but, as you said, those of us that have finished treatment and have become friends because of that treatment, can remain as survivors and help one another with life after cancer and how to make the most of our life, because of all the 'what ifs' as a cancer survivor.
I thought you would appreciate the news about that camper.
I was very sorry to read that the mother of one of your friends has recently been diagnosed with stage IV breast cancer. Had she been through treatment for primary breast cancer and has this now spread, or has she been diagnosed straight-away with stage IV? What treatment is she now having?
Do you know what her receptor status is and what she is taking?
I know that inflammatory breast cancer is one of the rarer cancers and I do not know how they go about treating these. I rather think, judging from posts here over the past five years, that the treatment is much the same as for the common breast cancer, invasive ductal carcinoma, a mixture of surgery, chemotherapy and radiotherapy.
I hope you can encourage your friend's mother to be optimistic about all this. Stage IV breast cancer can be treated and some people live for many years. Has she been told where the cancer has spread? It often goes to the liver, lungs, brain and bones. I am told that when it goes to the bones it can be very painful. The husband of a friend of mine is in great pain after going through treatment for prostate cancer and it now looks as though it may be in the bones. The consultant did use the word metastases but I am not sure they have understood what this means. He had quite a bit of extra radiotherapy recently but it has done nothing for the pain. He is being given the painkiller Tramadol to alleviate the pain. I do hope they will be able to alleviate the pain for her. How old is she?
I had to chuckle over your next post. They do say that going to the hairdressers can be a good tonic. I can understand the meaning of that visit for you after all those months of being bald. Losing your hair is one of the most traumatic side effects of chemotherapy treatment. I hope you come out feeling good.
Today in Exmouth we woke up to pouring rain and it lasted for about two hours. We really needed it. Today Raymond and I have had a fairly restful day and have been catching up on some reading.
We do like to read the newspapers but buy the quality ones as there are a lot of down-market newspapers which concentrate on sensationalist headlines.
I have another look at the magazine What Doctors Don't Tell You. The main theme this month seems to be the importance of having a healthy gut. They are calling it the second brain and there is an article about all manner of illnesses being linked back to disturbances in the digestive system.
There is news again about how effective green tea is in reducing cancer risk. I knew about this for reducing breast cancer risk but research now shows that it reduces prostate cancer risk.
There was an interesting article about how the drugs statins double diabetes risk.
There was also information about how important it is to eat raw foods.
There is all sorts of information about why so many people are suffering from chronic fatigue syndrome. One of the tips for treating this is to eat a stone age diet. This means a very simple diet of basic food and keeping away from all the processed stuff we have today.
In the newspaper the other day I read about the importance of anti-oxidants such as vitamin C and hence the importance of fruit and vegetables.
Keep well.
Fond thoughts.
Sylvia xxxx
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Hi Sylvia
Thanks a lot for sending all these useful information. I really like your posts regarding your latest information about health issues.
Sylvia I really enjoyed what you posted about that camper but the fear it caused for the police was somehow more interesting to me. It gave me a sense that the police fears Iranians. In fact ,here in Iran, if the police sees such a thing about England it doesn't pay much attention to it.
Good for you to have such a nice weather there. Here it's still hot and we are all longing for rain.
Now it's about 10 pm. Tomorrow is a religious holiday and we are going take a trip to the North at 3 am as we want not to get stuck in the traffic.
Lots of love
Hanieh
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hi Sylvia,
I have had no results from the bone scan yet, but the oncologist has also ordered a CT scan - I have never had one of these before. I need a specific blood test (creatinine) which tells if the kidneys are healthy enough to tolerate the dye which is injected intravenously. The CT scan is scheduled for August 25, then I see my oncologist on the 27th. I am working hard at trying not to worry
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Hanieh - one of my favourite Persian foods is kasha - e- bademjan. It is so delicious. I also love the basmati rice with saffron, and make it often. My daughter and her Iranian husband now live in Ann Arbor, Michigan in America. I miss them both very much!
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Hello Hanieh,
I was glad to know that you like my posts about the latest information on health issues. I think it is very important that we have all this information so that we can make our own decisions about looking after ourselves.
I was very intrigued about your comments regarding the camper. There has been no further mention of it. I sometimes think the whole world has gone completely mad. Do you get much news about the UK? I think here the media goes for anything that causes a sensation but such news is here today and gone tomorrow.
I hope you enjoy your trip to the North.
Fond thoughts.
Sylvia xxxx
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Hello adagio,
I do hope you will not have to wait too long for the results of your bone scan.
Try not to worry about the CT scan. There is nothing to fear from this procedure. I had a CT scan before and after treatment. I do remember the dye which is injected intravenously. I did not have a blood test before, but I can understand why they are doing the creatinine test to see if the kidneys are healthy enough to tolerate this dye. Have you had problems with kidney functions?
I do sympathise with you over all this waiting. When you are waiting August 25th and 27th will seem far away. Just try to keep busy and try not to worry. I know we all do it, but it serves no purpose. Please let us know how you get on.
I was intrigued about that Persian dish kasha-e-bademjan. What goes into this? As for Basmati rice, I do buy it occasionally but only the whole grain one, not the processed one. I can imagine it would be very nice with saffron.
Take care and keep in touch.
Fond thoughts.
Sylvia xxxx
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