Calling all triple negative breast cancer patients in the UK
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Hello Val,
It is always a pleasure to have you on the thread.
I can understand that you have been busy with Spring gardening. I have been busy doing exactly the same thing in the grounds of our apartment complex. There is never-ending work!
Are you treating your neuropathy and knee pain with anything?
I was glad to know that therapy is helping your stroke weakness. You have been through such a lot and have been so brave. Take it easy.
I would not worry too much about scans etc. I think oncologists treat their patients according to what they feel they need. The most important thing is to learn to read your body and if you feel that something is not quite right then get in touch with hospital and try to make an appointment.
Thank you for your words of support and encouragement to those going through treatment. Kathy in the UK and her sister really need all the support, help and information that we can all provide.
Take care.
Fond thoughts.
Sylvia xxxx
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Hi Ladies,
I had my #12/12 with Taxol last Tueday. As I was leaving the Women's Day Theraphy, I told the Nurses, "Thank you and see you!" Then they all replied, "No, no, no don't see us again here. See us outside!" And we all had a good laugh.
As I finished my chemo, I had mixed emotions. Sad because this is it, I am on my own now but happy that I am over from pumping myself drugs. And that I will be able to give my body chance to recover and to continue eating as basic as possible.
I am also very excited to visit DH hometown in Malaysia for an 8-day trip next week and Philippines on a 4 weeks trip in June. Looking forward to see familiar faces and places there.
Happy to be making plans again because prior to diagnosis we always try to take a trip here and there but mostly Malaysia. I am just so glad to be able to travel again.
I did my happy dance!🎈🎉♥️
Sylvia & Mary - Sorry for a very late reply, too busy with the Little One and making plans for the upcoming trips.
With regards to my numb feet and fingertips, I already asked my MO the last time I saw him before my #10 infusion and he told me, if it stays beyond 6 months it is most likely permanent. It doesn't bother me much though. It is only very noticeable to me when I am alone. When I am busy the whole day, I don't even notice it because it is very mild for now. I am not sure if it will get worst later as I have read from other posts but then again our body reacts differently, so see how it goes.
I am actually thinking about getting a drawn eyebrows. I will decide on it when I am in Philippines maybe because it is cheaper there. I will be needing an eyebrow that doesn't washed off because Philippines have beautiful beaches and it will be a waste not to enjoy it.
For me being bald is ok. I never use head-cover at home since the day I shaved it off. I like it and it's low maintenance. I used to have very long curly hair and I would just normally tie it everyday. It is growing bit by bit after AC but I continue to shave it because the length is not the same. I want it to grow altogether. I will probably keep it short this time.
Kathy - I am sorry your Sister have to join us but I am glad you found this thread because this is where I found a lot of useful informations.
Like your Sister, I am only 40 and I have a 3 year old.
When I was diagnosed, I cried everyday because I don't want to leave my DH and my DS so soon. But when my treatment plan was in place, I just keep my focus on it and this website helped me a lot. I never wander off that much from this website because other site is scary to read. I only read other website for additional info. I keep reading here because this are people who really went though it and still getting through it. When I read, I choose what I think is good for me and will work for me then I follow it.
After my diagnosis, I eat mostly vegetables, fruits and fish only. I had mastectomy first and I healed very fast. I was on my feet 6 hours after my operation and was discharged the next day. I wanted to see my DS very badly. I was never separated from him from birth. He ismy source of strength all the time.
My drain was taken out in 1 weektime and when they take out the plaster from the wound it was dried up as well. Now, after 6 months, my scar is just 1 faint line. I didn't go for reconstruction and I don't think I will. It's my personal preference and DH is also not bothered by it.
I had AC for 1 every 3 weeks then Taxol for 12 weeks with Carboplatin for 9 weeks. When I was starting chemotherapy I was also very scared of the unknown but it wasn't so bad at all for me.
The AC wiped me out a lot because it flush a lot of fluids from the body. During infusion I will be 44 kg and the night after I will lose 2 kg of it. I add in chicken to my diet because I didn't want to lose more weight. I will be down for 3-4 days then I will recover strength and live normally for 2 weeks before the next infusion. I used baking soda and salt with water to rinse my mouth round the clock to combat mouth soars and I never had one. Whenever I go out even in crowded place I never use face mask. My counts was always good. I always ask during my infusion that is why I am not worried much about catching an infection. I just wash my hand a lot and change clothes the moment I step back in the house. I made my DS do exactly the same because I am always in close contact with him and kids can catch colds easily in playground.
The Taxol and Carboplatin is milder. I am down only about 1-2 days the most and I never took the take home steroid to combat nausea and vomiting. I just eat on time and rest early.
The Carboplatin was added because of my age. It was a preventative measure for ovarian cancer but when my genetic result came back negative my MO discontinued giving it because of the ringing in my ears. It is a known side effect of Carboplatin and he is afraid if we continue it will cause permanent damage. The remaining 3 infusions with Taxol alone was SE free for me.
I continue to drink water round the clock until now. I always carry with me a bottle of water so that I will not forget. On days that I cannot swallow water because the taste is off, I drink tonic water. I eat as much as I can when I feel good to make up for the times when I don't feel like eating. When I cannot eat, I eat fruits instead.
I will try to update as much as I can during my trips.
Best regards,
Lou
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Hi, I would like to join you if that is ok, I have been lurking for a long time.
My story is that I was diagnosed with TN in October, I had a primary breast lump, a secondary lump in my chest which was a clump of nodes maybe/tumour and had eroded the sternum. Also present are neck nodes. I am in the UK, I was given a very grim prognosis by my oncologist and I got a second opinion from an expert in TN who put me on a clinical trial. The trial was cistplatin chemo alongside a trial drug which I had every 3 weeks. The trial was predominantly targeting people with BRCA positive results and mine were negative but I stayed on it anyway and I completed 7 rounds.
I had a pet scan 2 weeks ago and the primary lump in the breast has gone, the other lumps have reduced in size and the cancer has stabilised but sadly it is still very much there although not spread any further. The TN expert who gave me the 2nd opinion suggested I would be a candidate for a sternotomy to remove the chest lump and repair the area in the sternum where the cancer has eroded it and then radio therapy for the nodes.
However the lump is not yet considered small enough for surgery, it is felt that clear margins will not be achieveable at this point and the surgery is a big op but I have found a few people with secondary who have successfully had the op and live well now with NED.
So I have a meeting this week with my new NHS oncologist , I'm now off the trial and about to start 12 weeks paclitaxol which I am absolutely dreading, I am 5 weeks post my last chemo and I'm only just starting to feel normal. I had severe neuropathy from the cistplatin and generally felt really quite ill. I'm so worried that the weekly infusion will be hard and knock me down. Has anyone got anything good to say about it? I am planning to use the cold cap, I did with the cistplatin and I lost no hair, my hair is very long and it was really important to my children (12, 11 and 7) that I still look like me so I fought hard to keep it and hope to continue with that.
I've had a hard 7 months since diagnosis, mostly as I've been so devastated and scared, how does anyone live with this and still manage a life. I barely sleep and I still get very very upset. My heart breaks for my children, it never occurred to me I wouldn't get old and watch them grow up and enjoy them as adults. I am a single parent and while their dad is very good and involved, no one knows them like me.
I did follow quite a few support groups on facebook but I have found its so full of sad stories that I get even more down.
I've started taking lots of supplements now, am trying very hard to get back to running but its just a steady walk at the moment due to the painful feet. My diet is not bad, it could be better but I've never really eaten red meat and often eat fruit and veg.
I would appreciate any hints or tips on any other changes I can make.
Thanks for letting me join.
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Hello Lou,
It was nice to see you on the thread. I am so glad that you have finished your Taxol treatment and you can now look forward to a normal life. I think we all feel a bit strange after we finish our standard treatment. We have spent so much time at the hospital and so much time having our treatment that we feel as though we are being cut loose and abandoned. You have been spared the hectic pace of radiotherapy.
Are you going to be having follow up check ups? Here, we usually have these, first every three months and then going on to every six months and then once a year. I think the hospital may even be cutting back on these.
You have the right attitude by saying that you can now put this behind you and start on your own journey of making sure you do everything to keep yourself happy and keep cancer at bay.
Mary is on holiday but I am sure she will catch up on everything when she gets back. I am glad to know that you also have holidays planned and that you have something to keep you looking forward.
I do not think that neuropathy can be cured. The so-called 'experts' have all told me this. Like you, mine is not so bad and most of the time I am not aware of it and it does not bother me. Mine brings no pain, but a kind of numbness. I bathe my feet regularly in warm water and put in either some salt, bicarbonate of soda or Epsom salts. It seems to bring some kind of relief. As for my hands, they are fine most of the time but they can suddenly go red but the redness soon disappears.
Thank you for your kind words of support to Kathy. All patients going through treatment need that support and in a way I think it is a duty for those that have gone through treatment and got through it with the support of the thread, to come and give support back.
Thank you for giving all that important information about your experiences going through treatment. It is invaluable.
Thank you for that information about the use of carboplatin. It sounds as though it is a drug to be used with caution, and only if really necessary. It seems to me that all younger women should be tested genetically to see if they have these faulty genes, to determine whether carboplatin is really necessary.
I did not experience much difference between the different drugs, although I do remember that epirubicin and doxorubicin were being called the Red Devil, because they turn a patient's urine red. I think that for me the docetaxel (Taxotere) was probably harsher in its side effects. On it I lost my eyebrows and eyelashes and had the strange sensations in my feet. My oncologist said that the taxanes definitely cause neuropathy. It was also on taxane that I developed a strange metal taste in my mouth.
I do hope you have enjoyable trips and that you will send us photographs if you can.
Fond thoughts.
Sylvia xxxx
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Hello Flo5,
I have just read your post here and I want to say I am so sorry that you have been through so much. You are so welcome to come here, especially as you are from the UK, and I started this thread in September 2010 especially for UK patients. I thought breast cancer with TNBC was in the dark ages at that time. I do hope you will get some comfort and support here, and that it will help you just to come and get things of your mind.
It is good news that after the trial and two weeks ago, that a PET scan showed that the primary lump in the breast had gone and that the other lumps were reduced in size and that the cancer had stabilised. That is all good positive news.
I do not know anything about a sternotomy surgery but it does sound risky to me. It sounds a bit vicious. How do you feel about it and what are the guarantees of success? It is good that you have found a few people with secondary who have had the operation successfully, have gone on to live well with NED.
I do hope all will go well with the meeting with your oncologist this week. Be sure to let us know how you get on. You will see from Lou's post that she has just been through twelve weeks of paclitaxel (Taxol) and has found it not too bad. Lots of women who have gone through the thread have said that they found weekly doses of Taxol much easier to deal with than the three-weekly ones. I suppose the weekly ones give a lower dose, but more often. It could be that the weekly dose will not knock you back.
It is a good idea to use the cold cap to save your hair. I think this is becoming quite current now. Did you find the cold cap hard to go through or did you manage well? I can understand that your children of 12, 11 and 7 would want their mother to keep the look that they are used to. I am sure it will make you feel much better as well.
I can fully understand what a terribly difficult seven months you have been through since diagnosis. A cancer diagnosis is something really frightening. We go into deep shock and it takes time to recover. All the uncertainty creates great anxiety. Somehow you have to find the strength to get through this and your greatest motivation will be your children. Do you have friends or relatives that can help you get through this? Do not be afraid to ask for help. I do not know exactly where you are in the UK, but wherever you are, there will be cancer charities, such as Hospiscare that can help in all sorts of ways. Most hospitals have support groups that you can join, or you can have one to one support.
I am so glad that you have come to bc.org, because it is a serious forum and is backed by moderators. Are you anywhere near any of the well known cancer hospitals that may be able to help? You have not said what kind of breast cancer you have. You have just said that you have the three negative receptors that make up triple negative. Do you have invasive ductal carcinoma (IDC). This is the most cancer and is used to describe cancer of no special type.
Try to be positive and try to look forward.
Thinking of you and sending best wishes.
Sylvia xxxx
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Hi Flo5,
Welcome to the wonderful group of women who make this forum a special place - it is a place where none of us wants to be. But we each lean and learn from the other. So sorry to hear about your diagnosis - I have never heard of the sternum erosion from clumps of cells - but it is amazing what they can see on the scans isn't it? You must be very frightened - I know I would be - but you will get through this journey eventually. Take one day at a time and take your time to make decisions about your treatment plan. You can share with us on here and if there is any way we can help give encouragement, we will do it. Each of us has been on a different but similar journey and here we are still being grateful for each day and doing our best to live life. Like Sylvia said - get as much help as possible and always accept when it is offered, and do not be afraid to ask for help. Take great care of yourself and rest your body when you can so that you can build up your strength and energy for the journey ahead.
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Hi Sylvia and Adagio, thank you for the welcome.
Yes the bc is IDC. AS for the sternotomy, no I'm not scared, I will never feel fully like I can try to fight this until all the cancer is out of me, having a sternotomy will remove the chance of it just being left to spread through the bones. Sternotomy ops are quite common for people with lung problems, the recovery is similar in time to a c-section and I have been told that the more you do the better you feel. I am pushing for the surgery, I just need this lump to reduce in size. I have been investigating the benefits of cryoablation vs more chemo in the desperate hope of avoiding more chemo but I think I have to accept its the best thing to do for now.
I am taking lots of supplements and off label drugs to help, is anyone taking anything?
I am based in the midlands but I don't really want to go to any hospitals for any sort of support or anything unless I have to be there for medical appointments, I am working and have 3 children so I am pretty busy. I have good friends and a fantastic partner who supports me and talks to me if I need to have a rant!
Cold cap is bittersweet really, its after you are grateful you've done it but at the time it can be painful and tiring and I previously had to wear it for 4 hours plus so at least with a shorter weekly infusion of paclitaxol it won't be so long.
I have been trying to read all of this thread but it is so long I don't think I can get through it!
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Hello and Welcome Flo5. There is a plethora of support here. Many experiences. If you are able, update your profile signature to include your diagnosis and treatments. That way others that are similar can weigh in on their experiences. I personally found that helpful.
I drink a lot of green tea. When I do breakfast shakes they always include organic matcha green tea powder, tumeric, flax and chia seeds. I also take holy basil and other basic supplements. Of course while on chemo check with your medical oncologist on certain supplements as some can block certain chemos. I also try to eat lots of fruits and vegetables, no red meat or pork. I still cook those for the family occasionally but i don't indulge. The only dairy I use is greek yogurt. My most important thing: hydration. when I forget all sorts of things crop up.
Kathy so sorry your sister is going through this. She is very fortunate to have you and your support.
Lou, you are almost home free. Congrats on finishing up Taxol. I hope you enjoy your trip. One of my favorite parts of the world.
4everstrong so happy to hear from you my fellow sister.
Sylvia and Mary, Adiago and all others I've missed thanks so much for keeping this thread going. We are all in different stages, but support is always needed for this dreadful journey.
val
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Hi Ladies,
I must have over-stretched myself and thinking I can resume life as pre-BC because I ended up being admitted in the hospital yesterday. I had fever which started from sneezing & runny nose the day before.
So far the fever subsided already and all my test are good like blood test, swab test, urine test & chest x-ray. They just gave me flu medicine once last night & tamiflu this morning. They said it could be just a viral infection but still keeping me to monitor my condition. I feel no pain and my energy level is good so far.
Sylvia & Val - Thank you for your kind words.
Yes, I will have every 3 months check-up alternating in between my BS & my MO for a year or two then they will change it to every 6 months and then yearly after that.
Mine also is like a soft cushion of my soles under the feet and no pain as well. For my hand is only at the tip of my fingers. I will try what you are doing to relieve it.
Best regards,
Lou
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Dear Lou,
thank you so much for your message, I am so glad to hear that you are now moving on from your chemotherapy treatment and that you held in there and got through it. It is lovely to hear that you will be going to Malaysia next week and the Philippines in June! It has been a long journey for you and now you have some lovely trips planned which is the most wonderful news, being able to take time out to enjoy life again post treatment and have new uplifting experiences travelling and visiting wonderful places. I really hope that the sensations in your hands and fingertips continue to subside with time, I am glad that it is very mild and that you hardly notice it at times. I am starting to understand a bit more the side effects of chemotherapy treatment. I hadn't heard about baking soda or salt to use as a mouth wash, I will let my sister know about any precautions that can help her avoid mouth ulcers. I really hope that with time your appetite will start to improve too, and hat you continue to go from strength to strength. I feel that the travelling next week will really lift you in a positive way and its lovely to hear you did a happy dance :-) I hope you have a lovely time away xxx Dear Lou, I am so sorry, I just read your recent post, I hope that you are starting to feel better and that you will be discharged soon, our thoughts are with you and I hope that you start to feel better very soon xxx
Dear Flo5,
I am really sorry to hear all that you are going through since diagnosis, the emotions you have been feeling is the same as my sister who has been devastated since her diagnosis a month ago. With the size of her tumour and nodal involvement she has really been struggling with her emotions and living with this day to day, especially as her children are so young (20 months and 6 years old). Like you, nobody knows them like she does, she is the closest to them and she is trying to be as normal around them as she can. No matter what the Dr's say there is always hope, you have enormous strength deep inside and each day carries new hope. Even taking time out to meditate, positive thoughts and affirmations, you are taking supplements and you are looking for the best treatment options too. Keep doing all the things you are to build your strength up, if you're about to start paclitaxol then you'l be ready for it, you can do this, stay focussed on all the things that will help you get through this. Like Adagio said, have plenty of rest when you can to build up your strength for the journey ahead, you can get through this.
Dear Val, Sylvia and Adagio, thank you so so much for all your messages of support and advice, this forum is a place where I feel safe and there is so much love and support for everyone. My sister is starting to really struggle with the side effects of her chemotherapy now, she is at the hospital today having further biopsies, metal clips and coils put in. She wasn't well at all the last two days. Sorry I haven't been on the forum, I was reading as much information as I could find on her regimen, and emailing some doctors to find out all I can. I wish I could write more but I am going to ring her now to see how she is getting on, I will be back on the forum soon.
Sending you all lots of love,
Kathy xxxxxxx
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Dear Lou, I really do hope that you are alright today, sorry I haven't written more, I have been on and off the phone to my sister as she has been getting abdominal pain and leg pain so I have been waiting for her to ring me on her way to the hospital. I really hope that you start to feel better and that the fever has gone down now. Hopefully you will be able to go home soon, try and get plenty of rest, sending you lots of love and thinking of you xxx
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Dear Flo,
There is a lady called Vicky under the name thriceblessed , she also had two large tumours and a large tumour under her chest wall, and she is 8 years post treatment, she is proof that with a strong will and determination you can get through this, she may have useful information for you. Please stay strong, have plenty of rest, do your best to keep your energy levels up with foods you can tolerate whenever possible. You can get through this, sending you lots of love,
Kathy xxx
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I have been ringing around different places today to find out more about treatments e.t.c and I came across this website https://www.triplenegative.co.uk/ten-point-plan/
I found it useful as it has lots of information condensed into one place.
I thought I would share it in case it can help us,
Kathy xxxx
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I found an interesting video/film today, I plan to watch it over the next few days. Even though it is not directly about triple negative, I still found it extremely interesting and empowering. I wouldn't advocate any of the methods used as I know nothing about the methods or the safety around them. But the video gave me a lot of hope. xxx
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Hi Kath,
Thanks for your concern. It means a lot to me.
I am well and good now. I was discharged from the hospital yesterday. It was an upper respiratory tract infection but I am monitoring myself cautiously now.
Indeed,looking forward for the upcoming trips.
Sending your Sister healing prayers. Hopefully, she will feel better soon.
Best regards,
Lou
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Dear Lou,
I am glad to hear that you have been discharged from hospital and that your at home now. Yes, keep cautious and rest well to recover fully. I think upper GI tract infections can sometimes linger a bit so best to stay cautious and monitor. Hope that you feel a lot better just being back at home now too. You've got lots of exciting trips ahead so you want to be better for those, keep taking it easy. My sister is feeling a lot better today, the side effects have worn off a bit today thankfully. Speak to you soon, Kathy xxx
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Hello Val,
Thank you for popping in to give support to our new women.
I was interested to know that you drink a lot of green tea. I drink loads of it as well on a daily basis and I drink a mixture of leaf tea, pure green tea bags and decaffeinated green tea. I usually buy Clipper brand.
I was interested to know that you also have organic matcha green tea powder. I would like to get that but it seems very expensive here. Do you buy it on line?
I also have turmeric but I buy it fresh and cook it with carrots and vegetables and just eat it.
Like you, I eat lots of fruit and vegetables with the emphasis on the cabbage family vegetables and berries. I do not eat any meat or poultry or any dairy products. I think dairy products should be avoided like the plague because of the growth factors in them. I eat some oily fish, mainly wild salmon. I am now steering clear of eggs.
I eat pulses, beans, seeds and nuts.
I avoid sugar.
For the past nearly twelve years, I have been eating bitter apricot kernels. I also have tempeh, sauerkraut, and miso.
I hope all is going well with you.
Fond thoughts.
Sylvia xxxx
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Hello Lou,
Thank you for your post. I was sorry to read that you have been unwell and that you ended up in hospital.
I was glad to read later in the post that you were back home. Please take it easy and look after yourself. Remember you have just finished toxic chemotherapy and your immune system will need a lonf time to recover. Your body does not just bounce back. I know you eat healthily so that will help. I used to take immune booster supplements for quite a time after finishing treatment. I took pycnogenol and astragalus. I still take these from time to time if I feel low in energy.
I do hope you will have an enjoyable time during your holidays.
Thinking of you.
Sylvia xxxx
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Hello Kathy,
I was sorry to read that your sister has been suffering side effects so soon after starting her chemotherapy treatment. Usually the side effects build up as the treatment progresses. Is she taking the medication that you are given to take at home for the first two or three days. It is usually standard now to give Neulasta shots after the chemotherapy session to deal with keeping white blood cell counts up. Has she been told why she is having abdominal pain and pain in the legs? What are the various biopsies and clips all about?
Thinking of the two of you.
Sylvia xxxx
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Hello Kathy,
I was glad to know that your sister is feeling better today.
I do hope she is keeping well hydrated. Water is probably the best way but if she feels fed up with water, she might like to try cartons of pure coconut water. One brand is Innocent. It is very refreshing and contains electrolytes, without all the sugar that the pharmacy version of electrolytes has in it. If it were me I would not drink juices.
As I have said before she needs plenty of rest and an optimistic outlook as she looks forward to being beyond treatment.
If it were me I would eat a simple diet and a mixed diet. Raw food is not recommended during cancer treatment because of the risk of infection. It is mainly salad and seafood that is risky.
She needs plenty of peace and quiet and calm and not to be overloaded with information. She just needs to concentrate on her chemotherapy.
I looked at the link that you posted, found it interesting but from the point of view of a cancer patient it is information overload.
I recognised a couple of names there. Dr Nicola Hembry is the nutritionist I saw in Bristol back in the summer of 2005. I had just one consultation but was advised to have conventional treatment and too have a healthy mixed diet. I saw her name in icon magazine back then and subscribed to the magazine and joined up with Cancer Active and Chris Woollams. He does interviews with cancer patients. I also recognised the name of Patricia Peat, whose name I also saw in icon magazine.
If you still want a second opinion, I would think that the Royal Marsden Hospital in London is one of the best.
As for cancer consultants, Dr Karol Sikora is supposed to be one of the best. He is often on the radio and television. I did write to him once in the early days of my diagnosis and got a friendly email back.
I do hope all this will help you and your sister.
Fond thoughts.
Sylvia xxxx
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Hello Flo5,
I just wanted to pop in to ask how things are going with you. Have you had any more appointments fixed to progress with your treatment?
Thinking of you.
Sylvia xxxx
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Hello everyone,
As you can see, I have been busy catching up.
I am wondering how the rest of you from the group are getting on.
Hello to our American ladies, Pam, Rhonda, Mary (hope you are enjoying yourself on your cruise), and Val.
From Canada, adagio. Are you having a busy summer?
From Australia, Kath (Kathesward).
From the UK, Amanda, when do you leave for your holiday? Have you said hello to Kathy and Flo from the UK. Kathy is posting on behalf of her sister, and Flo is going through treatment.
Hanieh, what is happening with you in Iran? I read that you are having general elections on Friday.
Thank you, Lou, for your strong support in recent weeks.
To everyone who keeps the thread going, either by posting or viewing, many thanks.
Hello to our two gentlemen, Tom (breastcancerhusband) and Michael (chatterbox). It would be nice to hear from you if you are still around.
I am now just 38 days away from 12 years since diagnosis on June 20th 2005.
Best wishes to all.
Sylvia xxxx
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Hello everyone,
I thought you might like to see some photographs taken in the grounds of our apartment complex.
Enjoy!
Sylvia
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Hello to all our American Ladies. I do hope you are all having a great Mother's Day. Adagio, I hope you are being spoiled today.
Best wishes, Sylvia. xxx
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Thank you Sylvia for the beautiful pictures!I finished one week of radiation with only 30 more to go!I miss tomorrow and go for my once every three week injection of Herceptin and Perjeta.I hope everyone had a nice weekend.
Rhond
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Hello Sylvia,
Thanks for posting your beautiful garden pictures. You've inspired me to get out of my office and walk today. I hope you're having a lovely day.
- Pam
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hi everyone
Try to maintain some normality in my life now that the wedding is over and it's tough work. Have an achy hip and back which started just after chemo finished in jan which I am of course imaging worse case scenario for. I have nasty osteo arthritis and I thinking had that thecpain before diagnosis but i
can't remember. Doesn't restrict me in any way just feels uncomfortable sometimes because I know it's there. Try to be logical but the nurse in me keeps me keeps think the worse. Will play by ear as it's no worse and I see my oncologist in July. Wedding was beautiful and I didn't have time to feel sorry for myself ha ha. Have enclosed some pics
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Hello Rhonda,
I was glad to know you enjoyed the photographs. I think it is important to cheer up the thread as often as we can, with photographs of nature or our everyday life. We must not let breast cancer rule our lives.
I do hope all will go well with you during all that radiotherapy treatment. I do hope you will get through your three-weekly injection of Herceptin and Perjeta. Keep looking forward until you finish your journey.
Thinking of you.
Sylvia xxxx
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Hello Pam,
I was glad to know that you enjoyed the photographs. I was especially glad to know that I gave you inspiration to get out of the office and have a walk. I hope you enjoyed that walk.
Today in Exmouth we are having some well needed rain, but it would be nice if it rained during the night and not during the day!
Today, May 17th, it is exactly eleven years since I was in hospital for my surgery. It was the worst time for me because I hated being away from home for five days. I found the six months of chemotherapy preceding the surgery much easier because I always went home. I am now counting the days until June 20th this year when it will be twelve years since I was diagnosed.
Sending you best wishes.
Sylvia xxxx
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