Calling all triple negative breast cancer patients in the UK
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Hello Moth,
Thank you for your post. I was glad to know that you are doing well so far on radiotherapy and I do hope that this will continue. There should not really be any skin irritation if everything is being done properly and you are keeping the area well moisturised. Fatigue is probably a personal thing and something that can build up just like the chemotherapy as treatment goes on.
I hope all goes well with your studies. What exactly are you doing?
I understand that you are going to be busy, but I do hope you will pop in when you can, because without posters threads disappear.
Sending you best wishes.
Sylvia xxxx
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Hello Helen,
Thank you for your post and for bringing us up-to-date with your treatment. Try to hang in there and get your radiotherapy finished.
Reading through all your details again, I can see that you have had a very hard time since 2013 and I do hope that this time you will be able to put everything behind you.
I can understand that you are disappointed to be doing more chemotherapy, especially as you have had a bilateral mastectomy. Reading through some of the other threads I can see that some patients are having a bad time on capecitabine (Xeloda). Have you asked your oncologist why she thinks you should have this? Is it just because of latest research showing up to a ten percent increase in survival rate for patients with a tumour receptor status of triple negative and who did not get a full pathological response to neoadjuvant chemotherapy? I thought the idea of giving chemotherapy first was to shrink the tumour, but not necessarily make it disappear. I had this pre-chemotherapy and the tumour shrank but did not disappear. I then had my surgery, followed by radiotherapy and I was not given my pathological results until after I had finished the radiotherapy. Radiotherapy is supposed to mop up any stray cells. I was told that I had an excellent pathological report and that there was no evidence of disease (NED). I also had a CT scan and a bone nuclide scan before I got this NED status.
How are you doing so far on Xeloda?
My own personal opinion is that the more drugs you have the more compromised your immune system becomes and the less able to fight. That seems common sense to me.
I was so sorry to read that the peripheral neuropathy in your hands and feet seems to have worsened and that you are still having problems with fluid in your chest. I was glad to know that the fluid has dramatically decreased.
I do hope you will have some improvement with the lymphoedema and that it will stabilise to make it manageable. Have you tried the manual lymph massage? You should have been shown how to do this. Have you been to see a lymphoedema specialist?
I can fully understand that you are feeling down and are getting fed up with treatment. With radiotherapy finished, you really do need a break to build up your strength and health again.
Please come here to talk to us as much as you like if it helps to give you a bit of peace of mind. Look forward to October 10th when your radiotherapy is finished. Have you been having radiotherapy in the same place as you had it before? I did not think that could be done.
Can you explain what a level 2 lymph node dissection is?
Did you take anti-hormonal drugs between your first treatment in 2013 until 2018 when everything started again?
Thinking of you.
Sylvia xxxx
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Hello Gill,
I have read your post and I shall try to answer later on today.
To Susie,
Did you read my post in which I explained how you can put in your details?
To DLJ46,
Thank you for your PM. I shall try to reply later on in the thread. I do wish you would consider posting in the thread so that others can benefit from reading your posts. I do believe that the thread has to be a two way process.
Best wishes to every one.
Sylvia xxxx
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Hi Sylvia,
Yes, I did read the post about my details and went to My Profile and put them in and they are not appearing.
(That's not me sticking me tongue out at you, btw, it's more of a 'bloody technology' thing!)
Cracked it (with a little help from a friend).
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Hello Susie and all,
Yes, the site can certainly be a challenge sometimes.
I kept losing comments at first. Still don't know where I was going wrong. Suddenly ok, though.No idea what I finally did right..
Lovely warm sunny day here, hope it's the same where you are.
Love,
Gill X
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Hello Susie and Gill,
Susie, I did like your emoji. I am not into technology. It is my husband, Raymond, who is the techie when it comes to computers. He has been working with them for many years. He explained to me how you get your details but I thought it was involved and that there should be an easier way. I have no idea why your details are not appearing. Do not let it worry you.
Hello Gill,
I agree with you that the bc.org site can be a bit of a challenge and it would be nice if it could be simplified. It must be quite difficult for new patients to find their way around it all. I tend to read our thread and the TNs and from time to time look at Active Topics. Have you tried putting your details in? It is so useful to have them as a point of reference. I find computers quite tiring. They are often slow and they go wrong. I also find the constant updating from Microsoft and others quite irritating! It is sometimes like having a third person in our home!
Do you post in the thread itself or do you do it through Word (or similar) and copy and paste?
It has been a fairly warm day here in Exmouth, but we are in urgent need of rain.
I do hope you and Susie and all the people on the thread have a good week.
Love to you both.
Sylvia xxxx
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Hello Gill,
Thank you for your latest post. Try not to dwell on all the bad news. Concentrate on getting whatever treatment you can and never give up hope. Keep telling yourself that you are going to get through this.
Love.
Sylvia xxxx
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Hello DLJ46,
Thank you for your latest PM. I think it would be good for you to come and join us on the thread. Like that other patients will be able to read what you have to say and benefit from your knowledge and experience.
It looks to me as though you are doing everything right to help yourself. You seem to be doing a mixture of everything.
It is sometimes good to attend breast cancer support groups and to mix and hear other peoples' experiences. I would not say that TNBC is in a separate category. It is only the receptor status – oestrogen negative (ER-), progesterone negative (PR-) and HER2 negative (HER2-) that is different. The treatment will be the same, surgery, chemotherapy and radiotherapy.
The other receptor statuses are ER+, PR+ and HER2-. This seems to be the most common. There is also ER+, PR+ and HER2+ and I think the HER2+ makes this most aggressive, even though you can have Herceptin to treat the HER2+. My friend had this, which we call triple positive and she died of it.
What kind of breast cancer do you have? The most common is known as invasive ductal carcinoma (IDC) and is used to describe breast cancer of no particular type. Then there are the rarer ones, such as lobular breast cancer, inflammatory breast cancer and metaplastic breast cancer.
Those breast cancers that have hormonal positive receptors can be treated with oral drugs after standard surgery, chemotherapy and radiotherapy. Patients seem to be put on them post standard treatment for about ten years and my information is they are no walk in the park and have all kinds of side effects. I was always glad that I was triple negative and that after standard treatment I could get my body and immune system back to normal.
I was glad to know that getting a dog has helped your children and you.
I was glad to know, also, that you have good support from your husband. That is so important.
I do hope you will join us on the thread and get to know the other people. It would also be useful if you could put your details in your profile.
Fond thoughts.
Sylvia xxxx
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Hello Gill,
Liz my wife had TNBC 7 years ago. We are in Watton, Norfolk. We both agreed that a double mastectomy was best in our case as it gave us piece of mind. Liz was 41 at the time. Things do get better but it takes time. We counted the months after treatment and did not start to relax until 2 years had past. After we had reached the 5 year mark we have not thought about cancer so it does get better. We travel a lot in our motorhome and the last 2 weeks we have visited France, Switzerland and Germany. We will be back in Norfolk Tuesday evening ready to start planning our next trip.
Peter
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Hi everyone !
Its been a hot minute since i have logged on here - i took a 3 month hiatus off the internet after mum finished treatment !
How is everyone doing! I hope you all enjoyed your summer and are keeping well and healthy !!
Mummy bear finished chemo and radiation therapy ! She finished chemo the first week of june, then started radiation first week of july which lasted 3 and a half weeks. She got on with radiation really well, her skin healed up quite quickly as it was peeling massively at some point. She went through radiation while the heat wave was burning london ! Didn't make it easier for anyone but she got through everything else just fine!
Her hair is finally coming back in and her lashes and brows are back and better than ever. She is getting stronger physically and mentally everyday and has resumed to her daily routine as normal.
She is currently on mistletoe treatment for the next 2 years also !
I just wanted to say thank you to all of you for being there for mum and i during the hardest time of her life. She persevered and pushed through like a trooper with the help of all you wonderful women !
I cannot thank you or be grateful enough.
Thank you x
Sarah
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Hello Peter,
So pleased that Liz is now clear. Always very happy to hear the success stories and there seem to be many many more than the research papers suggest. Unfortunately, my cancer is a very rare variant of triple negative ie metaplastic. It's very much more agressive and tends not to affect the lymph nodes, but enters the bloodstream instead. Being so rare, there has been very little research. It often fails to respond to chemotherapy, although, there are a few drugs that work on some metaplastic cancers.There are even rare subtypes within this rare cancer and my subtype is spindle cell, which is actually the best one to have. It is not unbeatable though and I fully intend to give it a run for its money.There is now some research and a trial happening in Huston which looks very promising and I think more good news will follow.
How did you find the NNUH? Did Liz have to push for a double mastectomy, or was it offered? How were waiting times when Liz was diagnosed? I had my core biopsy on August 24th and my surgery is planned for October 10th which just seems too long to wait. Everyone very kind though.
Enjoy planning your next trip.
Gill
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Hello Sarah,
When I opened up the computer this morning and read your PM it made me feel so happy and I thought to myself that the week was beginning on a good note.
I shall answer it in more detail later today. It is wonderful news that your mum has come through all this. I was glad to know she will go on mistletoe (Iscador) for a couple of years. Please remember me to her.
Thank you for coming back on the thread.
Love.
Sylvia xxxx
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Hello Peter,
I do love it when you pop in to see us and I am glad to know that all is well with Liz.
It is strange but I thought of you when Gill joined us because of the Norfolk connection and I had a strange feeling that you might pop in.
I was glad to know that you have been enjoying in your motorhome.
How is your son?
Very best wishes.
Sylvia
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Hello Ladies,
It has been 5 months since I last posted. I am doing well for now. I have been busy with family commitment and my parttime work.
It’s been raining here for the past few weeks in Singapore and I like it a lot. July and August was the worst. It was too hot and humid.
I will be having my yearly mammogram on 12 Oct.
Welcome to the new ladies and I am sorry that you have to join us here but you will find a wealth of knowledge and good listening ears here as you go through your journey.
It was nice to know that you are traveling Mary. Traveling really help keep our mind off BC.
I really appreciate your dedication to this thread Sylvia. You helped me get through a lot when I was going through my treatment.
Kind regards to Pam, Marias, Hanieh. I hope you are all doing well also.
Warmest regards,
Lou
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Hello Sylvia and everyone,
Hope you don't mind my remaining on the TN site, despite being metaplastic TN. The metaplastic site is so small, though I've now made a good friend and survivor via it. Also people don't tend to stay with the site as they do here, possibly feel a bit isolated.
So, as the hospital can't operate for another month and I can't have chemotherapy to shrink the tumour as it probably wouldn't work and as it's particularly aggressive, I have arranged for a second opinion as a private patient. This happens tomorrow afternoon. Don't like doing this at all, but feel that I can't just sit back and do nothing. Found out that my apparently clear lymph nodes are a bit of a red herring, as this cancer doesn't use the lymphatic system in the same way as other TNs. However, I'll push for chemo after surgery because some chemos do work very well to mop up stray cells on some people and not at all on others. I'll be looking at your experiences of chemo. What on earth is the red devil?
Meanwhile, I've never eaten so healthily in my life. Husband dismayed to find himself doing the same.Think he might be sneaking the odd chocolate bar though. Anyone using turmeric and black pepper? Not taking anything else, just good food.
Susie, hope your radiotherapy is all organised now.
Love the can-do positivity on this site, it really gave me back my confidence.
Love,
Gill
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Hello Lou,
What a lovely surprise to see you back on the thread after five months. Of course we had not forgotten you.
I was so glad to know that you are doing well and I fully understand how busy you must be with family commitments and your part-time work. I do hope you are enjoying your work.
I do envy you your rain. We are desperate for it here in Exmouth. We have not had much rain for nearly three and a half months and when it does rain in parts of the South West of England, it misses Exmouth! Our grass looks dreadful.
I do hope you will have good news when you have your yearly mammogram on October 12th.
Thank you for welcoming the new ladies. We have quite a few. We have Monica from the US, Moth from Canada, Helenloiuse from Australia, as well as Cocooncat. We have SusieW5 and Gill from the UK and, also from the UK, we have Ellen and Flora, both of whom are posting for their mothers.
You will remember Mary, of course, and she has been such a supportive poster on the thread. I think you will remember adagio from Canada, who still pops in from time to time. Kath from Australia is a regular poster. I do not know if you remember Val from the US and 53Nancy from Canada. I do hope I have not left anyone out.
You mentioned Pam. She has taken a break from the thread but I do hope she will pop in from time to time.
Marias from Colombia, South America, had a lot of problems and then went to Sweden to look after her mother. The last time she posted from there she said she was having trouble getting on the internet. I do miss her and hope she will get back to regular posting.
Hanieh had a recurrence but has got through it. She was trying to move to Turkey and we have not heard from her in a while. I do hope she will get back to us soon.
You will certainly remember Gina from the Philippines. She did leave for a while and then popped back to say she had had a recurrence. She was also having trouble with the internet, but I hope she will get back to us.
Thank you, Lou, for your kind words to me. I can hardly believe that tomorrow, September 12th, it will be eight years since I started this thread. I started it because I thought that we were in the Dark Ages in the UK with breast cancer with triple negative receptors. It has turned out to be International and has been so interesting. It is strange that I discovered breastcancer.org by accident when I was researching about an overactive parathyroid gland and a connection with breast cancer. I was diagnosed with both at the same time, way back in 2005.
I hope you will pop in when you can.
Love.
Sylvia xxxx
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Hi Gill,
The red devil may be Epirubucin, which turns your urine red for about 24 hours, starting within minutes. They advise drinking two litres of water after having it to flush.
Susie
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Dear All,
I was wondering what people who had been through treatment and out the other side did about alcohol. I've always enjoyed a glass of wine but it does seem to be implicated in breast cancer.
I gave up all alcohol a couple of days before starting chemo in April because it seemed mental to be adding more poison to the ones I was having in my veins (I recall that Jennifer Saunders tok the opposite view). Didn't really miss it and have no particular interest in starting again, although I did have half a glass of Prosecco at Book Club on Sunday afternoon, which I enjoyed.
So, I was wondering what other people's experiences were.
Susie
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Hello Gill,
Thank you for your post. I certainly would like you to stay with us and we shall support you all the way. Like the rest of us, on the thread, we have all been diagnosed with these triple negative receptors and we are all together with this. Most of us were and are diagnosed with invasive ductal carcinoma (IDC) which is the term used for breast cancer of no particular type. However, there have been all different kinds of breast cancer patients on here with different types from DCIS, Inflammatory breast cancer, lobular breast cancer, and indeed metaplastic breast cancer. I remember clearly Dulcie posting with this kind of cancer. We also had some popping in who had hormonal breast cancer, if I remember correctly, and of course some have mixtures in their tumour. I think we all know now that cancer cells mutate and they can change. I remember my oncologist telling me that my triple negative receptors may not have started as such.
You are most welcome here.
I am glad that you have found a good friend and survivor on the metaplastic site. You need that to get support, but, above all, in order to be optimistic and determined.
I was so glad to know that you have arranged for a second opinion as a private patient. This always works wonders. I do hope this will be of great help to you and please let us know how everything goes.
You are quite right to do what you think will be best for you.
You asked about the red devil. I remember when I was doing chemotherapy and that I was having epirubicin (Ellence) that the chemotherapy nurse looking after me told me that I would have red urine after epirubicin and that its nickname was the Red Devil, presumably because it is red and some people find it difficult. The other chemotherapy drug in the same group is doxorubicin (Adriamycin) is presumably also red. I asked my oncologist why I was having epirubicin rather than doxorubicin and she said it was because it was less harmful on the heart, but I would think they are the same. Back in 2005 I got the impression that epirubicin was more common in the UK and doxorubicin more common in the US, but I do not know if that is true now. With my own chemotherapy I found the first three months on EC, epirubicin and cyclophosphomide (Cytoxan), was quite easy on me and I did not seem to suffer any side effects except the inevitable hair loss. I think the taxanes, either docetaxel (Taxotere) or paclitaxel (Taxol) had harsher side effects, but they came on after treatment and are chronic. Remember, we are all different and we all react differently.
I do know that doxorubicin and another drug, fluorouracil, are the oldest of the drugs and that will no doubt include epirubicin. They are known as first generation drugs. I know that doxorubicin dates back to 1956!! The taxanes are much more recent.
There is a lot of talk about immunotherapy drugs that somehow work by boosting the immune system. You might want to ask about these at your interview.
It is good to know that you are eating healthily. I think that a good diet, I believe in the Mediterranean diet (see Chris Woollams, Cancer Active), is essential, along with regular walking, and a positive attitude, free of stress, is important to get through a cancer journey and survive. It is good to know your husband is doing this as well. You might want to introduce him to healthy black chocolate (100% cocoa). The best that I have found is Montezuma 100% cocoa solids. You can also get it with almonds or with orange flavour. This is good for you as it is full of magnesium and no sugar. Remember, we are told that cancer cells feed on sugar and there is a huge amount of sugar in one small bar of milk chocolate. Remember, too, that cows' dairy is bad for us because of the growth factors in the milk from the cows.
We have all been interested in food and nutrition on this thread from the very beginning and I would think we have all tried most recommended good foods. There is a lot of information about turmeric. I have tried the powder and mixed it with organic hummus and black pepper. I go on and off it. Most of all I prefer fresh turmeric, which you can get in some green grocers. It is a member of the ginger family and both are anti-inflammatory. When I buy these I put cut up fresh ginger root and cut up fresh turmeric with cooked vegetables, such as carrots. I also cook all this with red onions as a pre-biotic.
I am so glad you like the positive attitude on the site and that it has helped to give you back some confidence.
Keep with us and take care of yourself.
Love.
Sylvia xxxx
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Thanks for the dairy tip. Strangely, I rarely drink milk or have cream or yogurt, but began including semi-skimmed milk and low fat yogurt in my diet because of the cancer. I'm now changing to almond milk or soya. Giving up yogurt completely as I've never really liked it. Just sent out for the chocolate!
Gill X
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Hello Gill,
I was glad to read you are getting off dairy.
I have been drinking Alpro unsweetened almond milk or Alpro unsweetened soy milk for years. I was drinking unsweetened soy milk back in 2005 when I was first diagnosed. It is very important to have some plain unsweetened yoghurt in your diet and you need to buy one with live cultures (probiotics) to keep your gut healthy. I buy Sojade unsweetened plain soy yoghurt with live cultures or Provamel unsweetened plain soy yoghurt with live cultures. Both of these are organic. With the Provamel you can also get one almond flavoured and one that is coconut.
Let me know what you think of the chocolate.
On a different matter, I was having a look on the All topics and did some reading on one of the metaplastic threads. I rediscovered Dulcie on there who used to post here some years ago and she had metaplastic. I was surprised as I was reading through to read a post which said there was another metaplastic thread Metaplastic Breast Cancer Now and that it was more active. Unfortunately I could not find it. The post was asking how to get the other one deleted so that there were not two running at the same time. Do you know about this?
I like to keep up-to-date with as much as I can. There are so many different kinds of breast cancer and so many possible variants within a tumour. It is mind boggling really! What I gathered from that first thread I was reading was that at least when it started, I think about 2012, most patients seemed to be going through chemotherapy, radiotherapy etc. much the same as the rest of us. This may have altered in 2018.
Love.
Sylvia xxxx
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Hello Gill,
7 years ago the waiting list was about 4 weeks but that was at the end of July to the end of August so when the hospital would have had a lot of holidays happening. Liz's surgeon said Liz could have what ever she wanted. Our only problem came when we wanted to know the percentage of people that lived for 5 and 10 years. We had to ask about 10 times before he would show us the figures, but to us that was the most important thing so we could plan what we did next. luckily we are still doing what we wanted to do 7 years later.
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Hello Sylvia,
Taylor our son is now 18 and doing well. We have left him for 14 nights this time. I did have his older sister come over and check on him 4 times we were away. We have returned today and the house is tidy so that's good. He wants to do Maths and English GCSE's this year as he has not done any exams as we home schooled him. This is his choice. As long as he is happy that's all that matters at the moment.
We have just returned from our latest trip Through France to lake Annecy onto Chamonix and into Switzerland. Back through part of Germany and now home.
Liz is still having tests to find out why her joints and muscles are aching so much but while she can get out and travel we will continue to do so.
I still skip through this page once a week but no longer read the posts in great detail but I did see the Norfolk and Norwich hospital mentioned.
Peter
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Hello again,
I'm not going to ask about statistics, but I don't think my surgeon would be too keen on giving them to me. Since having my diagnosis I've searched through so many numbers and have come to realise that thay all seem to rely on averages. That's just not accurate. Also most follows ups stop at 5 to 10 years, so many people go on into old age without ever being recorded.
Thanks for yours and Liz's very encouraging story. All this good news has helped me so much. I guess people who have posted on this site, just beat the cancer and move on, so lots of good news never appears.
Enjoy your next jaunt. I just hope the weather picks up so that I can get the full Norfolk in Autumn experience.
Love,
Gill X
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Oops, should have said 'hello again Peter'
Gill X
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Thanks Susie,
That looks very promising and upbeat.
Just had a very quick look at the first bit. Going to visit the site again shortly. I'd been to the Bena Roberts site which is very informative, but not for me. Hearing how many girls had been lost was just too difficult. Bena's a real fighter though and very feisty.
Hope you've had a good day. Cold and rainy here so might be time to put the logburner on.
Take care,
Gill X
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Hello everyone,
Just thought I'd pop in to report on my mum's treatment and say hi.
Well, she's almost three weeks into her first cycle and about to start her second on Saturday. It's been a mixed picture. She had a rare allergic reaction to the one of the anti-sickness meds at the very beginning, but this was diagnosed and dealt with very efficiently by the JR hospital. A week later, she started feeling hot and cold, took her temperature, and it had risen to 38.1, so she went into hospital and spent 5 days there on IV antibiotics until her temperature came down and her neutrophil level went up.
We always knew the latter was a common occurrence during chemotherapy- and the doctors were never very concerned, but any hospital visit always adds a bit to the anxiety-levels (anyone who read my past message about my recent 4 day stay in hospital for suspected but misdiagnosed cervical cancer will understand that any emergency hospital admission leaves me feeling a bit wobbly!)
To balance the picture for anyone new/facing chemotherapy: the rest of the cycle hasn't been too bad. She has not been sick once (which she's so pleased about), bowels have been fine, and the only major symptom has been deep fatigue. She is up to pottering round the house and round the block, and has a few visitors, but does spend a fair portion of the day in bed. She is not really feeling ill though(even while she had her infection) and her morale is not too bad. She is 73 though, and the deep fatigue may in part be due to the effect of chemo on a "more elderly"person.
Gill - it sounds as though you are getting lots of support on this brilliant forum. What a whirlwind it must all be for you-a rare subtype of a rare subtype of cancer, where it is hard to find much research. In your case, I think your seeking a private second opinion is absolutely the right thing to do. In fact doing all you can to find her oncologist who has seen the most cases of your type of tumour (luckily Google makes this much easier these days)
When my mum was first diagnosed, I set up a second opinion with a triple negative expert at Guy's Hospital, London. It was really helpful as our initial consultation in Oxford had suggested that my mum should not have chemo, despite it being the only real option in Triple Negative IDC tumours, because she was over 70. The second opinion oncologist absolutely turned this on its head and said of course she should have chemo, being generally fit and well. He said he would definitely have advised his own mother to have it at 73 if she had been in a similar position. He then referred us to a third opinion doctor back in Oxford, who said the same as him!
Susie - think you're in the run-up to your radiotherapy now , or have you started it? Sorry, hard to keep up. Anyway, I do hope it all goes well. You seemed to do very well on chemo- I loved your comment about feeling like the prize patient because the doctor commented you "seemed to have tolerated chemo rather well"!
Ellen: what's her latest with your mum?
Sylvia- I went to a Healthy Eating session at Maggie's cancer centre with a cancer dietician last week. Lots of interesting stuff, which I'll put down in another message. She, like you and Mary, recommended The Rainbow Diet book along with some other books, which I'll track down the names of.
It is an overcast and rather gloomy day here in Oxford, with a definite feel of autumn in the air. My children have all gone back to school now, but, with my mother's various minor crises, I seem to have a lot to keep me occupied. Today I volunteer at my children's school's gardening club. I dread to think what our patch will look like after a summer of neglect, but there should be lots for the children to "slash and burn"at any rate!
Love to all
Flora
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Hello Peter,
Thank you for your post. I was so glad to read that your son, Taylor, is doing well. It is amazing how quickly the years go by. I do hope that he will do his maths and English GCSEs this year as these subjects are so important.
It sounds as though you have had a very good trip in Europe.
Which of these countries did you prefer? How do they seem compared to the UK?
I do hope that Liz will be able to find out why she has these aching joints and muscles, but it is good that you are able to fit in your travels.
It is good to know that you still skip through the thread once a week. It was veery nice of you to pick up on Gill in Norfolk and talk to her on the thread.
I shall always be glad to see you on the thread and please pop in if you feel you can contribute in any way.
It is exactly eight years since I started this thread and I do wonder where the years have gone.
Best wishes to you, Liz, Taylor and your family and happy travelling!
Sylvia
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Hello Flora,
Thank you for bringing everyone up-to-date with your mum's reaction to her chemotherapy treatment. I do hope everything will go fine as she starts the second lot. Fatigue is the most common symptom and it does tend to build up as the treatment proceeds. On the three-weekly regime the first week seems to be the worst and then things start to improve and towards the end of the period patients tend to start feeling normal again, just before they have to start all over again.
I can imagine that having to go into hospital during chemotherapy can cause a lot of anxiety.
I was interested to know about your Healthy Eating session at the Maggie's centre. I look forward to reading about what the dietician had to say. It looks as though things have moved on if the dietician is now recommending the Rainbow Diet.
It sounds as though you are a very busy person. I hope you enjoy the gardening at your children's school.
Love.
Sylvia xxxx
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