Calling all triple negative breast cancer patients in the UK
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hello delivery 3 or 4. hahaha. I joined Netflix but only narco and violence movies come out from Colombia. I don't understand if Netflix has an interest in that being seen here but that is what it is.
I got an app on the Google store play called vpn that allows me for 30 minutes in a row to watch Netflix from any country in the world. we have put from England and you are watching with my mom the series call the midwife. It has been interesting to see how the welfare state there was applied at least on film. We liked it a lot and it seems and makes us feel after seeing it positive. I hope to continue like this and do not become terrifying in the following seasons.
I hope to have other days as calm and peaceful as yesterday and today to continue sharing with you.
Abrazos
Marias
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hello susie..who do you train?
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Kath sad for your fall I trust your body and pride rrecovering
Abrazos
Marias
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Hi Marias,
The views from your apartment are amazing, so much lush greenery. A swimming pool too!
Moving in that heat must have been a complete nightmare for you, I complain if our temperature rises much above 80C. You sound very grateful for the rain cooling everything down for a while. It's been raining a lot in my corner of England but this is to be expected at the end of September/beginning of October. It's not raining today, so far, and the temperature has just struggled it's way up to 11C.
I do hope you will be happy in your new home and that you have friendly, caring and quiet neighbours.
Keep on resting and recovering from your treatment.
Love,
Gill X
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Hello Gill,
I am trying to work my way through a never-ending list of things to do.
I do hope that your colitis is improving. I have seen magnesium skin cream in Holland and Barrett that you can rub in all over your body which then absorbs into the body. I have tried it before and found it good. As for supplements, I have read that you have to be careful taking them and not to stay on them long term.
I would just concentrate on eating magnesium rich foods that do not upset you.
I shall be so glad when the Brexit conundrum is finally solved but I do not think it can be. My own opinion is that Northern Ireland should be re-united with the Republic of Ireland. It is about time the remnants of colonialism were given back to the rightful owners.
I have had a busy day, working in the grounds and doing various other things.
Take care.
Love.
Sylvia xxxx
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Hello Marias,
I have just read all your posts.
The photographs of your apartment complex and the surroundings look very beautiful.
I read with interest all that you said about what is going on in your country. I do wonder when the poor and ordinary people of the countries throughout the world will get any justice and equality. I think this will never happen.
I think that the news we get here is very biased and I do not take much notice of it.
Look after yourself and enjoy each day as much as you can.
By the way, Call the Midwife was a very popular series here based on a novel. I think it has probably gone on for too long.
That is all for now.
Love.
Sylvia xxxx
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Hi, I hope you keep improving. My mom is still better outside the clinic since Friday. I have my next carboplatin chemotherapy on Monday. I hope it goes very well. thanks for your words of support and ssolidarity
Abrazos
Marias
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Hello Sylvia,
I agree about magnesium supplements, I don't take them as I believe them to be unsafe. I'll keep on with the bananas and wild salmon which should help.
I can well imagine that both you and Raymond are inundated with things to sort out at your apartment complex as the cold weather approaches. I hope you save some time just for yourselves.
Now that the cooler, damper weather is here, my joints are aching, especially my knees. This is probably a side effect of chemotherapy. At least I don't have peripheral neuropathy or lymphoedema to contend with.
We visited Southwold after I'd had my flu jab yesterday and went for a brisk walk along the beach to get some fresh air. Very few holiday makers about but plenty of locals throwing sticks into the sea for their dogs to chase after and bring back - very entertaining. The important thing is that everyone seemed happy at a time when the papers are full of gloom and our PM's latest fantasy re brexit.
I had my mammogram three weeks ago today and have had no results back. Usually this would indicate that I have nothing of concern going on, or the hospital would have contacted me. However, after my last experience, I shall be chasing my results up first thing on Monday.
My hair is a mass of curls and very slow growing. I've just made an appointment for my wig lady, who is also a mobile hairdresser, to cut the curls off and try to find some sort of hairstyle for me. I'm not hopeful, but in the great scheme of things, my hair is the least of my worries.
I hope you find time to relax and enjoy your weekend.
Love,
Gill X
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hi sylvia
It's now a little over 2 weeks since my latest shoulder surgery, I am okay but having a harder time mentally, chafing at the restrictions I live with again. Started PT again this week and stitches removed.
So nice to see Marias again!
Sorry to hear of Raymond's a-fib, and that the drug makes him tired. Perhaps there is a different drug he could use?
I didn't know magnesium supplements not good, can u say why? I take a tablet every other day or so.
Fall has arrived here too, all at once. We went from 93F one day to 50F the next day. Now should settle into the 70s for a while. Do you have some nice mums in your gardens?
Talk to you later, love, Mary
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Hola Marias
It's so nice to hear from you! Thanks for pictures of the very nice grounds and pool of your apartment. Are you able to swim at this time? I know you love it.
I read a long article this morning about a young couple from Venezuela who are now in Colombia. They despise Maduro and the poverty he caused. I read of this poverty and am amazed. Most people here have no idea, and also of the violence of the gangs, and government troops. I don't know how this can all be solved, but I only hope that it can be.
I see you are almost finished with your current treatment, hurrah for that. And I see that your mom is better. Good news!
So good you have returned to fill us in on your progress, I think of you often Marias.
Abrazos! Mary
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hi Gill and adagio
Thanks for thinking of me, I am muddling along with my left hand, there is so much I like to do this time of year that I can't do.
GILL, sorry about the colitis, I hope you can find control of that. Also Good Luck With Mammo results, 3 Weeks Seems A Long Time To wait. And with hair, I agree it's the least of our worries but sometimes seems of premium importance. Now I try to style mine with left hand, muy difficulte!
ADAGIO, I hope your hubby has regained his strength. My brother had mostly recovered from his spinal cord injury but last week he was attacked by a mama cow while he was trying to help her baby. Now has 3 broken ribs and she also gave him a kick in the groin for good measure. I feel for him, we are a useless pair at the moment.
I hope you are very well too!
I am off to PT soon, Love, Mary
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Hello Marias,
I was glad to read that your mum is back home. She must be glad to have left the clinic.
I shall be thinking of you on Monday when you have your next infusion of chemotherapy with carboplatin. I do hope you will not have side effects. Let me know how you get on.
Keep in touch with us so that we can try to support you.
Abrazos.
Sylvia xxxx
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Hello Gill,
Thank you for your latest post.
I am sure you will be able to get enough magnesium through your nutrition. I was wondering whether colitis is a chronic condition or will it gradually clear up. Food is always better, in my opinion, than supplements and I have read often that supplements are useful only when there is a deficiency. Out of interest I looked up a chart in my BMA Family Medical Encyclopedia and the chart says that for a female aged 51+ the daily requirement is 270 mg a day. This book also says that a well-balanced diet should provide all the minerals the body needs. There are two charts in this book, one lists the daily requirements of the main minerals according to age, and the other chart lists the main food sources. Under magnesium it lists milk, fish, wholegrain cereals and breads, green vegetables, pulses, nuts and hard water.
The other book I had a look at is the BMA New Guide to Medicines and Drugs. Towards the back of this book it lists quite detailed information about all the main minerals and vitamins. The main food supplies are listed as nuts, wholemeal cereals, soya beans, cheese, and the best being leafy green vegetables.
I have read in the past not to take magnesium supplements long term as they tend to upset the body.
The BMA Drug book says that magnesium toxicity (hypermagnesaemia) is rare but can occur in people with impaired kidney function after prolonged intake of the large amounts that are found in antacid or laxative preparations. Symptoms include nausea, vomiting, dizziness ( due to a drop in blood pressure) and muscle weakness.
Raymond and I do manage to get a bit of relaxation. We shall be glad when next week is over as we have to have major work done on the lift and it will be out of action for three days. We shall be fine without it, but some residents depend on it.
I do understand about your aching joints due to the cooler damper weather. I know lots of people who suffer with this. Again Raymond and I are lucky.
Did you have any side effects from your flu jab? Raymond had his done this week and has been fine. I collected paperwork from the pharmacist and saw that flu vaccine was called Fluad and it has three strains and is made especially for 65+. I did not have a flu jab.
I do hope you will get the results of your mammogram. At the RD&E Hospital in Exeter where I used to have a mammogram from time to time during my check ups I was always given the result straight away.
I do hope you will be able to get your hair cut in a style that you like.
I have just received a new email from Chris Woollams dated September 29th but I have not had time to study it in great detail this week.
Have a good weekend with plenty of relaxation.
Love.
Sylvia xxxx
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Hello Mary,
It was good to hear from you. I do hope it will not take too long for you tog et back to normal after your shoulder surgery. Two weeks is not that long.
I think we are all glad to see Marias back on the thread and that she is getting through her treatment. It would be lovely if Hanieh would now reappear.
Have a look at my latest post to Gill to see about magnesium.
The weather has changed here as well and it is definitely autumn with loads of leaves raining down. We do have a variety of autumn plants to give a bit of colour. I discovered through one of my birthday cards that aster is supposed to be my plant, so I bought one for the grounds. We also have some mums.
Have you received your latest Chris Woollams email? Perhaps we can discuss the contents later.
Have you received your October edition of WDDTY magazine? The shop where I normally get it in Exmouth has changed owners and it was not available. If you have it would you mind telling me what is on the cover?
I do not like the long hours of darkness that we have now. It makes the evenings too long.
Brexit drags on!
Thinking of you.
Love.
Sylvia xxxx
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Hello Sylvia,
I was interested to read in your last post to me, that magnesium is to be found in hard water. Norwich is one of the top hard water areas in the UK. Added to this is the fact that my water source is a deep borehole which makes my water twice as hard as Norfolk water in general, even with a filter. The filter is primarily in place to take out the large amounts of iron. If it fails, we have undrinkable red water coming through the taps. So much hard water doesn't do much for the white bedlinen or taps and washing machine, but suits my oily skin and hair. The inside of our kettle looks like something from Mother Shipton's cave if I don't scrub it out every few days.
As for the colitis, it seems that it is probably going to be a problem for many years. People do go into remission, sometimes for years. My flare-ups are very regular. I have to learn to stick with a bland low fibre diet for now and see if I can learn to control it. On the NHS site, medication for colitis seem a bit like overkill at the moment, especially as I'm only six and a half months out from my C difficile infection.
It's breast cancer awareness month, in theory this should be a good way of raising awareness and money. However, I absolutely abhor the pink fluffy 'sisterhood' notion of the whole thing. Yes, breast cancer is relatively common as cancers go. However it is also incurable. Why do newspaper articles lump breast cancer together as one, when the many suptypes are so very different? Hormone receptive cancers are treatable and if they return and spread they can be controlled for many years. Triple negative and metaplastic cancers, amongst others, are very aggressive and very difficult to treat, particularly in younger women. The very fact that the majority of people are still unaware of this, means that breast cancer awareness month has failed. Meanwhile, manufacturers must be having a field day, colour it pink, tug at peoples' consciences and the profits rise. How much of this profit actually goes to breast cancer charities is another question. You will have gathered by now, that I don't wear a pink ribbon.
Brexit drags on, as expected. I was reading some of the comments on Johnson in today's Guardian. As I'm sure you know, he read Classics at Balliol, however in a talk with Professor of Classics, Mary Beard, Johnson put himself forward to speak first. Professor Beard said that while he sounded impressive, his talk was full of inaccuracies and much of what he said was wrong. This is a very familiar theme with the PM - 'if you don't know, make it up'. I used to think Europe must be laughing at us, now I think they must be feeling very very sorry for us.
We have just had a very wet weekend and many roads have flooded or have warnings on them. Trains have been cancelled as the tracks have flooded and the stream that meanders through our garden is now a raging torrent. Today is dry.
Keep warm and dry.
Love,
Gill X
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Hi Mary,
You must be frustrated thinking about what you'd usually be doing at this time of year. 70C sounds idyllic to me, I'd be at the coast. It's around 55C at my nearest beach, so good for a brisk walk and people watching, but no padding, although there's always the odd swimmer out there whatever the temperature.
I've just had my mammogram results and all's well. It doesn't look as though I'll be seeing my surgeon again but I'll have another mammogram next September.
Keep on recovering. You'll need another holiday after all this.
Love,
Gill X
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Hello!! Today I understood that I have two types of cancer in the right breast, one triple negative and one with a positive. I should continue treatment for the positive with letrozole. Thyroid cancer was never detected by TSH tests or parathyroid tests. It was detected the second time I had an ultrasound. Ultrasound is device dependent. It depends on who interprets it. Well, that's how I knew about thyroid cancer, there was a tumor with a lot of density and blood flow in the thyroid. after the operation I have been given Eutirox of 150 after 137 and now of 125 to keep the TSH at 0.1 levels now in September with so much I did not go to the endodrine and the TSH has risen to 3.5. I will believe they will increase the dose again.
I feel sore tired. but my face does not show it so I have very little credibility in my environment. They think I'm unhappy because of an emotional circumstance and not because of all this I'm going through. Sometimes I think people are very daring. I feel unhappy sad and very desperate. I trust my illness did not progress so much that it deteriorates rapidly. Colombia is one of the 5 countries in the world that allows euthanasia. Sometimes I think if the thing gets very bad that could be a worthy option. While these days I have thought if the prognosis of life for metastatic disease of triple negative breast cancer in the lungs is 1 year and a half. I sell the apartment and recover my initial investment "here we call it initial fee" and as long as I can travel a little. "Will these thoughts be kicked out of drowned?"
They haven't told me anything about magnesium. Endocrine sent me zoledronic acid again this year, but the oncologist said that when we went through Chemotherapy we talked.
Today was the last dose of carboplatin said a bell ring three times ring so many times that the bell fell. and I put it back on and touched it. Hell, I'm very pathetic today.
Abrazos
Marias
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Hello Gill,
Many thanks for your latest post. You always have something interesting to say.
As for your colitis I think you are right to give yourself plenty of time to recover from the C.difficile infection. I do think the NHS goes overboard with medication. That is my personal opinion and I know plenty of people that are on a cocktail of drugs.
I agree with everything you say about breast cancer awareness month. I do not like all the pink stuff either and I do wonder about how the money donated is used. I do hope there is more awareness about breast cancer and the differences between the different breast cancers, but I do have my doubts, especially in this country.
It is true that hormonal breast cancers can be treated but the medication does not always work and it has serious side effects. I have always been positive about about being triple negative and glad that I did not have to take nasty medication for years on end. I think that triple positive breast cancer is very aggressive and that having to take Herceptin is very damaging. I saw the toll that both primary triple positive and then metastatic triple positive took on my friend and neighbour here. She took so many different drugs when it became metastatic.
As you say, Brexit drags on, and the more I read about all of it, the more I think that we should just stay in and be part of the EU, even if it is not perfect. I would not trust the Boris Johnson brigade to negotiate properly and I certainly would not trust them to run the country. We need to get on and have a General Election, but I fear we may end up with a Conservative majority, which will be for the few and not the many. We can then say goodbye to the NHS. It amazes me that ordinary people can be taken in so easily. It is just the lure of lower taxation.
I like Mary Beard very much and enjoy her programmes. I cannot understand why people are taken in by Boris Johnson and his pseudo intellectualism. He certainly does not impress me.
I am waiting for the lift company to arrive to do a major repair on our lift.
It is sunny at the moment which makes a change.
We do need to give Marias as much support as we can.
Thinking of you.
Love.
Sylvia xxxx
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Hello Marias,
Thank you for your post. Thank you for your explanation for what is happening with you. It would be a good idea for the group if you could update your details on your profile so that we have the details of your treatment after September 4th 2017, when you had radiation therapy.
When you say that you have hormonal and non hormonal in the right breast, when did this happen?
How are you coping with the letrozole medication for the hormonal part?
Is this breast cancer still lobular?
Thank you for explaining how you were diagnosed with thyroid cancer. Thank you for explaining what you are taking for your post-surgery medication for the thyroid problem. How are you coping with the thyroid medication? I know that Eutirox is a brand name for the common thyroid medication levothyroxine for an under active thyroid. It is also used in higher doses for people who have had thyroid cancer. Doses if levothyroxine are usually increased gradually to help prevent adverse effects.
I think I can understand how you are feeling. I can understand how tired you must be feeling but this tiredness does not show on your face, so people think you must be fine. I remember, when I was going through treatment, that I looked healthy in my face, so people used to say that I did not look ill.
Do not take any notice of what other people say. You have been through so much and all of us here on the thread have great admiration for you. Try to take each day as it comes and be optimistic.
Keep telling yourself each day that you are surviving and that you will survive. Try not to go to those dark places in the mind. Concentrate on doing each day the things that you enjoy the most. If you feel you want to enjoy your days travelling, then do that.
Congratulations on finishing your last dose of carboplatin. I like the idea of ringing a bell to celebrate. I remember from someone on the thread, an American woman living in Germany, that the bell ringing is a custom in German hospitals as well.
Come to us for comfort and encouragement and say whatever is on your mind. It will help to relieve all the stress and tension.
Thinking of you and sending all my love. I am putting this into Spanish as well to help you and Spanish is such a beautiful language.
Sylvia xxxx
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Hola marias
Gracias por tu publicación. Gracias por su explicación de lo que está sucediendo con usted. Sería una buena idea para el grupo si pudiera actualizar sus datos en su perfil para que tengamos los detalles de su tratamiento después del 4 de septiembre de 2017, cuando recibió radioterapia.
Cuando dice que tiene hormonas y no hormonas en el seno derecho, ¿cuándo sucedió esto?
¿Cómo está lidiando con el medicamento letrozol para la parte hormonal?
¿Es este cáncer de mama todavía lobular?
Gracias por explicar cómo le diagnosticaron cáncer de tiroides. Gracias por explicar lo que está tomando como medicamento postoperatorio para el problema de la tiroides. ¿Cómo estás lidiando con la medicación tiroidea? Sé que Eutirox es una marca para el medicamento común de tiroides levotiroxina para una tiroides poco activa. También se usa en dosis más altas para personas que han tenido cáncer de tiroides. Las dosis si la levotiroxina generalmente aumentan gradualmente para ayudar a prevenir los efectos adversos.
Creo que puedo entender cómo te sientes. Puedo entender lo cansado que debes estar, pero este cansancio no se nota en tu rostro, por lo que la gente piensa que debes estar bien. Recuerdo, cuando estaba en tratamiento, que me veía saludable en mi cara, así que la gente solía decir que no me veía enfermo.
No tome en cuenta lo que otras personas dicen. Has pasado por mucho y todos nosotros aquí en el hilo tenemos una gran admiración por ti. Intenta tomar cada día como viene y sé optimista.
Sigue diciéndote a ti mismo cada día que estás sobreviviendo y que sobrevivirás. Intenta no ir a esos lugares oscuros en la mente. Concéntrate en hacer cada día las cosas que más disfrutas. Si sientes que quieres disfrutar de tus días viajando, entonces hazlo.
Felicitaciones por terminar su última dosis de carboplatino. Me gusta la idea de tocar una campana para celebrar. Recuerdo de alguien en el hilo, una mujer estadounidense que vive en Alemania, que sonar la campana también es una costumbre en los hospitales alemanes.
Acérquese a nosotros para recibir consuelo y ánimo y diga lo que tenga en mente. Ayudará a aliviar todo el estrés y la tensión.
Pensando en ti y enviando todo mi amor. También estoy poniendo esto en español para ayudarte y el español es un idioma tan hermoso.
Sylvia xxxx
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Hi Marias,
You are going through a very difficult time and have every right to say whatever you like. I completely understand what you mean about looking well while feeling so ill and worn down by all the worry and fear for the future. People who have never experienced the reality of breast cancer and the appalling impact of treatment on the mind and body will never understand. It's so frustrating. That is why I find this thread so useful. Very recently someone described it as a comfort blanket and I agree!
One step at a time, one day at a time Marias. You don't know how the future will turn out and feeling so ill and frightened is bound to take you to some dark places at times. You can say anything to us here, be as angry or sad as you feel. Just be yourself and ignore what other people think. It takes real courage and a sense of determination to complete the treatment a second time around. To me you sound like a very brave woman not 'pathetic' by any means!
Marias, euthanasia is a very, very last resort. Your feisty post tells me that it will never be a serious option for you, so try not to let it enter your head, even on those difficult days when you can't seem to see a way through. Wait until the cloud lifts - as clouds always do.
So, be kind to yourself, give your mind and body time to recover from the treatment and keep letting us know how you are - especially when you're feeling sad or angry.
With very much love,
Gill X
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Hi, my mother is back at the clinic. He left with high blood pressure and with tachycardia in 135. He went there with my sister, the one from Bogotá who was already very happy for Bogotá, with the recovery of my mother. Thank God the clinic is close. I am quite worried. Today's chemotherapy gives me a lot of muscle aches. and I have insomnia .. worry doesn't leave me alone. I try to meditate to feel better.
The rhythm of my mother's heart is improving. I trust everything goes better. Thank you for your words of emotional support and for allowing me to count my things here. I have a catheter implanted in my chest which would allow me to swim, but they say that with my defenses so low I can earn an infection. So wait a few days to improve.
Abrazos
Marias
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hello all
Sylvia, my errant left hand sent Chris W. to Archives or somewhere, haven't found him back. I think I will just wait for his next post.. My oct. Issue of WDDTY has "Kickstart your underactive thyroid" on cover. I've had it for 2 weeks and haven't made it through yet. People ask me how I pass the time while living without use of right arm. It simply takes all my time just to do the basic things: hygiene, dressing to go out or stay in, preparing food and eating, laundry, shopping, getting to therapy and doing exercise at home etc.. Ad infinitum. I have a neighbor who was born with one arm, he makes it look easy. He also has a wife and family. A wife would b nice right now haha!
Gill, I share your views on the "pink" movement, i know it has a purpose, aND much money is raised. . Where does it all go? I have looked at websites that spell out where the money goes and much of it is to top brass, in the big, well-known charities. "Pink" is big business. I do regularly give to breastcancer.org, it connects on such a personal level with me while doing service in the larger world. I am going with some friends to a "pink" gala next week, but I am considering backing out since I found out I am expected to "dress up". It's hard enough just to dress down right now.
Sylvia and gill, I watched a movie recently and really liked it, called "The Professor and the Madman". About the creation of the Oxford Dictionary, at Oxford, UK. With American actors, but very good ones.
Marias, I continue to be amazed at all you have been through since you have joined us here. Gill is right, you are a survivor to the core. I am very glad your mother is better, and that you have a supportive family.
Talk to all later, love, Mary
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Hi Marias,
I'm sorry that you are also having to deal with family health worries as well as your own. You must be completely exhausted with it all. I'm hoping that your immune system builds up quickly so that your doctors give you the all clear to swim again, I think the exercise and doing something you enjoy will help a little with the stress.
I understand how very difficult it is to put worry to one side and I'm so sorry that you don't have the luxury of escaping when you sleep. Insomnia is cruel. Meditation takes practice, are you in a group with a teacher? Yoga is also useful when you have a good teacher - though I know that your muscles probably ache too much at the moment.
Marias, all that you can really do while you are feeling so low, is to live in the moment, the future will take care of itself. Thinking about what tomorrow or next week might bring, will steal today from you.
Keep posting and telling us your thoughts.
With much love - and prayers too.
Gill X
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Hello Mary, Gill and Marias,
Many thanks for your posts.
I have been having an horrendous week here, and I shall be glad when it is at an end.
I shall definitely answer your posts sometime today.
Thinking of you.
Love.
Sylvia xxxx
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Hola Marias,
Thank you for your post. I was sorry to read that your mother was back in the clinic. I was sorry to read that she had high blood pressure and tachycardia when she had to go back to the clinic. It was good that your sister was able to go to the clinic with your mother. It is good, also, that the clinic is close to where you live. I can understand how worried you must be.
I was sorry to read that you are having muscle aches from your chemotherapy. I do hope the aches will not last for long. I do hope, also, that meditating helps to make you feel better.
I was glad to read in the second part of your post that the rhythm of your mother's heart was improving.
It must be difficult to have your mother not well when you are not feeling your best as you go through your treatment. Keep looking ahead and hoping that all these problems will go away.
We are only too glad to give you emotional support. It is not good to keep things bottled up inside you. It is a pity that we are now such a small group. In general patients do not stay long after they have finished treatment. They want to try to forget breast cancer.
I think it is very prudent that you take care not to get an infection, because your immune system will be very low at the moment.
I hope you can find some pleasant things to do. The world is full of problems at the moment and I do not feel very optimistic that we shall have peace in the world. It seems to me that the drums of war are beating and that the politicians blithely go on. They will not be the ones to suffer. They think they know it all but they know nothing!
Thinking of you.
Abrazos.
Sylvia xxxx
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Hola marias
Gracias por tu publicación. Lamentaba leer que tu madre había vuelto a la clínica. Lamenté leer que tenía presión arterial alta y taquicardia cuando tuvo que regresar a la clínica. Fue bueno que tu hermana pudiera ir a la clínica con tu madre. También es bueno que la clínica esté cerca de donde vives. Puedo entender lo preocupado que debes estar.
Lamenté leer que usted tiene dolores musculares debido a su quimioterapia. Espero que los dolores no duren mucho. Espero, también, que la meditación te ayude a sentirte mejor.
Me alegró leer en la segunda parte de tu publicación que el ritmo del corazón de tu madre estaba mejorando.
Debe ser difícil que tu madre no esté bien cuando no te sientes lo mejor posible a medida que pasas el tratamiento. Sigue mirando hacia el futuro y esperando que todos estos problemas desaparezcan.
Estamos muy contentas de brindarle apoyo emocional. No es bueno mantener las cosas dentro de ti. Es una pena que ahora seamos un grupo tan pequeño. En general, los pacientes no permanecen mucho tiempo después de haber terminado el tratamiento. Quieren intentar olvidar el cáncer de seno.
Creo que es muy prudente que tenga cuidado de no contraer una infección, porque su sistema inmunológico estará muy bajo en este momento.
Espero que puedas encontrar algunas cosas agradables para hacer. El mundo está lleno de problemas en este momento y no me siento muy optimista de que tendremos paz en el mundo. Me parece que los tambores de la guerra están sonando y que los políticos continúan alegremente. No serán los que sufrirán. ¡Creen que lo saben todo pero no saben nada!
Pensando en ti.
Abrazos
Sylvia xxxx
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Hello Mary,
It was nice to hear from you and I do understand about the Chris Woollams email. I have been too busy as well to really take it all in. as for WDDTY, it looks as though the shop where I was buying it has changed owners and will not be selling it. I am not sure that I want to take out a subscription. I think we may be suffering from information overload.
I can understand how not having the use of your right arm will have slowed you down. Just do what you can and let the arm recover at the rate it needs.
It looks as though you, Gill and I agree about the Pink Movement.
I cannot see much sign of October being Breast Cancer Month here in Exmouth. I went by the Cancer Research shop this morning and I did not see anything. I must admit that I am not that impressed with Cancer Research. I think there is too much emphasis on finding drugs. A volunteer for Cancer Research told me that there was a lot of wasting of money at the top. Here in Exmouth we have too many charity shops and more and more appear as businesses close. They seem to be selling largely second-hand clothes.
I do like the sound of that film you saw recently. We all need things to take our mind off the mad world in which we are living. Here I think most of us will be counting the days to October 31st when Brexit is supposed to happen. I do not think it is going to happen and it is probably for the best. This country needs to be dragged kicking and screaming into the modern world! The way our Parliament functions is ridiculous.
It has been a difficult week here dealing with various problems and I am looking forward to some free time to relax a bit.
I did have a pm from viewfinder to let me know that she is well and that here sister with TNBC is also doing well. She has had to stop posting here in order to free herself of thoughts of breast cancer. I think we can all understand it.
I do feel so sorry for Marias and I am glad that she has you, Gill and me to give her strong support.
I have been dismayed to see all the constant creation of different threads on TNBC and that the original Calling all TNs has been going down. This constant creation seems to make everything bitty.
Take care of yourself, Mary.
Love.
Sylvia xxxx
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Hello Gill,
Looking back at the posts it seems that I have answered all your posts to me.
I just wanted to say I hope you are having a good week despite all the rain. How are you and your husband keeping?
Do you ever read the weekly newspaper The New European? I have been reading it for some months now and find the articles are well written and interesting. It makes a change from some of the awful daily newspapers that we have.
What will Boris Johnson do next? What a show-off family we have here. The father, Stanley Johnson, was on Radio 4 this morning. I am sure there must be someone more interesting.
Take care.
Love.
Sylvia xxxx
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Hello everyone,
I was listening to the news on BBC Radio 4 this morning and was concerned to hear that yet again we are not up to par when it comes to diagnosing breast cancer. This was all about how secondary breast cancer is not being picked up by GPs when patients see them with concerns about this. I think it said that it takes three visits to your GP for secondary cancer to be picked up. This is shameful. We can all read our own bodies and if we have concerns we must get to see a consultant. I think that you should insist on a referral to a consultant. We have this system in the UK whereby to get to a consultant you have to go back through your GP who has to refer you. This can be time consuming. If all else fails I would just go to A&E.
I do hope this thread will pick up and I do think it would be a good idea for newly diagnosed patients to read from the beginning of this thread and also the original thread here, Calling all TNs. Read them gradually like a book. There is so much information in them.
When you are looking at threads, make sure they are up to date. I recently saw a post where someone was posting to someone who last posted in 2015 as though they had posted yesterday!
Sending best wishes to all.
Sylvia xxxx
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