GRRRRRRRRR I HATE LE..........
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Cindy - I'm up an working at 4am.. But I had new mask issues so been up since 1am today fighting the mask... so I understand completely!
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OK i know somewhere in the last few pages that someone suggested the gel mask - need to ask a question - tried it last night and the bridge of my nose was hurting - what part do I need to readjust to make that go away - btw I switched back to my other mask for the rest of the night... My SD download, I got good news and bad news - good news is less leaking, bad news is my AHI is up again to 6.4. It was down to 5.7 last week.. Asthma is probably the culprit.. Go back in a month for another download, but now I have 3 masks to keep trying to see which one actually works better.
7 hours before the squash - I have pain meds in bag to take before. I got through it in August - I can do it again.. I sure wish the good one got squashed at the same time...:-P Double duty on the bad one this way but next year, I plan on nothing inbetween..
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If they wanted another breast MRI I'd do it, I suppose, but I certainly wouldn't trade a 3 minute squish
I would Cindy! mammos never bothered me before, but yeah, I dont want a 3 min squish on LE!0 -
So now I am educated on MRIs. Lying on your stomach in unnatural positions doesn't sound like fun to put it mildly. Really hope I'll never have to do an MRI for whatever reason. And if I do, I 'll have them sedate me or will take something. Just comes to prove that people have no idea what LE sufferers have to go through in addition to chemo.
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Yeah, but considering I can't lay on my tummy, or put my hands over my head for more than a few minutes without pain, the MRI doesn't sound fun either.
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I've had several MRIs. The first was in the middle of rads (after surgery and chemo), so I was beat, not to mention totally discouraged to be needing an MRI. I looked at the machine and thought of Hobbits, with their little round doors into peaceful Hobbit homes, so as I moved into it, all I could think of was how peaceful it was (of course I was not having trouble with asthma--that would be horrible!
) There was light and air, and I knew I could get someone's attention if I wanted to. But I didn't. I felt cozy and safe from all those medical procedures I'd been enduring--pokes, surgeries, drugs, invasive tests. And the ever-changing noises it made kept my mind happily occupied thinking what each one reminded me of--kind of like lying in the grass making mind-pictures out of cloud shapes. I was very sorry when it was over (about 3 hours that time.) Afterward I jokingly told my husband (who loves garage sales) that if he ever found an MRI machine at a garage sale he should snap it up.Am I weird, or what?!!!
Binney0 -
Sheila, yes! Do see about using at least the lymphatic opening section with your support group! Excellent intro to both post-tx exercise and LE risk reduction. Let us know how you like it!
Binney0 -
Like Binney I used my imagination and I had a good experience with MRI. I felt cosy and like there was nothing to distract me like housecleaning, appointments, etc. It made me slow down on life! I was in for 3 hours because they couldn't get it right for shoulder. Needles were the worse part because they couldn't get thru the scar tissue properly.
Now that I have a back injury it would be a different story I think. Also if I was to lay on my chest that would HURT!
GMA, Girl you can do this, don't give up on the CPAP because once you sort it out you are going to feel so much better. A good nights rest is like finding a pot of gold. That said,I wish I could find a good sleep and a pot of gold! I have to admit though since my ND doc put me on GABA and Rhodiola and some adrenal supplements, I am sleeping better than I have ever slept before. yeah! Not a grrrr. I am off coffee to and eating better.0 -
How long before mammo should I take the Tylenol with codienes??? Does anyone remember how long to take affect?
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Haha Binney!
I also love MRIs. I think of them as space ships, and mission control sometimes talks to you over the microphone. Let me say, normal, on your back MRIs I like. The breast MRI, laying prone, boobs sticking through holes, was HORRIBLE! Never again!
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I had two MRI's, one right after diagnosis and the other after chemo. The first one I was completely unaware of what it would be like. And the tech told me to lay down and put my breasts through those holes and said I'd be in there about an hour and I'd be in the room by myself and I couldn't move. And I got a panic attack. I think that was the only one I've ever had. I was scared to death. When the tech saw how scared I was, she said she'd be right outside the room, and she could hear anything I said, and she gave me earphones and asked what kind of music I wanted. And she assured me she would stop if I asked her to, and she wouldn't leave so if I called out, she'd hear me. And I reluctantly got in, but when I got in, I had the same feeling as Binney, I felt like I was in a cocoon and all I had to do was say something and someone would be there. And I almost fell asleep in there. If the tech hadn't kept asking me if I were okay, I probably would have. The second one was a piece of cake. I didn't mind it at all. But as you say, I don't have asthma or any particular back issues. I guess it goes with the saying one man's trash is another man's treasure. Although it does make me feel pretty silly now to think about some 20 year old tech treating me like a little child to calm my fears.
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Binney, until the problem with asthma, I didn't mind the MRIs either. The only negative thought I had was annoyance at how loud they were - hey, how can I get a nap with all that noise?
I sure hope my docs don't want one in the spring, though.
Leah
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Survived the 5 minutes of "OUCH!" Thank goodness for pain meds.
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Gma, stay on top of any pain that might last through this evening or tomorrow, because pain draws lymph to the area. Glad that's over! Did they read it while you were there or are you in wait mode?
Real gentle hugs,
Binney0 -
A hobbit hole - how quaint, I'll remember that should I have another one, still will probably take the ativan, but I sure hope I don't ever have a breast one again, but then I do have a lot of pain in my sternum now, so can't imagine laying on it for an hour.
Glad to hear it's over Gma!!!
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The tech, said that they would see me "next year". I guess that is good. Any bets on which doc actually calls me with the results: surgeon, primary, MO, or RO?
I bungied my torso and have been drinking a lot. In the past 15 minutes or so, I'm getting shooting nerve short circuits. I'm out at church, so I don't want to do another ty#3, but might have to.
Thanks to all the ladies that jumped in my pocket. Loved the chocolate brownies that someone brought.. Who brought them?0 -
well next year means no 6 month check up
I hear from the mamo center direct, either right after or by mail in a letter
course they send the reports to any doc I list and I have gotten calls from my Primary care
glad it is over for you, relax tonight!
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GMA, glad it's over. Hope you're doing well.
I brought the brownies! It's my b-day, the big 5-0! Yikes I feel old all of a sudden. It seems like only yesterday I was in my 40's.
I like the way my cancer center does it. They have you wait after the mammo and give you the report immediately as well as the radiologist telling you what she found. My MO made the appt for me, it's coming up in February, but I just saw MO in December, so she had me make an appointment with the BS right after. She wanted me to see someone face to face to be able to go over the report with me. She thinks of everything, i really like her. And since I had a mastectomy, I only have to get the mammo on my non LE side, so not too bad.0 -
Kay, Happy, Happy, Happy birthday! I hope you have been celebrating all day long!
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Has anyone else here end up with LE on their good side?
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I don't, though I'm planning a PMX later this spring, and am worried about it. Is it Binney that has it on the good side? Do you have it on your good side?
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And I think Lago has it on both sides, though she did have cancer on both sides. She had a lot more lymph nodes removed on one side than on the other.
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GMA, do you have LE on both sides? I know Binney does.
Thanks Carol! I have been celebrating since A birthday dinner out on Friday. I plan to try to milk it to last into this weekend.
I have an LE grrrr. I am good friends with a guy in work. I really like him, he's a nice guy. But today he saw my sleeve and said to me, I thought you weren't going to have to wear that any more. I always wear it to work. I spend most of my day typing on the computer. And he has said this before and I have explained it to him before. Make me think people think I wear the sleeve for sympathy or something. Grrrrrrrrrrr.0 -
Kay and Linda, My upper arm on my good side swells and when they did IV and BP the last surgery my arm swelled.. It is back down, but the upper arm is the unusual problem.. I have my docs struggling and disagreeing if it is LE.. They have tested me for clots and everything else and can't find a reason for it.. My worry is I'm supposed to go in for lab work next month and I don't have a doc as yet that will order my lab work on my feet/leg.. They have told me, "well your hand and lower arm aren't swollen, so take it there". I'm just tired of fighting with my docs about what I should do..
EDIT: I'm feeling very fat this morning. up 4 pounds from yesterday. LE from mammo? - guess more MLD and water.. Just don't want compression today.. feeling like I will explode.
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GmaFoley - I have bilateral LE and only had cancer in the R breast...I did have a BMX but no nodes from the L (except those in the actual breast tissue). My L arm did not present for almost 6 months AFTER my R arm...I think my L just could not manage the overload of fluid being directed its way...
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Jo, Is there a MLD sequence you do that you can share. I'm Bmx with LE on right trunk and arm. I think you are right by doing both sides for precaution. I will be asking next MLD visit to learn MLD. I would love to see one on you tube.
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Hugz My LE T splits me in half, do one side at the time and move the fluid down the sides:
Start at neck lymph - move from sternum to the side - I start with my good side first, so I massage from sternum, go left to your side - then down from armpit down to inguinals. Next I do my arm, elbow, wrist, hands - After again move everything from armpit down to the ingunals again - I have trouble doing the back but if you can get to the back - start at the spine and move everything to the side - then armpit to inguinals again. Then repeat everything on the other side. Hope this helps.
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Thanks Jo and GMA. I am going to surf the web. I do have the Joanne Rovig video and I will take a look at it. It has been a long time since I dragged it out. Going to ask my LEist if I should be doing bilateral or single MLD then have her teach me.
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I am concerned about doing MLD on my ' good side " ( I do have suspicions about my so called good side, but it could be LIPEDEMA....WTH knows? ) Anyhoo, I am concerned that moving that fluid could somehow move it into the other arm more ! Will ask my LEist.
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Hi ladies!
My LE has been doing really well this past year. I want to share the ONLY thing I did different.
I lost 20 pounds, I workout like I did pre-cancer, I wear a sleeve when I workout. I stopped salting foods as much.
I feel these things have contributed to my success. I have not had to wrap in over a year now ( KNOCK KNOCK)
Laura
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