GRRRRRRRRR I HATE LE..........
Comments
-
That's great news Togetherness. My BIL has had several episodes with it.
Sorry Benny. I went out of town unplanned so I didn't have my computer. There is a little red area...could be from scratching it so much or just from it being swollen more than my norm. It's the same rednes I had on my back last summer from extra swelling. The itching stopped also...let's just say I lived in the bathroom last night. I got up I know 6 times.
I still haven't found my old sleeve but the Juzo off the shelf must have help even though it's too big in the lower arm.
Have a great week everybody.
0 -
The brain MRI came back clear.
Yoohoo! Time to exhale.Thank goodness, togetherness
Soooooo happy for you!
Take Care,
Laurie
0 -
I'm really relieved and happy for you Together.
0 -
I had my consultation with the lymphodema specialist. She is certified and has been doing PT for lymphodema for 10 plus years. She was very informative. She has me going twice a week for the next eight weeks..... Ugh. She measured me all over and there is a big difference from my left side arm and hand which is swelled compared to the right side. She said I would need to order a sleeve as well as a hand thing. Cant remember what she called it. Does anyone know of a good website that I might be able to order these items once I get my measurements? She maybe able to send me to a medical supply store in my area with a perscription. She said in the mean time get a few golf gloves and use them. She said to make sure they are snug and have the Velcro on top. Has anyone heard of this? I am going to check and see if my insurance covers the sleeves and the hand thing. She does not treat bells palsy so will need to find someone else for that. I feel like I did about a year ago running to all these different drs oncologist, surgeon, plastic surgeon, infectious disease dr. The only difference is I am trying to work also. Trying not to stress and just take one day at a time and hope to feel better. Thanks for all the support.
0 -
Togetherness, so glad no cancer was found! I hope the therapy is very effective for you. On a side note, I got to see my brain from my MRI in the fall. It was weird but reassuring to see that gray matter!
0 -
Togetherness - Its nice to know everything was clear!
I have been pretty quiet for a while but now, I can't stand it anymore and need to ask a question. I have been diligent using the sleeves for almost 3 years now. I find that if I take a break from the sleeves - my arms instantly ache. My torso and upper arms are the only swell spot and getting major ingrown hairs on my forearms. I want to not wear them for a day or two but as I said, I ache .. Am I addicted to wearing the sleeves? What an awful thought..
0 -
On Sunday I worked outside all day, happy as a clam. And....now I have poison ivy, including a spot on my left hand (LE is in upper arm/axilla on that side). We live in the woods and I'm accustomed to dodging the stuff, which is way too infested to even think of removing with Roundup. So we just watch out for it and apply weed killer selectively in areas where we walk or where the dog roams. I was wearing thick gardening gloves, but I suppose that I had an unknowing run-in. It's on both hands, so I suspect the ivy oil was on the gloves and in taking them off, I got it on my hands. Sigh. Anyway, the LE-side hand is a tiny bit puffy, barely noticeable except of course I'm staring at it all the time, hoping it won't really swell hugely!
And my question is, what good heal-fast poison ivy remedies do you ladies have?
(The rash is really quite small on both hands, so fortunately I'm not in a heap o' trouble, but it really itches!)
0 -
Grrrrr about the poison ivy. I have no experience with it but hopefully someone will be by soon with some good solutions.
0 -
Caladryl is the only thing I know of and benadryl.
0 -
well my old boss used to swear by really hot water on the ivy poison and he used to get it really bad almost every year! I saw him before and after his hot water thing and it did the job....but he was weird at times and refused to use stuff to prevent it!
0 -
thanks! I'm going to try all of the above!
0 -
Be careful of hot water on LE side Carol.
0 -
The hot water does indeed calm the itch for a while. The worst outbreak is on the non LE side, where I really got it with the hot water. But you're right about heat caution on the LE side, so I am being less aggressive there. Less-hot water doesn't have the same effect, unfortunately.
0 -
Weird and interesting about the hot water working. I wonder how.0 -
That is interesting about the hot water. I would have thought it would make it itch more. Good to know!
I am at a conference and fully wrapped, and so so so hoping to be able to fitted for sleeves etc next week. So far no "What HAPPENED?" which I hate, so I'm hoping that continues. I tried to wear something that would hide it as well as possible, but am so ready for the sleeves and gloves.
0 -
Paula, I sometimes wonder if one of the therapeutic values of wrapping is to make us grateful for our wretched compression garments. ;-)
Hoping you'll soon be bandage-free! Just be sure you know how to do it yourself (and practice it from time to time. I wrap once a month just to keep my skills up--nothing more frustrating than needing to wrap for a flare or a trip and having to fuss with the details you've forgotten…)
Keep us posted, please!
Binney0 -
Well had my second visit with my Lymphodema pt. the massage felt great, but she measured my arm and it had doubled in size while waiting to get the ok on the sleeves and glove from the insurance company. So she wrapped my arm and hand. Not sure i could wrap it like she does but It feels better having that compression and it being wrapped. Hope to get my sleeve next week once insurance oks it. Went on the forum of sleeves and found some great info. You experts give out great info. Just hate that I have to deal with this.
0 -
Went to a new LE therapist today. My arm measurements were up 2-3cm all around. She asked if my other therapists ever wrapped my arms. I said no with a "Deer in the headlights" look. Gave me choices and I asked to give it a bit and I would be more diligent about wearing my sleeves and MLD. She said we might have to wrap.
0 -
I wouldn't hesitate to wrap if it's going to help bring the arm down. Sleeves often maintain but not reduce swelling. Wrapping helps reduce it.
0 -
Just wondering - When did this all get to that point? Just mild a bit of swell with exercise or heat - and now 2.5 years later - we are talking wrapping? I guess I've been in denial..
0 -
The wrapping has helped me tremendously! I have been in a lot of pain with my swelling so until I get me sleeve and glove I am thankful for the wrapping. Does anyone experience pain with the swelling?
0 -
Togetherness - I get constant ache with swell.
0 -
I usually have a whole lot of ache, and a little bit of swell. When the truncal LE spot on my back flares up, I know it because it has a burning sensation. Then if I look, sure enough, it's a bit puffy. I get a slight but constant burning sensation all along my arm, too. What a piece of work this condition is!
0 -
BLOOD PRESSURE on ' good side "
Do ppl allow this frequently, and IF SO, any kind of follow up you can do ( cold compress or ???) to reduce any risks?I NEVER let them take my BP. It has been app 90/60 my whole life, and I see no reason ...nope, not even on the 'good arm'!
Went to DR today , and she insisisted so I said okay.92/60. I just feel vulnerable.
Anything ???
THX0 -
I wear a medic alert bracelet to remind folks (if I am passed out~~) and myself, not to take BP on my LE side. Mine has been hi for a while (it spiked at 200+ the year my peace corps neice was in Haiti and it blew up.....). Since then I have been on serious bp meds. But, recently it is much much lower and I have stopped the one BP pill and am on alert from doc that we may reduce the other and be careful if I feel faint!
Reason is, no more AL, got my sinus blockage fixed and retired! much better but still will not allow BP on the LE side
0 -
I had a left mast and do allow bp on my right arm. Purple, I think it's understandable you'd be a little gun shy in light of your other issue namely, the rash. I think if I'd had a bilat mast I'd not be allowing bp to be taken on either arm.0 -
THX Marple.
Yes, the flushing is still a mystery. My endo dr, is trying to get me into someone she says worked in the NIH!
My husband gets PET scan results MondayUGH.
0 -
Good luck to DH on Monday.
0 -
Oof! Long weekend ahead, Purple. I'm so sorry. Not knowing rots. Hoping for real relief on Monday.
Gentle hugs,
Binney0 -
TY Binney
Bad news here yesterday.
Husband who was the ' walking miracle' ( as many had called him since his strage 4 colon cancer in 2009)
finally got hip pain dx.No miracles here.
Not even sure if he'll be walking much longer.
TWELVE mos of severe pain working every single day - 7 days a week! Finally he was dragging his leg when we realized Spfld drs just could not help.
Went to MGH 3 weeks ago. Then my INS CO refused a PET scan. MGH drs got him into a trial ...no cost.
Inoperable tumor on hip. They assume it is a mets and not a new primary. They want him on ' strong' chemo ( three cocktails ) " for the long haul as they put it.... just in the hopes of shrinking and relieving some pain.
ugh.
0
