Australian Sisters
Comments
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Carol - lovely to hear from you, and I'm so happy you didn't have any problems this time.
Thank you all for your thoughts - Kanga - what a beautiful rose!
Hubby is home now. He's on anticoagulants and will be on them for at least six months, so he'll have to be careful not to cut himself. If he shows any signs of being unwell again, it's straight to the hospital - no arguments from him. I'm feeling a lot better now too. It really shook me up to know how close I came to losing him. Now I need to feed him up and get some meat back on his bones.
Trishxoxo
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Yes Chrissy, the chemo in the pump is the same but I don't react to that. I was going to have 8 chemo's but now I'm having 10 as not having oxy. I'll see how I feel as I might be able to work for a few days as I'm not feeling too bad.
Carol
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Trish ..so sorry to hear about your Hubby ..hope he is improving ..
Carol ..so good that you didn't have trouble with the chemo ..
Chrissy... Nothing better than sitting around a crackling fire 🔥 with the family , on a freezing night , discussing an overseas trip !! My son did a trekking trip in Nepal and loved it !
Kanga ...What a beautiful rose ..
Mandy ..Hope your grand daughter is feeling better...So glad Ricky is O.K !!!!
Hugs to all
Edited coz of spelling mistakes !!!
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Trish, I am so sorry about hubby, but I am glad that he is home now and hopefully on the road to recovery. What an ordeal, you must have been so worried. xxx
My grand daughter still doesn't have much energy but hopefully the whooping cough is at the end of its run. The specialist told her parents that it would take at least a year for her body to recover from Coeliac Disease as her body already had a lot of damage when she was first diagnosed just before Christmas. She also still sucks her 2 fingers when she is tired so if she has touched a crumb and not washed her hands, she gets glutened again. I have to look out for playdough, glue and everything else just in case any of the ingredients have gluten in them, who would have thought. I don't know why they call it gluten intolerance, it should be called gluten allergy.
Carol, good luck with your chemo, hugs.
Well, I am looking forward to seeing PINK on Wednesday 11 July. I am going alone and I am so looking forward to being in the moment. I think that she is awesome.
Olivia, my oldest grand daughter who has endless energy is coming over here next week with her class on an excursion and they are going to Granite Island and the Whale Centre, so I will be there to meet and greet them and accompany them. I hope its not raining though lol. I am glad that I can physically still do the walk but the soles of my feet will be burning afterwards thanks to Xeloda. It will be worth it though.
try to keep warm and healthy everyone
Hugz
Mandy xxxxx
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hello everyone, I hope you are keeping warm....we had quite a blustery day yesterday with some big branches down and some heavy downpours. Except for the blustery wind, the weather today is nice sunshine, so it will be a lovely day to walk around Granite Island later and hopefully do some whale watching or eye a seal off now and again.
I saw my oncologist last Wednesday and we had a teleconference appointment as that saves me travelling to Adelaide. Looks like my tumour markers are climbing up again with a vengeance and except for severe abdominal cramping, I feel pretty good. So we will wait for the next cycle to complete and then he wants me to go on to a clinical trial for immunotherapy. I have decided to only take the Xeloda for 7 days instead of 14 as I don't know if that's what is causing all the abdominal pain, bloating, constipation even though i am taking lots of movicol. I want to give my body some rest too and so I will get my blood test done after the next 7 days of Xeloda to see whether it is working even a little bit. I am a bit apprehensive for the next step, but physically and mentally I still feel pretty good, so bring it on....the sooner the better. It's the waiting that I don't like.
I am going to see PINK next Wednesday so that will keep my mind off things. I got the last seat, so I will be going by myself much to my daughters disappointment and enjoy every moment..
warm hugz
Mandy xxx
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Mandy, freezing over here at West Lakes too, had a huge wind gust/storm go through last night and the dog cried till we let her into bed with us... so feeling a bit sleep deprived today. The neighbours across the road have the tree doctor chopping down a big tree that must have blown over in the wind.
Bad news on your tumour markers, but good news on the immunotherapy - lots of good stuff happening in those trials.
Keep warm and reenergise ready forPINK - I’m jealous!
Hugs,
Jackie
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Hi all
I'm going back to work next week, just part-time. Since I'm only having the one chemo now I don't have all the side effects so I have more energy. I will be glad to go back as I haven't worked since March.
My chemo now has been going well but I've still got 5 to go.
I hope that everyone is well.
Carol
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Hello everyone
Bugger Mandy - not great that you are going through all that discomfort. I hope you enjoyed Pink! I hope that the immunotherapy will have good results. There's lots of good things coming out about it at the moment. You are in my thoughts every day too.
I think of all of you everyday, and wish for good health for you all. Don't know if it helps much, but at least you know I'm with you in spirit xoxo
Carol - great that you are going back to work, even if it's part time. Work can help normalise things a bit.
My DH is so much better now. He's still got a long way to go, but he's not coughing much at all, and the SOB is getting a lot better too. He's started going back to his daily things that he loves doing, but I think the dancing and choir will take a bit longer. He's also put on 3kg, so only 17 to go to be back to a healthy weight!
I'm doing well too. My contract at work has been extended for another 12 months, so that's good. We've had new floors laid in the living area (spotted gum) which has taken up a lot of my time. I had to pack everything up and DH wasn't able to help (which frustrated him no end) and I'm slowly getting everything back to normal. The floors look wonderful - we are so happy with them. I'll post a picture when I have time.
I'm also learning Polish! My mum was Polish, and I've been researching into her background and not able to find very much as most of the records from that time were destroyed by the Nazis. So I decided to learn her language, she wouldn't let me speak it when I was young, she was frightened I'd grow up with an accent. I'm finding there are words that I remember though, which is lovely.
Well - that's all from me, my love to you all.
Trishxoxo
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Hi all
I went back to work this week, I was very tired and sore on Tuesday after 4 hours work, On Wednesday I worked from 5am until 8am then had my chemo.
On Tuesday I won $65 on Ozlotto and was happy then I got an email about my travel insurance from when I cancelled my holiday. They rejected my claim because they said that my surgery was because of an excisting condition. So I've lost $1000 !!! I'm going to appeal because before I booked I'd had a CT which came back negative for any cancer.
Carol
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Hi Caroll, glad to hear you are back working but please don't over do it if at all possible.
Oh boy, I'm beginning to hate insurance companies, they seem to jump on anything so they don't have to pay. I would definitely appeal their decision as it is so wrong. Good luck with that.❤
Trish, so good that your contract has been extended.........it so takes a weight off you. Yay on Bob doing better and gaining weight.......that's a great sign that he is well and truly mending.
Damn Mandy, what a bummer but I sure hope this immunotherapy does it's thing and knocks the cancer back.
Been down to town twice this week due to my lymphoedema flaring. Tuesday was for acupuncture and Thursday was for lymph massage. I have never has as much pain from it as I did this time......it hurt to even move or take a breath. Thankfully today it is finally starting to ease off and I can breathe with just discomfort and no pain.
Hoping everyone is okay.
Love n hugs. Chrissy
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Carol, what a bummer about your insurance. I really hope that the appeal will be in your favour. They are so quick to take your money, but use any excuse not to pay. How are you feeling? Is work helping or making you worse? I worked during my first bc, not a lot, but it sometimes helps to take your mind off everything. Take care lovely girl xoxo
Chrissy how's your lymphoedema going? Hope you havent' been doing too much?
I've been busy - with house "stuff" I have taken a pic of the floors, but it's on my phone, and I can't download it at work and I almost never get to sit at the computer at home these days - too much going on!! I'll have to try to log on with my phone and then upload it. Problem is my mobile reception is lousy at work lol.
Love to you all
Trish
xoxo
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so sorry Trish I hope hubby is in the mend xx
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Hi all!
Trish my lymphoedema is still a right pain and yes, I'm still in pain even thought I self massage many times a day. I'm happy to announce that I've got an appointment at a treatment facility tomorrow and I'm so looking forward to it. Hopefully there will be a garment available to help with compression. I'm a little over not being able to wear a bra due to the pain it causes me but the one hung low is not a very good look when in public so I'm hoping there is going to be something available. I've got my regular six monthly with the specialist tomorrow and may begin a discussion re removal of said one hung low as I feel it may be a better option than being uncomfortable because of the lympho on the other side.........so, a big day coming up.
I'm heading down to the city today as I have a date with my great granddaughter.........it is the first time I will have met her in the flesh and got some baby cuddles so really looking forward to that.
Can't wait to see the pic of your floors, Trish, they sound amazing.
Judy, please keep us updated how you are doing with everything.
Mandy, you also as that immunotherapy sounds pretty good.
Carol, yep being back at work is a good thing but over doing it is not. Do take care and watch for early signs of exhaustion so it can be avoided.
Well if I'm going to get down to meet my GGD then I'd best get this butt into gear and moving rather than sitting and written.
Catch you all later, take care.
Love n hugs. Chrissy
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girls the trial at Peter Mac was a new drug not tested anywhere in the world call SEDA. You have to have a platelet level 100,Cherie was happy to take me on the trial but mine is 62
Chrissy a Great GD how wonderful
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Oh wow Judy! Can you still get on the trial if you can get your numbers up? Keeping everything crossed that this is so.
Lol......yes, actually three great granddaughters!!
They were showing off the beanies I knitted them.....lol. The one at the back kissing me is Mikaela, the little one chomping on a biscuit is Lily and the new arrival is Nahla. I got to have cuddles for the whole afternoon.......Nahla was super comfy as she just kept on sleeping.....lol.
Saw the specialist for my six monthly on Tuesday and he is concerned that there may be something happening that we don't know about so wants to do the restage scans. I'm not particularly worried as I feel fine other that the pain from the lymphoedema and that is slowly dissipating, but I agreed to keep him happy. So, as at the end of next week, I begin a two week flat out time........lol. Thursday is get together day with my sisters and then dinner with my brother and then over to DD2 house to babysit her fur baby for the weekend so she can go with her hubby to see his band perform in Mildura. Friday is scan day and checking out some sports compression garments (suggested by the Lymphoedema clinician), then back to DD2's place for dinner and final run down of fur baby's routine......yes, Miss Raven has a routine.....lol. They are set to arrive home Sunday afternoon when I will transfer myself to my brother's house to babysit his cat while the family are away visiting my SIL family in America. I had forgotten I'd promised to do that but other than being away from home it's not all that busy as it's mainly at night is when Miss Minx will be looking for the company. I seem to be the resident fur baby sitter........lol......just as well hubby doesn't mind.
Hope everyone is doing just fine.
Love n hugs. Chrissy
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Chrissy ...What a gorgeous photo and I just love the girls beanies 🤗 Hope all goes well with your scan !
Hugs to all
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Great photo Chrissy I love the beanies. I get tired just reading about all the stuff u do.
The trial is basically out of the question as the deadline is about a week and there is no way my platelets will be up over 100 in that time.
My only other option is a mind chemo tablet not as bad as the other one so we will see.
Good luck with the scans Chrissy
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Oh damn, Judy!! What an absolute bummer with the time line of the trial. What other treatment is on offer for you? Here's hoping it's something that works on kicking cancer butt but not yours. How are you feeling on the cani oil?
Lol.....yes I seem to be busy and in truth I am but it's all done at my pace, nothing strenuous or energy sapping.
Love n hugs. Chrissy
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Oh Judy - that's a bugger that you aren't able to participate in the trial. You are in my thoughts.
Chrissy - you are just irrepressible!!! Hmm.. scans? I trust that your feelings are spot on about this - but why was your doc worried? I know they sometimes go a bit overboard, and want to reassure themselves xoxo
I'm getting over a horrible chest cold that's been going round. Getting better now though.
Carol - how are you going?
Trish
xoxo
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Trish he was concerned purely because I haven't been on any treatment for eighteen months.........he said that he doesn't want to overtreat but neither does he want to undertreated.......also said that he would rather be sure than sorry and if there was to be something lurking he'd rather have to treat with gentler meds that full on chemo and if there were to be something there, leaving it would possibly mean a lot of problems later.
In a way I'm glad he wanted to as I still have pain when I breathe on the side where the lymphoedema is. I have managed to get the swelling under control again and after going on five weeks now the pain (and it is deep pain that requires Tramadol to relieve) should have gone. Anyway, Friday will tell........and yes, I will let you know.
Damn girl!! Another cold?! Your immune system is shot to hell. What are you doing to help bring that up a bit? Suggestion, go see a good naturopath. Glad that you are feeling better though........on that note, how's Bob doing? Hopefully he's recovered and putting on some weight.
Carol, how's your treatments going? Hope being back at work is not too much for you. Take care lovely.
Love n hugs. Chrissy
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Trish colds are not good. Study warm and hydrated and take a good inner health plus for your gut.
Chrissy the oil seems to be working but I have had so much happen in the last 2 months ( pneumonia from a drug , bone marrow cancer cells 3 blood transfusions and siatic pain) i I actually feel Like I am getting on top of it all .
Just gone on a very mild chemo tablet and had no side effects at all so fingers crossed, I can go off it if it does the job in the bone marrow.
Our boards are very quiet nowadays
Love Judy
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Hi all
Trish and Chrissy thanks for asking about me. I'm back at work on 4 hour shifts , that's enough as I get tired. Last Wednesday I started work at 4am until 7am as the hospital wanted my chemo done at 8.15 instead of 9.30 and today I did an extra hour as the other lady I work with was sick. I know that they appreciate it when I do stuff like that.
I've been tired and nauseous but there's a virus going around so hoping I'm not getting that.
Chrissy I love the photo.
Carol
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Judy glad to hear you are starting to get on top of it all and that the oil seems to be working. It's such a slow process sometimes it can get really frustrating and oft times make you doubt everything. The road is long with lots of bumps along the way, our job is to hang in there and ride the bumps as they come.
What's the name of the drug you are on?
Love n hugs. Chrissy
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Oops! Lol, sorry Carol I seemed to have bumped into you. I so admire your grit re working even if it is only 4 hour shifts but please don't exhaust yourself but trying to do too much.
Keeping my fingers crossed that you are not coming down with one of the bugs going around but it's very possible as your immune system will be pretty low because of the chemo. Take care lovely.
Love n hugs. Chrissy
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Actually this is my first cold in just over 12 months! I've come down with lots of tummy bugs, it seems they are my bugbear, but I've been taking something called Armor Force ( I think that's how it's spelled) but stopped it about 3 weeks ago as I ran out and didn't get round to picking more up. So - it seems like it works for me :-)
Bob is going really well, he's put on about 5kg and starting to do his regular activities. I'm relieved :-)
Judy keeping my fingers crossed that this chemo works for you.
Carol, I hope you aren't coming down with something - that's the risk when you are working with the public and doing chemo. Take care of yourself lovely girl.
Chrissy, I'm in your pocket - even if you don't need me xox
Trish
xoxo
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Hi all
I did get something yesterday. I woke up during the night and felt nauseous and a very dry throat. I didn't go to work and during the day I had a headache and still nausea and felt tired. Today I've felt all right just a bit of an upset stomach which I get anyway, I was told this virus sometimes comes back so I will have to be careful as I have chemo on Wednesday.
Trish I was going to get the flu needle but I haven't yet and haven't got the flu or a cold yet.
Carol
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Hope you are feeling better, Carol and I sincerely hope that the virus doesn't return.
Finally got all the results of my scans and I am sorry to say that my long dance with NED has come to an end. The full body bone scan has shown a few hot spots in the ribs and collar bone area so it's back on Femara for three months then do another bone scan to check on response. If the response is not good enough then I will be changing to Aromasin.........ho hum, I'm back on the treadmill. Never mind, this is just another bump in the road of my life.
Take care all.
Love n hugs, Chrissy
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Hi everyone,
Trish, hope you are over your cold....I’ve avoided one so far, but I’m hating the cold winter in Adelaide which is making me feel miserable anyway.
Carol, hope you are feeling better too... sometimes it’s hard to tell if it's the meds or a bug making us feel ill.
Chrissy, sorry your scan has put you back on Femara, but hopefully it is only a little bump in your road.
My scans and bloods are stable with no progression, so I am very relieved - I started back at the gym last week, wouldn’t have dreamt i would be capable of it two months ago.
Kindest regards to you all
Jackie
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Well, time to hear from the boys. I've not long returned from the Project LEAD course in San Diego. The pic shows the attendees, 43 women and two men (me top right in green t-shirt and Kirby from North Carolina in the centre). Only three scholarships were given to people outside the US. Lucky me was one.
Also, last Sunday, Rob Fincher and his wife Ann stood on the MCG as part of the Field of Women representing the blokes with bc. Rob recently underwent an op for brain Mets ,so this wasa mighty effort from him.
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Chrissy - yes a bump in the road, but it shouldn't be there! Girl, you deserve better! (((hugs)))
Roo - great to hear from you, so glad that your scans were good, long may it last.
Traveltext - how great to hear from you too, wow, haven't you been busy.
Trish
xoxoxo
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