Bonfire of the Goddesses
Comments
-
Hang in there Ducky!
0 -
Aly, am so sorry you are being hit by a tsunami of cancer-related crap!!!! Stay here by the fire with us a while - we can hold hands and sing softly together or we can just BE. FK, same for you.
Let's toss on our anger and bitterness, let the fire rage. Let's keep the scientists and doctors in our hearts, knowing they are working, but it would be nice if they made a little more progress a little faster. Let's toss in some of the ridiculous barriers they encounter as they try to do the research, between government and industry rules & regulations that make no sense in many cases, and the lack of funding because a company might not make any money from some discoveries but will make more money on others that are not as helpful.
FK, don't go into that basement!!!!!! We need you here. You are important to all of us. Taking a break from reading and posting is OK, but DON'T GO INTO the BASEMENT!!!!! Sit here by the fire with me for a while. Here is a little painting I did for a special BCO sister, and I am sharing it with all of you other special BCO sisters here as well. Let's take a few minutes to enjoy the spring flowers.
0 -
Not in the basement just very tired. Ducky I am having 'thing' removed from my chin today also have three burnt of my back!
0 -
Well ready to burn anything that looks medical.......I have wonderful Dr.s' the best there is, but too many this week to see......it all comes at once.
Monday ....Pulmonary Dr. put on another inhaler.....Tuesday....BS, and then to the MO......my BS is retiring and I am sick over that..........My MO wants me to go on Reclast, but I don't want too, so its a pissing contest between her and I.....love her too...she is only looking out for me.............asked about going off Letrozole.....did not go over well......now listen to what she suggested.............She mentioned Falsodex.....(think I got that right)......she said it is only approved for Stage 1V cancer, but has been tried in women who can not tolerate the SE's of the AI's.......she needs it to be approved for me but said she already got approval and has another woman on it for the same reason SE's.........have to consider that.....sounds like a plan provided there are no SE's from that one.....seems there are some, one being joint pain which I have.....LOL.....
Today to the Derm to have 2 cancer spots removed......one on my chest, the other on my shin.........both were Squamous cell......they are gone now hope never to return........today my GI person called and said they want another colonoscopy even though I had one done a year ago, as many of you will remember right before my "famous trip to Chicago for the wedding"......................just a precautionary thing now that it is a year later and everything has quieted down.
Ok ladies now that I have bored you to death.........I will crawl up next to you by the fire, and print out the beautiful picture that Linda shared, and maybe take a much needed nap.......love you all.....
0 -
I am not in the basement
I finally cried today
Prayin for all of u
(((((((Ducky)))))))). ((((((((Alyson))))))))))
I'll be home tomorrow...I'll be at the fire then
0 -
Aly - So sorry to hear about all this cancer crap. Does it ever end??? Don't go into the basement. We are all here for you.
Ducky - What can I say? Endless doctors and procedures. With my most recent issues with my left eye, I took myself off Tamoxifen. Too many significant SEs. If we have to be on these drugs, can't they come up with something that has few if no SEs?
Linda - The painting is beautiful. Did you do that? How awesome if you did.
As for me, nothing new or exciting. I have my 6 month MO appt on the 21st. Pretty boring - yawn!!!
0 -
Thank God JOJO u r ok
Just wait for me to go home tomorrow so we can start that giant fire
X that it's gonna rain for the next few days
Start it now please...I'm still freezin
Glad I brought my leather jacket,,I wore it every day and in the house too
I miss my bed
0 -
Forgot Jo....I have a yearly Mammo on the 21st also................yea we're twins..........LOL.............
0 -
thank u ducky
I needed that laugh
I call that a peckergram
In my lifetime I would love to see this,just on one man.Once,on camera.
I no our Mary,Mary would get a kick out of this
Maybe even chime inq
I had my mamo while I was away
She squeezed the shit out of me
Just 1man
0 -
Good Morning Goddesses,
Safe travels for Fire and a good day for all!
Ducky, I am respectfully disagreeing with you about the trip! It is not a good thing it got postponed then cancelled. It would be a fun break from reality that the ladies could invest as much or as little time into as they wanted. Some girls were really looking forward to it :0(
Kinda a bummer things here were on a roll, but the embers are still there we just have to stoke the flames.
A body or two wouldn't hurt either!
0 -
4........if you read closely you will see many of the ladies had things going on in their lives that made the trip delayed...........I for one did not want to go on this imaginery trip without anyone who said "count me in"...........read back and you will see numerous reasons why it was postponed in the beginning.......for many reasons, mainly not going without everyone..............then we were hit with some things that caused some of us to consider those who might never make it, and that made us think more about what we should do..........the decision was made to cancel........
I'll take the blame, but I had my reasons, and thought they were all justified.......we were not taking our imaginery trip unless everyone could go.............others agreed it was the right thing to do........
Sorry I disappointed you......it was not my intent...........
0 -
Just want to say..................to anyone who I disappointed by canceling our bus trip I apologize........it was not my intent to be a party pooper.
All things considered I felt it was a little difficult to continue on when there was quite a bit of sadness going on on our thread.......there were some who were having some health issues, family issues, and other reasons why they were telling me "go without them"............that was not going to happen, so until everyone could go we postponed..........then I was waiting for Mary......then she said "I probably won't make it"............that was reason for me to cancel......it was not happening without Mary.......sorry.......it was a decision I made............I apologize to anyone I disappointed, but I did the right thing......of that I am certain..........
0 -
Oh Ducky, I didn't mean to upset you! I just meant that it would have been sumptin fun even for the lurkers! I thought it might have brought some joy to those who were going through chit. Especially those who were goin through chit! Something light hearted that could give them ( and all of us) a reality escape even if only for a few minutes. I actually thought those were the girls it would be the best for. (Mary, bless her soul, was lurking too. I'm really going to miss her humor and contributions but I know she is smiling down and guiding us too.)
Then whenever someone felt like it they could join in or just keep lurking and laughing! We didn't all have to be in the same place at the same time on our computers. Just come and go like always!
That was all I meant. Everyone was so happy when we were joking about the bus trip. We all knew it was pretend. I just thought by posting some pics and facts about our hometowns or the towns/states/countries we live in now, and some stuff about ourselves and maybe even interesting facts about a place we want to go but will most likely never get to, like the Great Barrier Reef!
Well I just thought it would be a good way of getting to know each other a little better and learn something about different places in the country or the world! Just for fun.
Again, I didn't mean to upset you!
0 -
4..........you didn't upset me....sorry if I made you feel that way..........it seemed all of a sudden everyone had some nasties going on in their life, and I thought....."well we can always just hold off".......then things go worse and I thought......"gee maybe this is not the right time to be acting like the "Crazies" we are, and made the choice to cancel.........it would have been fun, and yes we were learning a lot about each other, and the response to "getting away" was overwhelming............the ladies were so much fun during the planning...........laughed my ass off everyday...........
Please do not feel like you said anything wrong.....you did not upset me......just though you and all the ladies deserved an explanation...........I guess I never really gave one did I............and your right..............everyone would have had a blast.
0 -
It's not too late for a summer get away!!
0 -
Perhaps we all just need to put the trip in the fire and take some time to regroup. Ducky is right. There was so much crap happening all of a sudden and I for one was not going without everyone either. It was so fun to make plans but we all know shit happens and life goes on. The bonfire is still alive and we all have a comforting place to come to.
If it is any consellation, I do have a cruise coming up the end of Sept and and everyone can stow away in my luggage. I will need a list of names so I know how many extra suitcases to take. More details as I get closer to the date.
0 -
All I seem to have done is make matters worse! I certainly did not mean to imply anyone was gettin' left behind while they were dealing with their crapola! Quite the opposite really.
Have fun planning for your cruise. Never been on one. DH saw enough of the ocean while he was in the navy so until now he never really wanted to go on one. Actually he never really saw much, he was on a sub!
Have a great weekend!
0 -
4sew! i keep trying to read your blog, but you dont go there anymore!
0 -
...i am just Pi$$ed today & tired of feeling like crap. in with the doctors and what they dont tell you. in with all pills. in with my bad attitude and my dry eyeballs. in with feet hurting. in with people dying. in with other people hurting. in with crumbly fingernails, and misunderstandings. in with med papers, leftovers cause i didnt feel like eating after i made it. in with chores, and half done projects. do you think i can throw the whole garage in? bike with flat tires? bills? grrrrrrrrrrrrrrrburn!!!!!!! and you know what really burns my a$$? a fire, bout up to here. (holding hand up to the top of my legs...)
0 -
First let me say.............4 you did not make matters worse............I know exactly what you were trying to say, and so does and so will everyone else..........you meant no harm.............now don't make me come there and whip sense into you........LOL
Kath........LOL you just described my life in a nutshell.............except for the crumbly fingernails, although from getting Gel manicures all summer I can't keep my fingernails from snagging, and then having to cut them all the way down again......LOL.....its the friggin nail polish remover they use to get the shit off evey 2 weeks.......well I start in May, and stop in Sept.......not doing it this season cause i takes 10 months to get them right again......but I love the fact they dry immediately ....only reason I do it, and it lasts so long.......ok why the hell did I just give evryone the history of Gel manicures.........
So to get back to the aches, pains, achy feet, pills, SE's and all the other shit......I agree with you Kath...........if I thought I could really throw all this f/n shit in the fire and it would go away I would be the first one burning my ass to get it in there...........
However..my MO told me yesterday she can put me "with approval from the insurance" on Falsodex which she claims has less SE's with regard to aches and pains, and it will do pretty much what Letrozole does with regard to recurrence ..........have to talk to the other ladies on here about that, and whether it is true......not going from the frying pan into the fire to find out nothing changes....
Ok, done my rant...............hugs you all.....
0 -
hey I'm home and glad to be here
JOJO count me in with the cruise...I will be there,I just learned how to pack lite.
Kath,,,I'll meet u at the fire right now and burn every damn thing that is bothering u.im gettin my leather jacket and I'll be right there...it's still kinda cold..all I'm gonna bring is myself."
Enuf with that trip...as ducky said the time was not right and it still is not right and it could never be right with all the junk sistas have right now
ME IM GOOD IM GONNA HAVE GG#4 AND ITS A GIRL
0 -
ducky, how long have you been on letrozole now? If your MO moves you to faslodex how long would you have to be on it? My MO told me when I started on letrozole that most women only last 3.5 years. She also said that she REALLY wanted me to stay on it for 5 full years. I felt so much better after retiring that it was like a breath of fresh air... BUT the SE's are getting to me again. I religiously exercise and am certain that helps some, but I think I'm going to go back to acupuncture. I felt much better when I was going.
0 -
GG.......I have been on Letrozole for 3 years..........I know I'm old .......79......I know I have some old lady ailments, but I had these before cancer..........and still functioned getting around with just a bum knee that sometimes hurt, but nothing like I have now..................I even broke a vertabrae and came back from that after kyphoplasty , broke another one, and acupuncture took care of that............I know this devil pill is causing all my problems..............it ruins your quality of life, and I am tired of it.....
So her suggestion was Faslodex, but it does need approval.........
I also was thinking of complete body acupuncture, but must be careful of my right arm....I have lymphdema, unless they stay away from my LE arm...........
I was told 5 years too........she never mentioned how long for Faslodex, just that it was an injection..........I have googled it, not sure if it worth a try..............
0 -
Hey Kathec!
I know that blog is pathetic and I really need to get back to it. I have just been so crazy busy! We out it together in a huge hurry one weekend because I was "coaching" a lady getting ready to start cold capping and she needed to see the cap change videos and I was also trying to offer encouragement through my photos. I thought if she saw I had hair before, during, and after it would give her hope. I am all about looking for the bright side! So anyhow I know I need to spend some time on it.
Maybe after school gets out on the 21st. I am scheduled for another surgery that day too. Maybe with my down time I can get it updated!
Like FireKracker said us sistas got junk. But life's always gonna have junk and you gotta make the most of it. Sometimes you just gotta jump in and make the most of it. And that's all I'm gonna say about that.
Enjoy the fire ladies!
0 -
ok,4sewwhat, but please dont go away!
0 -
Thanks Kathe, but don't worry! I'm around :0) This is just a super crazy time of year for me with all the stuff each of the 4 kids has for the end of the school year.
Tonight trying to beat the deadline to get registered for my oldest to go take SAT and ACT. He will be a JR next year but has already tested into taking college courses and will be starting part time in the fall so he will get college and HS credit at the same time and because we are in GA he gets free tuition from the lottery program! So when he graduates HS he will start college as a sophomore or close to being a jr. then his freshman brother will head down the same path next year. In the mean time going through all this for the oldest is a real learning curve for mom and dad! Did you know you take the SAT by subject now??
2 weeks until schools out! I have like 6 more catering orders in those 2 weeks too! I just had to close down my store front and have surgery once a month to get busy!!! Timing is everything they say, and as usual mine is spot on!!!!!
0 -
4.........where you gone..............sounds like your busy, busy, busy, but you can spare us a few minutes every now and then..............
Your life reminds me of one of my daughters a few years ago..........3 all going to college one right after the other........and then had a son with twin girls who were going at the same time.........
Don't be a stranger.............
0 -
Ladies, things have been moving fast and furious here by the fire! In the meantime, my mom is better, went home with my sister so my house is now empty of extra people for the first time in nearly 3 weeks. DH and I are off to New Orleans in about 30 minutes for a conference for him, play time for me. So I am getting practice packing for when our trip finally happens!
Yes, I did the painting. I do loose ink sketches with watercolor because they are quick and fun and easy to send to people. I don't keep a lot of my work - only the stuff I can't seem to find good homes for. I did get a couple published in small magazine no one ever heard of called SCOPE.
Had a very rough day yesterday that I am tossing into the fire - combo of chemo plus xgeva on Tuesday caught up with me yesterday, but today is better, thanks to lots of modern chemistry!
Let's all regroup, take some deep breaths, spend some time with loved ones. This HAS been a tough few months with all the crap that has come upon the group, but we have FAITH that things always change, and HOPE that they change for the better!!!!
I may not post for a few days - will be soaking up all NOLA has to offer, which may not include internet time! Hugs to each of you, and I don't want to hear of ANYONE heading to any basement while I am gone!!!! Way too many people love you, so if you are down, think of some of us extending our arms across space and time to give you loving tender gentle hugs!!!!
0 -
Linda......enjoy yourself love, you deserve it.......you are such a caring and loving person.....you know just the right things to say to make someone feel loved................
Your painting was beautiful.....you have talent girlie.......how those painting of yours cannot find a home is beyond me.........anyone would welcome them......such beauty.........you keep on painting....wish I had the talent.......I have none, and I mean that seriously..........oh I bake and cook, but guess what anyone can do that...........plus now that my nest is empty I don't even do that......
Well maybe today I made homemade Escarole soup.......some call it Italian Wedding soup......taking it to my daughters tomorrow for them to enjoy......
Now you have a great time.......hugs love you.............
0 -
hi sweeties. Why don't you all come on my trip. Just a week to until I leave. You can follow me on Big Girl's Panties on Tour thread. Will post link when I am using the computer can't do it from my phone. I will post updates pictures of the wedding and the get together on Canada.
4 I would love to show you around where I live.
Do wish I was coming to the US this time but will be next year so maybe we can have a get together.
I have so much I would love to put on the bonfire.
Loads of love and hugs
0
