Bonfire of the Goddesses
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Granny................just saw your post. was away for memorial day................I gave the bitch a huge shove.................she is burning baby, along with my DIL.
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Need to toss in this bitch from Rads..............she does the scheduling for Simulation and Portal Films, and had a run in with her today. Came in at the wrong time for my Portal Films.............my mistake..............however yesterday she made a big one and would not own up to it..................Told me I said I would call her if I wanted to come earlier to Rads (after returning from the shore), but she lied through her teeth.............what she said to me when we set up a new time for Tuesday was "come in at 4pm, but if you can make it at 3:30, that would be better..............I said "I'll try"...........never said I would call to let her know................then I find out the bitch had someone scheduled for 3:30, and 3:50pm, so why would she want me there at 3:30 too.................Did go at 3:30 to try to please her since I got home earlier, and waited till 4:30 to be taken, and didn't get out till 5:10pm............................after all that today the bitch gave me a hard time cause I screwed up my appt. time today................well my son intervened, and dropped the F bomb to her, and I near died.
Ok, toss her in anyway.........................burn baby, burn............
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Well I wanna throw the Gyno in the dang fire. OMG. How much money are ya gonna bleed e dry of. Why cant ya just do the dang dample first and get it over with. Im not made of money. Well Im sure you will burn slow cause ya took your sweet a$$ time getting to me today.
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I want to throw in all the anxiety I felt over the weekend waiting for my mammo results. Fridays are not a good day to have them scheduled. Now I don't have to worry about it for a year. Hooray!!!!
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Jo.. Why did you have to wait all weekend? The place I go to, I meet with the radiologist afterwards. In any case, congrats!
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how about stoking that fire pot good so i can toss my hubby in? it seems it is all a bit much for him- the stress of my BC the accident for the older son and well, the poor poor man has decamped to the other house (the one I still pay a mortgage on because it has not sold-along with paying this one) so he can chill and relax and get his head straight. how frickin nice for him. he did this without telling me and will not talk to me beyond saying i need to relax....ahh yes, between working and paying ALL of the bills, taking care of older son recovering from surgery, younger son with autism, getting ready for my surgery on wednesday...yes, I need to relax....this ihas happened before...but i may do it all different this time...I never had BC before...I never had so many responbilities heaped on me before...i never felt so alone before....i may be done indeed....i can't forgive this...self-centered babyass crap that I have fostered for too too many years....can't believe I typed this...I typically keep it in and remain stoic with a smile plastered on my face- oh yes, he has said he would drive me to surgery wednesday of course...I guess after I just get dumped back here with both boys...how nice...WTF...this happens every so often when he feels neglected and overwhlemed with life's responsiblities....so I kiss his &ss and make his booboos go away while I pay the bills....this is nuts i am nuts and i must stop it for as I read this if someone else told me they did this I would tell them they are nuts but well, i just thought you do everything you can but i cannot understand someone so friggin lazy (except for his four times a week workouts).....ah, enough for now...gotta shake my head clear...this has been going on since friday night....gonna be surprised when i tell him i cannot afford an inflated electric bill at the other house while he relaxes.....
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voraciousreader. I specifically asked the tech before we got started if the radiologist could give me my results before I left. She told me the radiologist does not give results that I would have to call my MO on Monday. She did have me wait until the radiologist looked at the shots before I could change and leave. Guess that is the way they do things. I never worried about it in the past - I just waited for the card to come in the mail that everything was normal. I didn't stress about it - kept myself busy and did not think about it. Something told me I would get clear results.0
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I used to go to a place like the one you describe. But I now go to a place where I get face time with the radiologist. I can't imagine, once diagnosed, using a practice like the former. I go to a practice that just does women's imaging. My radiologist even discusses with me when he thinks it is appropriate to do each type of imaging. At my last visit he was so comfortable with my mammo and ultrasound, he thought I could forgo the MRI for at least another visit or two. Made me feel so good to hear directly from him that everything looked well. I think all women deserve that quality of care. We really shouldnt wait that long to hear good news... In any case, I am happy for you.
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voraciousreader - I have used this imaging center for many years and like I said before, never gave it a second thought - I always figured the results would be normal. I did not know that I would not be able to meet with the radiologist. Although I really like this facility, I may call around and see if anyone them do provide results the same day. I told the tech that it was just down right cruel to make one wait for results once they have been diagnosed with breast cancer. She was very sympathetic and I don't blame her - she was just doing her job and stuck between a rock and a hard spot.0
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Well....last June when I went to my mammogram, I could tell by the techician's body language and her words that I would be coming back. I had to wait in the waiting room and hear her say ' see you next year!" to the other three women...and to me she said " Enjoy the rest of your day". I knew I was in toruble before the letter arrived...hopefully tomorrow I will get a 'SEE You NEXT YEAR"
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Sandee - Crossing my fingers and sending positive thoughts that you will hear those words tomorrow. If you wear something with pockets, I will jump in and hold your hand.
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Jo... Sandee... My gyno does sonograms in his office too. Because I am taking tamoxifen, I have some things that need watching. I meet with the doctor after the sono. Sometimes he comes in and takes a peek. I have a friend whose gyno sends her for so os at another facility and ... You guessed it... She has to wait to hear from her doctor. She got the "Have a nice day" BS from the tech and was on suicide watch until she got the all clear from her doctor. Meanwhile I told her that all ob/gyns should be be trained to read sonos and at the very least... Should be doing them in their offices. I am now accustomed to this level of care and expect nothing less. There are practices out there like the ones I describe. It is worth finding.
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Voraciousreader - I don't know if my GYNO can do sonograms in his office. I see him on Wed morning and am going to insist on a transvaginal US since I am taking Tamoxifen and I have a history of fibroid tumors. It will be interesting to hear what he has to say.
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After you meet with your gyno... Meet me down by the fire!
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voraciousreader - It's a date - see you then.
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http://community.breastcancer.org/forum/44/topic/753120?page=73#idx_2184
Anyone having trouble with bra fittings and migrating foobs, this is the site you want to go too. Amazing information. Will be back want to post this on some other sites
) sheila0 -
annette, how irritating, and annoying for you..wishing you lots of strength and support this week, hope you get it from somewhere xx, i will be thinking of you
i do everything at home too, and everyone seems to forget i have BC...oh well, thats life as my new sig says...we should be proud of our goddess like strength sometimes!0 -
Sandee---it's so true, you know damn well somethings wrong. They should have it figuired out differently. Make a suggestion to the manager of the facility that they work out a different plan, i.e. they take each person outside and tell them.
Some of you know me some don't. Aug 08 mammo clean-- letter received "See you next year". I was going for an elective bilateral due to family hx. Next step was an MRI which I didn't get until dec 08, because there was no imperative. I had the MRI done when I did because of thinking oops-- get it done , otherwise you will have the new year deductible. Bingo BC left breast. BX not till Jan 23 b/c of Xmas and Jan vacations. MRI of brain 2 days before bx. Told of brain tumor by phone by a nurse just before leaving for breast bx that we new was going to be positive. BMX feb18th. Went from grade 2 at BX to grade 3 at BMX. < than 1month. Relooked at for sampling error. Nope, it was that aggressive. Three sentinel nodes neg. Chemo failure x1--later found by me about 10 months later to be a drug interaction with my anti hypertensive--norvasc amlidpopine and cytoxan. Norvasc also interacts with all the AI's, thats when I found the drug interaction with cytoxan. DUH. Lots more stuff but the most important foul ups are here i.e drug interaction could have/ should have been known access to highly sofisticated drug checkers were available to both in hospita/external pharmacies. Norvasc is a common antihypertensive
Point is Mammo's aren't perfect, Mri Is a better tool. Aren't done routinely b/c of cost. I am convinced that if I had not had the intention of elective, one year later it would have been to late for anything. I may be an exception----don't know? Don't want to make anyone crazy, my family hx should actually be studied. Braca neg 1&2 ---yet there is breast/ovarian/colon and multiple more-----probably a P53 gene. But that's why the whole family should be studied, if I wrote down the stats, CA is way off the charts in two generations. Paternal grandmother is the sure source. Came from a Canadian farming family when Pesticides and fertilizers were first interduced in the early part of the last century. We know paternal GF neg b/c a full second cuz researched the other side back to the old country. Maternal side neg hx.
If you are still getting Mammo's post BC try and convince them to do MRI's instead. It's an insurance fight. I found one article peer reviewed that stated it was more accurate, but cost was the determining factor. There is probably more research now. My search was several years older than the year I decided to do the elective. I asked then for a MRI and was refused. Would that of made a difference ----most likely not b/c of the agressive nature of my tumor. Who knows b/c it didn't occur and surmizing gets you nothing --not even a cup of coffee.
I'm just glad I was going for the elective and glad to be alive now. Brain tumor behaving itself--Followed by serial MRI's----if it doesn't bother me I'm not going to bother it b/c it's in a very difficult access point and would require a full crainotomy just to BX it. The complications of access out weigh my need to know. Probably way TMI, but may be one person will benifit.
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sas: i agree with you on the breast MRI thing, its something i hope to advocate for in australia, am looking into it. But available and affordable breast MRI for younger women with dense breasts, or anyone who wants one! needs to be addressed. So are you stage IV sas?, or is your well behaved brain tumour not bc related?..I wish you every success in the future, and understand your post...i am very cranky at the mix ups i have had to go through in my short time with this diagnosis....lets toss all those "question marks" and the 'what ifs' we have to go through in the fire...nerida x
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Did not get the 'see you next year' I had hoped for.....but did not get 'enjoy the rest of yor day either"...was told I could leave....will call my Gp tomorrow and make an appointment for Friday with the hopes that the results are in....between that and the twinges in my jaw today, I need to get in and see her. How can I have a perfect stress test, EKG etc. and still hav etwinges in my jaw....stress???
I have an MRI booked for September....I was the one who insisted on the mammogram to get the year 12 month thing overwith...no way was I waiting until th eend of September ...my mammograms are annual...not every 16 months.
Sas....I am hoping I did not read her body right...to be honest, I was lookng away and wiping away tears hroughout the event this afternoon...and breathing. it did not hurt on the lef side as much as I had anticipated and she began wih th eright breast as I asked her to.
Jo- was holding your hand tight today. Hope I did not hurt you. thanks for being there ladies
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That's life---------What I felt was the positive about the brain tumor dx at the same time as the BC dx-------was If it had been found at a latter time everyone would have been more aggressive about BX. What I learned by my own research is that meningiomas can be caused by BC and the reverse is possible . A menigioma can be estrogen supported. I can't draw the picture But i will try
BC >---------------------------------------->Meningioma
Meningioma>----------------------------------- >Bc
Actually, thats what i learned from my own research, meningiomas can be estrogen supported. When I presented this diagram to the specialist -----they looked at me with glazed eyes . which is a clue they didn't get it . So, even though the delivery of the info re: brain tumor was cruel--by phone with no details. It was identified at the same time of BC, which caused me as a nurse to be able to say -----not bothering me etc.
Now my statement regarding the effective overdose of cytoxan caused by the drug interaction with norvasc--- Plus then the docs put me in acute renal failure and hyponatremia( low sodium) by hanging the wrong fluids which if you follow the drift caused the cytoxan to circulate longer than it should have>>>>>>>then for some reason I developed bladder retention. I said on the third day to nurses I had worked with for years---------whats going in isn't coming out. I saw the iv flow rate and knew. Asked if I wanted to be cathed----DUH YES>>> 900cc. So, cytoxan and taxotere were prevented from being washed out for x amount of time which is uncalculable because from time of admittance----- no Intake -Output was recorded. A nurse since 74, I never had a patient that had acute renal failure(acrf) and bladder retention at the same time. Have no clue how often it occurs. Because ACRF you would expect no urine output, but they brought in a nephrologist pronto----means he gets the referral and comes in after his day of seeing patients-----he identifies right away that the problem is the wrong IV fluids> That's the evening of day 2 admission. Day 3 is when I complain about the in and out thing. By then I should of had a normal output
The positives------- that one over dose may have taken care off the BC stuff and may be the meningioma. Drug cytoxan enhanced by norvasc+ renal failure which prevents kidney filtration----allows cytoxan and taxotere to float at a higher level than should be for a longer time than is usual---------------No one would accept responsibility No one would even suggest a reason for the occurrence ---------as i stated above i identifird the drug interaction with norvasc 10 months later
The negative is I have to have yearly urinalysis for cytology for bladder cancer caused by cytoxan sitting in the bladder for so long . Irony-the cancer center won't order the cytology test-------I have to get it through my PCP.
cluck'em
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bet those little nasties would make a lot of snap, crackle and popping ! just dont toss in the fireflies or lighting bugs....they are great to watch around the bonfire.
I am tossing in my aquafor before i even try it...just hate the thought of being all sticky and slathere in that stuff each night.
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I forgot to say throw all those people that made errors and wouldn't accept responsibility, or try to find a solution >>>>>>>right into that bonfire >>>>>>Thank you very much !!!!!!!sheila
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Can I join? Throw in some co-workers who are getting weary of my breast cancer?
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kmmd - Welcome - Throw in whatever you want - this is the place to get rid of all the crap that we don't need in our lives.0
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Let's throw in all the machines that break down........................Seems like this is never gonna end..............
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jo1955--thank you, I think I'm going to like this thread
Adding in swelling from LE, that can so go away
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Oh Lord,can that go away.............saw the LE specialist today. .............she is wonderful............gave me quite a few exercises to do,, and none involve my arm............all body exercises........was shocked on how she said to get the fluid moving..........she is Board :Certified, so maybe that makes the difference in the knowledge...............but lets throw LE conditions into the bonfire......want to see the burn......
e
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Kate - This bonfire is really magical - once you throw in something is really makes you feel good. You can even throw in people - there are some morons out there.0
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Nancy - So good to see you again - haven't heard from you in quite some time. Unicorns are one of my favorites. Hope you are doing well.
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