TRIPLE POSITIVE GROUP
Comments
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Ditto not liking the new format. I have my screen at highest + and still have to squint to read the posts. Grrrrr.
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It takes forever for my "favorites" to come up......well about 1-2 minutes. Anyone else?
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Everything is moving along quickly for me now. I'm starting to like it.
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Like is too strong a word....... Getting used to the new format though.
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The new format looks more like a table of contents. We might get used to it, but if I was a newby I'm not sure I would stay for long. There is an improvement from yesterday, but it still takes a few clicks before a thread opens.
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I hate the new format. I think we should start a thread on it.
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Day 3 of trial. Got the vaccine/immune booster placebo. No real symptoms. Had to wait an hour while they monitored my vitals. Now I just go back on friday to be checked out and head home.
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Yeah Fluff. So is that the end of it or do you go back again?
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I have to come back every three to four weeks for a total of six times. Then boosters every six months at six, twelve and eighteen, I believe.
Next time, I am just going to fly in and stay hat the hotel in downtown Winston-Salem that has a shuttle to the Med Center. It is a neat little downtown.
In July, my friend is coming along and we are going to have a Thelma and Louise weekend.0 -
FLUFF: how exciting! Thanks for posting your experience with this trial!
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Sounds like a fun weekend trip fluff. Might as well enjoy the travel! Thanks for keeping us updated.
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Hi (to everyone on this thread)
Tomorrow I will have herceptin treatment 18 (my last). I started the TCH regime on 5th May 2011. It has been a long haul. I am posting today to thank you all for helping me get to the end. I couldn't have done it without the love, support and advice I have received from the fantastic women I have met on BCO.
P.S not disappearing, just wanted to say that!!!!!
Liz
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Yay Jackboo. You might find that in a few weeks your hair will grow faster and if you're a bit stiff some of that will go away.0
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Huge congratulations Liz!!!!
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Liz - fantastic!
I guess like is too strong a word for the new format. It is moving quickly for me, and finding my favorite topics is easy. Too much empty space and it's harder to scan for things of interest.
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Congratulations, Liz!
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Hi Ladies, Well....I am done!!, I had my last Herceptin last Thursday and get deported, nipple reconstruction,lipo and c-section scar revision next Monday!!! I am relieved but as Fluff had said "feel like my safety net is gone"
Had a lengthy discussion with my MO about recurrance, testing,diet, "anything" I can do to decrease the risk of FC coming back. He told me that the Anastrozole is a 'biggy" since I was 100% er+ and 95% pr+ and I might be on it for longer than 5 years. (anyone heard of that?) and that I have done everything medically necessary. He still says no to the Metformin, but yes to Zometa, aspirin, Vit D. and multivitamin and exercise (cardio and esp. weight bearing exercises) As for diet, he says everything in moderation, don't drive yourself crazy (he knows me to well
) about trying to eat like a rabbit everyday. As I was leaving he said" Go!!!, Enjoy your life and your children!!""try not to worry" ...to which I answer.."oh yeah btw... Can I have a refill on the Ativan!! ha ha ha!! I have to go to a "survivors" meeting. I hear they help. I don't know what I would of done if I hadn't stumbled on this website @ the beginning. You ladies have helped me so much with everything. I never felt like I was going through this alone, and have felt like you are all my friends, even though we have never met in person. I am going to help others on this board as they start chemo also. "pushing it forward"
and of course continue keeping up with all of youNot sure I am liking this new format.
fluff-very exciting!!!... what your doing...wish I could enroll, but not doable for me. Thanks for keeping us posted. Btw, I love the Alchemie products!!! I am going to pm you later about my surgery.
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Congratulations Liz!!! Feels good huh!!!0
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Congratulations Bucky!
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Oh, I forgot to add that my MO will be seeing my in 3 months for ck up and tumor markers again. and.... I need another echocardiogram to check to see if my heart is still functioning normally.
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Bucky and jacaboo, CONGRATULATIONS! I am happy for you.
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Hi again
Lago Thanks for your good wishes and yes I'm hoping for less achiness. Had to laugh at the hair growth as Ive just been for my second cut today.My hair is in a cute pixie cut and I really love it. Can't see me returning to long hair. I must upload a picture, keep meaning to do that.
Bucky Congrats on finishing and for adding details about your docs comments. Think my oncologist will be glad to see the back of me as Ive had major anxiety over my heart.We will have to compare notes about post Herceptin life. Im feeling pretty good. Walked 6 miles today without any problems. My family are having a little finishing ceremony for me tomorrow when I get back from the clinic.
Chachamom, dancetrancer and vballmom- Thanks for posting.The support is so wonderful. I couldnt wait to tell you guys about this important date.
Liz
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~~~Big Congratulations~~~ to bucky and jackboo!!!0
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Bucky and Jackboo Hooray for finishing Herceptin!!!0
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So great to see gal's finishing up.
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Bucky - yayyyyyy!!!!!!!!!!!!!!! So excited for you, too!!! I think I recall reading about > 5 years may offer more protection, but that the full data is not in yet from the longer trials. My brain is fuzzy on that, but I'm sure someone else will chime in. BTW, I laughed out loud literally at your Ativan comment while I was in the dr's waiting room. Thanks for that, LOL!
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Liz and Bucky!
So happy that you've both finally completed Herceptin. Each time I read these milestone posts it brings me to tears. Only those who've traveled this road can know the strength , courage and toll this takes. i'm so proud of you both.
My MO's NP told me the hardest parts of treatment are the first and the last. Right now I'm not seeing it but maybe someday I will.
Cheers!0 -
Congratulations Jackboo and Bucky!
Laolson18- how is your mom doing?
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Hip, hip, hooray Bucky and Jackboo! Congrats!!!
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Congrats Jack and Bucky! WOOT WOOT!
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