TRIPLE POSITIVE GROUP
Comments
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I learn so much reading this thread - thank you Ashla, Pbrain, AlaskaAngel, Lago, and everyone else who continues to educate me.
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Cypher, my bossy person was a man, a doctor I work with and respect greatly. He thought my BS was a jerk, and was very, very concerned that I liked her and was putting my health in her hands. He met her when his wife was first diagnosed and he said she was arrogant and unkind. But I felt an instant rapport with her and decided she would be a great surgeon, so I stuck with her while he nagged me...I wandered off, had the surgery, and he shut up :-)
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I like a little arrogance in my surgeons, lol! My FIL is a doctor and my MIL is a nurse, and he is always trying to treat her and I don't think he listens to her docs as much as he should - could it have been a bit of that?
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Thank you all for your support. The day began with my sister calling me that I was making her late for her appointment. I knew she was nervous and shut up. She needed to vent about nonsense. Anyway. She is ILC Er pos. HER2 neg. 1 cm on left side. They did not grade it yet. She is a basket case. I had spent all my time reading, researching that I felt it was under control. When they told me chemo I freaked out. (vanity) Vented here. thank g-d for you guys. Today after the appointment we went into a very expensive jewelry store and they complimented my very short hair cut. ... I told them it wasn't voluntary but I'm fine. After a day of trying on very expensive jewelry we both felt much better.
I did ask her Dr about the Braca implications for me and she said I might have my ovaries removed. My dr had warned me prior to my sister's BC that we would discuss my ovaries later. I guess that time might be sooner rather than later. Not sure if I should prepare myself or not. I'm 61 so I don't need them. Not sure even how to research it??
Thx again and best wishes to everyone.
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PBrain, who was your surgeon? Didn't you go through Community? Mine was Chace Lottich. She was the first female surgeon to graduate from Duke. Her brain is always ahead of her conversation so I really have to focus. She is considered a God down here on the south side, but is definitely not a real warm, fuzzy type. I love her though, as she deals with everything very matter of factly, saying here it is, lets take it out and move on. Somehow that made me feel better.
Shasha, I wasnt going to have the BRCA test done as I wasnt what they considered first line so didnt think it would be covered and thought my daughter could get it done. As I was finishing herceptin, I asked the doc, so he checked. All covered, (I did have two aunts that had it). I was negative, much to the relief of my daughter, but guys can get it too.
Cypher, I was in the car after leaving the BS office a week after my mastectomy. My NP friend had taken me. I was reading the path report of my breast tissue, which read similarly to yours except in one part it said something about an unremarkable something or other. I told her I was offended that they thought my boobs were unremarkable as I thought they were pretty good! We both started laughing.0 -
Special K I was thinking u'd better watch how u'r dr. not looks at u, but u'r kidney, he seems very fasinated with it. LOL
And everyone has strong feeling about their Drs. cuz if u don't like them, u wouldn't be with them so it's good for them, but maybe not for u. I do have to say when I met my Onc. I already knew her an already liked her, I met her before (my Mom) so I was happy about her. And the same thing for my surgeon, except he does have a bedside manner of a potato, but I did tell him that and he greatly improved--so it's just a matter of who we feel we can trust and who we're comfortable with. And my big thing is saying what I want when I want and no one got mad at me.
As u can see I can't sleep so I'm talking about nothing important. I told u the county Coronor gave me the name of who he thought was a good surgeon for all of my moving organs, buut he doesn;t want to operate, it;s to risky so now I have to see another dr. to see what he can do, I know I went in the wrong order but I thought if i know who ends up on the coronors table the least he must be OK--super nice and explained every little thing and why it's not a good idea for me, but like 4 other things -"keep an eye on it" my dr. this week didn't like a couple of other things she saw so another Dr. is getting involved, So far they are all youngish, beautidul or handsome--when I was at a younger age all I remember was older thanwhen popcorn was invented and glasses with big eyebrows.
I hope everyone has a beautiful day today--it's raining now and it should be in the mid 70's today. But no big storms for a change.
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Camillegal,
Coroner?
I hope that the reason you are awake is not because of pain.....
Did I ever tell you how adorable I think you are?0 -
Camille,
Sounds like you're keeping everyone on their toes!!! I hope they manage to sort something out for you soon and that you don't get passed around from one dr to the next. But I'm sure you'll speak up and get things moving soon!!
It's mid afternoon here, temp early 80's. the kids are in school, my back is playing up, so I'm going to sit in the garden with my book after I pop some more pills!
Nicky0 -
Morning Nicky!
You too with the pain! So so sorry!
I found a beautiful picture of the cobblestone streets of Bordeaux after a rain on EarthPics and tried to post it here so you could tell us if it was the way you see it but I wasn't able to do do,
It was sooo beautiful!0 -
Thanks Ashla!
I'll be back to normal in a few days - I had my pet scan yesterday and lying flat on my back for that length of time is not good. Suffering as a result, but it'll pass
Pity you couldn't post that picture, I'd love to know what you were looking at!
Nicky0 -
camillegal - haha - we only talked about my poor little kidneys once or twice! I'm a little worried that you are chatting with the coroner though, what is up with that? I laughed where you said you were older than popcorn, just had that conversation o another thread - that I am older than pantyhose.
nicky - hope your back is better soon, the PET scan table is not comfy!
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Hi everyone--
Yes Ashla I start with the coronor to make sure alot of the Drs. patients don't end up on his table. That a better way than 3 people saying oh he's really good. Everyone goes thru the coronors office.--I told everyone before I think goofy--but the more I write the truer the statement gets. LOL I've got some new tests coming up and new Drs. and one is so excited cuz he never had work with a patient that has what I have so he must be from the University of Guatamala and graduated when he was all of 16--So I see him soon. My corornor doesn't know him (good) but says he has a good rep. My one nail just came off all the way down to the cuticle, piece by piece (it wasn't long) so this old body is literally falling apart.Special K see why I liken it to the beginning of popcorn Oh well.
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camillegal - you are hilarious!
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Camillegal!
Lol! As far as the body falling apart....ditto! I'm gonna have to wear a burka soon.. I mean no offense to anyone.....to cover up all the parts of me that I don't want to show in public!0 -
Fluff, I have Dr. Christine Kim and I adore her. On the other hand, I don't adore my coworker's wife. So maybe I just have a personality that fits Dr. Kim's :-) She is a lot like your BS, tells it to you straight. She didn't talk down to me and understood that even though I'm in medicine, I knew nothing much about breast cancer. And most importantly, she saw me for a 3 hour consult the day after I was diagnosed. That helped so much!!
And Special K, you hit the nail on the head. My coworker is the sweetest of doctors and is so brilliant, but he's always treating me. Except he has no sympathy for the wild and wooly world of arimidex. Men...
Cami--bedside manner of a potato! Har!! I have to save that one!!
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pbrain - it is funny - I went to a number of initial breast cancer related appointments directly from work, so I was in scrubs - all the docs tended to talk to me like I was a doctor, so sometimes I was completely baffled by what they were saying!
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If u go with a beanie with a propeller on u;r head u'll understand everything they're talking about--they'll even show u pictures.
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camillegal - please, please, please tell me you wore a beanie with a propeller!!!
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Camille,
I'll remember that for Tuesday when I go for the results of my pet scan!!!
Nicky0 -
Special K all right but just once cuz I was making a statement that was don't bother telling me anything, I don't want to know or understand it. Yes I did. I don't do things twice it looses it's meaning then.
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fluffqueesn
Thx I'll ask my mo dr next week after my echo.
This morning I left the house for work and mid day realized I forgot all my meds. First time ever.I just got home and they all say " If you forget to take a tablet, take one as soon as you remember. If it is almost time for your next dose, skip the missed dose." I'm not sure what to do. I think I'll skip today.
Have a great weekend!
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OMG you are all too funny!
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Beanie with a propeller! I'm dying over here~~
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cami, you were in rare form today. bedside manner of a potato! older than popcorn! beanie with a propeller! I may steal all three from you.
Pbrain -- thanks for the info, and yes you did say your friend's wife.
Ok minor vent here. THis is a little long but hopefully kind of funny. I went to this networking event last fall with a group of business people I've known for years (though not necessarily well....) The short version is, I accidentally stole someone's sunglasses. I mean they were just sitting on the counter and somehow I put them in my purse, then everyone was standing around talking about what the heck happened to someone's sunglasses, including me, and then I thought ... uh oh, I think I put them in my purse. TOTAL CHEMO BRAIN!!! So embarrassing but also funny, and the sunglasses made their way back to the owner.
Anyway there was another round with this group this week. The woman who was friends with the owner of the temporarily purloined sunglasses was there, talking to the boyfriend of a good friend of mine. He knew about my cancer, because she is a good friend of mine. Anyway this woman was saying she thought I was a kleptomaniac. My friend said that I wasn't and there were extenuating circumstances. And then her boyfriend jumped in and told this woman I barely knew that it was because I was having chemo at the time!!!! I mean what the hell, COMMON SENSE ANYONE? Thanks for volunteering my medical record (and traumatic experience, since i find the whole thing traumatic, I know the rest of you ladies are all, FUN TIMES WOO HOO) to a woman I barely know.
Exhale.
Thanks for lstening.
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Cypher I know how u take things and u feel bad sometimes, but whe u said u accidently STOLE them u got me laughing, I think he was trying to help u wasn't he. He probably didn't mean anything by it except to say u weren't u'rself---even thos it might have come out differently, besides he's a MAN--that alone should explain a lot. I really hope u don't feel bad, u'r very quiet about u'r medical life (well it always sounded like it to me, to other people) so of course I can't tell or help u on u'r feelings but I do hope u can just forget about it. First I think we've all picked up someone's elses stuff along the way so that really doesn't have anything to do with it, and they could have just said u had a lot on u'r mind at that time. And I would have just kept them and helped her look for them. But see we all handle things differently and I'm sure no one meant to hurt u. why would they--people think they'r helping alot when they say stupid things like what I'm doing now. Remember I'm on pain meds so whatever comes out plus I have no filter anyway.
I came on here also to apologize for being so flippant about the mess we're all in, I'm usually not on this topic. I try not to be anyway because u'r questions and concerns are all taken to heart. And I thought if I offended anyone I'm sorry, I really do have a quirky attitude about my stuff--from the beginning and I just don't want anyone offended--that's one of the reasons I don't visit to often because I have no info to help anyone and I honestly don't understand the info u all are so helpful with to all the women who worry so much. Beside I'm done with all the praliminary things, I've moved on to have alot of complications that to some Drs. have never seen these things. So I'm not even learning about what's going on now, I figure someone will figure it out and what to do. And I know I told u all what's going on and it's crazy to me, so my thoughts are I'll think about it tomorrow--Scarlett O'Hara, but I wish I looked like her with that tiny little 18 in waist. U are all a very caring and intelligent group of women that can see a Dr. and talk on or above their level, while I keep a sucker in my mouth that they have in the front.
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camillegal - I have never been offended, just want you to know that! You are a breath of fresh, and funny, air - love you just the way you are! I have always regarded the situation we find ourselves in as a laugh or cry - I would rather laugh!
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Thank you Special K.
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Camillegal - I agree with Special K - nothing offensive about anything you posted. You are gentle and kind, always supportive of others and rarely complaining about your own issues and, on top of that, you have an incredible sense of humor. As I read through the thread this a.m. I had a huge smile on my face with your postings - you are incredible and much smarter than you give yourself credit for. ((()))
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Cypher, I can't always follow everywhere your thoughts go, but I enjoy them whenever I can.
-From the lady of the infinitely convoluted sentences that run on forever...
P.S. My bet is that you picked up the sunglasses out of concern as a "caretaker" for another, without even realizing it.
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Cami, your attitude it wunderbar! It helps all of us who focus way too much on what has happened to us and your posts just crack me up. As we have all heard in the past from slimey friends, don't go changin' :-)
Cypher, I think I mentioned about last December 24th when I budged in a long line of shoppers at the Lands End store at a Philadelphia mall and my Ma had to gently steer me out of there and to the back. Nobody was mean or anything, but they were confused and a little annoyed as to why I would do that. My Ma just smiled at the people behind me and said "chemo brain", then I lifted up my wig to show my bald head (cause it was hot in there!) and everyone smiled. I don't see anything wrong with that. We are all human with the potential to develop cancer, so no harm, no foul. :-)
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