TRIPLE POSITIVE GROUP
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Catching up with posts today. Glad to hear all the updates. Pbrain so happy for your 10#. I am hoping for the same when I go for my next onc visit. According to my scale I am 9# down. I have really tried to stick to the low carb way of life and have been vigilant about cardio for 25-30 min a day. Lago I cracked up when I read "shit happens." I am happy that my onc is a believer of not chasing cancer. He says if I have symptoms he will do scans or tests, but otherwise no.
I too wonder about Nickey, has anyone heard from her??
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In doing a search for Nicky the last time she posted on BCO was in March, she also was on a Stage IV thread but no activity there either. I hope she is OK also
FBN - you are doing great! With my FEC I seemed to experience side effects the first two - three days, the first day about 5 hours post being the worst - very glad the Neulasta was kind to you. I never had Neulasta until after the third FEC needed to be delayed a week due to low ANC. I would get very tired about the fifth day post chemo but I think that was due to blood counts, I think the Neulasta probably helped with that for you. I found with the FEC part of chemo that I was pretty good after those first few days, worked some, went for lunches with friends, until the next cycle. Taxotere/Herceptin took more out of me when I started that combo - no nausea, just fatigue, achy especially leg pain that seemed to stick around until the next cycle. I will watch for your pictures
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I asked about Nicky on the Stage IV thread for non-stage IV people. I also asked about Aaoaao, she is another sister I am concerned about. There are additional threads concerned, and neither of these ladies are in the central address book. I am pretty sure that means no other way of contacting them. Unless someone sees the post that knows them off site.
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Me too I've been thinking about Nicky lately too, I wish she would post something or we knew how to get a hold of her.
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Good morning and that it is!! The plumber arrived last night and I am unclogged - thank goodness. I found the tea at publix and I will do that tea every evening and metamucil for awhile until I see how I am - will definitely pump those up before the next dose. Saw the insurance claim online for my first treatment - just shy of $17,000 - wow - just wow. Waiting to see how much insurance actually pays on that.
Otherwise I feel pretty good - tired, a little spacey at times - scalp a little tender where I put on my reading glasses - tingly, burning feet and hands stopped on saturday am - just a little tingly now as the afternoon progresses. Waiting to see if anything else pops up. Think I dodged mouth sores with the ice and washes. Will be icing hands, feet and mouth again next cycle
I don't know Nicky - but I am keeping her in my thoughts also.
Footballnut - you go girl!! Forget chemo at every chance you get!!
I don't seem to have any taste bud change issues yet Lots of things smell kind of bad but taste fine once i get them in my mouth lol.
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Linda - hooray for the plumber!
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Linda - I'm glad my MOs office didn't mail bills until after the insurance had cleared. It's hard to see numbers that big with dollar signs in front of them and not get twitchy.
SpecialK- I have a vague memory of the girl at Nordstrom asking me if I wanted to sign-up for something. Don't remember if it was a rewards program attached to their credit card, or just the card. We had to use our HSA card though so I couldn't do that. Rock those points and perks if it's an option!!
Can you imagine how many miles / rewards we could have earned if we could have paid for all this treatment on a rewards card and then been reimbursed by our insurance???
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McKatherine when I went through treatment I had co-pays. I would pay with my Gap card. I did earn enough for a pair of free jeans.
Linda, insurance usually has a deductible AND a yearly out of pocket max. You will hit that yearly max pretty quickly. Then you pay nothing for the rest of the year. Next year you have to reach the deductible and yearly max all over again. So glad you are unplugged What's nice about Metamucil is I found it doesn't cramp you up like some of the other stuff (like Ducilax).
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McK - I always pay my co-pay at the onc with my Delta Skymiles American Express, so I earn miles toward a trip. It somehow makes me feel better about the whole thing. I started participating in a Her2+ vaccine trial up in Washington, D.C. in 2012. I flew up on USAir for the first trip because they had the cheapest ticket (I went every three weeks for 6 months for injections, then every six months for boosters - going this summer, then the last one in December) and got a USAir credit card with enough miles after the first purchase for two trips. As I made the trips I accumulated miles so now I go up and pay with miles. I have always stayed with friends since DH was stationed at the Pentagon for nine years we still have a bunch there - so it has been fairly inexpensive to do the trial. Working the system.... I don't have the HSA option at Nordstrom since we have a no deductible, all referral, co-pay type of health insurance, but do have their card with the points rewards.
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hi all! Monday and still wired and tired at the same time! Woo hoo! When I think about the past few days I agree that I was at my worst 4-5 hours after my infusion. That was the nausea and subsequent vomiting. Next time I'll take my "just incase pill" and suggest that my nurse slow the drip down. Last Friday morning I was do wired that it felt like my eyes were in the back of my head. I couldn't read or focus. I received an updated agreement from visa and looked at it and said - yeh I'll read you another day! Lol. Today I plan to get outside and walk. It's beautiful with the sun!
I hope that you all have a wonderful day!
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football - if you had nausea that quickly you might also ask for an adjustment to your anti-nausea med given with your IV - sounds like it is not working that well. There are a variety of meds that can be used (Reglan, Zofran, Aloxi, Emend, etc. also some anti-nausea patches that are time release) and they don't all work the same, or for some, at all. I did not start my just in case med until the night of chemo, so 12 hours after infusion with the pre-med. Talk with your onc and let him/her know that you had same day vomiting.
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Yes Football, SpecialK is right...there is no need to be vomiting after chemo - your doc can find something that will stop it. Zofran worked for me, but I have a friend it did not work for and she switched to Emend, and that was the ticket!
Enjoy your walk in the sun! It's a beautiful day at my house too!
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tx geewhiz and soecialk. I did leave a msg with my nurse the day after and as suggested will mention to my MO when I see him two weeks from tomorrow
Just returned from my hour walk 3.3 miles pretty proud of myself. Now I really feel wired and tired! Funny as I was walking I felt buzzed but it was nice to see the birds and the sunshine while walking and listening to my music! I wish I lived near a beach! The scenery would be better than traffic. Oh well!
Still beautiful!
And I drank my water!!!!
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Ladies - regarding Nicky - she posted a thread in March regarding her surgery and lack of internet at the hospital. She also posted that she would be facing a second surgery. Pajim provided a link to her thread. https://community.breastcancer.org/forum/8/topic/819034?page=2#idx_52
The thread is in the Stage IV forums, so I did not post on it. Hoping she is healing and able to update soon.
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Thanks Robin.
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Yay FBN! You sound like you are doing just fine! And Trisha Ann you crack me up with your healthy diet. I lived on toast, cheese sandwiches and ice cream during my chemo. Hence I am now at Weight Watchers ;-) Congrats to you GIGIF! I've stalled at my 10#, but I'm going to keep counting points and it will budge. Maybe by August?
Linda, the plumber, you slay me. I'm still laughing over here!
Robin, thanks. Maybe Nicky just needed a break. But I do hope she surfaces and let's us know she is doing well. She's a sweetie!
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Robin, my daughter graduated from college in California while I was in the middle of chemo. My white counts were low but still on the edge of normal. I had booked everyone's flight except mine.
Since I was getting weekly chemo, onc scheduled everything around the trip. I got chemo and steroids in the morning and hopped a plane a day ahead of everyone else while I was on my steroid high. By the time everyone else rolled in, I had caught up and was just mildly tired. I did avoid people mostly and graduation was outside so it wasn't so had. Bought a beach unrelated and spent 5 great days in the sun.
Prain, glad to know others have the same yoga concentration issue, lol.
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Fluff - that sounds like a whirlwind! I am lucky in a certain respect. My daughter suggested tix to come visit for 10 days as a graduation present. She said my going there would be too rushed, this was prior to being placed on house arrest by MO's office. So we will have her to ourselves for 10 days vs. a rushed weekend, which my MO would have made me cancel. Met with RO today and mapping tomorrow to start rads around the 19th or 20th. Still on weekly Herceptin until my counts come up. Thursday will be 3 weeks PFC. Hoping that my counts are high enough to switch to every three weeks. I have everything crossed fingers, toes, eyes.....Would like to be able to get out and about a little when my daughter is here. If not, we can hang by the pool. I also bought a 100 count colored pencil set and 3 of the "Color Me Your Way" books. Color Me Your Way Link Hoping it will help with the focus issues while still accessing my crafty side. I seem to have misplaced that and picked up a case of ADD. Chemo brain does not help when trying to do counted x-stitch or knitting. PBrain - I think this relates to the yoga issue. I love deep breathing and visualization exercises, but am too easily distracted at the moment. Similar to the psych evals where you say the first thing that comes into your head when you hear a word.... and then it multiplies upon itself in a 6 degrees of separation kind of way. Ie: bird- nest...hey, there's a nest on my patio, wow, I haven't sat on the patio in awhile. I should go use the rocking chair. I wonder if the neighbor would like to visit and sit out here? Maybe I should make some coffee...it's too late for coffee it will keep me up, how much water did I drink today? So bird is related to drinking water. And I now have a case of "verbal/visual" diarrhea.
Wow, run on paragraph anyone????
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robin - my DD graduated from the U of S FL last May. They did offer a DVD of the grad ceremony afterward, along with the official photo of her getting her diploma. Maybe you could order that so you can watch her walk?
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SpecialK - I think she has asked her father to film it for us. If not, that is a wonderful suggestion and I will be checking the University's website! Thank you!
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robin - we were in the nosebleed seats because my Arimidex'ed knee could only climb so fast! We could have filmed but everyone on the stage looked like ants, lol! The nice thing about the professional DVD is that they are shooting from close up so you can see everything, facial expressions, etc.! I think it was pretty affordable too - the photos definitely were.
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Even though I’ve beenfollow the blog, I haven’t posted in a while. You ladies are my inspiration! I started my chemo regime on April 25th.The first couple of days were fine, then got the Nuelasta shot and it went pretty rough after that for about 3 days. Not sure if it was the delayed response for the chemo, the shot or combination. Not fun AT ALL. Was wondering if I’d made a huge mistake. I did start feeling a lot better at the one-week mark, aside for pretty bad aches in my bones, but now I have something new. I noticed this morning my hands were really swollen. Although it subsided some, it’s still there and my feet are swollen too. Anyone know what this could be from? I know I’ve been drinking tons of water, but I’m really not eliminating the way I normally would after drinking so much.
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efcjax call your MO. I too retained fluid on chemo but you sound really bad. You may need something for it. Steroids kept the fluid off for me but I was only on that when I did chemo. Also note the first nuelasta shot is usually the worst. The bone pain if from that. I was working out in the gym the day after chemo but like you and many others day 3 the SE kicked in for a few days.
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Thanks. I spoke to one of the nurses and she asked me if I had a rash. I said I do have a small rash on my hand. She's checking with the doc and will call me back. She said the Taxotere sometimes causes swelling.
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Yes Taxotere does. It was winter when I did chemo. My boots wouldn't zip over my calves and some of my shoes were too tight. I would put on 4+ lbs every time the steriods wore off.
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I think tomorrow is specialk's surgery. I have you in my thoughts and hope that everything goes perfect tomorrow.
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Robin, definitely check the website. I just remembered that I could have watched it live on the computer.
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To all with graduating children, I'm sure they know how much you love them whether you are there or not. They love you too, and want you to be well. So my hope is that you won't be guilty if you aren't. Robin, I love your description of chemo brain. Exactly!
Ok, I just want to ramble for a moment. I have been trying to figure out what the breast cancer experience has taught me and have been worrying that it has been not much. I'd love to say "oh, now I appreciate life so much more and smell roses and chase butterflies", but I don't think that is it.
What I think it has given to me is an intolerance for negative people. I'm done with being around self-imposed unhappiness and I'm done with trying to fix others. I'm imaginative and optimistic and can easily think outside of a box. I see the world as an amazing, beautiful, cruel and exciting place. I can't stomach all these naysayers and complainers. I don't want anymore drama. I don't want to save people. ok...I'm done. What do you guys think has changed in you? I'd love to hear it since for me it seems subtle, but maybe not.
I wanted to be more grateful, but I think I already was. However, bending over backwards for miserable people, nope, no more. I'm done. And I'm glad.
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What I've learned is when people say "you don't understand until you go through it yourself" not just cancer but anything I understand what the mean.
I've always been happy about life. I'm still the same gal (when not on Anastrozole)
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My MO wrote me a prescription for a diuretic. I'll see them on Friday for my herceptin infusion. She said if it wasn't better they'd continue it every other day.
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