TRIPLE POSITIVE GROUP
Comments
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Robin hang in there.
Linda love the photo
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Robin, that is a lot to deal with all at once. Stay strong. Linda, my daughter gave me a similar look Sunday.
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Robin, do you have a nurse navigator in your program? You sure as heck need one with all of these docs at the same time! Many prayers for tomorrow, but thank you Ashla for the reassurance that all of us are probably just fine. I do think I have PTSD in some ways and McKath, I too struggle with insomnia, which is just not normal for me. I've always been a sleep hound!
Linda and Jax, how can you have so much hair after TCH? I only had one treatment and was bald as could be within 2 weeks. Shiny chrome dome.
Susan, you crack me up! If only the rrhoids were from a long statistics conference...I'm going to buy tucks tomorrow.
12 lbs at Weight Watchers in 12 weeks. Not bad for a 54 year old on Arimidex! Now if it would stop raining and let me get out there to garden, I could knock off a few more!!!
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robin - wow! A LOT going on - keep us posted.
Linda - lol!
Efc - you look so cute!
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Linda and efc - great photos!!
Pbrain, I had one initially, but was sent the name of an ACS navigator to transfer to. I am literally working out of 4 different hospitals. 3 of which are in the same group. Not sure who would be my navigator at this point. Each hospital has their own from their cancer treatment program. I just make my doctors call each other. My husband will take care of figuring out a way to get in my Herceptin this week. He will contact my MO, they did not get back to me, after finding out my echo was mid-day. This week turned into a scheduling nightmare, but thankfully the doctors took care of it with confirmation calls to me. I had my calendar with me in my medical binder. Find it easier to keep track when I bring it along.
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Pbrain - only 15 days out from first treatment - hair was going yesterday in little groups so my hubby and daughter buzzed it - I am sure it will be gone in about a week but it was starting to itch and this has helped.
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Linda... Great picture!
Pbrain...54!!! You ARE kidding!! You look marvelous.
Robin... Good luck!
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linda, efc.... You both look great buzzed. Amazing how many of us never thought to have short hair but look fab in it!
Hi Camille!
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day 16 for me and my hair is hanging I there although my scalp is itchy and irritated at times. Cold compresses help
I am starting to lose hair "down there" as my mom would say and the hair on my legs seems to have stopped growing but there is still stubble
The fun never ends!! Lol
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Not yet for BC but being called a benchmark discovery in cancer treatment: http://www.startribune.com/lifestyle/health/259155541.html?page=all&prepage=1&c=y#continue
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hi footballnut!
My mo told me hair loss starts @ 21 day mark but for me it was more than 6 weeks and when it came back it came back slower . Hated that scalp feeling. Was like having an elastic band in your hair too long and too tight!
Yeah ... You're gonna have a full body Brazillian soon. Even 2 years post chemo I don't have to shave my underarms and legs as often!
There is actually one really great cosmetic effect of chemo...your skin will most likely look positively radiant post chemo!
Hang in! Let's go Rangers!
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ashla tx for sharing! Can't wait for the full body bald!! Just jn time for summer!! Lol
Can't wait until "after chemo ".
I must admit that time has been passing very quickly. Can't believe that next wed is round 2!!!!'
And yes - LETS GO RANGERS !!
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My DH really seemed to like the full Brazilian. Sorry footballnut… given where I'm from and where I live I have to go with Bruins & Hawks (but I will admit hockey is my least liked sport. More basketball, football and even baseball is better than hockey).
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lago I was cheering for the bruins but unfortunately they didn't get it done !
Football is my fave sport so thrilled that my treatment will be fine in time god me to focus on PEYTON manning and his broncos plus drew BREES and his saints!!
Funny my DH doesn't seem to mind the body bald future either. Men!! Lol
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for an hysterical take on hairless ness , read this! It is very, very in right now!
Warning: a little bit risqué !
Waxing our way to the ER
Grooming accidents are exploding. When did we start hating pubes?
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ashla - that article was too funny! Emergency room visits??? Lol. Loved it ! Aren't we the lucky ones!!!!!! Lol
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"Now if you’ll excuse me, I’ll be under my desk, rocking slowly back and forth and crying as I think about this."!!!!
Btw....Mary Elizabeth Williams is a stage 4 melanoma survivor who received experimental treatment in a clinical trial is is so far NED !
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Ashla - lmao, that article was exactly what I needed! Thank you!
Question regarding tamoxifen vs. xeloda/arimidex. BS was asking and I will speak with MO tomorrow. We have been going in circles on the ooph decision. I have read some threads that tamoxifen is not as effective as AIs with lobular. Mine is mixed but much more L than D. Positives, negatives???
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Robin the AI's in general are a little bit more effective than Tamoxifen. I believe my MO prefers AI because Tamoxifen, although rare can have a SE of uterine cancer and a bit more effective. Granted I don't know how she feels about removing ovaries. I will tell you this though a friend of mine (met on bc.org) got a BMX around the same time as me. 2 years later she was diagnosed mets in her bones. I think from a new ILC under her reconstruction in her good breast. (She did butt boobs). She was on Tamoxifen. Granted this is rare but it makes me wonder.
And you can always suppressed the ovaries with Luprin so you can take one of the AIs. You might see if this is an option for you as well.
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Thanks ladies for the encouragement on the "hair cut." I had really long hair and have had most of my life, so it was pretty traumatic. I'm wearing a wig when I go out. Takes a lot of getting used to. Living in Jacksonville, Florida, it gets really hot hear in the late spring and summer, so I hope I can handle it when I start sweating - which is a lot more often now, as most of you know. I'm so glad I found this forum. It's been a God send of information (the real stuff, not what the docs tell you). You are all so strong. It gives me hope I can get through this. My second treatment is scheduled for tomorrow, but I've developed a chest cold, at least I think that's what it is. Not sure if I can face it with not feeling the greatest already. Wish me luck.
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Ahhh, Princess, thank you! There are many days I feel all of my 54 years. But I have an online connection to my cancer center and they posted my blood test results from my recent MO visit. Every single test is within normal limits! I was so thrilled. My CBC was totally whacked during treatment and for a year after final chemo.
Jax, I feel your pain with the sweating. But I was growing peach fuzz during a windy Spring on the prairie (last year) and I was walking to my car after work one evening and the wig blew off and fell in a mud puddle (after I chased it for a few, which was mortifying because there were lots of people around). Then, and right then, as I picked up the wig, it started to hail. I had little hail balls bouncing off my chrome dome. I just slunk into my car...tee hee.
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Oh Pbrain, sorry - but the image of you chasing your wig and then the final indignity of hail on your bald head made me laugh. Probably wasn't funny for you at the time though.
You do look great for 54 years!
Trishxoxo
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OMG Pbrain that wig story made me laugh so hard that I cried and not taxotears either!!
Here is a pict of me in the wig I wore to work today.
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lookin' good Linda!
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OMG Great wig linda!0 -
linda - you look great!
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You look great Linda! I had one wig that I wore twice lol. I have curly hair, and couldn't get a wig that looked sort of like my hair. A good friend laughed at me when she saw me in my wig (I know not nice) and I couldn't really feel comfortable in it after that. Wore lots of hats instead.
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Linda that's a wig. Wow!
Pbrain I still can't believe you are a year older than me. Always thought you were younger
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ok ladies, what gets rid of a furry mouth? I've tried baking soda & salt and biotene. Sucking on candy helps temporarily.
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Pbrain, how mortifying! My worst fear. Had a long workday and had to wear the wig 12 hours. Couldn't wait to get it off. Linda, yours looks very natural. I did get quite a few compliments on my hair tonight from folks who didn't know. Made me feel better about it.
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